Civic Intelligence

The Sturge-Weber Foundation

EIN 74-2485813 • 501(c)3 • Aurora, CO

Profile

To provide assistance to families affected by sturge-weber syndrome and port wine birthmark conditions.

6105 S Main Street 209Aurora, CO 80016

www.sturge-weber.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

81st percentile

0.16x

Higher debt load relative to assets than 81% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Liabilities / Revenue

86th percentile

0.17x

Higher debt load relative to revenue than 86% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Net Margin

68th percentile

14%

Higher net margin than 68% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Top Officer Pay

98th percentile

$90,014

Higher top officer pay than 98% of similar nonprofits.

Top officer pay equals 23.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2025

Asset Growth

58th percentile

1.7%

Faster asset growth than 58% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2024 to 2025

Revenue Growth

63rd percentile

8.6%

Faster revenue growth than 63% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2024 to 2025

Assets

Up

$418,065

Up $6,998 (+1.7%) from 2024

Liabilities

Down

$66,364

Down $47,977 (-42%) from 2024

Net Assets

Up

$351,701

Up $54,975 (+19%) from 2024

Revenue

Up

$392,112

Up $31,201 (+8.6%) from 2024

Expenses

Down

$337,137

Down $76,396 (-18%) from 2024

Net Income

Up

$54,975

Up $107,597 (+204%) from 2024

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2010: $285,798Liabilities 2010: $18,500Net Assets 2010: $267,2982010Assets 2011: $362,466Liabilities 2011: $55,212Net Assets 2011: $307,2542011Assets 2012: $347,787Liabilities 2012: $10,918Net Assets 2012: $336,8692012Assets 2013: $449,931Liabilities 2013: $53,888Net Assets 2013: $396,0432013Assets 2014: $430,100Liabilities 2014: $25,666Net Assets 2014: $404,4342014Assets 2015: $441,370Liabilities 2015: $54,391Net Assets 2015: $386,9792015Assets 2016: $475,850Liabilities 2016: $36,729Net Assets 2016: $439,1212016Assets 2017: $546,971Liabilities 2017: $36,571Net Assets 2017: $510,4002017Assets 2018: $607,168Liabilities 2018: $26,738Net Assets 2018: $580,4302018Assets 2019: $743,258Liabilities 2019: $141,290Net Assets 2019: $601,9682019Assets 2020: $736,726Liabilities 2020: $70,649Net Assets 2020: $666,0772020Assets 2021: $587,793Liabilities 2021: $98,608Net Assets 2021: $489,1852021Assets 2022: $522,921Liabilities 2022: $160,457Net Assets 2022: $362,4642022Assets 2023: $420,811Liabilities 2023: $71,463Net Assets 2023: $349,3482023Assets 2024: $411,067Liabilities 2024: $114,341Net Assets 2024: $296,7262024Assets 2025: $418,065Liabilities 2025: $66,364Net Assets 2025: $351,7012025

Highlighted filing

2025

Assets$418,065
Liabilities$66,364
Net Assets$351,701

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KExpenses 2010: $301,9892010Expenses 2011: $338,1262011Revenue 2012: $339,062Expenses 2012: $309,447Net Income 2012: $29,6152012Expenses 2013: $341,8622013Revenue 2014: $375,430Expenses 2014: $367,039Net Income 2014: $8,3912014Revenue 2015: $373,792Expenses 2015: $391,247Net Income 2015: -$17,4552015Revenue 2016: $455,151Expenses 2016: $403,009Net Income 2016: $52,1422016Revenue 2017: $547,171Expenses 2017: $475,892Net Income 2017: $71,2792017Revenue 2018: $652,367Expenses 2018: $582,337Net Income 2018: $70,0302018Revenue 2019: $674,952Expenses 2019: $653,414Net Income 2019: $21,5382019Revenue 2020: $640,019Expenses 2020: $575,910Net Income 2020: $64,1092020Revenue 2021: $298,520Expenses 2021: $475,412Net Income 2021: -$176,8922021Revenue 2022: $376,017Expenses 2022: $502,738Net Income 2022: -$126,7212022Revenue 2023: $427,359Expenses 2023: $440,475Net Income 2023: -$13,1162023Revenue 2024: $360,911Expenses 2024: $413,533Net Income 2024: -$52,6222024Revenue 2025: $392,112Expenses 2025: $337,137Net Income 2025: $54,9752025

