Civic Intelligence

Tsc Alliance Endowment Fund Inc.

990 • Fiscal year 2013 • EIN 52-1926919

Jan 01, 2013 to Dec 31, 2013 • Filed on Apr 04, 2014

801 Roeder Road No 75020910

(301) 562-9890

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

19th percentile

0.02x

Higher debt load relative to assets than 19% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Liabilities / Revenue

57th percentile

0.26x

Higher debt load relative to revenue than 57% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Net Margin

84th percentile

32%

Higher net margin than 84% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Top Officer Pay

73rd percentile

$177,385

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 54.0% of source-year revenue.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2013

Asset Growth

74th percentile

12%

Faster asset growth than 74% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2012 to 2013

Revenue Growth

93rd percentile

100%

Faster revenue growth than 93% of similar nonprofits.

2013 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2011 to 2013

Assets

Up

$5,078,987

Up $524,228 (+12%) from 2012

Net Assets

Up

$4,994,766

Up $537,401 (+12%) from 2012

Liabilities

Down

$84,221

Down $13,173 (-14%) from 2012

Revenue

$328,368

No earlier filing loaded for comparison.

Expenses

Down

$223,670

Down $5,094 (-2.2%) from 2012

Net Income

$104,698

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $4,507,295Liabilities 2010: $64,250Net Assets 2010: $4,443,0452010Assets 2011: $4,285,798Liabilities 2011: $64,648Net Assets 2011: $4,221,1502011Assets 2012: $4,554,759Liabilities 2012: $97,394Net Assets 2012: $4,457,3652012Assets 2013: $5,078,987Liabilities 2013: $84,221Net Assets 2013: $4,994,7662013Assets 2014: $5,150,951Liabilities 2014: $89,652Net Assets 2014: $5,061,2992014Assets 2015: $4,850,280Liabilities 2015: $86,763Net Assets 2015: $4,763,5172015Assets 2016: $5,376,371Liabilities 2016: $82,382Net Assets 2016: $5,293,9892016Assets 2017: $5,733,261Liabilities 2017: $77,706Net Assets 2017: $5,655,5552017Assets 2018: $5,268,062Liabilities 2018: $74,128Net Assets 2018: $5,193,9342018Assets 2019: $5,986,754Liabilities 2019: $70,949Net Assets 2019: $5,915,8052019Assets 2020: $5,960,667Liabilities 2020: $67,146Net Assets 2020: $5,893,5212020Assets 2021: $6,835,859Liabilities 2021: $124,111Net Assets 2021: $6,711,7482021Assets 2022: $5,620,224Liabilities 2022: $119,837Net Assets 2022: $5,500,3872022Assets 2023: $6,262,570Liabilities 2023: $441,383Net Assets 2023: $5,821,1872023

Highlighted filing

2013

Assets$5,078,987
Liabilities$84,221
Net Assets$4,994,766

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2010: $68,608Expenses 2010: $21,646Net Income 2010: $46,9622010Revenue 2011: $82,276Expenses 2011: $204,137Net Income 2011: -$121,8612011Expenses 2012: $228,7642012Revenue 2013: $328,368Expenses 2013: $223,670Net Income 2013: $104,6982013Revenue 2014: $396,118Expenses 2014: $130,012Net Income 2014: $266,1062014Revenue 2015: $330,440Expenses 2015: $230,477Net Income 2015: $99,9632015Revenue 2016: $406,878Expenses 2016: $29,384Net Income 2016: $377,4942016Revenue 2017: $255,625Expenses 2017: $434,446Net Income 2017: -$178,8212017Revenue 2018: $255,716Expenses 2018: $77,420Net Income 2018: $178,2962018Revenue 2019: $200,108Expenses 2019: $288,356Net Income 2019: -$88,2482019Revenue 2020: $65,943Expenses 2020: $463,721Net Income 2020: -$397,7782020Revenue 2021: $347,803Expenses 2021: $333,813Net Income 2021: $13,9902021Revenue 2022: $206,655Expenses 2022: $384,476Net Income 2022: -$177,8212022Revenue 2023: $577,597Expenses 2023: $649,531Net Income 2023: -$71,9342023

Highlighted filing

2013

Revenue$328,368
Expenses$223,670
Net Income$104,698
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
Apr 4, 2014
Return Version
2013v3.0
Gross Receipts
$2,163,263
Mission and Program Overview

Mission

The tsc alliance endowment fund is a separate fiduciary organizationspecifically chartered to receive gifts that will be invested togenerate an income stream that will help fulfill the mission of the tscalliance. The endowment fund will ensure that the tsc alliance has anongoing source of funding to better serve families touched by tuberoussclerosis complex (tsc) through research, family services, andeducation.

