Civic Intelligence

Restless Legs Syndrome Foundation Inc.

990 • Fiscal year 2018 • EIN 56-1784846

Oct 01, 2017 to Sep 30, 2018 • Filed on Mar 25, 2019

Organization ProfileWWW.RLS.ORG
3006 Bee Cave Rd No D-206Austin, TX 78746

(512) 366-9109

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

75th percentile

0.23x

Higher debt load relative to assets than 75% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Liabilities / Revenue

71st percentile

0.15x

Higher debt load relative to revenue than 71% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Net Margin

30th percentile

-3.9%

Higher net margin than 30% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Top Officer Pay

84th percentile

$88,422

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 11.1% of source-year revenue.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Asset Growth

12th percentile

-15%

Faster asset growth than 12% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2017 to 2018

Revenue Growth

43rd percentile

0.8%

Faster revenue growth than 43% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets75th percentile

Assets

Down

$494,550

Down $86,165 (-15%) from 2017

Net Assets

Down

$378,549

Down $39,361 (-9.4%) from 2017

Liabilities

Down

$116,001

Down $46,804 (-29%) from 2017

Revenue And Expenses
Liabilities / Revenue71st percentileNet Margin30th percentile

Revenue

Up

$799,084

Up $6,320 (+0.8%) from 2017

Expenses

Down

$830,416

Down $77,032 (-8.5%) from 2017

Net Income

Up

-$31,332

Up $83,352 (+73%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth12th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $545,518Liabilities 2011: $173,713Net Assets 2011: $371,8052011Assets 2012: $454,173Liabilities 2012: $75,499Net Assets 2012: $378,6742012Assets 2013: $631,543Liabilities 2013: $63,035Net Assets 2013: $568,5082013Assets 2014: $673,374Liabilities 2014: $62,319Net Assets 2014: $611,0552014Assets 2015: $569,829Liabilities 2015: $35,393Net Assets 2015: $534,4362015Assets 2016: $619,823Liabilities 2016: $87,229Net Assets 2016: $532,5942016Assets 2017: $580,715Liabilities 2017: $162,805Net Assets 2017: $417,9102017Assets 2018: $494,550Liabilities 2018: $116,001Net Assets 2018: $378,5492018Assets 2019: $404,578Liabilities 2019: $76,605Net Assets 2019: $327,9732019Assets 2020: $718,377Liabilities 2020: $276,222Net Assets 2020: $442,1552020Assets 2021: $718,099Liabilities 2021: $124,253Net Assets 2021: $593,8462021Assets 2022: $795,669Liabilities 2022: $58,751Net Assets 2022: $736,9182022Assets 2023: $923,433Liabilities 2023: $116,411Net Assets 2023: $807,0222023Assets 2024: $1,086,987Liabilities 2024: $313,268Net Assets 2024: $773,7192024Assets 2025: $1,001,183Liabilities 2025: $211,504Net Assets 2025: $789,6792025

Highlighted filing

2018

Assets$494,550
Liabilities$116,001
Net Assets$378,549
Open 2018 Filing

Operations Trend

Revenue Growth43rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $492,508Expenses 2011: $616,246Net Income 2011: -$123,7382011Revenue 2012: $545,527Expenses 2012: $584,694Net Income 2012: -$39,1672012Revenue 2013: $718,100Expenses 2013: $536,970Net Income 2013: $181,1302013Revenue 2014: $506,157Expenses 2014: $472,740Net Income 2014: $33,4172014Revenue 2015: $632,883Expenses 2015: $673,713Net Income 2015: -$40,8302015Revenue 2016: $792,594Expenses 2016: $824,208Net Income 2016: -$31,6142016Revenue 2017: $792,764Expenses 2017: $907,448Net Income 2017: -$114,6842017Revenue 2018: $799,084Expenses 2018: $830,416Net Income 2018: -$31,3322018Revenue 2019: $800,307Expenses 2019: $842,357Net Income 2019: -$42,0502019Revenue 2020: $900,436Expenses 2020: $780,802Net Income 2020: $119,6342020Revenue 2021: $851,464Expenses 2021: $717,434Net Income 2021: $134,0302021Revenue 2022: $944,438Expenses 2022: $777,191Net Income 2022: $167,2472022Revenue 2023: $938,927Expenses 2023: $873,955Net Income 2023: $64,9722023Revenue 2024: $1,112,279Expenses 2024: $1,167,615Net Income 2024: -$55,3362024Revenue 2025: $1,232,770Expenses 2025: $1,228,928Net Income 2025: $3,8422025

