Civic Intelligence

Alpha-1 Foundation Inc.

990 • Fiscal year 2023 • EIN 65-0585415

Jul 01, 2022 to Jun 30, 2023 • Filed on Mar 25, 2024

Organization Profilewww.alpha1.org
3300 Ponce de Leon BoulevardMiami, FL 33134-7211

(305) 567-9888

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

27th percentile

0.06x

Higher debt load relative to assets than 27% of similar nonprofits.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2023

Liabilities / Revenue

39th percentile

0.21x

Higher debt load relative to revenue than 39% of similar nonprofits.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2023

Net Margin

76th percentile

18%

Higher net margin than 76% of similar nonprofits.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2023

Top Officer Pay

66th percentile

$329,085

Higher top officer pay than 66% of similar nonprofits.

Top officer pay equals 3.1% of source-year revenue.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Source year 2023

Asset Growth

49th percentile

6.1%

Faster asset growth than 49% of similar nonprofits.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2022 to 2023

Revenue Growth

31st percentile

-4.0%

Faster revenue growth than 31% of similar nonprofits.

2023 filings • 501(c)3 • $25M-$50M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets27th percentile

Assets

Up

$37,662,654

Up $2,166,038 (+6.1%) from 2022

Net Assets

Up

$35,505,466

Up $2,632,570 (+8.0%) from 2022

Liabilities

Down

$2,157,188

Down $466,532 (-18%) from 2022

Revenue And Expenses
Liabilities / Revenue39th percentileNet Margin76th percentile

Revenue

Down

$10,453,299

Down $436,785 (-4.0%) from 2022

Expenses

Up

$8,547,943

Up $2,183,737 (+34%) from 2022

Net Income

Down

$1,905,356

Down $2,620,522 (-58%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth49th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60M$40M$20M$0Assets 2011: $12,033,241Liabilities 2011: $960,735Net Assets 2011: $11,072,5062011Assets 2012: $15,174,094Liabilities 2012: $779,250Net Assets 2012: $14,394,8442012Assets 2013: $17,791,435Liabilities 2013: $658,995Net Assets 2013: $17,132,4402013Assets 2014: $21,727,554Liabilities 2014: $1,057,052Net Assets 2014: $20,670,5022014Assets 2015: $24,158,161Liabilities 2015: $1,384,846Net Assets 2015: $22,773,3152015Assets 2016: $24,555,213Liabilities 2016: $1,651,604Net Assets 2016: $22,903,6092016Assets 2017: $25,865,882Liabilities 2017: $1,744,037Net Assets 2017: $24,121,8452017Assets 2018: $27,681,923Liabilities 2018: $2,078,124Net Assets 2018: $25,603,7992018Assets 2019: $30,710,295Liabilities 2019: $2,551,250Net Assets 2019: $28,159,0452019Assets 2020: $27,046,714Liabilities 2020: $2,173,143Net Assets 2020: $24,873,5712020Assets 2021: $34,603,486Liabilities 2021: $2,367,672Net Assets 2021: $32,235,8142021Assets 2022: $35,496,616Liabilities 2022: $2,623,720Net Assets 2022: $32,872,8962022Assets 2023: $37,662,654Liabilities 2023: $2,157,188Net Assets 2023: $35,505,4662023Assets 2024: $44,464,081Liabilities 2024: $2,581,193Net Assets 2024: $41,882,8882024

Highlighted filing

2023

Assets$37,662,654
Liabilities$2,157,188
Net Assets$35,505,466
Open 2023 Filing

Operations Trend

Revenue Growth31st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0Revenue 2011: $7,745,763Expenses 2011: $4,996,481Net Income 2011: $2,749,2822011Revenue 2012: $7,985,052Expenses 2012: $4,662,714Net Income 2012: $3,322,3382012Revenue 2013: $7,238,423Expenses 2013: $5,367,939Net Income 2013: $1,870,4842013Revenue 2014: $7,725,147Expenses 2014: $5,930,306Net Income 2014: $1,794,8412014Revenue 2015: $11,045,733Expenses 2015: $8,472,951Net Income 2015: $2,572,7822015Revenue 2016: $9,997,921Expenses 2016: $9,502,067Net Income 2016: $495,8542016Revenue 2017: $10,833,144Expenses 2017: $9,757,837Net Income 2017: $1,075,3072017Revenue 2018: $10,631,929Expenses 2018: $9,202,987Net Income 2018: $1,428,9422018Revenue 2019: $10,626,839Expenses 2019: $9,439,199Net Income 2019: $1,187,6402019Revenue 2020: $11,171,403Expenses 2020: $7,410,910Net Income 2020: $3,760,4932020Revenue 2021: $10,942,439Expenses 2021: $6,256,103Net Income 2021: $4,686,3362021Revenue 2022: $10,890,084Expenses 2022: $6,364,206Net Income 2022: $4,525,8782022Revenue 2023: $10,453,299Expenses 2023: $8,547,943Net Income 2023: $1,905,3562023Revenue 2024: $11,614,380Expenses 2024: $10,093,036Net Income 2024: $1,521,3442024