The tuberous sclerosis alliance endowment fund is a separate fiduciary organization specifically chartered to receive gifts that will be invested to generate an income stream that will help fulfill the mission of the ts alliance. The endowment fund will ensure that the ts alliance has an ongoing source of funding to better serve families touched by tuberous sclerosis complex (tsc) through research, family services and education.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$4,290,430$4,807,500▲ $517,070
Savings and Temporary Cash Investments$259,726$271,487▲ $11,761
Total Assets$4,554,759$5,078,987▲ $524,228
Other Assets Total$4,603$0▼ $4,603
Liabilities
Other Liabilities$97,394$84,221▼ $13,173
Total Liabilities$97,394$84,221▼ $13,173
Net Assets / Fund Balance
Unrestricted Net Assets$3,514,065$3,899,435▲ $385,370
Permanently Rstr Net Assets$879,444$879,444→ $0
Temporarily Rstr Net Assets$63,856$215,887▲ $152,031
Total Net Assets Fund Balance$4,457,365$4,994,766▲ $537,401
Total Liabilities and Net Assets / Fund Balance$4,554,759$5,078,987▲ $524,228

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2013$4,457,365$42,690▲ $718,381$197,200$4,994,766
2012$4,221,150$43,996▲ $420,983$202,000$4,457,365
2011$4,443,045$29,825▼ $47,583$175,000$4,221,150
2010$3,866,081$13,835▲ $584,775-$4,443,045
2009$3,750,509$13,523▲ $312,223$210,174$3,866,081
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Mary Jane PerrautChief Financial OfficerPT$13,481$118,747$132,228
Kari Luther RosbeckChief Executive OfficerPT$13,705$3,215$16,920

Board Members and Trustees

NameTitle
Michael R AugustineChair
David MichaelsBoard Member
Rita DidomenicoBoard Member
Steven GoldsteinBoard Member
Mary Jane MuddSecretary
William FordTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$12,427
Program Service Revenue
$0
Investment Income
$315,941
Other Revenue
$0
All Other Contributions
$10,798
Change in Net Assets
$104,698

Audited Revenue Reconciliation

Revenue per Audited Statements
$328,368
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$461,591
Total Revenue per Audited Statements
$789,959
Total Revenue per Form 990
$328,368
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$197,200
Other Expenses$26,470
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$197,200--$197,200
Fees for Services Legal-$7,008-$7,008
Fees for Services Accounting-$5,288-$5,288
Office Expenses-$4,034-$4,034
Information Technology-$4,000-$4,000
Insurance-$2,278-$2,278
Other Expenses-$253-$253
Fees for Services Other-$100-$100
Total Functional Expenses$197,200$26,470$0$223,670

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$252,558
Expenses per Audited Statements$223,670
Total Expenses per Form 990$223,670
Expenses Not Reported on Form 990$28,888
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
95-3018799-501(c)(3)Program Support$197,200
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Gift Annuities Payable$83,969
Due to Affiliates$252
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, Line 3

National tuberous sclerosis association provides all management functions.

Form 990, Part VI, Section B, Line 11

The 990 is reviewed by the audit and finance committee of the national tuberous sclerosis association. Once recommended for approval, then the 990 is approved by the full board of the ts alliance endowment fund.

Form 990, Part VI, Section B, Line 12C

All directors, officers, and employees annually review the conflict of interest policy. Further, all directors, officers, and employees are required to disclose any potential or known conflicts and communicate such disclosures to the board of directors prior to any approval. If during the course of the year a potential conflict of interest arises that has not previously been disclosed, the board member will make written notice of a potential conflict of interest and recuse himself or herself from any discussions and votes in connection with the issue identified.

