Civic Intelligence

Target Als Foundation Inc.

990 • Fiscal year 2025 • EIN 81-0756743

Jan 01, 2025 to Dec 31, 2025

Organization ProfileTARGETALS.ORG

View Organization Page

244 Madison Ave 1025New York, NY 10016

(646) 592-2541

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

18th percentile

0.01x

Higher debt load relative to assets than 18% of similar nonprofits.

2025 filings • $100M-$250M nonprofits • Source year 2025

Liabilities / Revenue

17th percentile

0.06x

Higher debt load relative to revenue than 17% of similar nonprofits.

2025 filings • $100M-$250M nonprofits • Source year 2025

Net Margin

75th percentile

23%

Higher net margin than 75% of similar nonprofits.

2025 filings • $100M-$250M nonprofits • Source year 2025

Top Officer Pay

61st percentile

$445,255

Higher top officer pay than 61% of similar nonprofits.

Top officer pay equals 1.3% of source-year revenue.

2025 filings • $100M-$250M nonprofits • Source year 2025

Asset Growth

54th percentile

6.2%

Faster asset growth than 54% of similar nonprofits.

2025 filings • $100M-$250M nonprofits • Annualized from 2024 to 2025

Revenue Growth

5th percentile

-36%

Faster revenue growth than 5% of similar nonprofits.

2025 filings • $100M-$250M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets18th percentile

Assets

Up

$136,912,637

Up $8,000,875 (+6.2%) from 2024

Net Assets

Up

$135,059,017

Up $10,498,930 (+8.4%) from 2024

Liabilities

Down

$1,853,620

Down $2,498,055 (-57%) from 2024

Revenue And Expenses
Liabilities / Revenue17th percentileNet Margin75th percentile

Revenue

Down

$33,261,985

Down $18,483,791 (-36%) from 2024

Expenses

Down

$25,618,714

Down $1,489,344 (-5.5%) from 2024

Net Income

Down

$7,643,271

Down $16,994,447 (-69%) from 2024

Historical Trend

Balance Sheet Trend

Asset Growth54th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$200M$150M$100M$50M$0Assets 2015: $1Liabilities 2015: $02015Assets 2019: $5,760,183Liabilities 2019: $217,296Net Assets 2019: $5,542,8872019Assets 2020: $27,026,641Liabilities 2020: $1,189,047Net Assets 2020: $25,837,5942020Assets 2021: $26,527,264Liabilities 2021: $1,501,602Net Assets 2021: $25,025,6622021Assets 2022: $115,562,468Liabilities 2022: $1,749,390Net Assets 2022: $113,813,0782022Assets 2023: $180,572,961Liabilities 2023: $3,048,779Net Assets 2023: $177,524,1822023Assets 2024: $128,911,762Liabilities 2024: $4,351,675Net Assets 2024: $124,560,0872024Assets 2025: $136,912,637Liabilities 2025: $1,853,620Net Assets 2025: $135,059,0172025

Highlighted filing

2025

Assets$136,912,637
Liabilities$1,853,620
Net Assets$135,059,017
Open 2025 Filing

Operations Trend

Revenue Growth5th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$100M$50M$0-$50MRevenue 2015: $1Expenses 2015: $0Net Income 2015: $12015Revenue 2019: $5,489,621Expenses 2019: $5,462,803Net Income 2019: $26,8182019Revenue 2020: $27,270,423Expenses 2020: $7,004,450Net Income 2020: $20,265,9732020Revenue 2021: $6,977,665Expenses 2021: $7,789,597Net Income 2021: -$811,9322021Revenue 2022: $98,381,069Expenses 2022: $9,271,989Net Income 2022: $89,109,0802022Revenue 2023: $79,570,641Expenses 2023: $15,859,537Net Income 2023: $63,711,1042023Revenue 2024: $51,745,776Expenses 2024: $27,108,058Net Income 2024: $24,637,7182024Revenue 2025: $33,261,985Expenses 2025: $25,618,714Net Income 2025: $7,643,2712025

Highlighted filing

2025

Revenue$33,261,985
Expenses$25,618,714
Net Income$7,643,271
Open 2025 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2025 to Dec 31, 2025
Signed
Apr 17, 2026
Return Version
2025v4.1
Gross Receipts
$48,375,695
Mission and Program Overview