Highlighted filing

2018

Revenue$799,084
Expenses$830,416
Net Income-$31,332
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2017 to Sep 30, 2018
Signed
Mar 25, 2019
Return Version
2017v2.3
Gross Receipts
$911,475
Mission and Program Overview

Mission

The corporation is organized to increase scientific and public understanding of restless legs syndrome or rls, to encourage and provide funding for research leading to treatments and cure for the disease, to provide support to those suffering from the disease, to be the leading center for information on all aspects of the disease, and to carry on such other activities related to the disease, its treatments and cure, as may be designated by the board from time to time.

The restless legs syndrome foundation is an not-for-profit organization dedicated to: providing and enhancing educational materials about restless legs syndrome ("rls") to patients, physicians, and other allied healthcare providers; assisting patients by identifying rls-related resources available to them at the local and national level; and supporting medical research into the causation of rls and possible treatments or cures.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$378,011--
Investments in Publicly Traded Securities$0$288,766▲ $288,766
Cash and Non-Interest-Bearing Accounts$133,770$157,786▲ $24,016
Land, Buildings, and Equipment, Net$53,300$26,600▼ $26,700
Prepaid Expenses and Deferred Charges$14,034$19,798▲ $5,764
Total Assets$580,715$494,550▼ $86,165
Other Assets Total$1,600$1,600→ $0
Liabilities
Accounts Payable and Accrued Expenses$3,192$79,705▲ $76,513
Grants Payable$127,053$36,296▼ $90,757
Other Liabilities$32,560$0▼ $32,560
Total Liabilities$162,805$116,001▼ $46,804
Net Assets / Fund Balance
Temporarily Rstr Net Assets$96,236$229,747▲ $133,511
Unrestricted Net Assets$321,674$148,802▼ $172,872
Total Net Assets Fund Balance$417,910$378,549▼ $39,361
Total Liabilities and Net Assets / Fund Balance$580,715$494,550▼ $86,165

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$26,600$53,400$80,000
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Karla DzienkowskiExecutive DirectorFT$80,384$8,038$88,422

Board Members and Trustees

NameTitle
Lewis PhelpsChairman
Robert WatermanChairman Emeritus
Carla Rahn PhillipsDirector
Jacquelyn BainbridgeDirector
Michael J ZigmondDirector
Paul RochesterDirector
Sandra KatanickDirector
Shalini ParuthiDirector
Starla PhelpsDirector
Steve MccannDirector
Linda SecretanSecretary
Ronald W BarrettTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$779,162
Program Service Revenue
$0
Investment Income
$19,660
Other Revenue
$262
All Other Contributions
$641,810
Change in Net Assets
$-31,332

Audited Revenue Reconciliation

Revenue per Audited Statements
$799,084
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-8,029
Total Revenue per Audited Statements
$791,055
Total Revenue per Form 990
$799,084
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$528,045
Salaries, Compensation, and Employee Benefits$214,657
Total Fundraising Expense$122,154
Professional Fundraising Fees$87,600
Grants and Similar Amounts Paid$114

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Office Expenses$112,695$3,862$760$117,317
Other Salaries and Wages$90,708$6,437$1,881$99,026
Current Officers, Directors, Trustees, and Key Employees$84,678$6,009$1,756$92,443
Fees for Services Professional Fundraising--$87,600$87,600
Fees for Services Accounting-$58,603-$58,603
Occupancy$43,533$2,870$941$47,344
Information Technology$44,464$805$805$46,074
Depreciation Depletion$25,365-$1,335$26,700
Conferences and Meetings$9,587$6,156-$15,743
Payroll Taxes$13,937$989$289$15,215
Other Expenses$65,568-$11,510$11,510
Fees for Services Other$3,727$5,344-$9,071
Pension Plan Contributions$6,794$482$141$7,417
Insurance$3,998$284$83$4,365
Travel$1,536$109$32$1,677
Fees for Service Investment Mgmnt Fees-$1,579-$1,579
Other Employee Benefits$509$36$11$556
Grants to Domestic Orgs$114--$114
Total Functional Expenses$614,697$93,565$122,154$830,416

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$830,416
Total Expenses per Audited Statements$830,416
Total Expenses per Form 990$830,416
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$87,600
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 was reviewed by the finance committee with the preparing cpa. After any adjustments were made, the finance committee recommended to the board of directors the filing of the return. The board reviewed the final return and approved its filing with irs.”

