Civic Intelligence

Pulmonary Hypertension Association Inc.

990 • Fiscal year 2018 • EIN 65-0880021

Jan 01, 2018 to Dec 31, 2018 • Filed on Oct 16, 2019

Organization ProfileWWW.PHASSOCIATION.ORG

View Organization Page

801 Roeder Road No 1000Silver Spring, MD 20910

(301) 565-3004

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

36th percentile

0.10x

Higher debt load relative to assets than 36% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Liabilities / Revenue

51st percentile

0.24x

Higher debt load relative to revenue than 51% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Net Margin

20th percentile

-6.4%

Higher net margin than 20% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Top Officer Pay

72nd percentile

$259,493

Higher top officer pay than 72% of similar nonprofits.

Top officer pay equals 3.7% of source-year revenue.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2018

Asset Growth

11th percentile

-8.7%

Faster asset growth than 11% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2017 to 2018

Revenue Growth

13th percentile

-19%

Faster revenue growth than 13% of similar nonprofits.

2018 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets36th percentile

Assets

Down

$17,192,350

Down $1,643,715 (-8.7%) from 2017

Net Assets

Down

$15,515,891

Down $898,817 (-5.5%) from 2017

Liabilities

Down

$1,676,459

Down $744,898 (-31%) from 2017

Revenue And Expenses
Liabilities / Revenue51st percentileNet Margin20th percentile

Revenue

Down

$7,024,047

Down $1,622,087 (-19%) from 2017

Expenses

Down

$7,471,134

Down $144,373 (-1.9%) from 2017

Net Income

Down

-$447,087

Down $1,477,714 (-143%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth11th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $14,366,401Liabilities 2011: $1,513,448Net Assets 2011: $12,852,9532011Assets 2012: $14,110,901Liabilities 2012: $798,568Net Assets 2012: $13,312,3332012Assets 2013: $16,652,235Liabilities 2013: $1,095,579Net Assets 2013: $15,556,6562013Assets 2014: $17,335,225Liabilities 2014: $1,386,050Net Assets 2014: $15,949,1752014Assets 2015: $17,279,451Liabilities 2015: $1,326,605Net Assets 2015: $15,952,8462015Assets 2016: $16,541,589Liabilities 2016: $2,505,388Net Assets 2016: $14,036,2012016Assets 2017: $18,836,065Liabilities 2017: $2,421,357Net Assets 2017: $16,414,7082017Assets 2018: $17,192,350Liabilities 2018: $1,676,459Net Assets 2018: $15,515,8912018Assets 2019: $19,962,681Liabilities 2019: $1,465,428Net Assets 2019: $18,497,2532019Assets 2020: $20,654,904Liabilities 2020: $1,411,224Net Assets 2020: $19,243,6802020Assets 2021: $23,595,469Liabilities 2021: $1,918,781Net Assets 2021: $21,676,6882021Assets 2022: $22,639,344Liabilities 2022: $3,605,287Net Assets 2022: $19,034,0572022Assets 2023: $24,525,243Liabilities 2023: $3,623,305Net Assets 2023: $20,901,9382023Assets 2024: $24,745,734Liabilities 2024: $3,409,576Net Assets 2024: $21,336,1582024

