Civic Intelligence

Alpha-1 Foundation Inc.

990 • Fiscal year 2021 • EIN 65-0585415

Jul 01, 2020 to Jun 30, 2021 • Filed on Mar 04, 2022

Organization Profilewww.alpha1.org
3300 Ponce de Leon BoulevardMiami, FL 33134-7211

(305) 567-9888

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

31st percentile

0.07x

Higher debt load relative to assets than 31% of similar nonprofits.

2021 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2021

Liabilities / Revenue

44th percentile

0.22x

Higher debt load relative to revenue than 44% of similar nonprofits.

2021 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2021

Net Margin

83rd percentile

43%

Higher net margin than 83% of similar nonprofits.

2021 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2021

Top Officer Pay

59th percentile

$283,703

Higher top officer pay than 59% of similar nonprofits.

Top officer pay equals 2.6% of source-year revenue.

2021 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2021

Asset Growth

82nd percentile

28%

Faster asset growth than 82% of similar nonprofits.

2021 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2020 to 2021

Revenue Growth

25th percentile

-2.0%

Faster revenue growth than 25% of similar nonprofits.

2021 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets31st percentile

Assets

Up

$34,603,486

Up $7,556,772 (+28%) from 2020

Net Assets

Up

$32,235,814

Up $7,362,243 (+30%) from 2020

Liabilities

Up

$2,367,672

Up $194,529 (+9.0%) from 2020

Revenue And Expenses
Liabilities / Revenue44th percentileNet Margin83rd percentile

Revenue

Down

$10,942,439

Down $228,964 (-2.0%) from 2020

Expenses

Down

$6,256,103

Down $1,154,807 (-16%) from 2020

Net Income

Up

$4,686,336

Up $925,843 (+25%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth82nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2011: $12,033,241Liabilities 2011: $960,735Net Assets 2011: $11,072,5062011Assets 2012: $15,174,094Liabilities 2012: $779,250Net Assets 2012: $14,394,8442012Assets 2013: $17,791,435Liabilities 2013: $658,995Net Assets 2013: $17,132,4402013Assets 2014: $21,727,554Liabilities 2014: $1,057,052Net Assets 2014: $20,670,5022014Assets 2015: $24,158,161Liabilities 2015: $1,384,846Net Assets 2015: $22,773,3152015Assets 2016: $24,555,213Liabilities 2016: $1,651,604Net Assets 2016: $22,903,6092016Assets 2017: $25,865,882Liabilities 2017: $1,744,037Net Assets 2017: $24,121,8452017Assets 2018: $27,681,923Liabilities 2018: $2,078,124Net Assets 2018: $25,603,7992018Assets 2019: $30,710,295Liabilities 2019: $2,551,250Net Assets 2019: $28,159,0452019Assets 2020: $27,046,714Liabilities 2020: $2,173,143Net Assets 2020: $24,873,5712020Assets 2021: $34,603,486Liabilities 2021: $2,367,672Net Assets 2021: $32,235,8142021Assets 2022: $35,496,616Liabilities 2022: $2,623,720Net Assets 2022: $32,872,8962022Assets 2023: $37,662,654Liabilities 2023: $2,157,188Net Assets 2023: $35,505,4662023Assets 2024: $44,464,081Liabilities 2024: $2,581,193Net Assets 2024: $41,882,8882024