Form 990, Part VI, Section B, Line 15

All officers and key employees are employed by the ts alliance. The ts alliance compensation committee reviews and approves the salaries of the president/ceo, chief staff executive officer, the chief financial officer, and any employee appearing on the form 990, in accordance with the ts alliance bylaws. Such review and approval occurs initially upon hiring, upon annual reviews and whenever modified. The organization's executive remuneration has been structured to ensure that it: is reasonable; provides a competitive compensation program to retain, attract and reward key employees and achieves clear alignment between total remuneration and delivered business and personal performance over the short and long-terms. The compensation is reviewed by the compensation committee to ensure: - comparability, - proper review, and - substantiation in setting the compensation.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents available for public inspection on their website, other's websites, and upon public request. The tuberous sclerosis alliance requires that all directors, officers, and employees disclose any potential or known conflicts and communicate such disclosures to the board of directors prior to any approval, vote, or other action on any financial transaction or other matter identified by board members. Annually, each member of the board receives notice of the organization's conflict of interest statement. Each member is provided with a statement to make disclosure of any potential conflict of interest.

Filing and Contact Details

Filer

EIN
52-1926919
Phone
3015629890

Signing Officer

Name
Kari L Rosbeck
Title
President & CEO
Phone
3015629890
Signed
2014-04-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kari L Rosbeck
Formed
1995
Legal Domicile
Md
Voting Board Members
6
Independent Board Members
6
Employees
0
Volunteers
6

Preparer

Preparer
Elizabeth W Heller
Phone
2022932200
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Change in the value of split trust assets 1,375.

Form 990, Part XII, Line 2C

The audit review process has remained unchanged from the prior year.

Financial Statement Notes

PART V, LINE 4:

The alliance's endowments consist of two funds established for different purposes. The alliance's endowment include one traditional donor-restricted endowment funds and one board-designated endowment fund. The board-designated endowment fund solely consists of the endowment fund's unrestricted net asset balance.

PART X, LINE 2:

The alliance believes that it has appropriate support for income tax positions taken. Therefore, management has not identified any uncertain income tax positions. Generally, income tax returns related to the current and three prior years remain open for examination by taxing authorities.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Change in split asset trusts 1,375.

