Civic Intelligence

Restless Legs Syndrome Foundation Inc.

990 • Fiscal year 2015 • EIN 56-1784846

Oct 01, 2014 to Sep 30, 2015 • Filed on Apr 20, 2016

3006 Bee Caves Rd D206Austin, TX 78746

(512) 328-7224

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

54th percentile

0.06x

Higher debt load relative to assets than 54% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Liabilities / Revenue

54th percentile

0.06x

Higher debt load relative to revenue than 54% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Net Margin

25th percentile

-6.5%

Higher net margin than 25% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Top Officer Pay

82nd percentile

$80,000

Higher top officer pay than 82% of similar nonprofits.

Top officer pay equals 12.6% of source-year revenue.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Asset Growth

11th percentile

-15%

Faster asset growth than 11% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2014 to 2015

Revenue Growth

78th percentile

25%

Faster revenue growth than 78% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2014 to 2015

Assets

Down

$569,829

Down $103,545 (-15%) from 2014

Net Assets

Down

$534,436

Down $76,619 (-13%) from 2014

Liabilities

Down

$35,393

Down $26,926 (-43%) from 2014

Revenue

Up

$662,583

Up $156,426 (+31%) from 2014

Expenses

Up

$673,713

Up $200,973 (+43%) from 2014

Net Income

Down

-$11,130

Down $44,547 (-133%) from 2014

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $545,518Liabilities 2011: $173,713Net Assets 2011: $371,8052011Assets 2012: $454,173Liabilities 2012: $75,499Net Assets 2012: $378,6742012Assets 2013: $631,543Liabilities 2013: $63,035Net Assets 2013: $568,5082013Assets 2014: $673,374Liabilities 2014: $62,319Net Assets 2014: $611,0552014Assets 2015: $569,829Liabilities 2015: $35,393Net Assets 2015: $534,4362015Assets 2016: $619,823Liabilities 2016: $87,229Net Assets 2016: $532,5942016Assets 2017: $580,715Liabilities 2017: $162,805Net Assets 2017: $417,9102017Assets 2018: $494,550Liabilities 2018: $116,001Net Assets 2018: $378,5492018Assets 2019: $404,578Liabilities 2019: $76,605Net Assets 2019: $327,9732019Assets 2020: $718,377Liabilities 2020: $276,222Net Assets 2020: $442,1552020Assets 2021: $718,099Liabilities 2021: $124,253Net Assets 2021: $593,8462021Assets 2022: $795,669Liabilities 2022: $58,751Net Assets 2022: $736,9182022Assets 2023: $923,433Liabilities 2023: $116,411Net Assets 2023: $807,0222023Assets 2024: $1,086,987Liabilities 2024: $313,268Net Assets 2024: $773,7192024Assets 2025: $1,001,183Liabilities 2025: $211,504Net Assets 2025: $789,6792025

Highlighted filing

2015

Assets$569,829
Liabilities$35,393
Net Assets$534,436

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $492,508Expenses 2011: $616,246Net Income 2011: -$123,7382011Revenue 2012: $545,527Expenses 2012: $584,694Net Income 2012: -$39,1672012Revenue 2013: $718,100Expenses 2013: $536,970Net Income 2013: $181,1302013Revenue 2014: $506,157Expenses 2014: $472,740Net Income 2014: $33,4172014Revenue 2015: $662,583Expenses 2015: $673,713Net Income 2015: -$11,1302015Revenue 2016: $792,594Expenses 2016: $824,208Net Income 2016: -$31,6142016Revenue 2017: $792,764Expenses 2017: $907,448Net Income 2017: -$114,6842017Revenue 2018: $799,084Expenses 2018: $830,416Net Income 2018: -$31,3322018Revenue 2019: $800,307Expenses 2019: $842,357Net Income 2019: -$42,0502019Revenue 2020: $900,436Expenses 2020: $780,802Net Income 2020: $119,6342020Revenue 2021: $851,464Expenses 2021: $717,434Net Income 2021: $134,0302021Revenue 2022: $944,438Expenses 2022: $777,191Net Income 2022: $167,2472022Revenue 2023: $938,927Expenses 2023: $873,955Net Income 2023: $64,9722023Revenue 2024: $1,112,279Expenses 2024: $1,167,615Net Income 2024: -$55,3362024Revenue 2025: $1,232,770Expenses 2025: $1,228,928Net Income 2025: $3,8422025