Highlighted filing

2021

Assets$34,603,486
Liabilities$2,367,672
Net Assets$32,235,814
Open 2021 Filing

Operations Trend

Revenue Growth25th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0Revenue 2011: $7,745,763Expenses 2011: $4,996,481Net Income 2011: $2,749,2822011Revenue 2012: $7,985,052Expenses 2012: $4,662,714Net Income 2012: $3,322,3382012Revenue 2013: $7,238,423Expenses 2013: $5,367,939Net Income 2013: $1,870,4842013Revenue 2014: $7,725,147Expenses 2014: $5,930,306Net Income 2014: $1,794,8412014Revenue 2015: $11,045,733Expenses 2015: $8,472,951Net Income 2015: $2,572,7822015Revenue 2016: $9,997,921Expenses 2016: $9,502,067Net Income 2016: $495,8542016Revenue 2017: $10,833,144Expenses 2017: $9,757,837Net Income 2017: $1,075,3072017Revenue 2018: $10,631,929Expenses 2018: $9,202,987Net Income 2018: $1,428,9422018Revenue 2019: $10,626,839Expenses 2019: $9,439,199Net Income 2019: $1,187,6402019Revenue 2020: $11,171,403Expenses 2020: $7,410,910Net Income 2020: $3,760,4932020Revenue 2021: $10,942,439Expenses 2021: $6,256,103Net Income 2021: $4,686,3362021Revenue 2022: $10,890,084Expenses 2022: $6,364,206Net Income 2022: $4,525,8782022Revenue 2023: $10,453,299Expenses 2023: $8,547,943Net Income 2023: $1,905,3562023Revenue 2024: $11,614,380Expenses 2024: $10,093,036Net Income 2024: $1,521,3442024

Highlighted filing

2021

Revenue$10,942,439
Expenses$6,256,103
Net Income$4,686,336
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2020 to Jun 30, 2021
Signed
Mar 4, 2022
Return Version
2020v4.0
Gross Receipts
$16,076,762
Mission and Program Overview

Mission

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide.

The Alpha1 Foundation is committed to finding a cure for Alpha1 Antitrypsin Deficiency and to improving the lives of Alphas worldwide

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$22,023,016$24,801,956▲ $2,778,940
Cash and Non-Interest-Bearing Accounts$1,049,020$4,319,457▲ $3,270,437
Savings and Temporary Cash Investments$1,835,636$4,294,626▲ $2,458,990
Accounts Receivable$2,079,860$982,721▼ $1,097,139
Investments Program Related$-25,312$136,115▲ $161,427
Land, Buildings, and Equipment, Net$24,346$21,749▼ $2,597
Prepaid Expenses and Deferred Charges$35,014$21,728▼ $13,286
Total Assets$27,046,714$34,603,486▲ $7,556,772
Other Assets Total$25,134$25,134→ $0
Liabilities
Accounts Payable and Accrued Expenses$1,873,780$1,937,857▲ $64,077
Deferred Revenue$284,000$416,000▲ $132,000
Other Liabilities$15,363$13,815▼ $1,548
Total Liabilities$2,173,143$2,367,672▲ $194,529
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$22,278,931$29,114,292▲ $6,835,361
Net Assets With Donor Restrictions$2,594,640$3,121,522▲ $526,882
Total Net Assets Fund Balance$24,873,571$32,235,814▲ $7,362,243
Total Liabilities and Net Assets / Fund Balance$27,046,714$34,603,486▲ $7,556,772

Asset Categories

AssetBook ValueDepreciationBasis
Investment Program Related Org$136,115--
Other Land Buildings$1,792$58,267-
Equipment$19,957$134,063-
Leasehold Improvements-$200,825-
Other Assets Org$25,134--
Compensation and Service Providers
Top Officer Pay59th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
MIRIAM A O'DAYPresident and CEOFT$276,735$6,968$283,703
Randel H PlantSen Director Research ProgsFT$121,544$13,213$134,757
Angela T McbrideSen Director Corp RelationsFT$108,866$16,573$125,439

Board Members and Trustees

NameTitle
JEANINE M D'ARMIENTOChair
Scott SantarellaPresident and CEO
Elizabeth JohnsonVice Chair
Fred C WalshVice Chair
Mark B DelvauxVice President and CFO
Ann KnebelDirector
Faron SchonfeldDirector
James K StollerDirector
Kenneth IrvineDirector
Martin R ZamoraDirector
Noel G McelvaneyDirector
Peggy IversonDirector
Jennifer JoppSecretary
Jon HagstromTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
AlphaNet IncManagement services3300 Ponce de Leon Boulevard, Coral Gables FL, FL 33134$185,500
Original Impressions LLCPrinting and publicationPO Box 31792, Tampa, FL 33631$145,071
Revenue and Support

