Civic Intelligence

Angelman Syndrome Foundation Inc

EIN 59-3092842 • 501(c)3 • Aurora, IL

View Organization Page

Profile

The foundation provides educational tools, information and support to individuals concerned with those affected by angelman syndrome. The foundation supports and funds basic science research and clinical trials.

3015 E New York St Ste A2 Pmb 285Aurora, IL 60504-5165

www.angelman.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

67th percentile

0.20x

Higher debt load relative to assets than 67% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Liabilities / Revenue

60th percentile

0.14x

Higher debt load relative to revenue than 60% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Net Margin

51st percentile

4.8%

Higher net margin than 51% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Top Officer Pay

74th percentile

$118,419

Higher top officer pay than 74% of similar nonprofits.

Top officer pay equals 3.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Asset Growth

37th percentile

-0.6%

Faster asset growth than 37% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2024 to 2025

Revenue Growth

39th percentile

1.1%

Faster revenue growth than 39% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets67th percentile

Assets

Down

$2,637,296

Down $16,344 (-0.6%) from 2024

Liabilities

Down

$535,399

Down $201,971 (-27%) from 2024

Net Assets

Up

$2,101,897

Up $185,627 (+9.7%) from 2024

Operations
Liabilities / Revenue60th percentileNet Margin51st percentile

Revenue

Up

$3,906,892

Up $43,283 (+1.1%) from 2024

Expenses

Down

$3,721,265

Down $212,945 (-5.4%) from 2024

Net Income

Up

$185,627

Up $256,228 (+363%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth37th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2011: $1,953,448Liabilities 2011: $839,791Net Assets 2011: $1,113,6572011Assets 2012: $1,684,114Liabilities 2012: $433,261Net Assets 2012: $1,250,8532012Assets 2013: $1,528,828Liabilities 2013: $317,687Net Assets 2013: $1,211,1412013Assets 2014: $2,066,837Liabilities 2014: $461,794Net Assets 2014: $1,605,0432014Assets 2015: $2,033,311Liabilities 2015: $334,240Net Assets 2015: $1,699,0712015Assets 2016: $1,817,806Liabilities 2016: $243,958Net Assets 2016: $1,573,8482016Assets 2017: $1,406,636Liabilities 2017: $44,440Net Assets 2017: $1,362,1962017Assets 2018: $1,373,981Liabilities 2018: $47,602Net Assets 2018: $1,326,3792018Assets 2019: $1,842,550Liabilities 2019: $48,224Net Assets 2019: $1,794,3262019Assets 2020: $1,891,862Liabilities 2020: $176,717Net Assets 2020: $1,715,1452020Assets 2021: $2,142,185Liabilities 2021: $193,672Net Assets 2021: $1,948,5132021Assets 2022: $2,249,648Liabilities 2022: $265,774Net Assets 2022: $1,983,8742022Assets 2023: $2,274,369Liabilities 2023: $287,498Net Assets 2023: $1,986,8712023Assets 2024: $2,653,640Liabilities 2024: $737,370Net Assets 2024: $1,916,2702024Assets 2025: $2,637,296Liabilities 2025: $535,399Net Assets 2025: $2,101,8972025

Highlighted filing

2025

Assets$2,637,296
Liabilities$535,399
Net Assets$2,101,897
Open 2025 Filing

Operations Trend

Revenue Growth39th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$4.0M$2.0M$0-$2.0MRevenue 2011: $1,556,720Expenses 2011: $1,656,658Net Income 2011: -$99,9382011Revenue 2012: $1,568,082Expenses 2012: $1,481,955Net Income 2012: $86,1272012Revenue 2013: $1,770,467Expenses 2013: $1,847,062Net Income 2013: -$76,5952013Revenue 2014: $1,821,205Expenses 2014: $1,450,125Net Income 2014: $371,0802014Revenue 2015: $1,811,265Expenses 2015: $1,699,217Net Income 2015: $112,0482015Revenue 2016: $1,775,093Expenses 2016: $1,927,348Net Income 2016: -$152,2552016Revenue 2017: $2,234,912Expenses 2017: $2,446,564Net Income 2017: -$211,6522017Revenue 2018: $2,111,449Expenses 2018: $2,143,134Net Income 2018: -$31,6852018Revenue 2019: $2,330,203Expenses 2019: $1,862,256Net Income 2019: $467,9472019Revenue 2020: $1,858,618Expenses 2020: $1,937,799Net Income 2020: -$79,1812020Revenue 2021: $2,364,424Expenses 2021: $2,131,056Net Income 2021: $233,3682021Revenue 2022: $3,676,179Expenses 2022: $3,640,818Net Income 2022: $35,3612022Revenue 2023: $3,638,325Expenses 2023: $3,635,328Net Income 2023: $2,9972023Revenue 2024: $3,863,609Expenses 2024: $3,934,210Net Income 2024: -$70,6012024Revenue 2025: $3,906,892Expenses 2025: $3,721,265Net Income 2025: $185,6272025