Mission

Our mission is to break down barriers to als research to find effective treatments. By uniting academia, the pharma and biotech industry, government, venture capital, related nonprofits, and the als community, we aim to overcome the challenges that have long hindered progress, bringing hope and tangible advancements to those affected by this devastating disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$68,783,323$83,184,297▲ $14,400,974
Pledges and Grants Receivable$49,311,907$45,694,945▼ $3,616,962
Savings and Temporary Cash Investments$8,351,865$4,679,056▼ $3,672,809
Cash and Non-Interest-Bearing Accounts$2,137,916$3,278,742▲ $1,140,826
Other Notes and Loans Receivable, Net$250,000--
Prepaid Expenses and Deferred Charges$76,751$75,597▼ $1,154
Total Assets$128,911,762$136,912,637▲ $8,000,875
Liabilities
Grants Payable$4,318,332$1,828,304▼ $2,490,028
Accounts Payable and Accrued Expenses$33,343$25,316▼ $8,027
Total Liabilities$4,351,675$1,853,620▼ $2,498,055
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$81,346,621$91,694,347▲ $10,347,726
Net Assets With Donor Restrictions$43,213,466$43,364,670▲ $151,204
Total Net Assets Fund Balance$124,560,087$135,059,017▲ $10,498,930
Total Liabilities and Net Assets / Fund Balance$128,911,762$136,912,637▲ $8,000,875

Asset Categories

AssetBook ValueDepreciationBasis
Other Securities$83,184,297--
Compensation and Service Providers
Top Officer Pay61st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Manish RaisinghaniPresidentFT$404,414$40,841$445,255
Amy EastonVice President, Research GroupsFT$299,898$68,984$368,882
Kenneth DevaneyChief Operating OfficerFT$293,699$35,305$329,004
Jessica ChapmanChief Development OfficerFT$240,468$68,984$309,452
Yuliya RzadChief Grants OfficerFT$206,142$43,617$249,759
Christine Prouty AranyosDirector of PhilanthropyFT$165,242$62,251$227,493
Laura DugomAssociate Director Clinical ResearchFT$168,857$29,063$197,920
Stephanie IshooDirector of Marketing & CommunicationsFT$165,555$27,314$192,869
Stephanie IshooDirector of Marketing & Communicatio-$165,555$27,314$192,869

Board Members and Trustees

NameTitle
Daniel L DoctoroffBoard Chair
Alisa DoctoroffBoard Member
Allison JaffinBoard Member
Andy BerndtBoard Member
Brad S KarpBoard Member
Carol HoBoard Member
Chris HerndersonBoard Member
John DunlopBoard Member
Richard HargreavesBoard Member
Sarah SheikhBoard Member
Stacy WeningerBoard Member
Story LandisBoard Member
Zach W HallBoard Member
Eric DaneBoard Member (as of 12/25)
Revenue and Support

Revenue Composition

Contributions and Grants
$29,724,385
Program Service Revenue
$0
Investment Income
$3,535,375
Other Revenue
$2,225
All Other Contributions
$29,724,385
Change in Net Assets
$7,643,271

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded16$6,226,324Fair Market Value (FMV)
Total Noncash Contributions16$6,226,324-

Audited Revenue Reconciliation

Revenue per Audited Statements
$33,085,394
Revenue Not Reported on Financial Statements
$176,591
Revenue Not Reported on Form 990
$2,855,659
Total Revenue per Audited Statements
$35,941,053
Total Revenue per Form 990
$33,261,985
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$18,765,868
Salaries, Compensation, and Employee Benefits$3,855,667
Other Expenses$2,997,179
Total Fundraising Expense$1,758,767
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$13,067,691--$13,067,691
Foreign Grants$5,698,177--$5,698,177
Other Salaries and Wages$425,646$1,249,279$405,754$2,080,679
Conferences and Meetings$1,289,195$8,575$1,844$1,299,614
Current Officers, Directors, Trustees, and Key Employees$350,438$329,004$291,555$970,997
Advertising--$802,482$802,482
Other Employee Benefits$77,981$326,462$94,671$499,114
Fees for Services Other-$194,765$63,487$258,252
Payroll Taxes$48,967$104,303$47,573$200,843
Fees for Service Investment Mgmnt Fees-$176,591-$176,591
Occupancy-$143,162-$143,162
Pension Plan Contributions$21,282$62,464$20,288$104,034
Office Expenses$6,004$76,414$16,614$99,032
Travel$20,974$58,708$14,499$94,181
Fees for Services Accounting-$91,859-$91,859
Fees for Services Legal-$32,006-$32,006
Total Functional Expenses$21,006,355$2,853,592$1,758,767$25,618,714