Revenue Composition

Contributions and Grants
$7,939,893
Program Service Revenue
$240,000
Investment Income
$2,701,074
Other Revenue
$61,472
All Other Contributions
$7,939,893
Change in Net Assets
$4,686,336

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table1$200,000Fair Market Value (FMV)
Securities Publicly Traded1$10,230Fair Market Value (FMV)
Total Noncash Contributions2$210,230-

Audited Revenue Reconciliation

Revenue per Audited Statements
$10,942,436
Revenue Not Reported on Financial Statements
$3
Revenue Not Reported on Form 990
$2,538,609
Other Revenue Adjustments
$3
Total Revenue per Audited Statements
$13,481,045
Total Revenue per Form 990
$10,942,439
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,915,188
Salaries, Compensation, and Employee Benefits$1,734,769
Other Expenses$1,606,146
Total Fundraising Expense$550,275
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,809,734--$1,809,734
Other Salaries and Wages$1,066,584$86,955$261,582$1,415,121
Foreign Grants$1,090,454--$1,090,454
Office Expenses$241,561$17,399$71,271$330,231
Fees for Services Other$162,021$52,302-$214,323
Occupancy$160,256$12,373$38,283$210,912
Other Employee Benefits$160,403$5,088$30,724$196,215
Fees for Services Management-$149,680-$149,680
Fees for Service Investment Mgmnt Fees-$135,874-$135,874
Information Technology$70,192$20,031$19,671$109,894
Payroll Taxes$74,957$7,529$18,448$100,934
Fees for Services Legal$16,025$33,822$10,861$60,708
Fees for Services Accounting-$55,840-$55,840
Insurance$15,905$3,662$3,800$23,367
Pension Plan Contributions$16,174$2,199$4,126$22,499
Depreciation Depletion$11,838$914$2,828$15,580
Grants to Domestic Individuals$15,000--$15,000
Other Expenses$150,640$6,000$38,549$6,000
Conferences and Meetings$1,359$-236$350$1,473
Travel$-166$-127-$-293
Total Functional Expenses$5,077,804$628,024$550,275$6,256,103

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$6,256,103
Expenses per Audited Statements$6,120,229
Total Expenses per Audited Statements$6,120,229
Expenses Not Reported on Financial Statements$135,874
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of FloridaGainesville, FL501c3Research$495,192
Columbia UniversityNew York, NY501c3Research$256,333
SUNY Research FoundationAlbany, NY501c3Research$200,000
Brigham & Women's HospitalBoston, MA501c3Research$199,000
Saint Louis UniversitySaint Louis, MO501c3Research$189,618
Boston Medical CenterBoston, MA501c3Research$100,000
Baylor College of MedicineHouston, TX501c3Research$99,000
Mayo ClinicRochester, MN501c3Research$99,000
Boston UniversityBoston, MA501c3Research$80,000
Clemson UniversityClemson, SC501c3Research$56,495
Univ of Colorado at DenverDenver, CO501c3Research$46,167
American Thoracic SocietyNew York, NY501c3Research$40,000
Nat Org Rare DisordersDanbury, CT501c3Research$25,000
University of North TexasDenton, TX501c3Research$23,035
University of N CarolinaChapel Hill, NC501c3Research$15,897
The CHEST FoundationGlenview, IL501c3Research$12,500

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$52,684
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
COLVirtual$52,684$52,684-$52,684
Total Events$52,684$52,684-$52,684
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
Yes
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Part VI Line 11B

“The Form 990 is provided to members of management and the Board of”

Part VI Line 11B

“Directors for review prior to filing.”

Part VI Line 12C

“Written conflict of interest statements are obtained from all officers,”

Part VI Line 12C

“board members and committee members annually.”