Highlighted filing

2025

Revenue$3,906,892
Expenses$3,721,265
Net Income$185,627
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,637,296
Liabilities
$535,399
Net assets
$2,101,897
Revenue
$3,906,892
Expenses
$3,721,265
Net income
$185,627
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$2.64$0.54$2.10$3.91$3.72$0.19
2024Detailed filing. Detailed filing data is available for this year.$2.65$0.74$1.92$3.86$3.93$0.07
2023Detailed filing. Detailed filing data is available for this year.$2.27$0.29$1.99$3.64$3.64$0.00
2022Detailed filing. Detailed filing data is available for this year.$2.25$0.27$1.98$3.68$3.64$0.04
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.14$0.19$1.95$2.36$2.13$0.23
2020Detailed filing. Detailed filing data is available for this year.$1.89$0.18$1.72$1.86$1.94$0.08
2019Detailed filing. Detailed filing data is available for this year.$1.84$0.05$1.79$2.33$1.86$0.47
2018Detailed filing. Detailed filing data is available for this year.$1.37$0.05$1.33$2.11$2.14$0.03
2017Detailed filing. Detailed filing data is available for this year.$1.41$0.04$1.36$2.23$2.45$0.21
2016Detailed filing. Detailed filing data is available for this year.$1.82$0.24$1.57$1.78$1.93$0.15
2015Detailed filing. Detailed filing data is available for this year.$2.03$0.33$1.70$1.81$1.70$0.11
2014Summary only. Only limited summary data is available for this year.$2.07$0.46$1.61$1.82$1.45$0.37
2013Summary only. Only limited summary data is available for this year.$1.53$0.32$1.21$1.77$1.85$0.08
2012Summary only. Only limited summary data is available for this year.$1.68$0.43$1.25$1.57$1.48$0.09
2011Summary only. Only limited summary data is available for this year.$1.95$0.84$1.11$1.56$1.66$0.10
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Oct 1, 2024 to Sep 30, 2025
Signed
Dec 30, 2025
Return Version
2024v5.0
Gross Receipts
$3,906,892
Mission and Program Overview

Mission

The foundation provides educational tools, information and support to individuals concerned with those affected by angelman syndrome. The foundation supports and funds basic science research and clinical trials.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,391,676$1,465,718▲ $74,042
Savings and Temporary Cash Investments$1,122,681$912,921▼ $209,760
Inventories for Sale or Use$6,813$129,594▲ $122,781
Prepaid Expenses and Deferred Charges$47,455$70,998▲ $23,543
Land, Buildings, and Equipment, Net$49,497$38,426▼ $11,071
Pledges and Grants Receivable$35,518$19,639▼ $15,879
Total Assets$2,653,640$2,637,296▼ $16,344
Liabilities
Grants Payable$563,922$437,097▼ $126,825
Accounts Payable and Accrued Expenses$173,448$88,302▼ $85,146
Deferred Revenue-$10,000-
Total Liabilities$737,370$535,399▼ $201,971
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,074,253$1,303,965▲ $229,712
Net Assets With Donor Restrictions$842,017$797,932▼ $44,085
Total Net Assets Fund Balance$1,916,270$2,101,897▲ $185,627
Total Liabilities and Net Assets / Fund Balance$2,653,640$2,637,296▼ $16,344

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$38,426$579,202$617,628

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$638,211-▲ $10,983-$644,335
2023$520,450-▲ $122,330-$638,211
2022$499,209-▲ $25,467-$520,450
2021-$500,000▲ $242-$499,209
Compensation and Service Providers
Top Officer Pay74th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Amanda MooreCEOFT$118,419$118,419

Board Members and Trustees

NameTitle
Rebecca BurdineSac Chair
Lesley Mccullough MccalisterPresident
John SugdenVice Chair
April CanterDirector
Christian PacheDirector
Courtney SwaffordDirector
Dan HarveyDirector
Eslin GuiceDirector
Jerald FritzDirector
Lia PerrymanDirector
Marcus ThompsonDirector
Mindy McbribeDirector
Richard KrakerDirector
Steve PilusoDirector
Taylor GeathersDirector
William RakoczyDirector
Charles Winslow IiiSecretary
Andrew OberwagerTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,318,250
Program Service Revenue
$1,440,198
Investment Income
$130,984
Other Revenue
$17,460
All Other Contributions
$2,318,250
Change in Net Assets
$185,627

