Civic Intelligence

Project Lyme

990 • Fiscal year 2021 • EIN 81-1138289

Jan 01, 2021 to Dec 31, 2021 • Filed on Jun 10, 2022

229 E 85th Street Suite 38New York, NY 10028

(207) 370-9313

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

29th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Liabilities / Revenue

29th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Net Margin

16th percentile

-12%

Higher net margin than 16% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Top Officer Pay

52nd percentile

$0

Higher top officer pay than 52% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Asset Growth

14th percentile

-6.8%

Faster asset growth than 14% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Revenue Growth

4th percentile

-63%

Faster revenue growth than 4% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Assets

Down

$968,998

Down $70,205 (-6.8%) from 2020

Net Assets

Down

$968,998

Down $70,205 (-6.8%) from 2020

Liabilities

Flat

$0

Flat from 2020

Revenue

Down

$575,104

Down $966,810 (-63%) from 2020

Expenses

Down

$645,309

Down $338,672 (-34%) from 2020

Net Income

Down

-$70,205

Down $628,138 (-113%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2017: $20,086Liabilities 2017: $0Net Assets 2017: $20,0862017Assets 2018: $518,679Liabilities 2018: $101,474Net Assets 2018: $417,2052018Assets 2019: $482,270Liabilities 2019: $13,773Net Assets 2019: $468,4972019Assets 2020: $1,039,203Liabilities 2020: $0Net Assets 2020: $1,039,2032020Assets 2021: $968,998Liabilities 2021: $0Net Assets 2021: $968,9982021Assets 2022: $981,327Liabilities 2022: $0Net Assets 2022: $981,3272022Assets 2023: $1,182,606Liabilities 2023: $0Net Assets 2023: $1,182,6062023Assets 2024: $907,936Liabilities 2024: $249Net Assets 2024: $907,6872024

Highlighted filing

2021

Assets$968,998
Liabilities$0
Net Assets$968,998

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2017: $189,379Expenses 2017: $172,424Net Income 2017: $16,9552017Revenue 2018: $767,403Expenses 2018: $370,284Net Income 2018: $397,1192018Revenue 2019: $310,458Expenses 2019: $441,002Net Income 2019: -$130,5442019Revenue 2020: $1,541,914Expenses 2020: $983,981Net Income 2020: $557,9332020Revenue 2021: $575,104Expenses 2021: $645,309Net Income 2021: -$70,2052021Revenue 2022: $790,982Expenses 2022: $778,653Net Income 2022: $12,3292022Revenue 2023: $982,451Expenses 2023: $781,172Net Income 2023: $201,2792023Revenue 2024: $546,084Expenses 2024: $5,051,695Net Income 2024: -$4,505,6112024

Highlighted filing

2021

Revenue$575,104
Expenses$645,309
Net Income-$70,205
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Jun 10, 2022
Return Version
2021v4.0
Gross Receipts
$616,285
Mission and Program Overview

Mission

Project lyme's mission is to eradicate the epidemic of lyme disease and other tick-borne illnesses by spreading awareness, providing educational resources, funding peer-reviewed research, and supporting advocacy for solutions to end the suffering. Since 2016, project lyme has challenged misinformation about diagnosis and treatment, advocated for patients' rights, and built a community for lyme patients as well as their loved ones.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,039,203$968,998▼ $70,205
Total Assets$1,039,203$968,998▼ $70,205
Liabilities
Other Liabilities$0$0→ $0
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$928,662$908,457▼ $20,205
Net Assets With Donor Restrictions$110,541$60,541▼ $50,000
Total Net Assets Fund Balance$1,039,203$968,998▼ $70,205
Total Liabilities and Net Assets / Fund Balance$1,039,203$968,998▼ $70,205
Compensation and Service Providers

Board Members and Trustees

NameTitle
Jennifer WeisBoard Co-chair
Nan KurzmanBoard Co-chair
David RothExecutive Committee Chair
Bob ForesterBoard Member
Brooke StoddardBoard Member
Drew GoldmanBoard Member
Heidi SchecterBoard Member
Isabel RoseBoard Member
Kathleen KatzmannBoard Member
Kristen FarrellBoard Member
Melissa BellBoard Member
Nina LeveneBoard Member
Susan GoldenbergBoard Member
Kim DicksteinSecretary
Mark WeberTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$481,572
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$93,532
All Other Contributions
$481,572
Change in Net Assets
$-70,205