Form 990, Part VI, Section B, Line 12C

“Annual review of rlsf written conflicts of interest policy with members of board; review with members of board of rlsf policy, signing of conflicts documentation, and disclosure of any conflicts of interest.”

Form 990, Part VI, Section B, Line 15A

“Executive committee obtains compensation data for comparably sized organizations operating within comparably sized geographic areas. The committee reviews this data and compares it to compensation for the executive director in making its determination that the salary is reasonable. The deliberation process is documented in the minutes of the board.”

Form 990, Part VI, Section C, Line 19

“Governing documents are available to the public upon request. Audited financial statements and annual report are posted to www.rls.org website and available for inspection. Irs form 990 is posted to www.rls.org and other publicly available websites.”

Filing and Contact Details

Filer

Filer Name
Restless Legs Syndrome Foundation
EIN
56-1784846
Phone
5123669109
Address
3006 BEE CAVE RD NO D-206, AUSTIN, TX 78746

Signing Officer

Name
Karla Dzienkowski
Title
Executive Director
Phone
5123669109
Signed
2019-03-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Karla Dzienkowski
Formed
1993
Legal Domicile
TX
Voting Board Members
12
Independent Board Members
12
Employees
6
Volunteers
104

Preparer

Firm
Reynolds & Franke Pc
Address
6850 AUSTIN CENTER BLVD SUITE 100, AUSTIN, TX 78731
Preparer
Ronald H Reynolds
Phone
5122063141
Supplemental Narrative

Additional Explanations

FORM 990, PART V, LINE 1A & 2A:

“The organization was unable to obtain the original form 1096 and form w-3 from their prior bookkeeper. The organization submitted a form 4506-t to the irs and have yet to receive the information requested. Therefore, the organization has decided to move forward with the processing of the form 990 with the information they believe to be correct.”

Financial Statement Notes

PART X, LINE 2:

“The most significant tax positions of the foundation are its assertion that it is exempt from income taxes and its determination of whether any amounts are subject to unrelated business income tax (ubit). Management has determined that the foundation had no activity subject to ubit during the fiscal years ended september 30, 2018 and 2017. All significant tax positions have been considered by management and it has determined that it is more likely than not that all tax positions would be sustained upon examination by taxing authorities.”