Highlighted filing

2015

Revenue$662,583
Expenses$673,713
Net Income-$11,130
Jump To
Filing Snapshot
Filing Period
Oct 1, 2014 to Sep 30, 2015
Signed
Apr 20, 2016
Return Version
2014v6.0
Gross Receipts
$662,583
Mission and Program Overview

Mission

The corporation is organized to increase scientific and public understanding of restless legs syndrome or rls, to encourage and provide funding for research leading to treatments and cure for the disease, to provide support to those suffering from the disease, to be the leading center for information on all aspects of the disease, and to carry on such other activities related to the disease, its treatments and cure, as may be designated by the board from time to time.

The restless legs syndrome foundation is a non-profit organization dedicated to: providing educational material on restless legs syndrome and related disorders to patients, physicians, and other healthcare providers;assisting patients by identifing resources available to them at the local and national level; supporting medical research into the causation and cure of restless legs syndrome foundation

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$442,051$397,431▼ $44,620
Cash and Non-Interest-Bearing Accounts$184,424$153,124▼ $31,300
Pledges and Grants Receivable$10,000$16,000▲ $6,000
Inventories for Sale or Use$7,053--
Land, Buildings, and Equipment, Net$5,136--
Prepaid Expenses and Deferred Charges$20,810$1,674▼ $19,136
Total Assets$673,374$569,829▼ $103,545
Other Assets Total$3,900$1,600▼ $2,300
Liabilities
Accounts Payable and Accrued Expenses$28,071$18,079▼ $9,992
Grants Payable$17,500--
Other Liabilities-$17,314-
Deferred Revenue$16,748--
Total Liabilities$62,319$35,393▼ $26,926
Net Assets / Fund Balance
Unrestricted Net Assets$491,190$300,879▼ $190,311
Temporarily Rstr Net Assets$119,865$233,557▲ $113,692
Total Net Assets Fund Balance$611,055$534,436▼ $76,619
Total Liabilities and Net Assets / Fund Balance$673,374$569,829▼ $103,545
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Karla DzienkowskiExec. DirectFT$80,000$80,000

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$655,190
Program Service Revenue
$0
Investment Income
$23,490
Other Revenue
$-16,097
All Other Contributions
$436,040
Change in Net Assets
$-11,130

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported Amount
Other Non Cash Contri Table1$29,700
Total Noncash Contributions1$29,700

Audited Revenue Reconciliation

Revenue per Audited Statements
$662,583
Revenue Not Reported on Form 990
$-73,992
Total Revenue per Audited Statements
$588,591
Total Revenue per Form 990
$662,583
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$360,193
Salaries, Compensation, and Employee Benefits$186,548
Total Fundraising Expense$113,792
Professional Fundraising Fees$95,322
Grants and Similar Amounts Paid$31,650

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$130,785$13,900$13,268$157,953
Information Technology$107,878-$2,800$110,678
Fees for Services Professional Fundraising--$95,322$95,322
Office Expenses$49,551$17,515-$67,066
Fees for Services Other$58,724--$58,724
Fees for Services Accounting$38,487$7,883-$46,370
Occupancy$37,439$7,668-$45,107
Grants to Domestic Orgs$31,650--$31,650
Travel-$18,488-$18,488
Other Employee Benefits$13,683$1,454$1,388$16,525
Payroll Taxes$9,994$1,062$1,014$12,070
Other Expenses$1,639$608-$1,639
All Other Expenses$1,258$64-$1,322
Total Functional Expenses$490,050$69,871$113,792$673,713

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$673,713
Total Expenses per Audited Statements$673,713
Total Expenses per Form 990$673,713
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Univ of FloridaGainesville, FL-Research$17,500
NAT'L INST ON DRUG ABUSEBethesda, MD-Research$14,150
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$95,322
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Expenses$17,314
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

The executive director reviews the form 990 on a preliminary basis. Thereafter, the form 990 is ciculated among members of the organization's finance committee. The committee, if satisfied with the contents of the form 990, recommends approval by the full board of directors. The directors are afforded opportunity to review and comment on the form 990. Once the board is satsified with the form 990 as presented, it approves filing the form with the internal revenue service.