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported Amount
Other Non Cash Contri Table1$231,296
Total Noncash Contributions1$231,296

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,906,892
Total Revenue per Audited Statements
$3,906,892
Total Revenue per Form 990
$3,906,892
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,821,450
Grants and Similar Amounts Paid$1,298,418
Salaries, Compensation, and Employee Benefits$601,397
Total Fundraising Expense$588,406
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,173,418--$1,173,418
Other Salaries and Wages$231,033$139,705$173,831$544,569
Fees for Services Other$35,307$91,711$78,041$205,059
Advertising$68,317$1,650$86,984$156,951
All Other Expenses$27,961$24,213$84,941$137,115
Foreign Grants$125,000--$125,000
Office Expenses$13,547$6,525$37,213$57,285
Payroll Taxes$21,219$18,024$17,585$56,828
Conferences and Meetings$53,044--$53,044
Other Expenses$46,959$9,648$73,535$46,959
Travel$12,163$5,461$19,087$36,711
Insurance$6,593$5,544$14,380$26,517
Occupancy$2,230$1,797$1,877$5,904
Depreciation Depletion$2,165$537$932$3,634
Total Functional Expenses$2,828,044$304,815$588,406$3,721,265

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,721,265
Total Expenses per Audited Statements$3,721,265
Total Expenses per Form 990$3,721,265
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Regents University of CaliforniaDavis, CA-Research$388,725
University of North CarolinaChapel Hill, NC-Research$200,018
Vanderbuilt University Medical CtrNashville, TN-Research$167,074
New York UniversityNew York, NY-Research$125,000
University of Connecticut HealthFarmington, CT-Research$100,000
University of MassachusettsHadley, MA-Research$100,000
FastAustin, TX-Research$80,726
CHILDREN'S MERCY HOSPITALKansas City, MO-Research$11,875

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The entire foundation board of directors and chief executive officer review form 990 prior to its release.”

Form 990, Page 6, Part VI, Line 12C

“All board members are required to sign conflict of interest statements on an annual basis disclosing any potential conflicts.”

Form 990, Page 6, Part VI, Line 15A

“The executive committee meets annually with the chief executive officer to review the performance and goals of the chief executive officer. The committee then meets privately to discuss performance, goals and setting of the chief executive officer's salary and benefits.”

Form 990, Page 6, Part VI, Line 15B

“The executive committee meets annually with the chief executive officer to review the performance and goals of officers and key employees in relation to their job description. The committee then meets privately to discuss performance,goals and salary and submits in writing to the chief executive officer their recommendations.”

Form 990, Page 6, Part VI, Line 17

“Illinois, indiana, kansas, kentucky, louisiana, massachusetts, maryland, maine, michigan, minnesota, missouri, mississippi, montana, north carolina, north dakota, nebraska, new hampshire, new jersey, new mexico, nevada, new york, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, south dakota, tennessee, texas, utah, virginia, vermont, washington, wisconsin, west virginia, wyoming”

Form 990, Page 6, Part VI, Line 19

“Documents are available to the public on the organization's website or by direct request. Provided in electronic or printed documents.”

Filing and Contact Details

Filer

Filer Name
Angelman Syndrome Foundation Inc
EIN
59-3092842
Phone
6309784245
Address
3015 E NEW YORK ST STE A2 PMB 285, AURORA, IL 60504-5165

Signing Officer

Name
Amanda Moore
Title
CEO
Phone
6309784245
Signed
2025-12-30
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Amanda Moore
Formed
1992
Legal Domicile
Fl
Voting Board Members
18
Independent Board Members
18
Employees
8
Volunteers
685

Preparer

Firm
Holland and Company Cpas Pa
Address
1079 N TAMIAMI TRAIL 106, NOKOMIS, FL 34275
Preparer
Dean R Holland
Phone
6308419675
Supplemental Narrative

Additional Explanations

Form 990, Page 1, Part I, Line 6

“Volunteers help coordinate and run walk-a-thon sites.”

Form 990, Page 2, Part III, Line 4D

“Conference, clinics, and grant program”

Financial Statement Notes

Schedule D, Page 2, Part V, Line 4

“RESEARCH FELLOWSHIP”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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