Liabilities / Assets
53rd percentile
Higher debt load relative to assets than 53% of similar nonprofits.
990 • Fiscal year 2018 • EIN 74-2485813
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
53rd percentile
Higher debt load relative to assets than 53% of similar nonprofits.
Liabilities / Revenue
53rd percentile
Higher debt load relative to revenue than 53% of similar nonprofits.
Net Margin
65th percentile
Higher net margin than 65% of similar nonprofits.
Top Officer Pay
71st percentile
Higher top officer pay than 71% of similar nonprofits.
Top officer pay equals 9.2% of source-year revenue.
Asset Growth
69th percentile
Faster asset growth than 69% of similar nonprofits.
Revenue Growth
71st percentile
Faster revenue growth than 71% of similar nonprofits.
Assets
Up$607,168
Up $60,197 (+11%) from 2017
Net Assets
Up$580,430
Up $70,030 (+14%) from 2017
Liabilities
Down$26,738
Down $9,833 (-27%) from 2017
Revenue
Up$652,367
Up $105,196 (+19%) from 2017
Expenses
Up$582,337
Up $106,445 (+22%) from 2017
Net Income
Down$70,030
Down $1,249 (-1.8%) from 2017
To provide assistance to families affected by sturge-weber syndrome and port wine birthmark conditions.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $446,571 | $515,634 | ▲ $69,063 |
| Savings and Temporary Cash Investments | $75,241 | $79,965 | ▲ $4,724 |
| Pledges and Grants Receivable | $10,826 | - | - |
| Land, Buildings, and Equipment, Net | $4,415 | $7,646 | ▲ $3,231 |
| Prepaid Expenses and Deferred Charges | $8,945 | $3,923 | ▼ $5,022 |
| Accounts Receivable | $50 | - | - |
| Total Assets | $546,971 | $607,168 | ▲ $60,197 |
| Other Assets Total | $923 | - | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $26,571 | $26,738 | ▲ $167 |
| Grants Payable | $10,000 | - | - |
| Total Liabilities | $36,571 | $26,738 | ▼ $9,833 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $448,000 | $580,430 | ▲ $132,430 |
| Temporarily Rstr Net Assets | $62,400 | - | - |
| Total Net Assets Fund Balance | $510,400 | $580,430 | ▲ $70,030 |
| Total Liabilities and Net Assets / Fund Balance | $546,971 | $607,168 | ▲ $60,197 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $7,646 | $17,726 | $25,372 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Karen L Ball | President/ce | FT | $59,773 | $59,773 |
| Name | Title |
|---|---|
| Kris Sadens | Board Chair |
| Crystal Elliers | Vice Chair |
| Lisa Peterson | Director |
| Woody Crouch | Director |
| Jeffrey Needham | Secretary |
| Steve Peltier | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $388,721 |
| Salaries, Compensation, and Employee Benefits | $143,616 |
| Grants and Similar Amounts Paid | $50,000 |
| Total Fundraising Expense | $30,089 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $100,642 | - | - | $100,642 |
| Fees for Services Other | $44,448 | $23,892 | $4,060 | $72,400 |
| Other Salaries and Wages | $55,812 | $7,674 | $6,278 | $69,764 |
| Current Officers, Directors, Trustees, and Key Employees | $47,818 | $6,575 | $5,380 | $59,773 |
| Grants to Domestic Individuals | $50,000 | - | - | $50,000 |
| Advertising | $13,198 | $13,198 | $6,598 | $32,994 |
| Office Expenses | $23,177 | $6,067 | $1,663 | $30,907 |
| All Other Expenses | $22,799 | $2,251 | $1,803 | $26,853 |
| Information Technology | $13,619 | $1,250 | $625 | $15,494 |
| Other Expenses | $12,810 | - | - | $12,810 |
| Occupancy | $6,324 | $3,449 | $1,725 | $11,498 |
| Payroll Taxes | $8,099 | $1,101 | $875 | $10,075 |
| Fees for Services Accounting | $7,763 | $913 | $457 | $9,133 |
| Pension Plan Contributions | $2,828 | $389 | $318 | $3,535 |
| Insurance | $2,389 | $281 | $140 | $2,810 |
| Depreciation Depletion | $1,874 | $500 | $125 | $2,499 |
| Other Employee Benefits | $375 | $52 | $42 | $469 |
| Total Functional Expenses | $484,656 | $67,592 | $30,089 | $582,337 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $582,337 |
| Total Expenses per Audited Statements | $582,337 |
| Total Expenses per Form 990 | $582,337 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $48,045 |
| Fundraising Gross Income | $26,402 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Annual Awards D | $165,777 | $26,402 | $48,045 | $-21,643 |
| Total Events | $165,777 | $26,402 | $48,045 | $-21,643 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| Brian Fisher | Brother of CEO | Contract Employee | No | $57,500 |
“A draft copy of the form 990 was provided to the board prior to filing with the irs.”
“The board considers requests for copies of governing documents, policies, and financial statements on a case by case basis.”