Audited Revenue Reconciliation

Revenue per Audited Statements
$616,287
Revenue Not Reported on Financial Statements
$-41,183
Revenue Not Reported on Form 990
$2,959,854
Other Revenue Adjustments
$-41,183
Total Revenue per Audited Statements
$3,576,141
Total Revenue per Form 990
$575,104
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$445,696
Salaries, Compensation, and Employee Benefits$149,513
Total Fundraising Expense$117,204
Grants and Similar Amounts Paid$50,100
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$230,752$1,723$83,105$315,580
Other Salaries and Wages$59,920$58,849$17,600$136,369
Grants to Domestic Orgs$50,100--$50,100
Other Expenses$50,000$0$0$50,000
Office Expenses$6,149$14,259$11,972$32,380
Fees for Services Accounting-$18,250-$18,250
Information Technology$1,996$15,592-$17,588
Payroll Taxes$2,264$5,033$4,527$11,824
Advertising$9,052--$9,052
Travel$1,176$347-$1,523
Other Employee Benefits-$1,320-$1,320
Insurance-$600-$600
Fees for Services Legal-$498-$498
Conferences and Meetings-$225-$225
Total Functional Expenses$411,409$116,696$117,204$645,309

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,646,345
Expenses Not Reported on Form 990$2,959,854
Expenses per Audited Statements$686,491
Total Expenses per Form 990$645,309
Expenses Not Reported on Financial Statements$-41,182
Other Expense Adjustments$-41,182
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Bay Area Lyme FoundationPortola Valley, CA501(c)3-$50,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$134,350
Fundraising Direct Expenses$41,181
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$134,350$134,350$0$134,350
Total Events$134,350$134,350$41,181$93,169
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

Form 990 is circulated among the officers and directors for their review and approval prior to submission.

Form 990, Part VI, Section B, Line 12C

Conflicts are reviewed and resolved by the board in keeping with the best interests of the organization.

Form 990, Part VI, Section C, Line 19

Governing documents are provided to the public within a reasonable time after a formal request.

Filing and Contact Details

Filer

Filer Name
Project Lyme
EIN
81-1138289
Phone
2073709313
Address
229 E 85TH STREET SUITE 38, NEW YORK, NY 10028

Signing Officer

Name
Nan Kurzman
Title
Board Co-chair
Phone
2073709313
Signed
2022-06-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Noah Johnston
Formed
2015
Legal Domicile
Me
Voting Board Members
9
Independent Board Members
9
Employees
2
Volunteers
30

Preparer

Firm
Easy Office Dba Jitasa
Address
1750 W FRONT STREET SUITE 200, BOISE, ID 83702
Preparer
Jeremy Cork
Phone
2082874777
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

CONTRACTORS - GENERAL.

Financial Statement Notes

Schedule D, Part X, Line 2

Project lyme is exempt from federal income tax under section 501(c)(3) of the internal revenue code and therefore has made no provision for federal income taxes in the accompanying financial statements.