Highlighted filing

2018

Assets$17,192,350
Liabilities$1,676,459
Net Assets$15,515,891
Open 2018 Filing

Operations Trend

Revenue Growth13th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2011: $7,762,2772011Expenses 2012: $8,282,8162012Revenue 2013: $9,953,015Expenses 2013: $7,925,169Net Income 2013: $2,027,8462013Revenue 2014: $11,504,905Expenses 2014: $9,743,169Net Income 2014: $1,761,7362014Revenue 2015: $9,931,476Expenses 2015: $9,997,543Net Income 2015: -$66,0672015Revenue 2016: $8,863,987Expenses 2016: $11,135,814Net Income 2016: -$2,271,8272016Revenue 2017: $8,646,134Expenses 2017: $7,615,507Net Income 2017: $1,030,6272017Revenue 2018: $7,024,047Expenses 2018: $7,471,134Net Income 2018: -$447,0872018Revenue 2019: $7,865,980Expenses 2019: $6,116,064Net Income 2019: $1,749,9162019Revenue 2020: $4,744,900Expenses 2020: $4,785,935Net Income 2020: -$41,0352020Revenue 2021: $6,905,835Expenses 2021: $5,251,835Net Income 2021: $1,654,0002021Revenue 2022: $6,298,792Expenses 2022: $6,357,695Net Income 2022: -$58,9032022Revenue 2023: $7,853,357Expenses 2023: $7,471,678Net Income 2023: $381,6792023Revenue 2024: $8,460,561Expenses 2024: $8,868,474Net Income 2024: -$407,9132024

Highlighted filing

2018

Revenue$7,024,047
Expenses$7,471,134
Net Income-$447,087
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Oct 16, 2019
Return Version
2018v3.1
Gross Receipts
$7,437,885
Mission and Program Overview

Mission

To seek a cure for pulmonary hypertension and to provide hope for the pulmonary hypertension community through support, education, advocacy, and awareness.

To extend and improve the lives of those affected by pulmonary hypertension (ph).

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$14,167,112$12,906,743▼ $1,260,369
Pledges and Grants Receivable$2,020,442$2,637,686▲ $617,244
Cash and Non-Interest-Bearing Accounts$2,426,021$1,513,781▼ $912,240
Prepaid Expenses and Deferred Charges$81,363$45,144▼ $36,219
Land, Buildings, and Equipment, Net$95,459$43,328▼ $52,131
Total Assets$18,836,065$17,192,350▼ $1,643,715
Other Assets Total$45,668$45,668→ $0
Liabilities
Grants Payable$1,114,697$705,000▼ $409,697
Accounts Payable and Accrued Expenses$779,166$569,447▼ $209,719
Deferred Revenue$381,616$334,400▼ $47,216
Other Liabilities$145,878$67,612▼ $78,266
Total Liabilities$2,421,357$1,676,459▼ $744,898
Net Assets / Fund Balance
Temporarily Rstr Net Assets$9,532,190$8,545,358▼ $986,832
Unrestricted Net Assets$4,560,886$4,648,901▲ $88,015
Permanently Rstr Net Assets$2,321,632$2,321,632→ $0
Total Net Assets Fund Balance$16,414,708$15,515,891▼ $898,817
Total Liabilities and Net Assets / Fund Balance$18,836,065$17,192,350▼ $1,643,715

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$38,132$152,527$190,659
Equipment$2,011$82,353$84,364
Leasehold Improvements$3,185$31,650$34,835

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2018$2,321,632-▼ $42,354$-42,354$2,321,632
2017$2,304,632$17,000▲ $336,946$336,946$2,321,632
2016$2,204,632$100,000▲ $262,599$262,599$2,304,632
2015$1,875,475$140,000▲ $18,812$-170,345$2,204,632
2014$1,875,475---$1,875,475
Compensation and Service Providers
Top Officer Pay72nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Brad WongPresident & CEOFT$244,898$17,190$262,088
Azalea CandelariaVP of DevelopmentFT$144,441$7,101$151,542
Torgrim ForbergVP of FinanceFT$136,015$4,106$140,121
Lauren LefkowitzVP of Human ResourcesFT$126,082$11,860$137,942
Michael GraySenior Director, Medical ServicesFT$102,385$9,226$111,611
Kelly WilliamsVP of Comm & Marketing (thru 5/18)FT$57,838$4,307$62,145
Karen SmaaldersVP of Comm & Marketing (beg 10/18)FT$26,482$547$27,029

