Civic Intelligence

Tatton Brown Rahman Syndrome Community Inc

EIN 81-2216511 • 501(c)3 • Stanfordville, NY

Profile

TBRS Community aims to support all families affected by TBRS and advance research toward interventions.

122 Hunns Lake RoadStanfordville, NY 12581

www.tbrsyndrome.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

56th percentile

0.03x

Higher debt load relative to assets than 56% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

67th percentile

0.08x

Higher debt load relative to revenue than 67% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

8th percentile

-48%

Higher net margin than 8% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

79th percentile

$78,930

Higher top officer pay than 79% of similar nonprofits.

Top officer pay equals 29.2% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

14th percentile

-20%

Faster asset growth than 14% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

24th percentile

-12%

Faster revenue growth than 24% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets56th percentile

Assets

Down

$691,528

Down $176,916 (-20%) from 2023

Liabilities

Down

$20,956

Down $48,023 (-70%) from 2023

Net Assets

Down

$670,572

Down $128,893 (-16%) from 2023

Operations
Liabilities / Revenue67th percentileNet Margin8th percentile

Revenue

Down

$270,669

Down $38,333 (-12%) from 2023

Expenses

Up

$399,562

Up $65,818 (+20%) from 2023

Net Income

Down

-$128,893

Down $104,151 (-421%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth14th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.0M$500K$0Assets 2020: $140,714Liabilities 2020: $0Net Assets 2020: $140,7142020Assets 2021: $422,765Liabilities 2021: $6,831Net Assets 2021: $415,9342021Assets 2022: $832,865Liabilities 2022: $8,658Net Assets 2022: $824,2072022Assets 2023: $868,444Liabilities 2023: $68,979Net Assets 2023: $799,4652023Assets 2024: $691,528Liabilities 2024: $20,956Net Assets 2024: $670,5722024

Highlighted filing

2024

Assets$691,528
Liabilities$20,956
Net Assets$670,572
Open 2024 Filing

Operations Trend

Revenue Growth24th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$200K$0-$200KRevenue 2020: $97,655Expenses 2020: $24,397Net Income 2020: $73,2582020Revenue 2021: $337,246Expenses 2021: $62,026Net Income 2021: $275,2202021Revenue 2022: $165,360Expenses 2022: $157,087Net Income 2022: $8,2732022Revenue 2023: $309,002Expenses 2023: $333,744Net Income 2023: -$24,7422023Revenue 2024: $270,669Expenses 2024: $399,562Net Income 2024: -$128,8932024

Highlighted filing

2024

Revenue$270,669
Expenses$399,562
Net Income-$128,893
Open 2024 Filing

Filings

Most recent year

2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$691,528
Liabilities
$20,956
Net assets
$670,572
Revenue
$270,669
Expenses
$399,562
Net income
-$128,893
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.92$0.21$6.71$2.71$4.00$1.29
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.68$0.69$7.99$3.09$3.34$0.25
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.33$0.09$8.24$1.65$1.57$0.08
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.23$0.07$4.16$3.37$0.62$2.75
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.41$0.00$1.41$0.98$0.24$0.73
Latest Detailed Filing

The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2022 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Sep 4, 2023
Return Version
2022v5.0
Gross Receipts
$165,360
Mission and Program Overview

Mission

The tatton brown rahman syndrome community aims to support all families affected by tbrs and advance research toward interventions.

TBRS Community aims to support all families affected by TBRS and advance research toward interventions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$422,765$627,616▲ $204,851
Pledges and Grants Receivable-$205,249-
Total Assets$422,765$832,865▲ $410,100
Liabilities
Other Liabilities$6,831$8,658▲ $1,827
Total Liabilities$6,831$8,658▲ $1,827
Net Assets / Fund Balance
Net Assets With Donor Restrictions-$459,476-
Net Assets Without Donor Restrictions$415,934$364,731▼ $51,203
Total Net Assets Fund Balance$415,934$824,207▲ $408,273
Total Liabilities and Net Assets / Fund Balance$422,765$832,865▲ $410,100
Compensation and Service Providers
Top Officer Pay79th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Jill KiernanExecutive DirectorFT$78,134$78,134

Board Members and Trustees

NameTitle
Kacee RichterPresident
Kerry GrensVice President
Erin RookerMarketing Manager
Jennifer York IsaacsSecretary
Thomas WatsonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$163,592
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$1,768
All Other Contributions
$163,592
Change in Net Assets
$8,273
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$105,841
Other Expenses$41,246
Total Fundraising Expense$18,897
Grants and Similar Amounts Paid$10,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$60,097$8,701$9,336$78,134
Other Salaries and Wages$14,561$762$750$16,073
Fees for Services Other$1,419$6,973$4,000$12,392
Grants to Domestic Orgs$10,000--$10,000
Payroll Taxes$8,452$442$435$9,329
Office Expenses$435$3,244$2,947$6,626
Information Technology$6,149--$6,149
Travel$4,033--$4,033
Insurance-$2,777-$2,777
Advertising$2,300-$100$2,400
Pension Plan Contributions$1,807$95$93$1,995
Payment Travel Entrtnmnt Publicly Ofcl$1,376--$1,376
Other Expenses$856$797$250$856
Other Employee Benefits$281$15$14$310
Total Functional Expenses$114,324$23,866$18,897$157,087
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Uplifting AthletesDoylestown, PA501c3-$10,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Payroll Liabilities$5,516
Direct Deposit Payable$3,142
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Committee meeting documentation Part VI line 8B

“All committees are chaired by a Board Member who reports regularly at the Board meetings, disclosing discussions and suggestions for action. No committee currently can act without the Boards approval.”