Raw XML AppendixShowing 400 of 589 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE RESTLESS LEGS SYNDROME FOUNDATION IS AN NOT-FOR-PROFIT ORGANIZATION DEDICATED TO: PROVIDING AND ENHANCING EDUCATIONAL MATERIALS ABOUT RESTLESS LEGS SYNDROME ("RLS") TO PATIENTS, PHYSICIANS, AND OTHER ALLIED HEALTHCARE PROVIDERS; ASSISTING PATIENTS BY IDENTIFYING RLS-RELATED RESOURCES AVAILABLE TO THEM AT THE LOCAL AND NATIONAL LEVEL; AND SUPPORTING MEDICAL RESEARCH INTO THE CAUSATION OF RLS AND POSSIBLE TREATMENTS OR CURES.
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IRS990/Desc0EDUCATIONAL. PROVIDING TRUSTED, UNBIASED INFORMATION ABOUT RESTLESS LEG SYNDROME [ALSO KNOWN AS WILLIS-EKBOM DISEASE] TO INDIVIDUALS AND HEALTHCARE PROVIDERS THROUGH PUBLICATIONS, WEBINARS, A WEBSITE, SOCIAL MEDIA SITES, AND DIRECT COMMUNICATIONS. PUBLICATIONS INCLUDE: A GENERAL INFORMATIONAL BROCHURE ON RLS; A PEDIATRIC RLS GUIDE FOR TEENS, TWENTY-FOUR DIFFERENT HANDOUTS ON RLS-SPECIFIC TOPICS DIRECTED TOWARDS PATIENTS; A QUARTERLY MAGAZINE; MONTHLY E-NEWSLETTERS; TEN SPECIALTY BROCHURES DIRECTED TO HEALTHCARE PROVIDERS; AND A MEDICAL BULLETIN ISSUED AS DEVELOPMENTS MERIT. DURING THIS FISCAL YEAR, FOURTEEN WEBINARS ON RLS-RELATED TOPICS WERE OFFERED TO THE PUBLIC. OVER 1,800 PARTICIPANTS VIEWED THEIR WEBINARS. THE ORGANIZATION'S WEBSITE [WWW.RLS.ORG] ATTRACTS OVER 172,000 ONLINE VISITORS THAT GENERATE OVER 412,820 PAGE VIEWS EACH YEAR. THE RLS FACEBOOK PAGE HAS 11,736 SUPPORTERS AND PARTICIPANTS. THE RLSF BLOG RECEIVES OVER 511,655 PAGE VIEWS. THE RLSF YOUTUBE CHANNEL HAS RECEIVED OVER 42,680 VIEWS.
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IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01993
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/SecuritiesAmt02787
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GrantsPayableGrp/BOYAmt0127053
IRS990/GrantsPayableGrp/EOYAmt036296
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0114
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0114
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0115178
IRS990/GrossReceiptsAmt0911475
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IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt012
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IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0805
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0805
IRS990/InformationTechnologyGrp/ProgramServicesAmt044464
IRS990/InformationTechnologyGrp/TotalAmt046074
IRS990/InsuranceGrp/FundraisingAmt083
IRS990/InsuranceGrp/ManagementAndGeneralAmt0284
IRS990/InsuranceGrp/ProgramServicesAmt03998
IRS990/InsuranceGrp/TotalAmt04365
IRS990/InvestmentIncomeGrp/ExclusionAmt016873
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt016873
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt00
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IRS990/IRPDocumentW2GCnt00
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IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
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IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE RESTLESS LEGS SYNDROME FOUNDATION IS AN NOT-FOR-PROFIT ORGANIZATION DEDICATED TO: PROVIDING AND ENHANCING EDUCATIONAL MATERIALS ABOUT RESTLESS LEGS SYNDROME ("RLS") TO PATIENTS, PHYSICIANS, AND OTHER ALLIED HEALTHCARE PROVIDERS; ASSISTING PATIENTS BY IDENTIFYING RLS-RELATED RESOURCES AVAILABLE TO THEM AT THE LOCAL AND NATIONAL LEVEL; AND SUPPORTING MEDICAL RESEARCH INTO THE CAUSATION OF RLS AND POSSIBLE TREATMENTS OR CURES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0417910
IRS990/NetAssetsOrFundBalancesEOYAmt0378549
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt02787
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt02787
IRS990/NetUnrelatedBusTxblIncmAmt00
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IRS990/NondeductibleContributionsInd00
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IRS990/OccupancyGrp/TotalAmt047344
IRS990/OfficeExpensesGrp/FundraisingAmt0760
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt03862
IRS990/OfficeExpensesGrp/ProgramServicesAmt0112695
IRS990/OfficeExpensesGrp/TotalAmt0117317
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
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IRS990/OtherAssetsTotalGrp/EOYAmt01600
IRS990/OtherChangesInNetAssetsAmt00
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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt036
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0509
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0556
IRS990/OtherExpensesGrp/Desc0COMMUNITY OUTREACH
IRS990/OtherExpensesGrp/Desc1COMMUNITY INTERACTIONS
IRS990/OtherExpensesGrp/Desc2STATE REGISTRATION FEES
IRS990/OtherExpensesGrp/FundraisingAmt015010
IRS990/OtherExpensesGrp/FundraisingAmt111510
IRS990/OtherExpensesGrp/ProgramServicesAmt0107484
IRS990/OtherExpensesGrp/ProgramServicesAmt165568
IRS990/OtherExpensesGrp/TotalAmt0107484
IRS990/OtherExpensesGrp/TotalAmt180578
IRS990/OtherExpensesGrp/TotalAmt211510
IRS990/OtherLiabilitiesGrp/BOYAmt032560
IRS990/OtherLiabilitiesGrp/EOYAmt00
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0MISC PRODUCT SALES
IRS990/OtherRevenueMiscGrp/ExclusionAmt0262
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0262
IRS990/OtherRevenueTotalAmt0262
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt01881
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt06437
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt090708
IRS990/OtherSalariesAndWagesGrp/TotalAmt099026
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt0289
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0989
IRS990/PayrollTaxesGrp/ProgramServicesAmt013937
IRS990/PayrollTaxesGrp/TotalAmt015215
IRS990/PensionPlanContributionsGrp/FundraisingAmt0141
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0482
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt06794
IRS990/PensionPlanContributionsGrp/TotalAmt07417
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt014034
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt019798
IRS990/PrincipalOfficerNm0KARLA DZIENKOWSKI
IRS990/ProfessionalFundraisingInd01