Board Members and Trustees

NameTitle
Karen Fagan MdChair
Colleen Brunetti Med ChcChair-elect
Amy Kimber Rn ApnpDirector
Colleen ConnorDirector
Doug TaylorDirector
Erika Berman-rosenweigDirector
Fran Rogers CrnpDirector
Frank CannDirector
Jessie Kohler EsqDirector
Melisa Wilson Arnp Acnp-bcDirector
Mitch Koppelman PhdDirector
Ramona Doyle Md MscDirector
Roger TowleDirector
Ronald Oudiz MdDirector
Stacy Gausling OtDirector
Traci Stewart Rn Msn ChfnDirector
Cheri Abbott Rn CcrpDirector (beg 7/18)
Murali Chakinala Md FccpDirector (beg 7/18)
LAURA D'ANNA DRPH MPADirector (thru 6/18)
Mike Mcgoon MdDirector (thru 6/18)
Rita Orth RnDirector (thru 6/18)
Steve White PhdDirector (thru 6/18)
Val Mclaughlin MdDirector (thru 6/18)
Diane RamirezSecretary (beg 7/18)
Sally Maddox Ed DSecretary (thru 6/18)
William HoffTreasurer (beg 7/18)
Tony LanstonTreasurer (thru 6/18)

Highest Paid Contractors

ContractorServicesLocationCompensation
Cornerstone Medical Communications LLCMedical Education Provider560 SHERWOOD PARKWAY, Westfield, NJ 07090$1,076,074
Renaissance Orlando Resort At SeaworldHotel And Conference Services6677 SEA HARBOR DRIVE, Orlando, FL 32821$593,940
Allen PressDesign And Print Services810 E 10TH STREET, Lawrence, KS 66044$254,832
The Causeway AgencyAdvertising & Marketing21 CHARLES STREET SUITE 201, Westport, CT 06880$193,400
GraphtecPrinting ServicesPO BOX 842307, Boston, MA 02284$129,502
Revenue and Support

Revenue Composition

Contributions and Grants
$5,376,201
Program Service Revenue
$1,101,735
Investment Income
$301,293
Other Revenue
$244,818
All Other Contributions
$5,024,308
Change in Net Assets
$-447,087

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,958,166
Revenue Not Reported on Financial Statements
$65,881
Revenue Not Reported on Form 990
$-26,018
Total Revenue per Audited Statements
$6,932,148
Total Revenue per Form 990
$7,024,047
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,713,503
Salaries, Compensation, and Employee Benefits$2,452,565
Total Fundraising Expense$645,293
Grants and Similar Amounts Paid$305,066
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$1,880,906$-53,503$73,487$1,900,890
Other Salaries and Wages$810,899$292,445$207,665$1,311,009
Conferences and Meetings$889,501$49,174$1,548$940,223
Current Officers, Directors, Trustees, and Key Employees$483,814$179,465$123,492$786,771
Office Expenses$530,592$66,410$55,750$652,752
Occupancy$187,949$96,462$60,081$344,492
Travel$107,046$37,267$45,318$189,631
Other Employee Benefits$106,200$37,798$28,806$172,804
Grants to Domestic Individuals$155,818--$155,818
Grants to Domestic Orgs$149,248--$149,248
Payroll Taxes$68,223$54,134$23,145$145,502
Information Technology$17,515$63,353$15,022$95,890
Advertising$95,561--$95,561
Fees for Service Investment Mgmnt Fees$10,834$55,047-$65,881
Depreciation Depletion-$52,131-$52,131
Insurance$398$50,353-$50,751
Fees for Services Lobbying$47,391--$47,391
Pension Plan Contributions$16,936$16,710$2,833$36,479
Fees for Services Accounting-$31,997-$31,997
All Other Expenses$4,581$14,296$13$18,890
Other Expenses$3,633$9,108$745$13,486
Fees for Services Legal-$768-$768
Total Functional Expenses$5,665,091$1,160,750$645,293$7,471,134

