Civic Intelligence

Angelman Syndrome Foundation Inc.

990 • Fiscal year 2020 • EIN 59-3092842

Oct 01, 2019 to Sep 30, 2020 • Filed on Jan 12, 2021

Organization ProfileWWW.ANGELMAN.ORG

View Organization Page

3015 E New York Street A2 285Aurora, IL 60504

(630) 978-4245

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

49th percentile

0.09x

Higher debt load relative to assets than 49% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

43rd percentile

0.10x

Higher debt load relative to revenue than 43% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

29th percentile

-4.3%

Higher net margin than 29% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

71st percentile

$104,690

Higher top officer pay than 71% of similar nonprofits.

Top officer pay equals 5.6% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

41st percentile

2.7%

Faster asset growth than 41% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

23rd percentile

-20%

Faster revenue growth than 23% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets49th percentile

Assets

Up

$1,891,862

Up $49,312 (+2.7%) from 2019

Net Assets

Down

$1,715,145

Down $79,181 (-4.4%) from 2019

Liabilities

Up

$176,717

Up $128,493 (+266%) from 2019

Revenue And Expenses
Liabilities / Revenue43rd percentileNet Margin29th percentile

Revenue

Down

$1,858,618

Down $471,585 (-20%) from 2019

Expenses

Up

$1,937,799

Up $75,543 (+4.1%) from 2019

Net Income

Down

-$79,181

Down $547,128 (-117%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth41st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2011: $1,953,448Liabilities 2011: $839,791Net Assets 2011: $1,113,6572011Assets 2012: $1,684,114Liabilities 2012: $433,261Net Assets 2012: $1,250,8532012Assets 2013: $1,528,828Liabilities 2013: $317,687Net Assets 2013: $1,211,1412013Assets 2014: $2,066,837Liabilities 2014: $461,794Net Assets 2014: $1,605,0432014Assets 2015: $2,033,311Liabilities 2015: $334,240Net Assets 2015: $1,699,0712015Assets 2016: $1,817,806Liabilities 2016: $243,958Net Assets 2016: $1,573,8482016Assets 2017: $1,406,636Liabilities 2017: $44,440Net Assets 2017: $1,362,1962017Assets 2018: $1,373,981Liabilities 2018: $47,602Net Assets 2018: $1,326,3792018Assets 2019: $1,842,550Liabilities 2019: $48,224Net Assets 2019: $1,794,3262019Assets 2020: $1,891,862Liabilities 2020: $176,717Net Assets 2020: $1,715,1452020Assets 2021: $2,142,185Liabilities 2021: $193,672Net Assets 2021: $1,948,5132021Assets 2022: $2,249,648Liabilities 2022: $265,774Net Assets 2022: $1,983,8742022Assets 2023: $2,274,369Liabilities 2023: $287,498Net Assets 2023: $1,986,8712023Assets 2024: $2,653,640Liabilities 2024: $737,370Net Assets 2024: $1,916,2702024Assets 2025: $2,637,296Liabilities 2025: $535,399Net Assets 2025: $2,101,8972025

Highlighted filing

2020

Assets$1,891,862
Liabilities$176,717
Net Assets$1,715,145
Open 2020 Filing

Operations Trend

Revenue Growth23rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MRevenue 2011: $1,556,720Expenses 2011: $1,656,658Net Income 2011: -$99,9382011Revenue 2012: $1,568,082Expenses 2012: $1,481,955Net Income 2012: $86,1272012Revenue 2013: $1,770,467Expenses 2013: $1,847,062Net Income 2013: -$76,5952013Revenue 2014: $1,821,205Expenses 2014: $1,450,125Net Income 2014: $371,0802014Revenue 2015: $1,811,265Expenses 2015: $1,699,217Net Income 2015: $112,0482015Revenue 2016: $1,775,093Expenses 2016: $1,927,348Net Income 2016: -$152,2552016Revenue 2017: $2,234,912Expenses 2017: $2,446,564Net Income 2017: -$211,6522017Revenue 2018: $2,111,449Expenses 2018: $2,143,134Net Income 2018: -$31,6852018Revenue 2019: $2,330,203Expenses 2019: $1,862,256Net Income 2019: $467,9472019Revenue 2020: $1,858,618Expenses 2020: $1,937,799Net Income 2020: -$79,1812020Revenue 2021: $2,364,424Expenses 2021: $2,131,056Net Income 2021: $233,3682021Revenue 2022: $3,676,179Expenses 2022: $3,640,818Net Income 2022: $35,3612022Revenue 2023: $3,638,325Expenses 2023: $3,635,328Net Income 2023: $2,9972023Revenue 2024: $3,863,609Expenses 2024: $3,934,210Net Income 2024: -$70,6012024Revenue 2025: $3,906,892Expenses 2025: $3,721,265Net Income 2025: $185,6272025