Form 990, Page 6, Part VI, Line 15B

Executive director compensation is reviewed and set by finance committee recommendation and board of director's approval. The amount is based on a review of compensation paid to executive directors at comparably sized and complex tax-exempt organizations, considering the achievement of annual and long-term performance goals.

Form 990, Page 6, Part VI, Line 19

Copies of the organization's audited financial report are available to the public on its website: www.rls.org. Financial reports are also made available on other websites and upon request. Copies of the organizations' governing documents are made available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Restless Legs Syndrome Foundation
EIN
56-1784846
Address
3006 BEE CAVES RD D206, AUSTIN, TX 78746

Signing Officer

Name
Karla Dzienkowski
Title
Exec. Director
Signed
2016-04-20
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Ms Karla Dzienkowski
Formed
1992
Legal Domicile
Nc
Voting Board Members
8
Independent Board Members
8
Employees
3

Preparer

Firm
Navarrocpa
Address
3736 BEE CAVE RD STE 1-168, WEST LAKE HILLS, TX 78746
Preparer
Wilfred Navarro
Phone
5123287224
Supplemental Narrative

Additional Explanations

Form 990, Page 1, Item B

Return is amended to correct "prior year" amounts as reported in part i, form 990. Return is also amended to report "in-kind" contributions received during fiscal year.

FORM 990 - ORGANIZATION'S MISSION

The restless legs syndrome foundation is a non-profit organization dedicated to: providing educational material on restless legs syndrome and related disorders to patients, physicians, and other healthcare providers;assisting patients by identifing resources available to them at the local and national level; supporting medical research into the causation and cure of restless legs syndrome foundation

Form 990, Page 2, Part III, Line 4A

Visitors each day. The organization's facebook page has over 8,400 supporters and participants.

Form 990, Page 2, Part III, Line 4B

The rls website. The website provide visitors with information about rls, how to connect with othres, links to facebook, and the organization's blog.

Form 990, Page 2, Part III, Line 4D

Support groups. The organizations supports seventy-five support group leaders and contact volunteers in thirty-one states and canada. These leaders hold at least one in-person meeting per year in their local community where he or she distributes rls educational materials and works with local health care providers to ensure that sufferers of the disease have access to the latest information on the disease. The estimated number of unique individuals reached through support groups is over 1,000 per year.