IRS990/ProgSrvcAccomActy2Grp/Desc0MEMBERSHIP. RLSF SERVES AS A SUPPORT STRUCTURE FOR OVER 16,000 INDIVIDUALS WHO, ON AN ANNUAL BASIS, SEEK INFORMATION ON RLS, EITHER AS ONE WHO SUFFERS FROM THE DISEASE OR AS ONE WHO HAS A FRIEND OR LOVED ONE WHO SUFFERS FROM THE DISEASE. OVER 5,000 INDIVIDUALS HAVE JOINED RLSF AND TAKE ADVANTAGE OF THE CLEARING-HOUSE OF SERVICES THAT PROVIDE INFORMATION ON LATEST DEVELOPMENTS IN TREATMENT, COUNSELING, AND CONVERSATION WITH OTHERS WHO SHARE THE AFFLICTION. OVER 325 HEALTH CARE PROFESSIONALS SPECIALIZING IN THE TREATMENT OF RLS PARTICIPATE IN PROVIDING INFORMATION. MEMBER BENEFITS INCLUDE ACCESS TO A PROPRIETARY DATABASE FOR TREATMENT INFORMATION, A QUARTERLY NEWS MAGAZINE, A SUBSCRIPTION TO A MEDICAL BULLETIN FOR HEALTH-CARE PROVIDERS, A MEDICAL-ALERT CARD, AND ACCESS THE MEMBERS-ONLY SECTION OF THE RLS WEBSITE. THE MEMBER WEBSITE PROVIDES VISITORS WITH INFORMATION ABOUT RLS, TREATMENT PROTOCOLS, RESEARCH ADVANCEMENTS, DISCUSSION PANELS, AND LINKS TO RLSF SOCIAL MEDIA.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0148868
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH. THE RLSF SUPPORTS AND FUNDS RLS-RELATED RESEARCH PROJECTS. DURING THE CURRENT FISCAL YEAR, GRANTS WERE MADE TO RESEARCHERS STUDYING: A POTENTIAL THERAPY FOR THE TREATMENT OF RLS AND A MULTI-CENTER LONGITUDINAL PILOT OBSERVATIONAL STUDY OF THE EFFICACY AND TOLERABILITY OF LONG-TERM TREATMENT OF RLS USING OPIOIDS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt09669
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0114
IRS990/ProgSrvcAccomActyOtherGrp/Desc0SUPPORT GROUPS: RLSF SUPPORTS SEVENTY SUPPORT GROUP LEADERS AND CONTACT VOLUNTEERS IN THIRTY-TWO STATES AND CANADA. THE LEADERS HOLD AT LEAST ONE IN-PERSON MEETING PER YEAR IN THEIR LOCAL COMMUNITY. AT THESE MEETINGS, RLS-SUPPORTED EDUCATIONAL MATERIALS ARE DISTRIBUTED. FURTHERMORE, THE LOCAL LEADER WORKS WITH LOCAL HEALTH CARE PROVIDERS TO ENSURE THAT RLS PATIENTS HAVE ACCESS TO TIMELY INFORMATION ON THE DISEASE. THE ESTIMATED NUMBER OF UNIQUE INDIVIDUALS REACHED THROUGH SUPPORT GROUPS IS OVER 1,000 PEOPLE PER YEAR.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt029709
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0751667
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0181532
IRS990/PYInvestmentIncomeAmt039390
IRS990/PYOtherExpensesAmt0413154
IRS990/PYOtherRevenueAmt01707
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-114684
IRS990/PYSalariesCompEmpBnftPaidAmt0226262
IRS990/PYTotalExpensesAmt0907448
IRS990/PYTotalProfFndrsngExpnsAmt086500
IRS990/PYTotalRevenueAmt0792764
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-31332
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0378011
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt029249
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt060062
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt089311
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0779162
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0751667
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0760623
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0625490
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0380915
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt03297857
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt016873
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt039390
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt031785
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt017772
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt018724
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0124544
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt0262
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt01707
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0185
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt02154
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt016873
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt039390
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt031785
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt017772
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt018724
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0124544
IRS990ScheduleA/InvestmentIncomeCYPct00.03640
IRS990ScheduleA/InvestmentIncomePYPct00.03000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.93760
IRS990ScheduleA/PublicSupportPY509Pct00.96230
IRS990ScheduleA/PublicSupportTotal509Amt03210700
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt029249
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt060062
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt089311
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0779424
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0753374
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0760808
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0625490
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0380915
IRS990ScheduleA/Total509Grp/TotalAmt03300011
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0796297
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0792764
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0792593
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0643262
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0399639
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt03424555
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0830416
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-8029
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt026600
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt053400
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt080000
IRS990ScheduleD/RevenueNotReportedAmt0-8029
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0799084
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE MOST SIGNIFICANT TAX POSITIONS OF THE FOUNDATION ARE ITS ASSERTION THAT IT IS EXEMPT FROM INCOME TAXES AND ITS DETERMINATION OF WHETHER ANY AMOUNTS ARE SUBJECT TO UNRELATED BUSINESS INCOME TAX (UBIT). MANAGEMENT HAS DETERMINED THAT THE FOUNDATION HAD NO ACTIVITY SUBJECT TO UBIT DURING THE FISCAL YEARS ENDED SEPTEMBER 30, 2018 AND 2017. ALL SIGNIFICANT TAX POSITIONS HAVE BEEN CONSIDERED BY MANAGEMENT AND IT HAS DETERMINED THAT IT IS MORE LIKELY THAN NOT THAT ALL TAX POSITIONS WOULD BE SUSTAINED UPON EXAMINATION BY TAXING AUTHORITIES.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt026600
IRS990ScheduleD/TotalExpensesPerForm990Amt0830416
IRS990ScheduleD/TotalRevenuePerForm990Amt0799084
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0791055
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0830416