Highlighted filing

2025

Revenue$392,112
Expenses$337,137
Net Income$54,975

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$4.18$0.66$3.52$3.92$3.37$0.55
2024Detailed filing. Detailed filing data is available for this year.$4.11$1.14$2.97$3.61$4.14$0.53
2023Detailed filing. Detailed filing data is available for this year.$4.21$0.71$3.49$4.27$4.40$0.13
2022Detailed filing. Detailed filing data is available for this year.$5.23$1.60$3.62$3.76$5.03$1.27
2021Detailed filing. Detailed filing data is available for this year.$5.88$0.99$4.89$2.99$4.75$1.77
2020Detailed filing. Detailed filing data is available for this year.$7.37$0.71$6.66$6.40$5.76$0.64
2019Detailed filing. Detailed filing data is available for this year.$7.43$1.41$6.02$6.75$6.53$0.22
2018Detailed filing. Detailed filing data is available for this year.$6.07$0.27$5.80$6.52$5.82$0.70
2017Detailed filing. Detailed filing data is available for this year.$5.47$0.37$5.10$5.47$4.76$0.71
2016Detailed filing. Detailed filing data is available for this year.$4.76$0.37$4.39$4.55$4.03$0.52
2015Detailed filing. Detailed filing data is available for this year.$4.41$0.54$3.87$3.74$3.91$0.17
2014Detailed filing. Detailed filing data is available for this year.$4.30$0.26$4.04$3.75$3.67$0.08
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.50$0.54$3.96$3.42
2012Summary only. Only limited summary data is available for this year.$3.48$0.11$3.37$3.39$3.09$0.30
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.62$0.55$3.07$3.38
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.86$0.19$2.67$3.02
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Dec 15, 2025
Return Version
2024v5.0
Gross Receipts
$473,989
Mission and Program Overview

Mission

To provide assistance to families affected by Sturge-Weber Syndrome and port wine birthmark conditions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$332,888$330,897▼ $1,991
Cash and Non-Interest-Bearing Accounts$66,107$83,540▲ $17,433
Prepaid Expenses and Deferred Charges$11,727$3,628▼ $8,099
Land, Buildings, and Equipment, Net$345--
Total Assets$411,067$418,065▲ $6,998
Liabilities
Other Liabilities$25,000$25,000→ $0
Accounts Payable and Accrued Expenses$21,082$22,114▲ $1,032
Deferred Revenue$68,259$19,250▼ $49,009
Total Liabilities$114,341$66,364▼ $47,977
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$233,693$288,668▲ $54,975
Net Assets With Donor Restrictions$63,033$63,033→ $0
Total Net Assets Fund Balance$296,726$351,701▲ $54,975
Total Liabilities and Net Assets / Fund Balance$411,067$418,065▲ $6,998
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Karen L BallPresident/ceFT$90,014$90,014

Board Members and Trustees

NameTitle
Curt StantonChairman
Molly SpeerVice Chair/s
Don WillardDirector
Julia TerrellDirector
Robert ZarkoDirector
Shad ElliersDirector
Witney ArchDirector
Dan SchmidtTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$269,113
Program Service Revenue
$0
Investment Income
$22,480
Other Revenue
$100,519
All Other Contributions
$269,113
Change in Net Assets
$54,975

Audited Revenue Reconciliation

Revenue per Audited Statements
$392,112
Total Revenue per Audited Statements
$392,112
Total Revenue per Form 990
$392,112
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$184,572
Other Expenses$152,565
Total Fundraising Expense$6,956
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$82,813$4,501$2,700$90,014
Other Salaries and Wages$47,654$27,192$104$74,950
Office Expenses$19,987$14,530$3,673$38,190
Conferences and Meetings$21,436$351-$21,787
Fees for Services Other-$18,967-$18,967
Payroll Taxes$10,484$2,547$225$13,256
Advertising$8,348$75-$8,423
Pension Plan Contributions$3,331$809$72$4,212
Other Employee Benefits$1,693$411$36$2,140
Insurance$451$762$77$1,290
Occupancy-$948-$948
Depreciation Depletion-$345-$345
Other Expenses$8,962$13,442$69$69
Total Functional Expenses$245,301$84,880$6,956$337,137

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$337,137
Total Expenses per Audited Statements$337,137
Total Expenses per Form 990$337,137
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$129,647
Fundraising Direct Expenses$81,877
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Reunion of Cham$82,888$82,888$21,960$60,928
Swf Internation$46,759$46,759$59,917$-13,158
Total Events$129,647$129,647$81,877$47,770
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Refundable Advance$25,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

A draft copy of the form 990 was provided to the board prior to filing with the irs.

Form 990, Page 6, Part VI, Line 12C

Monitoring and enforcement of the policy is regularly discussed by the governing body.

Form 990, Page 6, Part VI, Line 19

The board considers requests for copies of governing documents, policies, and financial statements on a case by case basis.