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$25,618,714
Expenses per Audited Statements$25,442,123
Total Expenses per Audited Statements$25,442,123
Expenses Not Reported on Financial Statements$176,591
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Dignity HealthPhoenix, CA501(c)3Scientific Research$800,313
University of California San FranciscoSan Francisco, CA-Scientific Research$731,472
Mayo Clinic JacksonvilleSouth Jacksonville, FLGovernmentScientific Research$579,510
Columbia UniversityNew York, NY501(c)3Scientific Research$575,116
Regents of the University of California at San DiegoLa Jolla, CA501(c)3Scientific Research$461,402
Northwestern UniversityChicago, IL501(c)3Scientific Research$438,968
Emory UniversityAtlanta, GA501(c)3Scientific Research$386,594
The Massachusetts General HospitalBoston, MA501(c)3Scientific Research$375,000
The University of Alabama at BirminghamBirmingham, AL501(c)3Scientific Research$298,217
University of California Santa BarbaraSanta Barbara, CA-Scientific Research$290,000
University of Southern CaliforniaLos Angeles, CA-Scientific Research$260,000
Regents of the University of MichiganAnn Arbor, MI501(c)3Scientific Research$255,000
John Hopkins UniversityBaltimore, MD501(c)3Scientific Research$253,263
Washington UniversitySt Louis, MO-Scientific Research$213,046
Banner Sun Health Research InstitutePhoenix, AZ501(c)3Scientific Research$202,642
Board of Trustees of the University of IllinoisUrbana, IL501(c)3Scientific Research$200,000
Nucyrna Therapeutics IncFramingham, MA501(c)3Scientific Research$200,000
Qur AlisCambridge, MA501(c)3Scientific Research$200,000
Regents of the University of California at IrvineIrvine, CA501(c)3Scientific Research$200,000
Stanford UniversityPalo Alto, CA501(c)3Scientific Research$185,000
Regents University of CaliforniaWest Los Angeles, CA501(c)3Scientific Research$150,000
Ladder Therapeutics IncSan Carlos, CA501(c)3Scientific Research$140,000
Twilight NeuroBeverly, MA501(c)3Scientific Research$129,400
Neurodex IncNatick, MA501(c)3Scientific Research$128,200
Harvard UniversityCambridge, MA501(c)3Scientific Research$125,000
Saint Louis UniversitySt Louis, MO501(c)3Scientific Research$125,000
Translational Genomics Research InstitutePhoenix, AZ501(c)3Scientific Research$125,000
University of PittsburghPittsburgh, PA-Scientific Research$125,000
Cedars-sinai Medical CenterLos Angeles, CA501(c)3Scientific Research$116,550
National Institute of HealthBethesda, MD501(c)3Scientific Research$110,300
Trace NeuroscienceSan Francisco, CA501(c)3Scientific Research$105,000
Nova Southeastern UniversityFort Lauderdale, FL501(c)3Scientific Research$103,087
Georgetown UniversityWashington, DC501(c)3Scientific Research$103,074
University of Vermonth and State Agricultural CollegeBurlington, VT-Scientific Research$101,736
Denali TherapeuticsSan Francisco, CA501(c)3Scientific Research$100,000
Synoligo BiotechnologiesMorrisville, NC501(c)3Scientific Research$100,000
Twist BioscienceSan Francisco, CA-Scientific Research$100,000
University of Massachusetts Chan Medical SchoolWorcester, MA-Scientific Research$100,000
Yale UniversityNew Haven, CT-Scientific Research$100,000
University of Puerto RicoSan Juan, PR-Scientific Research$93,789
Thomas Jefferson UniversityPhiladelphia, PA501(c)3Scientific Research$89,962
Baylor College of MedicineHouston, TX501(c)3Scientific Research$60,000
Princeton UniversityPrinceton, NJ501(c)3Scientific Research$60,000
Purdue UniversityWest Lafayette, IN501(c)3Scientific Research$60,000
Neural Stem Cell InstituteRensselaer, NY501(c)3Scientific Research$49,273
Rome TherapeuticsBoston, MA501(c)3Scientific Research$0
Trustees of the University of PennsylvaniaPhiladelphia, PA501(c)3Scientific Research$0

