Batten Disease Support and Research Association

990EZ • Fiscal year 2013 • EIN 56-1918696

Jan 01, 2013 to Dec 31, 2013 • Filed on May 05, 2014

Organization Profile N/A

6304 Bayswater TrailRaleigh, NC 27612

(919) 515-2155

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

-46%

Higher net margin than 8% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

-57%

Faster asset growth than 7% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

-52%

Faster revenue growth than 8% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

Balance Sheet

Liabilities / Assets55th percentile

Assets

Down

$5,335

Down $7,109 (-57%) from 2012

Net Assets

Down

$5,335

Down $7,109 (-57%) from 2012

Liabilities

No earlier filing loaded for comparison.

Revenue And Expenses

Liabilities / Revenue56th percentile Net Margin8th percentile

Revenue

Down

$15,461

Down $17,077 (-52%) from 2012

Expenses

Down

$22,570

Down $15,130 (-40%) from 2012

Net Income

Down

-$7,109

Down $1,947 (-38%) from 2012

Historical Trend

Balance Sheet Trend

Asset Growth7th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

Highlighted filing

2013

Assets$5,335

Liabilities$0

Net Assets$5,335

Open 2013 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

Highlighted filing

2013

Revenue$15,461

Expenses$22,570

Net Income-$7,109

Open 2013 Filing

Jump To

Filing Snapshot

Filing Period: Jan 1, 2013 to Dec 31, 2013
Signed: May 5, 2014
Return Version: 2013v3.1
Gross Receipts: $15,461

Mission and Program Overview

Mission

Batten disease support & research association's mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as batten disease.

Program Services

Description	Grants	Expenses
GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE	$10,000	-
CONFERENCES & CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE	$7,000	-
PROGRAMS WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE	$5,570	-

Compensation and Service Providers

Top Officer Pay73rd percentile

Employees

Name	Title	Full / Part Time	Base	Other	Total
DEBORAH LOWTHER	President	-	$0	-	-
CHRIS HAWKINS	Vice President	-	$0	-	-
CHARLES LEFFLER	Treasurer	-	$0	-	-
CONNIE CURTIS	Director	-	$0	-	-
CECELIA FIELDS	Director	-	$0	-	-
WENDY HAWKINS	Director	-	$0	-	-
WANDA LEFFLER	Director	-	$0	-	-
CHRIS LOWDEN	Director	-	$0	-	-
DONNA MCCANN	Director	-	$0	-	-
DEB TISZAI	Secretary	-	$0	-	-

Filing and Contact Details

Filer

EIN: 56-1918696
Phone: 9195152155

Signing Officer

Name: Charles Leffler
Title: Treasurer
Signed: 2014-05-05
Discuss with paid preparer: Yes

Preparer

Preparer: Fred W Laubie
Phone: 6144810700

Supplemental Narrative

Additional Explanations

Other Expenses.1007

“Conferences, Conventions, and Meetings $7000”

Other Expenses.1

“RESEARCH AWARDS $10000”

Other Expenses.2

“FUNDRAISING COSTS $4063”

Other Expenses.3

“MEMORIAL EXPENSES $929”

Other Expenses.4

“DUES $300”