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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01454
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IRS990/OtherExpensesGrp/Desc0STATE REGISTRATION COSTS
IRS990/OtherExpensesGrp/Desc1BOARD OF DIRECTOR'S EXPNS
IRS990/OtherExpensesGrp/Desc2CONSULTING
IRS990/OtherExpensesGrp/Desc3MED. ADVISORY BD. EXPNS
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1614
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2608
IRS990/OtherExpensesGrp/ProgramServicesAmt03000
IRS990/OtherExpensesGrp/ProgramServicesAmt12996
IRS990/OtherExpensesGrp/ProgramServicesAmt22966
IRS990/OtherExpensesGrp/ProgramServicesAmt31639
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IRS990/OtherExpensesGrp/TotalAmt13610
IRS990/OtherExpensesGrp/TotalAmt23574
IRS990/OtherExpensesGrp/TotalAmt31639
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IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/BusinessCd1900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER REVENUE
IRS990/OtherRevenueMiscGrp/Desc1LOSS ON SALE OF MISC. ASSETS
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt04825
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt1-20922
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IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt1-20922
IRS990/OtherRevenueTotalAmt0-16097
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt013268
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IRS990/PledgesAndGrantsReceivableGrp/EOYAmt016000
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IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt020810
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01674
IRS990/PrincipalOfficerNm0MS KARLA DZIENKOWSKI
IRS990/PriorPeriodAdjustmentsAmt08503
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IRS990/ProgSrvcAccomActy2Grp/Desc0MEMBERSHIP. THE ORGANIZATION SERVES AS A SUPPORT STRUCTURE FOR OVER 16,000 INDIVIDUALS WHO ARE INTERESTED IN RESTLESS LEGS SYNDROME EITHER BECAUSE HE OR SHE SUFFERS FROM THE DISEASE, HAS A FRIEND OR LOVED ONE WHO IS AFFLICTED, OR IS A HEALTH CARE PROFESSIONAL WHO PROVIDES SERVICES TO THOSE WHO SUFFER THE PAIN OF RLS. THE ORGANIZATION PROVIDES CLEARING-HOUSE SERVICES TO MEMBERS BY PUBLICIZING THE LATEST DEVELOPMENTS IN TREATMENT AS WELL AS PROVIDING POINT-OF-CONTACT SERVICES FOR AFFLICTED PERSONS WHO SEEK COUNSELING, TREATMENT, OR CONVERSATION WITH OTHERS WHO SHARE THEIR PAIN. MEMBER BENEFITS INCLUDE ACCESS TO THE RLS DATABASE OF TREATMENT, QUARTERLY NEWSLETTER, A SUBSCRIPTION TO THE MEDICAL BULLETIN FOR THEIR HEALTH CARE PROVIDER, A MEDICAL-ALERT CARD, AND ACCESS TO THE MEMBERS-ONLY SECTION OF THE RLS WEBSITE. THE WEBSITE PROVIDE VISITORS WITH INFORMATION ABOUT RLS, HOW TO CONNECT WITH OTHRES, LINKS TO FACEBOOK, AND THE ORGANIZATION'S BLOG.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0152901
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH. THE ORGANIZATION SUPPORTS AND FUND RLS-RELATED RESEARCH PROJECTS. DURING THE CURRENT FISCAL YEAR, TWO RESEARCH GRANTS WERE MADE TO INVESTIGATE IMPROVEMENTS IN TREATMENT AND A POSSIBLE CURE FOR RLS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt031650
IRS990/ProgSrvcAccomActy3Grp/GrantAmt031650
IRS990/ProgSrvcAccomActyOtherGrp/Desc0SUPPORT GROUPS. THE ORGANIZATIONS SUPPORTS SEVENTY-FIVE SUPPORT GROUP LEADERS AND CONTACT VOLUNTEERS IN THIRTY-ONE STATES AND CANADA. THESE LEADERS HOLD AT LEAST ONE IN-PERSON MEETING PER YEAR IN THEIR LOCAL COMMUNITY WHERE HE OR SHE DISTRIBUTES RLS EDUCATIONAL MATERIALS AND WORKS WITH LOCAL HEALTH CARE PROVIDERS TO ENSURE THAT SUFFERERS OF THE DISEASE HAVE ACCESS TO THE LATEST INFORMATION ON THE DISEASE. THE ESTIMATED NUMBER OF UNIQUE INDIVIDUALS REACHED THROUGH SUPPORT GROUPS IS OVER 1,000 PER YEAR.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt07076
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0380915
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt035000
IRS990/PYInvestmentIncomeAmt018687
IRS990/PYOtherExpensesAmt0201484
IRS990/PYOtherRevenueAmt0331
IRS990/PYProgramServiceRevenueAmt0106224
IRS990/PYRevenuesLessExpensesAmt033417
IRS990/PYSalariesCompEmpBnftPaidAmt0236256
IRS990/PYTotalExpensesAmt0472740
IRS990/PYTotalRevenueAmt0506157
IRS990/ReconcilationRevenueExpnssAmt0-11130
IRS990/RegularMonitoringEnfrcInd0false
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0655190
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0380915
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0604868
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0433261
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0371454
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02445688
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt017772
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt018724
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt014621
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt01210
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt012107
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt064434
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt0-16097
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0-16097
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt017772
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt018724
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt014621
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt01210
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt012107
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt064434
IRS990ScheduleA/InvestmentIncomeCYPct00.03000
IRS990ScheduleA/InvestmentIncomePYPct00.00000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.97420
IRS990ScheduleA/PublicSupportTotal509Amt02429591
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0639093
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0380915
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0604868
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0433261
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0371454
IRS990ScheduleA/Total509Grp/TotalAmt02429591
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0656865
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0399639
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0619489