Highlighted filing

2020

Revenue$1,858,618
Expenses$1,937,799
Net Income-$79,181
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2019 to Sep 30, 2020
Signed
Jan 12, 2021
Return Version
2019v5.0
Gross Receipts
$1,858,618
Mission and Program Overview

Mission

The foundation provides educational tools, information and support to individuals concerned with those affected by angelman syndrome. The foundation supports and funds basic science research and clinical trials.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,023,822$895,023▼ $128,799
Investments in Publicly Traded Securities$765,588$774,762▲ $9,174
Land, Buildings, and Equipment, Net$11,428$207,624▲ $196,196
Prepaid Expenses and Deferred Charges$40,173$7,156▼ $33,017
Inventories for Sale or Use-$5,758-
Total Assets$1,842,550$1,891,862▲ $49,312
Other Assets Total$1,539$1,539→ $0
Liabilities
Accounts Payable and Accrued Expenses$48,224$89,717▲ $41,493
Other Liabilities-$87,000-
Total Liabilities$48,224$176,717▲ $128,493
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,757,901$1,698,141▼ $59,760
Net Assets With Donor Restrictions$36,425$17,004▼ $19,421
Total Net Assets Fund Balance$1,794,326$1,715,145▼ $79,181
Total Liabilities and Net Assets / Fund Balance$1,842,550$1,891,862▲ $49,312

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$379,622-$379,622
Equipment$-171,998$171,998-
Compensation and Service Providers
Top Officer Pay71st percentile

Employees

NameTitleFull / Part TimeBaseTotal
Amanda MooreCEOFT$104,690$104,690

Board Members and Trustees

NameTitle
Kathy RokitaPresident
Anna BlandingDirector
Dan HarveyDirector
Eric WrightDirector
Jim KubiczaDirector
Jim LambDirector
Justin Grill MdDirector
Lesley Mccullough MccalisterDirector
Peter EnglandDirector
Rebecca BurdineDirector
Shannon MoyerDirector
Stormy ChamberlainDirector
Susan RavelletteDirector
Timothy BousumSecretary
Michael CecereTreasurer
Kyle RooneyVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$1,819,803
Program Service Revenue
$17,650
Investment Income
$13,232
Other Revenue
$7,933
All Other Contributions
$1,177,041
Change in Net Assets
$-79,181

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,858,618
Total Revenue per Audited Statements
$1,858,618
Total Revenue per Form 990
$1,858,618
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$987,693
Grants and Similar Amounts Paid$494,929
Total Fundraising Expense$456,490
Salaries, Compensation, and Employee Benefits$455,177
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$118,786$118,357$169,847$406,990
Grants to Domestic Orgs$294,929--$294,929
Foreign Grants$200,000--$200,000
Fees for Services Other$86,675$35,792$71,175$193,642
Advertising$58,020$4,040$15,345$77,405
Depreciation Depletion$51,336$1,152$2,604$55,092
Other Expenses$22,243$4,239$27,922$54,404
All Other Expenses$2,438$4,789$43,068$50,295
Payroll Taxes$15,463$14,710$18,014$48,187
Office Expenses$6,325$2,082$31,295$39,702
Conferences and Meetings$27,512--$27,512
Occupancy$9,199$4,829$8,968$22,996
Insurance$5,566$5,296$11,769$22,631
Travel$4,751$3,274$3,780$11,805
Total Functional Expenses$1,279,035$202,274$456,490$1,937,799

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,937,804
Expenses per Audited Statements$1,937,799
Total Expenses per Form 990$1,937,799
Expenses Not Reported on Form 990$5
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Washington UniversitySt Louis, MOXResearch$100,000
University of Connecticut HealthStorrs, CTXResearch$99,909
Purdue UniversityWest Lafayette, INXResearch$50,105
University of North CarolinaChapel Hill, NCXResearch$44,915

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising$642,762---
Total Events$642,762---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Notes Payable$87,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The entire foundation board of directors and executive director review form 990 prior to its release.”