Schedule D, Part XI, Line 4B

Special event: contra revenue

Schedule D, Part XII, Line 4B

Special event: direct expenses

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IRS990/MissionDesc0PROJECT LYME'S MISSION IS TO ERADICATE THE EPIDEMIC OF LYME DISEASE AND OTHER TICK-BORNE ILLNESSES BY SPREADING AWARENESS, PROVIDING EDUCATIONAL RESOURCES, FUNDING PEER-REVIEWED RESEARCH, AND SUPPORTING ADVOCACY FOR SOLUTIONS TO END THE SUFFERING. SINCE 2016, PROJECT LYME HAS CHALLENGED MISINFORMATION ABOUT DIAGNOSIS AND TREATMENT, ADVOCATED FOR PATIENTS' RIGHTS, AND BUILT A COMMUNITY FOR LYME PATIENTS AS WELL AS THEIR LOVED ONES.
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IRS990/NetAssetsOrFundBalancesBOYAmt01039203
IRS990/NetAssetsOrFundBalancesEOYAmt0968998
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt093169
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt093169
IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0928662
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0908457
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NoncashContributionsAmt021740
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt011972
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt014259
IRS990/OfficeExpensesGrp/ProgramServicesAmt06149
IRS990/OfficeExpensesGrp/TotalAmt032380
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01320
IRS990/OtherEmployeeBenefitsGrp/TotalAmt01320
IRS990/OtherExpensesGrp/Desc0MEMBERSHIP DUES - ORGANIZATIONS
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ProgramServicesAmt050000
IRS990/OtherExpensesGrp/TotalAmt050000
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt00
IRS990/OtherRevenueTotalAmt0363
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt017600
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt058849
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt059920
IRS990/OtherSalariesAndWagesGrp/TotalAmt0136369
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04527
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt05033
IRS990/PayrollTaxesGrp/ProgramServicesAmt02264
IRS990/PayrollTaxesGrp/TotalAmt011824
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0NOAH JOHNSTON
IRS990/PriorPeriodAdjustmentsAmt00
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH: Project Lyme invests money into research via grants to our partner, Bay Area Lyme Foundation. The main focus of our research investments are diagnostics and therapeutics, given the unreliability of current Lyme testing as well as the lack of effective treatment for Chronic cases.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0160362
IRS990/ProgSrvcAccomActy2Grp/GrantAmt050000
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01605798
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0538896
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt0246566
IRS990/PYOtherRevenueAmt0-63884
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0557933
IRS990/PYSalariesCompEmpBnftPaidAmt0143519
IRS990/PYTotalExpensesAmt0983981
IRS990/PYTotalProfFndrsngExpnsAmt055000
IRS990/PYTotalRevenueAmt01541914
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-70205
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt00
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt0111404
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt056500
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt0167904
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0MISCELLANEOUS REVENUE
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0Schedule A, Part III, Line 12
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0481573
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt01605797
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0307161
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0398255
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0143525
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02936311
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt0134350
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt0106500
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt053289
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0294139
IRS990ScheduleA/InvestmentIncomeCYPct00
IRS990ScheduleA/InvestmentIncomePYPct00
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt0363
IRS990ScheduleA/OtherIncome509Grp/TotalAmt0363
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.94792
IRS990ScheduleA/PublicSupportPY509Pct00.97906
IRS990ScheduleA/PublicSupportTotal509Amt03062546
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt0111404
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt056500
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt00
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt0167904
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0615923
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt01712297
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0307161
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0398255
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0196814
IRS990ScheduleA/Total509Grp/TotalAmt03230450
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0616286
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt01712297
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0307161
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0398255
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0196814
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt03230813
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt02959854
IRS990ScheduleD/DonatedServicesUseFcltsAmt02959854
IRS990ScheduleD/ExpensesNotReportedAmt02959854
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt0-41182
IRS990ScheduleD/ExpensesSubtotalAmt0686491
IRS990ScheduleD/FederalIncomeTaxLiabilityAmt00
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/InvestmentExpensesNotIncld2Amt00
IRS990ScheduleD/InvestmentExpensesNotIncldAmt00
IRS990ScheduleD/LossesReportedAmt00
IRS990ScheduleD/NetUnrealizedGainsInvstAmt00
IRS990ScheduleD/OtherExpensesIncludedAmt00
IRS990ScheduleD/OtherExpensesNotIncludedAmt0-41182
IRS990ScheduleD/OtherRevenueAmt00
IRS990ScheduleD/OtherRevenuesNotIncludedAmt0-41183
IRS990ScheduleD/PriorYearAdjustmentsAmt00
IRS990ScheduleD/RecoveriesPriorYearGrantsAmt00
IRS990ScheduleD/RevenueNotReportedAmt02959854
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0-41183
IRS990ScheduleD/RevenueSubtotalAmt0616287
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0PROJECT LYME IS EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND THEREFORE HAS MADE NO PROVISION FOR FEDERAL INCOME TAXES IN THE ACCOMPANYING FINANCIAL STATEMENTS.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1SPECIAL EVENT: CONTRA REVENUE
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2SPECIAL EVENT: DIRECT EXPENSES
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Schedule D, Part X, Line 2

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