“Impacting daily living and care. The houston home office staff and remote office staff support all the above programs and projects and regularly meet to ensure strategic goals are met.”
“Professional services 9,648 4,752 0 business development services 34,800 19,140 4,060 total 44,448 23,892 4,060”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 26571 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 26738 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 50 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO PROVIDE ASSISTANCE TO FAMILIES AFFECTED BY STURGE-WEBER SYNDROME AND PORT WINE BIRTHMARK CONDITIONS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 6598 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 13198 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 13198 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 32994 |
| IRS990/AllOtherContributionsAmt | 0 | 533106 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 1803 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2251 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 22799 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 26853 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | THE ORGANIZATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 9738954445 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 12345 JONES ROAD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | HOUSON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 77070 |
| IRS990/BusinessRlnWithFamMemInd | 0 | true |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 446571 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 515634 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 5380 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 6575 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 47818 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 59773 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 100642 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 100642 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 139375 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 672481 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 50000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1529 |
| IRS990/CYOtherExpensesAmt | 0 | 388721 |
| IRS990/CYOtherRevenueAmt | 0 | -21643 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 70030 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 143616 |
| IRS990/CYTotalExpensesAmt | 0 | 582337 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 30089 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 652367 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 125 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 500 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 1874 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 2499 |
| IRS990/Desc | 0 | THE FOUNDATION DRIVES PATIENT ENGAGEMENT THROUGH DIVERSE AND ROBUST PROJECTS, CONFERENCES AND ONLINE SUPPORT. THE WEBSITE IS A RICH RESOURCE OF LEARNING AND UPLIFTING STORIES OF INSPIRATIONAL HOPE TO COPE WITH THE DIAGNOSIS. THE FOUNDATION SPONSORS AN INTERNATIONAL CONFERENCE EVERY TWO YEARS MOVING THE LOCATION TO ALLOW FAIR ACCESS TO ALL MINIMIZING FINANCIAL IMPACT TO ATTEND. THE FOUNDATION ALSO SPONSORS REGIONAL EDUCATIONAL CONFERENCES TO BUILD COMMUNITY IN PARTNERSHIP WITH VARIOUS CLINICAL CARE NETWORK (CCN) INSTITUTIONS. THE CCN'S FACILITATE CLINICAL STUDIES AND TRIALS AND ANNUALLY ESTABLISH GOALS WHICH DRIVE PATIENT CARE AND IMPROVE TREATMENT. THE FOUNDATION RECENTLY LAUNCHED A TASK FORCE INITIATIVE TO BUILD A RICH VOLUNTEER NETWORK OF KNOWLEDGE AND SUPPORT AROUND KEY AREAS IMPACTING DAILY LIVING AND CARE. THE HOUSTON HOME OFFICE STAFF AND REMOTE OFFICE STAFF SUPPORT ALL THE ABOVE PROGRAMS AND PROJECTS AND REGULARLY MEET TO ENSURE STRATEGIC GOALS ARE MET. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 339259 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 457 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 913 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 7763 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 9133 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 4060 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 23892 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 44448 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 72400 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | KAREN L BALL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | KRIS SADENS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | CRYSTAL ELLIERS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JEFFREY NEEDHAM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | STEVE PELTIER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | WOODY CROUCH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | LISA PETERSON |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 59773 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT/CE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | false |
| IRS990/FormationYr | 0 | 1987 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 139375 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 48045 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 26402 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 10000 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 50000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 50000 |
| IRS990/GrantsToIndividualsInd | 0 | true |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 700412 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 625 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1250 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 13619 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 15494 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 140 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 281 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 2389 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2810 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 1529 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1529 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 17726 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 4415 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 7646 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 25372 |
| IRS990/LegalDomicileStateCd | 0 | CO |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO PROVIDE ASSISTANCE TO FAMILIES AFFECTED BY STURGE-WEBER SYNDROME AND PORT WINE BIRTHMARK CONDITIONS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 510400 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 580430 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -21643 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -21643 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 1725 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 3449 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 6324 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 11498 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1663 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 6067 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 23177 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 30907 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 923 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 42 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 52 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 375 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 469 |
| IRS990/OtherExpensesGrp/Desc | 0 | PATIENT CENTERED RESEARCH |
| IRS990/OtherExpensesGrp/Desc | 1 | RESEARCH |
| IRS990/OtherExpensesGrp/Desc | 2 | DATA REGISTRY |
| IRS990/OtherExpensesGrp/Desc | 3 | FEES & LICENSES |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 44493 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 13288 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 12900 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 12810 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 44493 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 13288 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 12900 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 12810 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 6278 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 7674 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 55812 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 69764 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 875 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1101 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 8099 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 10075 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 318 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 389 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 2828 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 3535 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 10826 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 8945 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 3923 |