Form 990, Page 6, Part VI, Line 12C

“All board members are required to sign conflict of interest statements on an annual basis disclosing any potential conflicts.”

Form 990, Page 6, Part VI, Line 15A

“The executive committee meets annually with the executive director to review the performance and goals of the executive director. The committee then meets privately to discuss performance, goals and setting of the executive director's salary and benefits.”

Form 990, Page 6, Part VI, Line 15B

“The executive committee meets annually with the executive director to review the performance and goals of officers and key employees in relation to their job description. The committee then meets privately to discuss performance,goals and salary and submits in writing to the executive director their recommendations.”

Form 990, Page 6, Part VI, Line 17

“Illinois, indiana, kansas, kentucky, louisiana, massachusetts, maryland, maine, michigan, minnesota, missouri, mississippi, montana, north carolina, north dakota, nebraska, new hampshire, new jersey, new mexico, nevada, new york, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, south dakota, tennessee, texas, utah, virginia, vermont, washington, wisconsin, west virginia, wyoming”

Form 990, Page 6, Part VI, Line 19

“Documents are available to the public on the organization's website or by direct request. Provided in electronic or printed documents.”

Filing and Contact Details

Filer

Filer Name
Angelman Syndrome Foundation Inc
EIN
59-3092842
Phone
6309784245
Address
3015 E NEW YORK STREET A2 285, AURORA, IL 60504

Signing Officer

Name
Kathy Rokita
Title
President
Phone
6309784245
Signed
2021-01-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Amanda Moore
Formed
1992
Legal Domicile
Fl
Voting Board Members
15
Independent Board Members
15
Employees
6
Volunteers
248

Preparer

Firm
Holland & Company Cpas Pc
Address
1717 N NAPER BLVD STE 303, NAPERVILLE, IL 60563
Preparer
Dean Holland
Phone
6305445340
Supplemental Narrative

Additional Explanations

Form 990, Page 1, Part I, Line 6

“Volunteers help coordinate and run walk-a-thon sites.”

Form 990, Page 2, Part III, Line 4D

“Conference and grant program”

Form 990, Part XI, Line 9

“Book / tax depreciation difference -5”

Financial Statement Notes

Schedule D, Page 4, Part XII, Line 2D

“Book / tax depreciation difference 5”

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IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt15VICE PRESIDE
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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,891,862
Liabilities
$176,717
Net assets
$1,715,145
Revenue
$1,858,618
Expenses
$1,937,799
Net income
-$79,181
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$2.64$0.54$2.10$3.91$3.72$0.19
2024Detailed filing. Detailed filing data is available for this year.$2.65$0.74$1.92$3.86$3.93$0.07
2023Detailed filing. Detailed filing data is available for this year.$2.27$0.29$1.99$3.64$3.64$0.00
2022Detailed filing. Detailed filing data is available for this year.$2.25$0.27$1.98$3.68$3.64$0.04
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.14$0.19$1.95$2.36$2.13$0.23
2020Detailed filing. Detailed filing data is available for this year.$1.89$0.18$1.72$1.86$1.94$0.08
2019Detailed filing. Detailed filing data is available for this year.$1.84$0.05$1.79$2.33$1.86$0.47
2018Detailed filing. Detailed filing data is available for this year.$1.37$0.05$1.33$2.11$2.14$0.03
2017Detailed filing. Detailed filing data is available for this year.$1.41$0.04$1.36$2.23$2.45$0.21
2016Detailed filing. Detailed filing data is available for this year.$1.82$0.24$1.57$1.78$1.93$0.15
2015Detailed filing. Detailed filing data is available for this year.$2.03$0.33$1.70$1.81$1.70$0.11
2014Summary only. Only limited summary data is available for this year.$2.07$0.46$1.61$1.82$1.45$0.37
2013Summary only. Only limited summary data is available for this year.$1.53$0.32$1.21$1.77$1.85$0.08
2012Summary only. Only limited summary data is available for this year.$1.68$0.43$1.25$1.57$1.48$0.09
2011Summary only. Only limited summary data is available for this year.$1.95$0.84$1.11$1.56$1.66$0.10