Raw XML Appendix191 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path	#	Value
IRS990EZ/ActivitiesNotPreviouslyRptInd	0	false
IRS990EZ/BooksInCareOfDetail/PersonNm	0	CHARLIE LEFFLER
IRS990EZ/BooksInCareOfDetail/PhoneNum	0	9195152155
IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1	0	6304 BAYSWATER TRAIL
IRS990EZ/BooksInCareOfDetail/USAddress/City	0	RALEIGH
IRS990EZ/BooksInCareOfDetail/USAddress/State	0	NC
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCode	0	27612
IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt	0	12444
IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt	0	5335
IRS990EZ/ChgMadeToOrgnzngDocNotRptInd	0	false
IRS990EZ/ContributionsGiftsGrantsEtcAmt	0	15460
IRS990EZ/CostOfGoodsSoldAmt	0	0
IRS990EZ/CostOrOtherBasisExpenseSaleAmt	0	0
IRS990EZ/DonorAdvisedFndsInd	0	false
IRS990EZ/EngagedInExcessBenefitTransInd	0	false
IRS990EZ/ExcessOrDeficitForYearAmt	0	-7109
IRS990EZ/FeesAndOtherPymtToIndCntrctAmt	0	278
IRS990EZ/FiledScheduleAInd	0	true
IRS990EZ/ForeignFinancialAccountInd	0	false
IRS990EZ/ForeignOfficeInd	0	false
IRS990EZ/Form1120PolFiledInd	0	false
IRS990EZ/Form720FiledInd	0	false
IRS990EZ/Form990TotalAssetsGrp/BOYAmt	0	12444
IRS990EZ/Form990TotalAssetsGrp/EOYAmt	0	5335
IRS990EZ/FundraisingGrossIncomeAmt	0	0
IRS990EZ/GrossReceiptsAmt	0	15461
IRS990EZ/GrossReceiptsForPublicUseAmt	0	0
IRS990EZ/InfoInScheduleOPartIInd	0	X
IRS990EZ/InfoInScheduleOPartVInd	0	X
IRS990EZ/InitiationFeesAndCapContriAmt	0	0
IRS990EZ/InvestmentIncomeAmt	0	1
IRS990EZ/LobbyingActivitiesInd	0	false
IRS990EZ/MadeLoansToFromOfficersInd	0	false
IRS990EZ/MethodOfAccountingCashInd	0	X
IRS990EZ/NetAssetsOrFundBalancesBOYAmt	0	12444
IRS990EZ/NetAssetsOrFundBalancesEOYAmt	0	5335
IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt	0	12444
IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt	0	5335
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	0	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	1	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	2	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	3	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	4	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	5	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	6	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	7	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	8	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	9	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	0	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	1	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	2	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	3	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	4	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	5	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	6	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	7	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	8	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	9	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	0	DEBORAH LOWTHER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	1	CHRIS HAWKINS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	2	CHARLES LEFFLER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	3	CONNIE CURTIS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	4	CECELIA FIELDS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	5	WENDY HAWKINS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	6	WANDA LEFFLER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	7	CHRIS LOWDEN
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	8	DONNA MCCANN
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	9	DEB TISZAI
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	0	President
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	1	Vice President
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	2	Treasurer
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	3	Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	4	Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	5	Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	6	Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	7	Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	8	Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	9	Secretary
IRS990EZ/OperateHospitalInd	0	false
IRS990EZ/Organization501c3Ind	0	X
IRS990EZ/OrganizationDissolvedEtcInd	0	false
IRS990EZ/OrganizationFiled990TInd	0	false
IRS990EZ/OrganizationHadUBIInd	0	false
IRS990EZ/OtherExpensesTotalAmt	0	22292
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt	0	NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt	0	NONE
IRS990EZ/PoliticalCampaignActyInd	0	false
IRS990EZ/PrimaryExemptPurposeTxt	0	BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION'S MISSION IS TO BE AN INTERNATIONAL SUPPORT AND RESEARCH NETWORKING ORGANIZATION FOR FAMILIES OF CHILDREN AND YOUNG ADULTS WITH AN INHERITED NEUROLOGICAL DEGENERATIVE DISORDER KNOWN AS BATTEN DISEASE.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt	0	GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt	1	PROGRAMS WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt	2	CONFERENCES & CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt	0	10000
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt	1	5570
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt	2	7000
IRS990EZ/ProhibitedTaxShelterTransInd	0	false
IRS990EZ/RelatedOrganizationCtrlEntInd	0	false
IRS990EZ/RelatedOrgSect527OrgInd	0	false
IRS990EZ/ScheduleBNotRequiredInd	0	X
IRS990EZ/SchoolOperatingInd	0	false
IRS990EZ/SpecialEventsDirectExpensesAmt	0	0
IRS990EZ/SubjectToProxyTaxInd	0	false
IRS990EZ/TanningServicesProvidedInd	0	false
IRS990EZ/TotalExpensesAmt	0	22570
IRS990EZ/TotalProgramServiceExpensesAmt	0	22570