Part VI Line 15A or B

“Compensation levels are developed using salary surveys and a review of 990s”

Part VI Line 15A or B

“for comparable not-for-profit organizations.”

Part VI Line 18

“Form 990 is available on www.alpha1.org, and also upon request.”

Part VI Line 19

“The audited financial statements are available on www.alpha1.org. Governing”

Part VI Line 19

“documents and the conflict of interest policy are available upon request.”

Part VII, Line 1A

“The Vice President and Chief Financial Officer is an employee of AlphaNet,”

Part VII, Line 1A

“Inc., an unrelated not-for-profit organization which provides its services”

Part VII, Line 1A

“through an administrative services agreement.”

Part VII, Line 5

“AlphaNet Inc., another 501(c)(3) organization, provides the services of the”

Part VII, Line 5

“Vice President and Chief Financial Officer under an administrative services”

Part VII, Line 5

“agreement in the amount of $100,000. The amount is based on the reasonable”

Part VII, Line 5

“estimate of the value of the services provided to the Alpha-1 Foundation.”

Part VI, Line 17

“Md, ma, mi, mn, ms, nh, nj, nm, ny, nd, or, pa, ri, sc, tn, ut, wv, wi”

Filing and Contact Details

Filer

Filer Name
Alpha-1 Foundation
EIN
65-0585415
In Care Of
% Mark Delvaux
Phone
3055679888
Address
3300 Ponce de Leon Boulevard, Miami, FL 33134-7211
Doing Business As
Alpha One Foundation

Signing Officer

Name
Mark Delvaux
Title
Vice President CFO
Phone
3054421776
Signed
2022-03-04
Discuss with paid preparer
No

Organization Details

Principal Officer
Mark B Delvaux
Formed
1995
Legal Domicile
Fl
Voting Board Members
12
Independent Board Members
12
Employees
19
Volunteers
300

Preparer

Preparer
Patrick M Lunn
Phone
3054421776
Supplemental Narrative

Additional Explanations

Part XI Line 9

“This amount refers to an audit adjustment made to reflect the value of”

Part XI Line 9

“Alpha-1 Foundation's wholly owned subsidiary, The Alpha-1 Project.”

Part III Line 4D

“Expenses: $167712.00 including grants of: $4000.00 Revenue: $210000.00”

Part III Line 4D

“Includes foreign grants”

Part III Line 4D

“The mission of Alpha-1 Global is to develop a collaborative global network”

Part III

“of Alpha-1 patient leaders, physicians, and researchers.”

Part III Line 4D

“Expenses: $121164.00 including grants of: $0.00 Revenue: $230000.00”

Part III Line 4D

“The Foundation's Public Policy program monitors relevant legislation and”

Part III Line 4D

“regulatory issues and publicizes the Foundation's positions on such issues.”

Part III Line 4D

“Expenses: $174212.00 including grants of: $0.00 Revenue: $240000.00”

Part III Line 4D

“The Alpha-1-To-One Magazine is designed to inform the community of research”

Part III Line 4D

“developments, education, advocacy and fund raising opportunities.”

Part III Line 4D

“Expenses: $203844.00 including grants of: $0.00 Revenue: $295000.00”

Part III Line 4D

“Alpha-1 Education Days provide access to current medical information and”

Part III Line 4D

“resources to hundreds of Alphas, their families, and caregivers.”

Part III Line 4D

“Expenses: $507308.00 including grants of: $40000.00 Revenue: $366000.00”

Part III Line 4D

“Other Alpha-1 services include patient education (materials, website, etc),”

Part III Line 4D

“a Patient Support Network, and a targeted detection program.”

Financial Statement Notes

P10, Ln 2

“The Foundation has adopted the provisions of ASC No.740 "Income Taxes."”