Highlighted filing

2023

Revenue$10,453,299
Expenses$8,547,943
Net Income$1,905,356
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2022 to Jun 30, 2023
Signed
Mar 25, 2024
Return Version
2022v5.0
Gross Receipts
$28,196,628
Mission and Program Overview

Mission

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide.

The Alpha1 Foundation is committed to finding a cure for Alpha1 Antitrypsin Deficiency and to improving the lives of Alphas worldwide

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$21,875,585$34,601,529▲ $12,725,944
Cash and Non-Interest-Bearing Accounts$7,943,740$1,200,391▼ $6,743,349
Accounts Receivable$675,118$949,746▲ $274,628
Savings and Temporary Cash Investments$4,433,622$508,112▼ $3,925,510
Investments Program Related$363,069$281,138▼ $81,931
Prepaid Expenses and Deferred Charges$167,500$86,986▼ $80,514
Land, Buildings, and Equipment, Net$12,982$9,752▼ $3,230
Total Assets$35,496,616$37,662,654▲ $2,166,038
Other Assets Total$25,000$25,000→ $0
Liabilities
Grants Payable$887,727$890,392▲ $2,665
Accounts Payable and Accrued Expenses$1,001,973$705,296▼ $296,677
Deferred Revenue$715,000$561,500▼ $153,500
Other Liabilities$19,020--
Total Liabilities$2,623,720$2,157,188▼ $466,532
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$29,569,884$33,095,472▲ $3,525,588
Net Assets With Donor Restrictions$3,303,012$2,409,994▼ $893,018
Total Net Assets Fund Balance$32,872,896$35,505,466▲ $2,632,570
Total Liabilities and Net Assets / Fund Balance$35,496,616$37,662,654▲ $2,166,038

Asset Categories

AssetBook ValueDepreciationBasis
Investment Program Related Org$281,138--
Equipment$9,752$207,263-
Leasehold Improvements-$200,825-
Other Assets Org$25,000--
Compensation and Service Providers
Top Officer Pay66th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Scott SantarellaPresident and CEOFT$315,753$13,332$329,085
Randel H PlantSen Director Research ProgsFT$134,428$11,935$134,428
Angela T McbrideSen Director Corp RelationsFT$120,202$16,321$120,202
Linda RodriguezDevelopment DirectorFT$113,589$13,332$113,589

Board Members and Trustees

NameTitle
Jon HagstromChair
Fred C WalshVice Chair
Ann KnebelDirector
Catherine VernonDirector
Darrell KottonDirector
Faron SchonfeldDirector
Jennifer JoppDirector
Mark BrantlyDirector
Noel G McelvaneyDirector
Martin R ZamoraDirector Emeritus
Virginia ClarkPhysician Director
Mark B DelvauxCFO
Peggy IversonSecretary
Kenneth IrvineTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
AlphaNet IncManagement services3300 Ponce de Leon Boulevard, Coral Gables, FL 33134$250,000
Original Impressions LLCPrinting and publicationPO Box 31792, Tampa, FL 33631$169,118
Moses & Singer LLPLegal services405 Lexington Avenue, New York, NY 10174$153,349
-Consultant352 N 114th St, Omaha, NE 68154$115,000
Speaking of ScienceWebsite design6916 Prince Georges Avenue, Takoma Park, MD 20912$102,500
Revenue and Support

Revenue Composition

Contributions and Grants
$8,383,940
Program Service Revenue
$368,000
Investment Income
$1,628,280
Other Revenue
$73,079
All Other Contributions
$8,383,940
Change in Net Assets
$1,905,356

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table1$215,000Fair Market Value (FMV)
Securities Publicly Traded2$13,196Fair Market Value (FMV)
Total Noncash Contributions3$228,196-