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0434471
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0383561
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt02494025
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt0-29700
IRS990ScheduleD/EndowmentsHeldRelatedOrgInd0false
IRS990ScheduleD/EndowmentsHeldUnrelatedOrgInd0false
IRS990ScheduleD/ExpensesSubtotalAmt0673713
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-44292
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt017314
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0ACCRUED EXPENSES
IRS990ScheduleD/RevenueNotReportedAmt0-73992
IRS990ScheduleD/RevenueSubtotalAmt0662583
IRS990ScheduleD/TotalExpensesPerForm990Amt0673713
IRS990ScheduleD/TotalLiabilityAmt017314
IRS990ScheduleD/TotalRevenuePerForm990Amt0662583
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0588591
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0673713
IRS990ScheduleG/AgrmtProfFundraisingActyInd0true
IRS990ScheduleG/AllStatesCd0All States
IRS990ScheduleG/EmailSolicitationsInd0X
IRS990ScheduleG/FundraiserActivityInfoGrp/ActivityTxt0FUNDRAISIN
IRS990ScheduleG/FundraiserActivityInfoGrp/FundraiserControlOfFundsInd0true
IRS990ScheduleG/FundraiserActivityInfoGrp/GrossReceiptsAmt0517585
IRS990ScheduleG/FundraiserActivityInfoGrp/NetToOrganizationAmt0440785
IRS990ScheduleG/FundraiserActivityInfoGrp/OrganizationBusinessName/BusinessNameLine1Txt0RISING TIDE DIRECT
IRS990ScheduleG/FundraiserActivityInfoGrp/RetainedByContractorAmt076800
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/AddressLine1Txt0233 NEEDHAM ST STE 300
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/CityNm0NEWTON
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/StateAbbreviationCd0MA
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/ZIPCd002464
IRS990ScheduleG/InPersonSolicitationsInd0X
IRS990ScheduleG/MailSolicitationsInd0X
IRS990ScheduleG/SupplementalInformationDetail/ExplanationTxt0RISING TIDE DIRECT NONE
IRS990ScheduleG/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE G, PAGE 1, PART I, LINE 2B, COLUMN (III)
IRS990ScheduleG/TotalGrossReceiptsAmt0517585
IRS990ScheduleG/TotalNetToOrganizationAmt0440785
IRS990ScheduleG/TotalRetainedByContractorsAmt076800
IRS990ScheduleI/GrantRecordsMaintainedInd0false
IRS990ScheduleI/RecipientTable/CashGrantAmt017500
IRS990ScheduleI/RecipientTable/CashGrantAmt114150
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIV OF FLORIDA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1NAT'L INST ON DRUG ABUSE
IRS990ScheduleI/RecipientTable/RecipientEIN0596002052
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0219 GRINTER HALL
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt16001 EXEC BLVD 5102
IRS990ScheduleI/RecipientTable/USAddress/CityNm0GAINESVILLE
IRS990ScheduleI/RecipientTable/USAddress/CityNm1BETHESDA
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IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MD
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IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt029700
IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd0false
IRS990ScheduleM/ThirdPartiesUsedInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0RETURN IS AMENDED TO CORRECT "PRIOR YEAR" AMOUNTS AS REPORTED IN PART I, FORM 990. RETURN IS ALSO AMENDED TO REPORT "IN-KIND" CONTRIBUTIONS RECEIVED DURING FISCAL YEAR.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE RESTLESS LEGS SYNDROME FOUNDATION IS A NON-PROFIT ORGANIZATION DEDICATED TO: PROVIDING EDUCATIONAL MATERIAL ON RESTLESS LEGS SYNDROME AND RELATED DISORDERS TO PATIENTS, PHYSICIANS, AND OTHER HEALTHCARE PROVIDERS;ASSISTING PATIENTS BY IDENTIFING RESOURCES AVAILABLE TO THEM AT THE LOCAL AND NATIONAL LEVEL; SUPPORTING MEDICAL RESEARCH INTO THE CAUSATION AND CURE OF RESTLESS LEGS SYNDROME FOUNDATION
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2VISITORS EACH DAY. THE ORGANIZATION'S FACEBOOK PAGE HAS OVER 8,400 SUPPORTERS AND PARTICIPANTS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE RLS WEBSITE. THE WEBSITE PROVIDE VISITORS WITH INFORMATION ABOUT RLS, HOW TO CONNECT WITH OTHRES, LINKS TO FACEBOOK, AND THE ORGANIZATION'S BLOG.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4SUPPORT GROUPS. THE ORGANIZATIONS SUPPORTS SEVENTY-FIVE SUPPORT GROUP LEADERS AND CONTACT VOLUNTEERS IN THIRTY-ONE STATES AND CANADA. THESE LEADERS HOLD AT LEAST ONE IN-PERSON MEETING PER YEAR IN THEIR LOCAL COMMUNITY WHERE HE OR SHE DISTRIBUTES RLS EDUCATIONAL MATERIALS AND WORKS WITH LOCAL HEALTH CARE PROVIDERS TO ENSURE THAT SUFFERERS OF THE DISEASE HAVE ACCESS TO THE LATEST INFORMATION ON THE DISEASE. THE ESTIMATED NUMBER OF UNIQUE INDIVIDUALS REACHED THROUGH SUPPORT GROUPS IS OVER 1,000 PER YEAR.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5THE EXECUTIVE DIRECTOR REVIEWS THE FORM 990 ON A PRELIMINARY BASIS. THEREAFTER, THE FORM 990 IS CICULATED AMONG MEMBERS OF THE ORGANIZATION'S FINANCE COMMITTEE. THE COMMITTEE, IF SATISFIED WITH THE CONTENTS OF THE FORM 990, RECOMMENDS APPROVAL BY THE FULL BOARD OF DIRECTORS. THE DIRECTORS ARE AFFORDED OPPORTUNITY TO REVIEW AND COMMENT ON THE FORM 990. ONCE THE BOARD IS SATSIFIED WITH THE FORM 990 AS PRESENTED, IT APPROVES FILING THE FORM WITH THE INTERNAL REVENUE SERVICE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6EXECUTIVE DIRECTOR COMPENSATION IS REVIEWED AND SET BY FINANCE COMMITTEE RECOMMENDATION AND BOARD OF DIRECTOR'S APPROVAL. THE AMOUNT IS BASED ON A REVIEW OF COMPENSATION PAID TO EXECUTIVE DIRECTORS AT COMPARABLY SIZED AND COMPLEX TAX-EXEMPT ORGANIZATIONS, CONSIDERING THE ACHIEVEMENT OF ANNUAL AND LONG-TERM PERFORMANCE GOALS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt7COPIES OF THE ORGANIZATION'S AUDITED FINANCIAL REPORT ARE AVAILABLE TO THE PUBLIC ON ITS WEBSITE: WWW.RLS.ORG. FINANCIAL REPORTS ARE ALSO MADE AVAILABLE ON OTHER WEBSITES AND UPON REQUEST. COPIES OF THE ORGANIZATIONS' GOVERNING DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 1, ITEM B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 2, PART III, LINE 4A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 2, PART III, LINE 4B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 2, PART III, LINE 4D
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PAGE 6, PART VI, LINE 11B

