Restless Legs Syndrome Foundation Inc.

“Discussion copy of form 990 is circulated among board members prior to finalization. Comments are solicited and reviewed. Final copy of form 990 is circulated among board members and executive director reviews prior to authorizing submission.”

“Exec. Committee obtained compensation data for comparably sized organizations operating within comparably sized geographic areas. Committee reviewed this data and compared it to compensation for exec. Dir. In making it's determination that salary was appropriate.”

“Governing documents are available to the public upon request. Audited financial statements and annual report are posted to www.rls.org website and available for inspection. Irs form 990 is posted to www.rls.org and other publicly available websites.”

“The restless legs syndrome foundation is a not-for-profit organization dedicated to: providing and enhancing educational materials about restless legs syndrome ("rls") to patients, physicians, and other allied healthcare providers; assisting patients by identifying rls-related resources available to them at the local and national level; and supporting medical research into the causation of rls and possible treatments or cures.”

“155,000 online visitors each year. The rls facebook page has over 9,600 supporters and participants.”

“Member website provides visitors with information about rls, treatement protocols, research advancements, discussion panels, and links to rlsf social media.”

“Support groups. Rlsf supports seventy-eight support group leaders and contact volunteers in twenty-eight states and canada. The leaders hold at least one in-person meeting per year in their local community. At these meetings, rls-supported educational materials are distributed. Furthermore, the local leader works with local health care providers to ensure that rls patients have access to timely information on the disease. The estimated number of unique individuals reached through support groups is over 1,000 people per year.”