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IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt0879444
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0KARI L ROSBECK
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt029453
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0202000
IRS990/PYInvestmentIncomeAmt0182500
IRS990/PYOtherExpensesAmt026764
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-16811
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0228764
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0211953
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0104698
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0259726
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0271487
IRS990ScheduleA/CertificationInd0X
IRS990ScheduleA/Contribution35ControlledInd00
IRS990ScheduleA/ContributionControllerInd00
IRS990ScheduleA/ContributionFamilyInd00
IRS990ScheduleA/SupportedOrganizationsTotalCnt01
IRS990ScheduleA/SupportedOrgInformationGrp/EIN0953018799
IRS990ScheduleA/SupportedOrgInformationGrp/GoverningDocumentListedInd01
IRS990ScheduleA/SupportedOrgInformationGrp/OrganizationTypeDesc07
IRS990ScheduleA/SupportedOrgInformationGrp/SupportAmt0197200
IRS990ScheduleA/SupportedOrgInformationGrp/SupportedOrganizationName/BusinessNameLine10NATIONAL TUBEROUS SCLEREOSIS ASSOCIATION INC
IRS990ScheduleA/SupportedOrgInformationGrp/SupportedOrgNotifiedInd01
IRS990ScheduleA/SupportedOrgInformationGrp/USOrganizedInd01
IRS990ScheduleA/SupportingOrganization509a3Ind0X
IRS990ScheduleA/SupportingOrgType2Ind0X
IRS990ScheduleA/SupportSumAmt0197200
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/BoardDesignatedBalanceEOYPct00.78070
IRS990ScheduleD/CYEndwmtFundGrp/AdministrativeExpensesAmt026470
IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt04457365
IRS990ScheduleD/CYEndwmtFundGrp/ContributionsAmt042690
IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt04994766
IRS990ScheduleD/CYEndwmtFundGrp/InvestmentEarningsOrLossesAmt0718381
IRS990ScheduleD/CYEndwmtFundGrp/OtherExpendituresAmt0197200
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/AdministrativeExpensesAmt026764
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt04221150
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/ContributionsAmt043996
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt04457365
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0420983
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/OtherExpendituresAmt0202000
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/AdministrativeExpensesAmt029137
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt04443045
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/ContributionsAmt029825
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt04221150
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0-47583
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/OtherExpendituresAmt0175000
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/AdministrativeExpensesAmt021646
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt03866081
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/ContributionsAmt013835
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/EndYearBalanceAmt04443045
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0584775
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/BeginningYearBalanceAmt03750509
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/ContributionsAmt013523
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/EndYearBalanceAmt03866081
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt0312223
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/OtherExpendituresAmt0210174
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt028888
IRS990ScheduleD/DonatedServicesUseFcltsAmt028888
IRS990ScheduleD/EndowmentsHeldRelatedOrgInd00
IRS990ScheduleD/EndowmentsHeldUnrelatedOrgInd00
IRS990ScheduleD/ExpensesNotReportedAmt028888
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0223670
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0431328
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt083969
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt1252
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0GIFT ANNUITIES PAYABLE
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc1DUE TO AFFILIATES
IRS990ScheduleD/OtherRevenueAmt01375
IRS990ScheduleD/PrmnntEndowmentBalanceEOYPct00.17610
IRS990ScheduleD/RevenueNotReportedAmt0461591
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0328368
