Civic Intelligence

Project Lyme

990 • Fiscal year 2019 • EIN 81-1138289

Jan 01, 2019 to Dec 31, 2019 • Filed on Jun 12, 2020

Organization ProfileWWW.PROJECTLYME.ORG
229 E 85th Street No 38New York, NY 10028

(207) 230-4960

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

75th percentile

0.03x

Higher debt load relative to assets than 75% of similar nonprofits.

2019 filings • NTEE G • <$500k nonprofits • Source year 2019

Liabilities / Revenue

81st percentile

0.04x

Higher debt load relative to revenue than 81% of similar nonprofits.

2019 filings • NTEE G • <$500k nonprofits • Source year 2019

Net Margin

10th percentile

-42%

Higher net margin than 10% of similar nonprofits.

2019 filings • NTEE G • <$500k nonprofits • Source year 2019

Top Officer Pay

83rd percentile

$0

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • NTEE G • <$500k nonprofits • Source year 2019

Asset Growth

30th percentile

-7.0%

Faster asset growth than 30% of similar nonprofits.

2019 filings • NTEE G • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

10th percentile

-60%

Faster revenue growth than 10% of similar nonprofits.

2019 filings • NTEE G • <$500k nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets75th percentile

Assets

Down

$482,270

Down $36,409 (-7.0%) from 2018

Net Assets

Up

$468,497

Up $51,292 (+12%) from 2018

Liabilities

Down

$13,773

Down $87,701 (-86%) from 2018

Revenue And Expenses
Liabilities / Revenue81st percentileNet Margin10th percentile

Revenue

Down

$310,458

Down $456,945 (-60%) from 2018

Expenses

Up

$441,002

Up $70,718 (+19%) from 2018

Net Income

Down

-$130,544

Down $527,663 (-133%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth30th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2017: $20,086Liabilities 2017: $0Net Assets 2017: $20,0862017Assets 2018: $518,679Liabilities 2018: $101,474Net Assets 2018: $417,2052018Assets 2019: $482,270Liabilities 2019: $13,773Net Assets 2019: $468,4972019Assets 2020: $1,039,203Liabilities 2020: $0Net Assets 2020: $1,039,2032020Assets 2021: $968,998Liabilities 2021: $0Net Assets 2021: $968,9982021Assets 2022: $981,327Liabilities 2022: $0Net Assets 2022: $981,3272022Assets 2023: $1,182,606Liabilities 2023: $0Net Assets 2023: $1,182,6062023Assets 2024: $907,936Liabilities 2024: $249Net Assets 2024: $907,6872024

Highlighted filing

2019

Assets$482,270
Liabilities$13,773
Net Assets$468,497
Open 2019 Filing

Operations Trend

Revenue Growth10th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2017: $189,379Expenses 2017: $172,424Net Income 2017: $16,9552017Revenue 2018: $767,403Expenses 2018: $370,284Net Income 2018: $397,1192018Revenue 2019: $310,458Expenses 2019: $441,002Net Income 2019: -$130,5442019Revenue 2020: $1,541,914Expenses 2020: $983,981Net Income 2020: $557,9332020Revenue 2021: $575,104Expenses 2021: $645,309Net Income 2021: -$70,2052021Revenue 2022: $790,982Expenses 2022: $778,653Net Income 2022: $12,3292022Revenue 2023: $982,451Expenses 2023: $781,172Net Income 2023: $201,2792023Revenue 2024: $546,084Expenses 2024: $5,051,695Net Income 2024: -$4,505,6112024

Highlighted filing

2019

Revenue$310,458
Expenses$441,002
Net Income-$130,544
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Jun 12, 2020
Return Version
2019v5.1
Gross Receipts
$377,369
Mission and Program Overview

Mission

Project lyme's mission is to eradicate the epidemic of lyme disease and other tick-borne illnesses by spreading awareness, providing educational resources, funding peer-reviewed research, and supporting advocacy for solutions to end the suffering. Since 2016, project lyme has challenged misinformation about diagnosis and treatment, advocated for patients' rights, and built a community for lyme patients as well as their loved ones.

Nearly 30 years ago, a proper diagnosis and antibiotic treatment saved the life of project lyme founder, heather hearst. Decades later, the patients she meets with and hears about are still fighting a silent battle. Focused on preventention and early diagnosis, project lyme, a 501(c)3 nonprofit organization, is putting a spotlight on lyme disease and other tick-borne illnesses. Together, let's create a dialouge that makes lyme disease awareness commonplace.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$599,042$468,497▼ $130,545
Cash and Non-Interest-Bearing Accounts$700,516$446,569▼ $253,947
Savings and Temporary Cash Investments-$28,700-
Prepaid Expenses and Deferred Charges-$7,001-
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$700,516$482,270▼ $218,246
Liabilities
Accounts Payable and Accrued Expenses$101,474$13,773▼ $87,701
Total Liabilities$101,474$13,773▼ $87,701
Net Assets / Fund Balance
Total Net Assets Fund Balance$599,042$468,497▼ $130,545
Total Liabilities and Net Assets / Fund Balance$700,516$482,270▼ $218,246
Compensation and Service Providers
Top Officer Pay83rd percentile