P10, Ln 2

“Under ASC 740, the Foundation must recognize the tax liability (or benefit)”

P10, Ln 2

“associated with tax positions taken for tax return purposes when it is”

P10, Ln 2

“more-likely-than-not that the position will be sustained. The adoption of”

P10, Ln 2

“ASC 740 had no impact on the Foundation's consolidated financial”

P10, Ln 2

“statements. Management of the Foundation does not believe there are any”

P10, Ln 2

“material uncertain tax positions and accordingly has not recorded any”

P10, Ln 2

“liability for unrecognized tax benefits.”

Raw XML AppendixShowing 400 of 1,125 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0President and CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1Sen Dir Research Progs
IRS990/Form990PartVIISectionAGrp/TitleTxt2Sen Dir Corp Relations
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IRS990/MissionDesc0The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Alpha-1 National Conference: The 30th annual Alpha-1 National Educational Conference was held virtually on June 10-12, 2021. The speakers included some of the leading clinicians and researchers in the field of Alpha-1 to bring incredible subject matter expertise and education to the community. The program covered a wide range of medical education and supportive topics to inform, empower and motivate patients to take charge of their health. The last five years of presentations are available on the Foundation's website at www.alpha1.org.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Alpha-1 Registry and ACT Study: The Research Registry is a confidential database of diagnosed Alphas and carriers willing and able to participate in research studies and clinical trials for new therapies. The Registry represents the largest cohort of Alphas in the world. The goal of the Alpha-1 Coded Testing (ACT) Study is to provide a way for those at risk, including family members of diagnosed Alphas, to learn their genotype. The study includes a research questionnaire, a finger-stick testing kit, and is free and confidential. The ACT Study has enrolled over 40,000 individuals since 2001.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0The mission of Alpha-1 Global is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers.
IRS990/ProgSrvcAccomActyOtherGrp/Desc1The Foundation's Public Policy program monitors relevant legislation and regulatory issues and publicizes the Foundation's positions on such issues.
IRS990/ProgSrvcAccomActyOtherGrp/Desc2The Alpha-1-To-One Magazine is designed to inform the community of research developments, education, advocacy and fund raising opportunities.
IRS990/ProgSrvcAccomActyOtherGrp/Desc3Alpha-1 Education Days provide access to current medical information and resources to hundreds of Alphas, their families, and caregivers.
IRS990/ProgSrvcAccomActyOtherGrp/Desc4Other Alpha-1 services include patient education (materials, website, etc), a Patient Support Network, and a targeted detection program.
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IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt2240000

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Filings

Displayed year

2021 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$34,603,486
Liabilities
$2,367,672
Net assets
$32,235,814
Revenue
$10,942,439
Expenses
$6,256,103
Net income
$4,686,336
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$44.5$2.58$41.9$11.6$10.1$1.52
2023Detailed filing. Detailed filing data is available for this year.$37.7$2.16$35.5$10.5$8.55$1.91
2022Detailed filing. Detailed filing data is available for this year.$35.5$2.62$32.9$10.9$6.36$4.53
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$34.6$2.37$32.2$10.9$6.26$4.69
2020Summary only. Only limited summary data is available for this year.$27.0$2.17$24.9$11.2$7.41$3.76
2019Summary only. Only limited summary data is available for this year.$30.7$2.55$28.2$10.6$9.44$1.19
2018Summary only. Only limited summary data is available for this year.$27.7$2.08$25.6$10.6$9.20$1.43
2017Summary only. Only limited summary data is available for this year.$25.9$1.74$24.1$10.8$9.76$1.08
2016Summary only. Only limited summary data is available for this year.$24.6$1.65$22.9$10.00$9.50$0.50
2015Summary only. Only limited summary data is available for this year.$24.2$1.38$22.8$11.0$8.47$2.57
2014Summary only. Only limited summary data is available for this year.$21.7$1.06$20.7$7.73$5.93$1.79
2013Summary only. Only limited summary data is available for this year.$17.8$0.66$17.1$7.24$5.37$1.87
2012Summary only. Only limited summary data is available for this year.$15.2$0.78$14.4$7.99$4.66$3.32
2011Summary only. Only limited summary data is available for this year.$12.0$0.96$11.1$7.75$5.00$2.75