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ALLIANCE'S ENDOWMENTS CONSIST OF TWO FUNDS ESTABLISHED FOR DIFFERENT PURPOSES. THE ALLIANCE'S ENDOWMENT INCLUDE ONE TRADITIONAL DONOR-RESTRICTED ENDOWMENT FUNDS AND ONE BOARD-DESIGNATED ENDOWMENT FUND. THE BOARD-DESIGNATED ENDOWMENT FUND SOLELY CONSISTS OF THE ENDOWMENT FUND'S UNRESTRICTED NET ASSET BALANCE.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1THE ALLIANCE BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR INCOME TAX POSITIONS TAKEN. THEREFORE, MANAGEMENT HAS NOT IDENTIFIED ANY UNCERTAIN INCOME TAX POSITIONS. GENERALLY, INCOME TAX RETURNS RELATED TO THE CURRENT AND THREE PRIOR YEARS REMAIN OPEN FOR EXAMINATION BY TAXING AUTHORITIES.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2CHANGE IN SPLIT ASSET TRUSTS 1,375.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART V, LINE 4:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TermEndowmentBalanceEOYPct00.04320
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt0223670
IRS990ScheduleD/TotalLiabilityAmt084221
IRS990ScheduleD/TotalRevenuePerForm990Amt0328368
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0789959
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0252558
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/RecipientTable/CashGrantAmt0197200
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0PROGRAM SUPPORT
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine10NATIONAL TUBEROUS SCLEROSIS ASSOCIATION
IRS990ScheduleI/RecipientTable/RecipientEIN0953018799
IRS990ScheduleI/RecipientTable/USAddress/AddressLine10801 ROEDER RD
IRS990ScheduleI/RecipientTable/USAddress/City0SILVER SPRING
IRS990ScheduleI/RecipientTable/USAddress/State0MD
IRS990ScheduleI/RecipientTable/USAddress/ZIPCode020910
IRS990ScheduleI/Total501c3OrgCnt01
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990ScheduleJ/AnyNonFixedPaymentsInd00
IRS990ScheduleJ/BoardOrCommitteeApprovalInd0X
IRS990ScheduleJ/CompBasedOnRevenueOfFlngOrgInd00
IRS990ScheduleJ/CompBsdNetEarnsFlngOrgInd00
IRS990ScheduleJ/CompBsdNetEarnsRltdOrgsInd01
IRS990ScheduleJ/CompBsdOnRevRelatedOrgsInd01
IRS990ScheduleJ/CompensationCommitteeInd0X
IRS990ScheduleJ/CompensationSurveyInd0X
IRS990ScheduleJ/EquityBasedCompArrngmInd00
IRS990ScheduleJ/Form990OfOtherOrganizationsInd0X
IRS990ScheduleJ/InitialContractExceptionInd00
IRS990/ScheduleJRequiredInd01
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BaseCompensationFilingOrgAmt013705
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BonusFilingOrganizationAmount00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/BonusRelatedOrganizationsAmt00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompensationBasedOnRltdOrgsAmt0137053
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompReportPrior990FilingOrgAmt00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/CompReportPrior990RltdOrgsAmt00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/DeferredCompensationFlngOrgAmt0411
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/DeferredCompRltdOrgsAmt04112
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsFilingOrgAmt02804
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/NontaxableBenefitsRltdOrgsAmt028045
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/OtherCompensationFilingOrgAmt00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/OtherCompensationRltdOrgsAmt00
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm0KARI LUTHER ROSBECK
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt0CHIEF EXECUTIVE OFFICER
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationFilingOrgAmt016920
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TotalCompensationRltdOrgsAmt0169210
IRS990ScheduleJ/SeverancePaymentInd00
IRS990ScheduleJ/SupplementalInformationDetail/ExplanationTxt0KARI LUTHER ROSBECK IS THE CEO AND IS COMPENSATED THROUGH TS ALLIANCE. MS. ROSBECK SERVES THE ENDOWMENT WITHOUT COMPENSATION. MARY JANE PERRAUT IS THE CFO AND IS COMPENSATED THROUGH TS ALLIANCE. MS. PERRAUT SERVES THE ENDOWMENT WITHOUT COMPENSATION.
IRS990ScheduleJ/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 5
IRS990ScheduleJ/SupplementalNonqualRtrPlanInd00
IRS990ScheduleJ/WrittenEmploymentContractInd0X