Board Members and Trustees

NameTitle
Jennifer WeisCo-chairman
Nan KurzmanCo-chairman
Brooke StoddardDirector
David RothDirector
Drew GoldmanDirector
Isabel RoseDirector
Nina LeveneDirector
Robert ForsterDirector
Whitney De Hosson MarriottDirector
Kim DicksteinSecretary
Mark WeberTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$307,161
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$3,297
All Other Contributions
$307,161
Change in Net Assets
$-130,544
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$259,223
Salaries, Compensation, and Employee Benefits$116,279
Grants and Similar Amounts Paid$65,500
Total Fundraising Expense$48,992
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Advertising$147,900$1,000$44,900$193,800
Current Officers, Directors, Trustees, and Key Employees-$96,154-$96,154
Grants to Domestic Orgs$65,500--$65,500
Office Expenses-$20,845-$20,845
Fees for Services Accounting-$20,025-$20,025
Other Employee Benefits-$13,113-$13,113
Conferences and Meetings-$11,472-$11,472
Fees for Services Other-$3,616$3,592$7,208
Payroll Taxes-$7,012-$7,012
Travel-$2,637-$2,637
Insurance-$2,224-$2,224
Fees for Services Legal-$492-$492
Other Expenses-$20$500$20
Total Functional Expenses$213,400$178,610$48,992$441,002
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$70,208
Fundraising Direct Expenses$66,911
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Project Lyme Gala$70,200$70,200$6,911$63,289
Total Events$70,200$70,200$66,911$3,289
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Form 990 is circulated among the officers and directors for their review and approval.”

Form 990, Part VI, Section B, Line 12C

“Conflicts are reviewed and resolved by the board in keeping with the best interests of the organization.”

Form 990, Part VI, Section B, Line 15

“Director salary was set by the board of directors.”

Form 990, Part VI, Section C, Line 19

“Governing documents are provided to the public within a reasonable time after a formal request.”

Filing and Contact Details

Filer

Filer Name
Project Lyme
EIN
81-1138289
Phone
2072304960
Address
229 E 85TH STREET NO 38, NEW YORK, NY 10028

Signing Officer

Name
Nan Kurzman
Title
Co-chair
Phone
9148198141
Signed
2020-06-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Nan Kurzman
Formed
2015
Legal Domicile
Me
Voting Board Members
11
Independent Board Members
11
Employees
1
Volunteers
0

Preparer

Firm
Soper Soper & Weinel Llp
Address
35 EAST SEVENTH STREET SUITE 505, CINCINNATI, OH 45202
Preparer
Jeff Bauer
Phone
5132415417
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IRS990/MissionDesc0NEARLY 30 YEARS AGO, A PROPER DIAGNOSIS AND ANTIBIOTIC TREATMENT SAVED THE LIFE OF PROJECT LYME FOUNDER, HEATHER HEARST. DECADES LATER, THE PATIENTS SHE MEETS WITH AND HEARS ABOUT ARE STILL FIGHTING A SILENT BATTLE. FOCUSED ON PREVENTENTION AND EARLY DIAGNOSIS, PROJECT LYME, A 501(C)3 NONPROFIT ORGANIZATION, IS PUTTING A SPOTLIGHT ON LYME DISEASE AND OTHER TICK-BORNE ILLNESSES. TOGETHER, LET'S CREATE A DIALOUGE THAT MAKES LYME DISEASE AWARENESS COMMONPLACE.
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IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990/ScheduleJRequiredInd00
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990 IS CIRCULATED AMONG THE OFFICERS AND DIRECTORS FOR THEIR REVIEW AND APPROVAL.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1CONFLICTS ARE REVIEWED AND RESOLVED BY THE BOARD IN KEEPING WITH THE BEST INTERESTS OF THE ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2DIRECTOR SALARY WAS SET BY THE BOARD OF DIRECTORS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3GOVERNING DOCUMENTS ARE PROVIDED TO THE PUBLIC WITHIN A REASONABLE TIME AFTER A FORMAL REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
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ReturnHeader/FilingSecurityInformation/IPTm014:53:17

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$482,270
Liabilities
$13,773
Net assets
$468,497
Revenue
$310,458
Expenses
$441,002
Net income
-$130,544
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.91$0.00$0.91$0.55$5.05$4.51
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$0.00$1.18$0.98$0.78$0.20
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.98$0.00$0.98$0.79$0.78$0.01
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.97$0.00$0.97$0.58$0.65$0.07
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.04$0.00$1.04$1.54$0.98$0.56
2019Detailed filing. Detailed filing data is available for this year.$0.48$0.01$0.47$0.31$0.44$0.13
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.52$0.10$0.42$0.77$0.37$0.40
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.02$0.00$0.02$0.19$0.17$0.02