Audited Revenue Reconciliation

Revenue per Audited Statements
$10,431,950
Revenue Not Reported on Financial Statements
$21,349
Revenue Not Reported on Form 990
$809,145
Other Revenue Adjustments
$-91,272
Total Revenue per Audited Statements
$11,241,095
Total Revenue per Form 990
$10,453,299
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,113,649
Grants and Similar Amounts Paid$2,483,684
Salaries, Compensation, and Employee Benefits$1,950,610
Total Fundraising Expense$731,545
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,628,760--$1,628,760
Other Salaries and Wages$1,184,707$89,992$322,601$1,597,300
Conferences and Meetings$1,122,676$44,752$60,183$1,227,611
Foreign Grants$844,524--$844,524
Office Expenses$340,677$47,614$88,327$476,618
Fees for Services Other$299,720$111,697$24,068$435,485
Information Technology$406,637$1,690$16,619$424,946
Travel$252,006$27,493$11,553$291,052
Fees for Services Management$171,563$100,000-$271,563
Fees for Services Legal$220,221$32,853$3,294$256,368
Occupancy$167,887$12,753$45,716$226,356
Other Employee Benefits$185,790$1,358$28,182$215,330
Fees for Service Investment Mgmnt Fees-$112,621-$112,621
Payroll Taxes$80,944$8,020$22,612$111,576
Fees for Services Accounting-$86,896-$86,896
Other Expenses$67,341$23,557$34,000$57,557
Insurance$21,980$4,634$5,985$32,599
Pension Plan Contributions$18,039$2,582$5,783$26,404
Grants to Domestic Individuals$10,400--$10,400
Fees for Services Lobbying$10,000--$10,000
All Other Expenses$6,353$486$1,730$8,569
Advertising$6,910--$6,910
Depreciation Depletion$4,574$347$1,245$6,166
Total Functional Expenses$7,083,314$733,084$731,545$8,547,943

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$8,547,943
Total Expenses per Audited Statements$8,526,594
Expenses per Audited Statements$8,435,322
Expenses Not Reported on Financial Statements$112,621
Expenses Not Reported on Form 990$91,272
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of FloridaGainesville, FL501c3Research$457,398
Brigham & Women's HospitalBoston, MA501c3Research$199,000
Boston UniversityBoston, MA501c3Research$146,433
Columbia UniversityNew York, NY501c3Research$141,167
National Jewish HealthDenver, CO501c3Research$140,000
Mass Inst of TechnologyCambridge, MA501c3Research$124,750
University of KentuckyLexington, KY501c3Research$100,000
Boston Medical CenterBoston, MA501c3Research$99,500
Northwestern UniversityChicago, IL501c3Research$82,000
University of AlabamaBirmingham, AL501c3Research$74,500
University of ColoradoDenver, CO501c3Research$31,739
Nat Org Rare DisordersDanbury, CT501c3Patient support$25,000
University of N CarolinaChapel Hill, NC501c3Research$10,000
Saint Louis UniversitySaint Louis, MO501c3Research$5,647

International Summary

Employees
1
Spending
$28,278

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeProgram servicesEuropean public policy01$28,278
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$155,211
Fundraising Direct Expenses$91,272
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
Yes
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Part VI Line 11B

“The Form 990 is provided to members of management and the Board of”

Part VI Line 11B

“Directors for review prior to filing.”

Part VI Line 12C

“Written conflict of interest statements are obtained from all officers,”

Part VI Line 12C

“board members, and committee members on an annual basis.”

Part VI Line 15A or B

“Compensation levels are developed using salary surveys and a review of 990s”

Part VI Line 15A or B

“for comparable not-for-profit organizations.”

Part VI Line 18

“Form 990 is available on www.alpha1.org, and also upon request.”

Part VI Line 19

“Audited financial statements are available on www.alpha1.org. Governing”

Part VI Line 19

“documents and the conflict of interest policy are available upon request.”

Part VI, Line 17

“The Alpha-1 Foundation is registered to accept charitable donations in all”

Part VI, Line 17

“states that require it.”

Part VII, Line 1A

“The Chief Financial Officer is an employee of AlphaNet, Inc., an unrelated”

Part VII, Line 1A

“not-for-profit organization which provides its services through an”

Part VII, Line 1A

“administrative services agreement.”

Part VII, Line 5

“AlphaNet, Inc., another 501(c)(3) organization, provides the services of”

Part VII, Line 5

“the Chief Financial Officer under an administrative services agreement in”

Part VII, Line 5

“the amount of $100,000. The amount is based on the reasonable estimate of”

Part VII, Line 5

“the value of the services provided to the Alpha-1 Foundation.”

Filing and Contact Details

Filer

Filer Name
Alpha-1 Foundation
EIN
65-0585415
In Care Of
% Mark Delvaux
Phone
3055679888
Address
3300 Ponce de Leon Boulevard, Miami, FL 33134-7211
Doing Business As
Alpha One Foundation

Signing Officer

Name
Mark Delvaux
Title
CFO
Phone
3054421776
Signed
2024-03-25
Discuss with paid preparer
No

Organization Details

Principal Officer
Mark B Delvaux
Formed
1995
Legal Domicile
Fl
Voting Board Members
13
Independent Board Members
13
Employees
19
Volunteers
300

Preparer

Preparer
Patrick M Lunn
Phone
3054421776
Supplemental Narrative

Additional Explanations

Part XI Line 9

“This amount refers to an audit adjustment made to reflect the value of”

Part XI Line 9

“Alpha-1 Foundation's wholly owned subsidiary, The Alpha-1 Project.”