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$7,830,966
Total Expenses per Form 990$7,471,134
Expenses per Audited Statements$7,405,253
Expenses Not Reported on Form 990$425,713
Expenses Not Reported on Financial Statements$65,881
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Ats FoundationNew York, NY501( C ) (3)Robyn Barst Pediatric Grant$50,000
Ats FoundationNew York, NY501( C ) (3)Rino Aldrighetti Leadership Award$40,000
Echo Hill Outdoor School - Heart CampWorton, MD501( C ) (3)Rino Aldrighetti Leadership Award$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$615,126
Fundraising Direct Expenses$413,838
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
2018 Texas Crawphish Festival$161,842$145,678$94,365$51,313
Colorado Ph in the Park$70,948$37,710$52,311$-14,601
Total Events$967,019$615,126$413,838$201,288
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deffered Rent$67,612
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Some emeritus trustees have a family relationship with one another, but do not have voting rights. Pat paton and judy simpson are sisters and founding directors of pha.”

Form 990, Part VI, Section A, Line 6

“Pulmonary hypertension association is a membership organization.”

Form 990, Part VI, Section B, Line 11B

“We set a special meeting (via conference call) for our audit committee to review it with the cpa firm that conducts our annual audit and prepares form 990.”

Form 990, Part VI, Section B, Line 12C

“Directors are required to submit a conflict of interest disclosure statement on an annual basis.”

Form 990, Part VI, Section B, Line 15

“Ceo compensation: the executive committee, of the board of trustees, worked with an external recruiting firm, who conducted a comparison of president/ceo compensation among like organizations to determine the appropriate salary for the president/ceo. Staff compensation: hr utilizes compensation consultants, market data, compensation surveys, and performance reviews, to determine annual increases for staff at all levels.”

Form 990, Part VI, Section C, Line 19

“Our financial statements are available to the public on our website, through charity navigator, and by request.”

Filing and Contact Details

Filer

Filer Name
Pulmonary Hypertension Association
EIN
65-0880021
Phone
3015653004
Address
801 ROEDER ROAD NO 1000, SILVER SPRING, MD 20910

Signing Officer

Name
Brad a Wong
Title
President & CEO
Phone
3015653004
Signed
2019-10-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Brad a Wong
Formed
1998
Legal Domicile
Fl
Voting Board Members
20
Independent Board Members
20
Employees
34
Volunteers
13,682

Preparer

Firm
Tate and Tryon
Address
2021 L STREET NW SUITE 400, WASHINGTON, DC 20036
Preparer
R Michael Sorrells
Phone
2022932200
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Other professional fees: program service expenses 1,880,906. Management and general expenses -53,503. Fundraising expenses 73,487. Total expenses 1,900,890.”

FORM 990, PART XII, LINE 2C:

“The process has not changed from the prior year.”

Financial Statement Notes

PART V, LINE 4:

“The association's endowment funds intended uses are to provide: scholarships for patients and caregivers to attend the association's conferences and meetings; mentored clinical scientist development award; and, financial support for the pha support group leadership institute.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Special event expenses 413,838.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special event expenses 413,838.”