Filing and Contact Details

Filer

Filer Name
The Sturge-weber Foundation
EIN
74-2485813
Address
6105 S MAIN STREET 209, AURORA, CO 80016

Signing Officer

Name
Karen L Ball
Title
President/CEO
Phone
9738954445
Signed
2025-12-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Karen L Ball
Formed
1987
Legal Domicile
Co
Voting Board Members
8
Independent Board Members
8
Employees
3
Volunteers
25

Preparer

Firm
The Adams Group LLC
Address
6000 GREENWOOD PLAZA BLVD STE 115, GREENWOOD VILLAGE, CO 80111
Preparer
Jason D Adams CPA
Phone
3037333796
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4A

The foundation drives patient engagement through diverse and robust projects, conferences and online support. The website is a rich resource of learning and uplifting stories of inspirational hope to cope with the diagnosis. The foundation sponsors an international conference every two years moving the location to allow fair access to all minimizing financial impact to attend. The foundation also sponsors regional educational conferences to build community in partnership with various clinical care network (ccn) institutions. The ccn's facilitate clinical studies and trials and annually establish goals which drive patient care and improve treatment. The foundation recently launched a task force initiative to build a rich volunteer network of knowledge and support around key areas impacting daily living and care. The houston home office staff and remote office staff support all the above programs and projects and regularly meet to ensure strategic goals are met.

Financial Statement Notes

Schedule D, Page 3, Part X

The foundation has received an internal revenue service exemption from federal income taxes under section 501(c)(3). The foundation files its form 990 in the u.s. Federal jurisdiction. The foundation is generally no longer subject to examination by the internal revenue service for years before 2022.

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IRS990/ProgSrvcAccomActy2Grp/Desc0THE FOUNDATION'S RESEARCH PROGRAM IS LEAD BY A GLOBAL TEAM OF RESEARCHERS THAT COMPRISE THE STURGE-WEBER FOUNDATION INTERNATIONAL RESEARCH NETWORK TO FACILITATE INNOVATIVE AND COLLABORATIVE RESEARCH INVESTIGATIONS. THE FOUNDATION ATTENDS NATIONAL CONFERENCES FOCUSED ON RESEARCH IN THE EYE, BRAIN, SKIN AND GENETIC EXPRESSIONS OF THE SYNDROME TO GENERATE AWARENESS AND ENGAGE YOUNG INVESTIGATORS TO JOIN THEIR CAUSE.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION HAS RECEIVED AN INTERNAL REVENUE SERVICE EXEMPTION FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3). THE FOUNDATION FILES ITS FORM 990 IN THE U.S. FEDERAL JURISDICTION. THE FOUNDATION IS GENERALLY NO LONGER SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE FOR YEARS BEFORE 2022.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION DRIVES PATIENT ENGAGEMENT THROUGH DIVERSE AND ROBUST PROJECTS, CONFERENCES AND ONLINE SUPPORT. THE WEBSITE IS A RICH RESOURCE OF LEARNING AND UPLIFTING STORIES OF INSPIRATIONAL HOPE TO COPE WITH THE DIAGNOSIS. THE FOUNDATION SPONSORS AN INTERNATIONAL CONFERENCE EVERY TWO YEARS MOVING THE LOCATION TO ALLOW FAIR ACCESS TO ALL MINIMIZING FINANCIAL IMPACT TO ATTEND. THE FOUNDATION ALSO SPONSORS REGIONAL EDUCATIONAL CONFERENCES TO BUILD COMMUNITY IN PARTNERSHIP WITH VARIOUS CLINICAL CARE NETWORK (CCN) INSTITUTIONS. THE CCN'S FACILITATE CLINICAL STUDIES AND TRIALS AND ANNUALLY ESTABLISH GOALS WHICH DRIVE PATIENT CARE AND IMPROVE TREATMENT. THE FOUNDATION RECENTLY LAUNCHED A TASK FORCE INITIATIVE TO BUILD A RICH VOLUNTEER NETWORK OF KNOWLEDGE AND SUPPORT AROUND KEY AREAS IMPACTING DAILY LIVING AND CARE. THE HOUSTON HOME OFFICE STAFF AND REMOTE OFFICE STAFF SUPPORT ALL THE ABOVE PROGRAMS AND PROJECTS AND REGULARLY MEET TO ENSURE STRATEGIC GOALS ARE MET.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1A DRAFT COPY OF THE FORM 990 WAS PROVIDED TO THE BOARD PRIOR TO FILING WITH THE IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2MONITORING AND ENFORCEMENT OF THE POLICY IS REGULARLY DISCUSSED BY THE GOVERNING BODY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE BOARD CONSIDERS REQUESTS FOR COPIES OF GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS ON A CASE BY CASE BASIS.
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ReturnHeader/BuildTS02025-03-06 01:10:19Z
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ReturnHeader/BusinessOfficerGrp/PersonNm0KAREN L BALL
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT/CEO
ReturnHeader/BusinessOfficerGrp/PhoneNum09738954445
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-12-15
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0THE STURGE-WEBER FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0STUR
ReturnHeader/Filer/EIN0742485813
ReturnHeader/Filer/USAddress/AddressLine1Txt06105 S MAIN STREET 209
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ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0THE ADAMS GROUP LLC

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