International Summary

Offices
0
Employees
0
Spending
$5,698,177

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
East Asia and the PacificGrants to Recipients & Program ServicesData Engine & Postmortem Tissue Core00$4,793,803
Europe (including Iceland & Greenland)Grants to RecipientsIn Vivo Target Validation Projects, Data Engine, Postmortem Tissue Core, Longitudinal Biofluids Core, Reagents Core00$605,978
Central America and the CaribbeanGrants to Recipients, Program ServicesData Engine00$213,943
Middle East and North AfricaGrants to Recipients & Program ServicesData Engine, Postmortem Tissue Core, Reagents Core00$84,453
South AsiaGrants to Recipients & Program ServicesData Engine00-
Sub-saharan AfricaProgram ServicesData Engine00-
North AmericaProgram ServicesData Engine, Postmortem Tissue Core, Reagents Core00-
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Two individuals serving as officers/directors of the organization are spouses.”

Form 990, Part VI, Section B, Line 11B

“The form 990 is prepared by the external auditors and reviewed by management. Once all are satisfied with the form, it is finalized and a copy is sent to all board executive committee members for their review prior to submission.”

Form 990, Part VI, Section B, Line 12C

“The board of directors are asked annually to review the conflict of interest policy, disclose any potential conflicts of interest and sign-off that they understand their obligations as a member of the board. The conflict of interest policy states that periodic review be performed evaluating whether partnership, joint ventures or the like conform with the organization's written policies regarding unauthorized private benefit and excess benefit transactions.”

Form 990, Part VI, Section B, Line 15

“The board conducts a performance review and evaluation of the president & ceo. The review also establishes the individual's compensation. This process involves the evaluation of the individual and a review of compensation of comparable positions obtained from compensation surveys. The board's deliberation and decision is discussed in executive sessision. The president & ceo establishes the compensation of the senior management team and reviews the performance evaluations and recommended compensation with the board. The evaluations and compensation are discussed with the board although no vote of approval of the president & ceo's decision is required.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents (articles of incorporation and by-laws) available upon request by electronic mail. The target als conflict of interest policy is available on our website: https://targetals.org/our-team/. Similarly, annual financial statements are available here: https://targetals.org/financial-reports/.”

Filing and Contact Details

Filer

Filer Name
Target Als Foundation Inc
EIN
81-0756743
Phone
6465922541
Address
244 MADISON AVE 1025, NEW YORK, NY 10016

Signing Officer

Name
Kenneth Devaney
Title
Treasurer
Phone
6465922541
Signed
2026-04-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kenneth Devaney
Formed
2015
Legal Domicile
Ny
Voting Board Members
14
Independent Board Members
14
Employees
18
Volunteers
36