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.00$0.21$0.79$1.23$1.23$0.00
2024Detailed filing. Detailed filing data is available for this year.$1.09$0.31$0.77$1.11$1.17$0.06
2023Detailed filing. Detailed filing data is available for this year.$0.92$0.12$0.81$0.94$0.87$0.06
2022Detailed filing. Detailed filing data is available for this year.$0.80$0.06$0.74$0.94$0.78$0.17
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.72$0.12$0.59$0.85$0.72$0.13
2020Detailed filing. Detailed filing data is available for this year.$0.72$0.28$0.44$0.90$0.78$0.12
2019Detailed filing. Detailed filing data is available for this year.$0.40$0.08$0.33$0.80$0.84$0.04
2018Detailed filing. Detailed filing data is available for this year.$0.49$0.12$0.38$0.80$0.83$0.03
2017Detailed filing. Detailed filing data is available for this year.$0.58$0.16$0.42$0.79$0.91$0.11
2016Detailed filing. Detailed filing data is available for this year.$0.62$0.09$0.53$0.79$0.82$0.03
2015Detailed filing. Detailed filing data is available for this year.$0.57$0.04$0.53$0.66$0.67$0.01
2014Summary only. Only limited summary data is available for this year.$0.67$0.06$0.61$0.51$0.47$0.03
2013Summary only. Only limited summary data is available for this year.$0.63$0.06$0.57$0.72$0.54$0.18
2012Summary only. Only limited summary data is available for this year.$0.45$0.08$0.38$0.55$0.58$0.04
2011Summary only. Only limited summary data is available for this year.$0.55$0.17$0.37$0.49$0.62$0.12