Form 990 governing body review Part VI line 11

“Annual tax returns are offered to each director for review and they are give 48 hours from receipt to suggest corrections or changes.”

Conflict of interest policy compliance Part VI line 12C

“The Organization has a conflict of interest policy which is reviewed by the board and discussed at the annual meeting, any member with a conflict of interest submits it in a written format for presentation to the Board.”

Governing documents etc available to public Part VI line 19

“Any tax or financial information must be requested from the Organization. The Organization will then respond with the information.”

Filing and Contact Details

Filer

Filer Name
Tatton Brown Rahman Syndrome Community Inc
EIN
81-2216511
Address
122 Hunns Lake Road, Stanfordville, NY 12581

Signing Officer

Name
Jill Kiernan
Title
Executive Direc
Phone
8452643016
Signed
2023-09-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jill Kiernan
Formed
2017
Legal Domicile
Ny
Voting Board Members
5
Independent Board Members
5
Employees
2
Volunteers
30

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

Part XI response or note to any line in Part XI

“Part XI - Prior Period AdjustmentsThe prior period adjustment reflects a $400,000 pledge that was recorded during the cash to accrual conversion.”

Raw XML Appendix387 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/BackupWthldComplianceInd0true
IRS990/BooksInCareOfDetail/PersonNm0Tatton Brown Rahman Syndrome Commun
IRS990/BooksInCareOfDetail/PhoneNum08452643016
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0122 Hunns Lake Road
IRS990/BooksInCareOfDetail/USAddress/CityNm0Stanfordville
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0NY
IRS990/BooksInCareOfDetail/USAddress/ZIPCd012581
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IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt09336
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt08701
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IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
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IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0165360
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc01. Built the Patient-Led TBRS Collaborative Research Network to over 200 scientists, who utilize research tools and resources established by the TBRS Community to create patient focused research agendas, focused on treatment development and cures for TBRS.2. Hosted the TBRS Family Conference and the TBRS Collaborative Research Network Conferences, to provide information and support to families and to encourage collaboration toward treatment development in the scientific community.3. Provided support and information directly to our patient community through the TBRS Education and Outreach Series, TBRS Parent and Caregiver Support Group, TBRS Social Group, and TBRS Cares Program.
IRS990/DescribedInSection501c3Ind0true
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IRS990/EmployeeCnt02
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IRS990/FeesForServicesOtherGrp/TotalAmt012392
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt310.00
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt55.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
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IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/PersonNm0Jill Kiernan
IRS990/Form990PartVIISectionAGrp/PersonNm1Jennifer York Isaacs
IRS990/Form990PartVIISectionAGrp/PersonNm2Thomas Watson
IRS990/Form990PartVIISectionAGrp/PersonNm3Kacee Richter
IRS990/Form990PartVIISectionAGrp/PersonNm4Kerry Grens
IRS990/Form990PartVIISectionAGrp/PersonNm5Erin Rooker
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt078134
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/TitleTxt0Executive Director
IRS990/Form990PartVIISectionAGrp/TitleTxt1Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt2Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt3President
IRS990/Form990PartVIISectionAGrp/TitleTxt4Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt5Marketing Manager
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02017
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IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
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IRS990/GrantAmt010000
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IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0165360
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IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
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IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
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IRS990/InformationTechnologyGrp/TotalAmt06149
IRS990/InsuranceGrp/ManagementAndGeneralAmt02777
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IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt03
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IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0false
IRS990/MinutesOfGoverningBodyInd0true
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IRS990/MoreThan5000KToOrgInd0false
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IRS990/NetUnrelatedBusTxblIncmAmt00
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IRS990/OtherExpensesGrp/Desc1Care Packages
IRS990/OtherExpensesGrp/Desc2State Registrations
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IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
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IRS990ScheduleA/PublicOrganization170Ind0X
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0All committees are chaired by a Board Member who reports regularly at the Board meetings, disclosing discussions and suggestions for action. No committee currently can act without the Boards approval.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Annual tax returns are offered to each director for review and they are give 48 hours from receipt to suggest corrections or changes.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The Organization has a conflict of interest policy which is reviewed by the board and discussed at the annual meeting, any member with a conflict of interest submits it in a written format for presentation to the Board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Any tax or financial information must be requested from the Organization. The Organization will then respond with the information.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Part XI - Prior Period AdjustmentsThe prior period adjustment reflects a $400,000 pledge that was recorded during the cash to accrual conversion.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Committee meeting documentation Part VI line 8b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Part XI response or note to any line in Part XI
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ReturnHeader/BuildTS02023-04-26 12:10:37Z
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ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Executive Direc
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ReturnHeader/BusinessOfficerGrp/SignatureDt02023-09-04
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Tatton Brown Rahman Syndrome Community Inc
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ReturnHeader/Filer/USAddress/AddressLine1Txt0122 Hunns Lake Road
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt07625 Wisconsin Avenue
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Bethesda
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ReturnHeader/PreparerPersonGrp/PreparationDt02023-09-04
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ReturnHeader/ReturnTs02023-09-04T04:01:42-04:00
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ReturnHeader/TaxPeriodBeginDt02022-01-01
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ReturnHeader/TaxYr02022

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