IRS990EZ/TotalRevenueAmt	0	15461
IRS990EZ/TransactionWithControlEntInd	0	false
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd	0	false
IRS990EZ/WebsiteAddressTxt	0	N/A
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt	0	0
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt	0	15460
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt	0	32537
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt	0	25957
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt	0	30454
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt	0	37099
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt	0	141507
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt	0	0
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt	0	1
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt	0	1
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt	0	2
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt	0	34
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt	0	50
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt	0	88
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt	0	0
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt	0	0
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt	0	1
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt	0	1
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt	0	2
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt	0	34
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt	0	50
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt	0	88
IRS990ScheduleA/InvestmentIncomeCYPct	0	0.00060
IRS990ScheduleA/InvestmentIncomePYPct	0	0.00150
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt	0	0
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus4YearsAmt	0	1587
IRS990ScheduleA/OtherIncome509Grp/TotalAmt	0	1587
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt	0	0
IRS990ScheduleA/PubliclySupportedOrg509a2Ind	0	X
IRS990ScheduleA/PublicSupportCY509Pct	0	0.98830
IRS990ScheduleA/PublicSupportPY509Pct	0	0.98680
IRS990ScheduleA/PublicSupportTotal509Amt	0	141507
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt	0	0
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt	0	0
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind	0	X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt	0	15460
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt	0	32537
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt	0	25957
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt	0	30454
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt	0	37099
IRS990ScheduleA/Total509Grp/TotalAmt	0	141507
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt	0	15461
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt	0	32538
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt	0	25959
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt	0	30488
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt	0	38736
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt	0	143182
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	0	Conferences, Conventions, and Meetings $7000
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	1	RESEARCH AWARDS $10000
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	2	FUNDRAISING COSTS $4063
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	3	MEMORIAL EXPENSES $929
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	4	DUES $300
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	0	Other Expenses.1007
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	1	Other Expenses.1
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	2	Other Expenses.2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	3	Other Expenses.3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	4	Other Expenses.4
ReturnHeader/BuildTS	0	2015-11-30 17:44:51Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd	0	true
ReturnHeader/BusinessOfficerGrp/PersonNm	0	CHARLES LEFFLER
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt	0	Treasurer
ReturnHeader/BusinessOfficerGrp/SignatureDt	0	2014-05-05
ReturnHeader/Filer/BusinessName/BusinessNameLine1	0	BATTEN DISEASE SUPPORT & RESEARCH ASSOC
ReturnHeader/Filer/BusinessName/BusinessNameLine2	0	SOUTHEAST CHAPTER
ReturnHeader/Filer/BusinessNameControlTxt	0	BATT
ReturnHeader/Filer/EIN	0	561918696
ReturnHeader/Filer/PhoneNum	0	9195152155
ReturnHeader/Filer/USAddress/AddressLine1	0	6304 BAYSWATER TRAIL
ReturnHeader/Filer/USAddress/City	0	RALEIGH
ReturnHeader/Filer/USAddress/State	0	NC
ReturnHeader/Filer/USAddress/ZIPCode	0	27612
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1	0	Laubie Karling & Associates LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1	0	1041 Dublin Rd
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/City	0	Columbus
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/State	0	OH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCode	0	43215
ReturnHeader/PreparerPersonGrp/PhoneNum	0	6144810700
ReturnHeader/PreparerPersonGrp/PreparerPersonNm	0	Fred W Laubie
ReturnHeader/ReturnTs	0	2014-05-05T13:17:11-07:00
ReturnHeader/ReturnTypeCd	0	990EZ
ReturnHeader/TaxPeriodBeginDt	0	2013-01-01
ReturnHeader/TaxPeriodEndDt	0	2013-12-31
ReturnHeader/TaxYr	0	2013

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2013 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing

Assets: $5,335
Liabilities: $0
Net assets: $5,335
Revenue: $15,461
Expenses: $22,570
Net income: -$7,109

	Balance Sheet			Operations
Year	Assets	Liabilities	Net Assets	Revenue	Expenses	Net Income
2013Detailed filing. Detailed filing data is available for this year.	$5.34	$0.00	$5.34	$15.5	$22.6	$7.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.	$12.4		$12.4	$32.5	$37.7	$5.16
2011Summary only. Only limited summary data is available for this year.	$19.6	$0.00		$26.0	$25.6	$0.41