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0NATIONAL TUBEROUS SCLEROSIS ASSOCIATION PROVIDES ALL MANAGEMENT FUNCTIONS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE 990 IS REVIEWED BY THE AUDIT AND FINANCE COMMITTEE OF THE NATIONAL TUBEROUS SCLEROSIS ASSOCIATION. ONCE RECOMMENDED FOR APPROVAL, THEN THE 990 IS APPROVED BY THE FULL BOARD OF THE TS ALLIANCE ENDOWMENT FUND.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2ALL DIRECTORS, OFFICERS, AND EMPLOYEES ANNUALLY REVIEW THE CONFLICT OF INTEREST POLICY. FURTHER, ALL DIRECTORS, OFFICERS, AND EMPLOYEES ARE REQUIRED TO DISCLOSE ANY POTENTIAL OR KNOWN CONFLICTS AND COMMUNICATE SUCH DISCLOSURES TO THE BOARD OF DIRECTORS PRIOR TO ANY APPROVAL. IF DURING THE COURSE OF THE YEAR A POTENTIAL CONFLICT OF INTEREST ARISES THAT HAS NOT PREVIOUSLY BEEN DISCLOSED, THE BOARD MEMBER WILL MAKE WRITTEN NOTICE OF A POTENTIAL CONFLICT OF INTEREST AND RECUSE HIMSELF OR HERSELF FROM ANY DISCUSSIONS AND VOTES IN CONNECTION WITH THE ISSUE IDENTIFIED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3ALL OFFICERS AND KEY EMPLOYEES ARE EMPLOYED BY THE TS ALLIANCE. THE TS ALLIANCE COMPENSATION COMMITTEE REVIEWS AND APPROVES THE SALARIES OF THE PRESIDENT/CEO, CHIEF STAFF EXECUTIVE OFFICER, THE CHIEF FINANCIAL OFFICER, AND ANY EMPLOYEE APPEARING ON THE FORM 990, IN ACCORDANCE WITH THE TS ALLIANCE BYLAWS. SUCH REVIEW AND APPROVAL OCCURS INITIALLY UPON HIRING, UPON ANNUAL REVIEWS AND WHENEVER MODIFIED. THE ORGANIZATION'S EXECUTIVE REMUNERATION HAS BEEN STRUCTURED TO ENSURE THAT IT: IS REASONABLE; PROVIDES A COMPETITIVE COMPENSATION PROGRAM TO RETAIN, ATTRACT AND REWARD KEY EMPLOYEES AND ACHIEVES CLEAR ALIGNMENT BETWEEN TOTAL REMUNERATION AND DELIVERED BUSINESS AND PERSONAL PERFORMANCE OVER THE SHORT AND LONG-TERMS. THE COMPENSATION IS REVIEWED BY THE COMPENSATION COMMITTEE TO ENSURE: - COMPARABILITY, - PROPER REVIEW, AND - SUBSTANTIATION IN SETTING THE COMPENSATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AVAILABLE FOR PUBLIC INSPECTION ON THEIR WEBSITE, OTHER'S WEBSITES, AND UPON PUBLIC REQUEST. THE TUBEROUS SCLEROSIS ALLIANCE REQUIRES THAT ALL DIRECTORS, OFFICERS, AND EMPLOYEES DISCLOSE ANY POTENTIAL OR KNOWN CONFLICTS AND COMMUNICATE SUCH DISCLOSURES TO THE BOARD OF DIRECTORS PRIOR TO ANY APPROVAL, VOTE, OR OTHER ACTION ON ANY FINANCIAL TRANSACTION OR OTHER MATTER IDENTIFIED BY BOARD MEMBERS. ANNUALLY, EACH MEMBER OF THE BOARD RECEIVES NOTICE OF THE ORGANIZATION'S CONFLICT OF INTEREST STATEMENT. EACH MEMBER IS PROVIDED WITH A STATEMENT TO MAKE DISCLOSURE OF ANY POTENTIAL CONFLICT OF INTEREST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5CHANGE IN THE VALUE OF SPLIT TRUST ASSETS 1,375.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6THE AUDIT REVIEW PROCESS HAS REMAINED UNCHANGED FROM THE PRIOR YEAR.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION B, LINE 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART XI, LINE 9:
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6FORM 990, PART XII, LINE 2C
IRS990ScheduleR/AssetExchangeInd00
IRS990ScheduleR/AssetPurchaseFromOtherOrgInd00
IRS990ScheduleR/AssetSaleToOtherOrgInd00
IRS990ScheduleR/DivRelatedOrganizationInd00
IRS990ScheduleR/GiftGrntCapContriFromOthOrgInd00
IRS990ScheduleR/GiftGrntOrCapContriToOthOrgInd01
IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/ControlledOrganizationInd00
IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/DirectControllingNACd0N/A
IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/DisregardedEntityName/BusinessNameLine10NATIONAL TUBEROUS SCLEROSIS ASSOCIATION
IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/EIN0953018799
IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/ExemptCodeSectionTxt0501(C)(3)
IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/LegalDomicileStateCd0MD
IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/PrimaryActivitiesTxt0FINDING A CURE FOR TUBEROUS SCLEROSIS COMPLEX (TSC)
IRS990ScheduleR/IdRelatedTaxExemptOrgGrp/PublicCharityStatusTxt0170(B)(1)(A)(VI)

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$6.26$0.44$5.82$0.58$0.65$0.07
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.62$0.12$5.50$0.21$0.38$0.18
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.84$0.12$6.71$0.35$0.33$0.01
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.96$0.07$5.89$0.07$0.46$0.40
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.99$0.07$5.92$0.20$0.29$0.09
2018Summary only. Only limited summary data is available for this year.$5.27$0.07$5.19$0.26$0.08$0.18
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.73$0.08$5.66$0.26$0.43$0.18
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.38$0.08$5.29$0.41$0.03$0.38
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.85$0.09$4.76$0.33$0.23$0.10
2014Detailed filing. Detailed filing data is available for this year.$5.15$0.09$5.06$0.40$0.13$0.27
2013Detailed filing. Detailed filing data is available for this year.$5.08$0.08$4.99$0.33$0.22$0.10
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.55$0.10$4.46$0.23
2011Summary only. Only limited summary data is available for this year.$4.29$0.06$4.22$0.08$0.20$0.12
2010Summary only. Only limited summary data is available for this year.$4.51$0.06$4.44$0.07$0.02$0.05
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2013 filings • 501(c)3 • $5M-$10M nonprofits