Preparer

Firm
Kahn Litwin Renza & Co Ltd
Address
951 NORTH MAIN STREET, PROVIDENCE, RI 02904
Preparer
Patrick J Martin
Phone
4012742001
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The foundation is exempt from income taxes as a public charity under section 501(c)(3) of the internal revenue code (irc). Management believes that the foundation operates in a manner consistent with its tax-exempt status at both the state and federal levels. The foundation annually files irs form 990, return of organization exempt from income tax, reporting various information that the irs uses to monitor the activities of tax-exempt entities. These tax returns are subject to review by the taxing authorities, generally for a period of three years after they were filed. The foundation currently has no tax examinations in progress.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0OUR MISSION IS TO BREAK DOWN BARRIERS TO ALS RESEARCH TO FIND EFFECTIVE TREATMENTS. BY UNITING ACADEMIA, THE PHARMA AND BIOTECH INDUSTRY, GOVERNMENT, VENTURE CAPITAL, RELATED NONPROFITS, AND THE ALS COMMUNITY, WE AIM TO OVERCOME THE CHALLENGES THAT HAVE LONG HINDERED PROGRESS, BRINGING HOPE AND TANGIBLE ADVANCEMENTS TO THOSE AFFECTED BY THIS DEVASTATING DISEASE.
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IRS990/Desc0RESEARCH WE FUND:TARGET ALS IS THE LARGEST AND MOST IMPACTFUL PRIVATE FUNDER OF ALS RESEARCH WORLDWIDE. THANKS TO THE GENEROUS TRUST PLACED IN US BY OUR DONORS, WE CAN DIRECT RESOURCES TO THE MOST PROMISING IDEAS AND EMERGING SCIENTIFIC LEADERS ACROSS THE GLOBE. OUR FUNDED PROJECTS HAVE A HIGH SUCCESS RATE, DELIVERING MEANINGFUL RESULTS TO ADVANCE IDEAS FROM EARLY TO LATE STAGE RESEARCH. IN 2025, WE CONTINUED TO EXPAND FUNDING OPPORTUNITIES, DRIVING NEARLY $12M INTO INNOVATION ACROSS 151 GRANTS IN THREE CRITICAL AREAS:UNDERSTANDING ALS BIOLOGY: ADVANCING INSIGHTS INTO THE ROOT CAUSES OF DISEASE TO IDENTIFY NEW DRUG TARGETS.ACCELERATING DRUG DISCOVERY: SUPPORTING PROOF-OF-CONCEPT STUDIES THAT PAVE THE WAY TOWARD CLINICAL TRIALS.DEVELOPING BIOMARKERS: ENABLING EARLIER DIAGNOSIS, IDENTIFYING ALS SUBTYPES, AND MONITORING DISEASE PROGRESSION WITH PRECISIONEVERY GRANT THAT TARGET ALS FUNDS IS TIED TO A DELIBERATE STRATEGY AND A LONG-RANGE VISION FOR THE FIELD, ENSURING THAT PROMISING IDEAS MOVE THROUGH THE FULL RESEARCH PATHWAY: UNCOVERING DISEASE BIOLOGY, IDENTIFYING AND REFINING NEW THERAPEUTIC TARGETS OR BIOMARKERS, VALIDATING THEM IN RIGOROUS MODELS, GENERATING TRANSLATIONAL DATA, AND PREPARING THE STRONGEST CANDIDATES FOR CLINICAL DEVELOPMENT. OUR FUNDING ALLOCATION REFLECTS WHERE THE STRONGEST IDEAS EMERGE. THE DISTRIBUTION OF OUR FUNDING ISN'T SET BY QUOTAS OR PERCENTAGES. IT'S SHAPED BY WHERE THE MOST COMPELLING SCIENCE IS HAPPENING. EACH YEAR, WE INVEST IN THE PROPOSALS WITH THE CLEAREST BIOLOGICAL RATIONALE, THE STRONGEST EVIDENCE, AND THE GREATEST POTENTIAL TO ADVANCE THE FIELD. RESEARCH WE ENABLE:TARGET ALS CONTINUES TO BREAK DOWN BARRIERS TO PROGRESS BY OFFERING NO-STRINGS-ATTACHED ACCESS TO CRITICAL TOOLS AND RESOURCES THROUGH OUR RESEARCH CORES. THESE SHARED RESOURCES ADDRESS LONGSTANDING CHALLENGES IN ALS RESEARCH THAT HAVE HISTORICALLY SLOWED DISCOVERY: LIMITED ACCESS, HIGH COSTS, AND LACK OF STANDARDIZATION. THE RESEARCH CORES ACCELERATE DRUG DISCOVERY AND BIOMARKER DEVELOPMENT WHILE FOSTERING COLLABORATION ACROSS THE GLOBAL ALS COMMUNITY. IN 2025, TARGET ALS INVESTED OVER $8M TO EMPOWER SCIENTISTS WITH THE MATERIALS, DATA, AND INFRASTRUCTURE THEY NEED TO DRIVE PROGRESS FROM THE BENCH TO THE CLINIC. FROM OUR POSTMORTEM TISSUE CORE TO THE LONGITUDINAL BIOFLUIDS CORE