Raw XML AppendixShowing 400 of 1,019 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0***ADVOCATE FOR THE PH COMMUNITY*** - PHA HOSTED A LEGISLATIVE LUNCHEON THAT DREW MORE THAN 100 CONGRESSIONAL STAFF TO LEARN ABOUT THE DISEASE AND HOW CONGRESS CAN IMPROVE LIVES FOR INDIVIDUALS WITH PH. PHA RESPONDED TO 300+ PHONE CALLS FROM PATIENTS SEEKING CO-PAY ASSISSTANCE RESOURCES, MORE THAN THREE TIMES THE NUMBER OF CALLS FROM PREVIOUS YEARS. PHA JOINED THE MARKETPLACE ACCESS PROJECT IN ADVOCATING FOR THE "ACCESS TO MARKETPLACE INSURANCE ACT", WHICH ULTIMATELY GARNERED 176 CO-SPONSORS.RAISED PUBLIC AND COMMUNITY AWARENESS THROUGH PSAS AND MEDIA OUTREACH (26 MILLION + IMPRESSIONS), SOCIAL MEDIA, PHANEWS E-NEWSLETTER (30,000 WEEKLY SUBSCRIBERS). PHASSOCIATION.ORG (1,200,000 ANNUAL VISITORS), AND DISTRIBUTED 3 ISSUES OF PATHLIGHT MAGAZINE (6,000 ANNUAL SUBSCRIBERS). ***EMPOWER PATIENTS AND CAREGIVERS***:PROVIDED PEER SUPPORT THROUGH 195 SUPPORT GROUPS AND 700 MEETINGS NATIONWIDE, HELPED 1,100 NEWLY DIAGNOSED PATIENTS THROUGH OUR ROADMAP TO HOPE, AND EDUCATED PATIENTS AND CAREGIVERS THROUGH OUR ONLINE PHA CLASSROOM PLATFORM WITH 41,656 VIDEO VIEWS. ***PROMOTE QUALITY PATIENT CARE***:RECORDED 1,397 ATTENDEES AT PHA'S 2018 ANNUAL CONFERENCE, OFFERED 29 NEW CONTINUING EDUCATION COURSES TO PHA ONLINE UNIVERSITY USERS THROUGH 154,531 USER SESSIONS, AND PROVIDED 2,451 HOURS OF LIVE HEALTHCARE PROFESSIONAL EDUCATION THROUGH PHA MEDICAL EDUCATION ON-DEMAND AND THE PHA PRECEPTORSHIP PROGRAM.***CATALYZE RESEARCH FOR A CURE***:AWARDED $388,650 IN PH RESEARCH GRANTS (CURRENT AND NEW) THAT INCLUDED CAREER DEVELOPMENT AND MENTORING RESEARCH GRANTS AND SUPPORT FOR THE NIH/NHLBI PVDOMICS INITIATIVE, AND DISTRIBUTED 240,000 COPIES OF ADVANCES IN PH, PHA'S MEDICAL JOURNAL DISTRIBUTED WORLDWIDE.
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IRS990/Form990PartVIISectionAGrp/PersonNm31KAREN SMAALDERS
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IRS990/Form990PartVIISectionAGrp/PersonNm33MICHAEL GRAY
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IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR (BEG 7/18)
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IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR (THRU 6/18)
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IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR (THRU 6/18)
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR (THRU 6/18)
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR (THRU 6/18)
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR

Document Assets

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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$17,192,350
Liabilities
$1,676,459
Net assets
$15,515,891
Revenue
$7,024,047
Expenses
$7,471,134
Net income
-$447,087
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$24.7$3.41$21.3$8.46$8.87$0.41
2023Detailed filing. Detailed filing data is available for this year.$24.5$3.62$20.9$7.85$7.47$0.38
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$22.6$3.61$19.0$6.30$6.36$0.06
2021Detailed filing. Detailed filing data is available for this year.$23.6$1.92$21.7$6.91$5.25$1.65
2020Detailed filing. Detailed filing data is available for this year.$20.7$1.41$19.2$4.74$4.79$0.04
2019Detailed filing. Detailed filing data is available for this year.$20.0$1.47$18.5$7.87$6.12$1.75
2018Detailed filing. Detailed filing data is available for this year.$17.2$1.68$15.5$7.02$7.47$0.45
2017Detailed filing. Detailed filing data is available for this year.$18.8$2.42$16.4$8.65$7.62$1.03
2016Detailed filing. Detailed filing data is available for this year.$16.5$2.51$14.0$8.86$11.1$2.27
2015Detailed filing. Detailed filing data is available for this year.$17.3$1.33$16.0$9.93$10.00$0.07
2014Detailed filing. Detailed filing data is available for this year.$17.3$1.39$15.9$11.5$9.74$1.76
2013Detailed filing. Detailed filing data is available for this year.$16.7$1.10$15.6$9.95$7.93$2.03
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$14.1$0.80$13.3$8.28
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$14.4$1.51$12.9$7.76