| IRS990/PrincipalOfficerNm | 0 | KAREN L BALL |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | THE FOUNDATION'S RESEARCH PROGRAM IS LED BY A GLOBAL TEAM OF RESEARCHERS THAT COMPRISE THE STURGE-WEBER FOUNDATION INTERNATIONAL RESEARCH NETWORK (SWFIRN). THE SWFIRN MEET ANNUALLY TO ASSESS PROGRESS AND ESTABLISH GOALS TO FACILITATE INNOVATIVE AND COLLABORATIVE RESEARCH INVESTIGATIONS. THE RESEARCH PROGRAM FUNDS A 50,000 LISA'S RESEARCH FELLOWSHIP, MULTIPLE TRAVEL GRANTS TO YOUNG INVESTIGATORS, MAINTAINS AN ONLINE 25,000 PATIENT REGISTRY, BANKS TISSUE SAMPLES FOR VARIOUS STUDIES AND IS IN DEVELOPMENT FOR MAPPING CLINICAL DATA WITH DATA IN A BIO-REPOSITORY. THE FOUNDATION ATTENDS NATIONAL CONFERENCES FOCUSED ON RESEARCH IN THE EYE, BRAIN, SKIN AND GENETIC EXPRESSIONS OF THE SYNDROME TO GENERATE AWARENESS AND ENGAGE YOUNG INVESTIGATORS TO JOIN THEIR CAUSE. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 145397 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 50000 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 569837 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 68104 |
| IRS990/PYInvestmentIncomeAmt | 0 | 6384 |
| IRS990/PYOtherExpensesAmt | 0 | 240153 |
| IRS990/PYOtherRevenueAmt | 0 | -29097 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 47 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 71279 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 167635 |
| IRS990/PYTotalExpensesAmt | 0 | 475892 |
| IRS990/PYTotalRevenueAmt | 0 | 547171 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 70030 |
| IRS990/RegularMonitoringEnfrcInd | 0 | false |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 75241 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 79965 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 672481 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 569837 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 546566 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 395711 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 429548 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2614143 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 1529 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 535 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 665 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1547 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 4276 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | -45694 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.93690 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.93420 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2453274 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 160869 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 672481 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 569837 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 546566 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 395711 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 429548 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2614143 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 2618419 |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 7646 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 17726 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 25372 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 582337 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 652367 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 7646 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 582337 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 652367 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 652367 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 582337 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 139375 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 139375 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 48045 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | ANNUAL AWARDS D |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 165777 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 165777 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 26402 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 26402 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | -21643 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 48045 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 48045 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 0 | 50000 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt | 0 | RESEARCH GRANT |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt | 0 | 1 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 0 | BRIAN FISHER |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 0 | BROTHER OF CEO |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 0 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 0 | 57500 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 0 | CONTRACT EMPLOYEE |
| IRS990ScheduleL/SupplementalInformationDetail/ExplanationTxt | 0 | THE BROTHER OF THE PRESIDENT/CEO IS PAID AS A CONTRACT EMPLOYEE. THE CEO IS NOT INVOLVED IN HIS EVALUATION. |
| IRS990ScheduleL/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE L, PART V |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | IMPACTING DAILY LIVING AND CARE. THE HOUSTON HOME OFFICE STAFF AND REMOTE OFFICE STAFF SUPPORT ALL THE ABOVE PROGRAMS AND PROJECTS AND REGULARLY MEET TO ENSURE STRATEGIC GOALS ARE MET. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | A DRAFT COPY OF THE FORM 990 WAS PROVIDED TO THE BOARD PRIOR TO FILING WITH THE IRS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE BOARD CONSIDERS REQUESTS FOR COPIES OF GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS ON A CASE BY CASE BASIS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | PROFESSIONAL SERVICES 9,648 4,752 0 BUSINESS DEVELOPMENT SERVICES 34,800 19,140 4,060 TOTAL 44,448 23,892 4,060 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PAGE 2, PART III, LINE 4A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART IX, LINE 11G |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt | 0 | 62400 |
| IRS990/TempOrPermanentEndowmentsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 546971 |
| IRS990/TotalAssetsEOYAmt | 0 | 607168 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 546971 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 607168 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 672481 |
| IRS990/TotalEmployeeCnt | 0 | 3 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 30089 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 67592 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 484656 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 582337 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 36571 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 26738 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 36571 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 26738 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 510400 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 580430 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 484656 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 59773 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | -20114 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 652367 |
| IRS990/TotalVolunteersCnt | 0 | 27 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 546971 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 607168 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UnrestrictedNetAssetsGrp/BOYAmt | 0 | 448000 |
| IRS990/UnrestrictedNetAssetsGrp/EOYAmt | 0 | 580430 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 12345 JONES ROAD |
| IRS990/USAddress/CityNm | 0 | HOUSTON |
| IRS990/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990/USAddress/ZIPCd | 0 | 77070 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 7 |
| IRS990/VotingMembersIndependentCnt | 0 | 6 |
| IRS990/WebsiteAddressTxt | 0 | WWW.STURGE-WEBER.ORG |
| IRS990/WhistleblowerPolicyInd | 0 | true |
| ReturnHeader/BuildTS | 0 | 2019-02-21 02:37:17Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | KAREN L BALL |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.