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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$494,550
Liabilities
$116,001
Net assets
$378,549
Revenue
$799,084
Expenses
$830,416
Net income
-$31,332
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.00$0.21$0.79$1.23$1.23$0.00
2024Detailed filing. Detailed filing data is available for this year.$1.09$0.31$0.77$1.11$1.17$0.06
2023Detailed filing. Detailed filing data is available for this year.$0.92$0.12$0.81$0.94$0.87$0.06
2022Detailed filing. Detailed filing data is available for this year.$0.80$0.06$0.74$0.94$0.78$0.17
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.72$0.12$0.59$0.85$0.72$0.13
2020Detailed filing. Detailed filing data is available for this year.$0.72$0.28$0.44$0.90$0.78$0.12
2019Detailed filing. Detailed filing data is available for this year.$0.40$0.08$0.33$0.80$0.84$0.04
2018Detailed filing. Detailed filing data is available for this year.$0.49$0.12$0.38$0.80$0.83$0.03
2017Detailed filing. Detailed filing data is available for this year.$0.58$0.16$0.42$0.79$0.91$0.11
2016Detailed filing. Detailed filing data is available for this year.$0.62$0.09$0.53$0.79$0.82$0.03
2015Detailed filing. Detailed filing data is available for this year.$0.57$0.04$0.53$0.63$0.67$0.04
2014Summary only. Only limited summary data is available for this year.$0.67$0.06$0.61$0.51$0.47$0.03
2013Summary only. Only limited summary data is available for this year.$0.63$0.06$0.57$0.72$0.54$0.18
2012Summary only. Only limited summary data is available for this year.$0.45$0.08$0.38$0.55$0.58$0.04
2011Summary only. Only limited summary data is available for this year.$0.55$0.17$0.37$0.49$0.62$0.12