POWERED BY OUR GLOBAL NATURAL HISTORY STUDY (GNHS) AND OPEN-ACCESS DATA ENGINE, TARGET ALS PROVIDES RESEARCHERS WORLDWIDE WITH STATE-OF-THE-ART BIOSAMPLES, DATASETS, ANTIBODIES, AND MORE, WITH NO REACHTHROUGH ON INTELLECTUAL PROPERTY (IP). THESE TOOLS ARE AVAILABLE TO BOTH ACADEMIA AND INDUSTRY, ENSURING THAT SCIENTIFIC BREAKTHROUGHS CAN MOVE SWIFTLY AND COLLABORATIVELY TOWARD THERAPIES FOR PEOPLE LIVING WITH ALS. TO DATE, MORE THAN 1,750 PROJECTS HAVE RELIED ON THESE RESOURCES, SPANNING BASIC BIOLOGY, TARGET VALIDATION, BIOMARKER DISCOVERY, AND THERAPEUTIC DEVELOPMENT. AND THE MOMENTUM IS ONLY GROWING: OVER 500 RESEARCHERS HAVE ACCESSED OUR DATA ENGINE, WHILE GLOBAL CONSORTIA OF PREEMINENT SCIENTISTS ARE WORKING TOGETHER WITH TARGET ALS FUNDS TO SHARE DATA, REPLICATE FINDINGS, AND AMPLIFY IMPACT.RESEARCH WE CONDUCT:ALS IS A DISEASE THAT AFFECTS PEOPLE OF EVERY RACE AND ETHNICITY AROUND THE WORLD. HOWEVER, CLINICAL TRIALS ENROLL PRIMARILY PEOPLE OF WHITE, EUROPEAN DESCENT RESULTING IN A BIASED, INCOMPLETE VIEW OF DISEASE BIOLOGY ACROSS THE ALS GLOBAL POPULATION. THE ALS GLOBAL RESEARCH INITIATIVE (AGRI) IS THE ONLY COMPREHENSIVE, GLOBAL RESEARCH EFFORT THAT BRINGS TOGETHER TWO COMPLEMENTARY CLINICAL STUDIES DESIGNED TO UNCOVER THE CAUSES OF ALS AND IDENTIFY NEW BIOMARKERS THAT CAN DIAGNOSE THE DISEASE EARLIER, TRACK ITS PROGRESSION, AND PREDICT OUTCOMES. THESE STUDIES PROVIDE RESEARCHERS UNPRECEDENTED ACCESS TO PATIENT DATA AND BIOSAMPLES WORLDWIDE, RAPIDLY ACCELERATING NEW DISCOVERIES AND DRIVING PROGRESS TOWARD MORE EFFECTIVE THERAPIES. ULTIMATELY, INCLUSIVE RESEARCH STRENGTHENS SCIENTIFIC VALIDITY, IMPROVES PATIENT OUTCOMES, AND HELPS ENSURE THAT BREA
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IRS990/Form990PartVIISectionAGrp/TitleTxt16CHIEF DEVELOPMENT OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt17VICE PRESIDENT, RESEARCH GROUPS
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IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR OF PHILANTHROPY
IRS990/Form990PartVIISectionAGrp/TitleTxt20ASSOCIATE DIRECTOR CLINICAL RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR OF MARKETING & COMMUNICATIONS
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IRS990/MissionDesc0OUR MISSION IS TO BREAK DOWN BARRIERS TO ALS RESEARCH TO FIND EFFECTIVE TREATMENTS. BY UNITING ACADEMIA, THE PHARMA AND BIOTECH INDUSTRY, GOVERNMENT, VENTURE CAPITAL, RELATED NONPROFITS, AND THE ALS COMMUNITY, WE AIM TO OVERCOME THE CHALLENGES THAT HAVE LONG HINDERED PROGRESS, BRINGING HOPE AND TANGIBLE ADVANCEMENTS TO THOSE AFFECTED BY THIS DEVASTATING DISEASE.
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Filings

Displayed year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$136,912,637
Liabilities
$1,853,620
Net assets
$135,059,017
Revenue
$33,261,985
Expenses
$25,618,714
Net income
$7,643,271
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$137$1.85$135$33.3$25.6$7.64
2024Detailed filing. Detailed filing data is available for this year.$129$4.35$125$51.7$27.1$24.6
2023Detailed filing. Detailed filing data is available for this year.$181$3.05$178$79.6$15.9$63.7
2022Detailed filing. Detailed filing data is available for this year.$116$1.75$114$98.4$9.27$89.1
2021Detailed filing. Detailed filing data is available for this year.$26.5$1.50$25.0$6.98$7.79$0.81
2020Detailed filing. Detailed filing data is available for this year.$27.0$1.19$25.8$27.3$7.00$20.3
2019Detailed filing. Detailed filing data is available for this year.$5.76$0.22$5.54$5.49$5.46$0.03
2015Summary only. Only limited summary data is available for this year.$0.00$0.00$0.00$0.00$0.00