Part III Line 4D

“Expenses: $489559.00 including grants of: $0.00 Revenue: $469600.00”

Part III Line 4D

“The mission of Alpha-1 Global is to develop a collaborative global network”

Part III

“of Alpha-1 patient leaders, physicians, and researchers.”

Part III Line 4D

“Expenses: $246185.00 including grants of: $0.00 Revenue: $368000.00”

Part III Line 4D

“The Alpha-1-To-One Magazine is designed to inform the community of research”

Part III Line 4D

“developments, education, advocacy and fund raising opportunities.”

Part III Line 4D

“Expenses: $402768.00 including grants of: $0.00 Revenue: $370000.00”

Part III Line 4D

“Alpha-1 Education Days provide access to current medical information and”

Part III Line 4D

“resources to hundreds of Alphas, their families, and caregivers.”

Part III Line 4D

“Expenses: $257770.00 including grants of: $0.00 Revenue: $250000.00”

Part III Line 4D

“The Foundation's Public Policy program monitors relevant legislation and”

Part III Line 4D

“regulatory issues and publicizes the Foundation's positions on such issues.”

Part III Line 4D

“Expenses: $822972.00 including grants of: $25000.00 Revenue: $390000.00”

Part III Line 4D

“Other Alpha-1 services include patient education (materials, website, etc),”

Part III Line 4D

“a Patient Support Network, and a targeted detection program.”

Financial Statement Notes

P10, Ln 2

“The Foundation has adopted the provisions of ASC No. 740 "Income Taxes."”

P10, Ln 2

“Under ASC 740, the Foundation must recognize the tax liability (or benefit)”

P10, Ln 2

“associated with tax positions taken for tax return purposes when it is”

P10, Ln 2

“more-likely-than-not that the position will be sustained. The adoption of”

P10, Ln 2

“ASC 740 had no impact on the Foundation's consolidated financial”

P10, Ln 2

“statements. Management of the Foundation does not believe there are any”

P10, Ln 2

“material uncertain tax positions and accordingly has not recorded any”

P10, Ln 2

“liability for unrecognized tax benefits.”

P11, Ln 2D

“This amount is an adjustment for rounding.”

P11, Ln 4B

“This amount reflects special event expenses that are reported at gross in”

P11, Ln 4B

“the audited financial statements, rather than netted against special event”

P11, Ln 4B

“revenues as is the case on the Form 990.”

P12, Ln 2D

“This amount reflects special event expenses that are reported at gross in”

P12, Ln 2D

“the audited financial statements, rather than netted against special event”

P12, Ln 2D

“revenues as is the case on the Form 990.”

Raw XML AppendixShowing 400 of 1,156 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$37,662,654
Liabilities
$2,157,188
Net assets
$35,505,466
Revenue
$10,453,299
Expenses
$8,547,943
Net income
$1,905,356
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$44.5$2.58$41.9$11.6$10.1$1.52
2023Detailed filing. Detailed filing data is available for this year.$37.7$2.16$35.5$10.5$8.55$1.91
2022Detailed filing. Detailed filing data is available for this year.$35.5$2.62$32.9$10.9$6.36$4.53
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$34.6$2.37$32.2$10.9$6.26$4.69
2020Summary only. Only limited summary data is available for this year.$27.0$2.17$24.9$11.2$7.41$3.76
2019Summary only. Only limited summary data is available for this year.$30.7$2.55$28.2$10.6$9.44$1.19
2018Summary only. Only limited summary data is available for this year.$27.7$2.08$25.6$10.6$9.20$1.43
2017Summary only. Only limited summary data is available for this year.$25.9$1.74$24.1$10.8$9.76$1.08
2016Summary only. Only limited summary data is available for this year.$24.6$1.65$22.9$10.00$9.50$0.50
2015Summary only. Only limited summary data is available for this year.$24.2$1.38$22.8$11.0$8.47$2.57
2014Summary only. Only limited summary data is available for this year.$21.7$1.06$20.7$7.73$5.93$1.79
2013Summary only. Only limited summary data is available for this year.$17.8$0.66$17.1$7.24$5.37$1.87
2012Summary only. Only limited summary data is available for this year.$15.2$0.78$14.4$7.99$4.66$3.32
2011Summary only. Only limited summary data is available for this year.$12.0$0.96$11.1$7.75$5.00$2.75