Tuberous Sclerosis Alliance Endowment Fund

“The form 990 is reviewed by the audit and finance committee of the national tuberous sclerosis association. Once recommended for approval, the form 990 is provided to each member of the tsc alliance endowment fund board of directors and is approved by the full board of the tsc alliance endowment fund prior to being filed with the irs.”

“All directors, officers, and employees annually review the conflict of interest policy. Further, all directors, officers, and employees are required to disclose any potential or known conflicts and communicate such disclosures to the board of directors prior to any vote. If during the course of the year a potential conflict of interest arises that has not previously been disclosed, the board member will make written notice of a potential conflict of interest and recuse himself or herself from any discussions and votes in connection with the issue identified.”

“All officers and key employees are employed by the tsc alliance. The tsc alliance compensation committee reviews and approves the salaries of the president & ceo, the cfo, and any employee appearing on the form 990, in accordance with the tsc alliance bylaws. Such review and approval occurs initially upon hiring, upon annual reviews and whenever modified. The organization's executive remuneration has been structured to ensure that it: is reasonable; provides a competitive compensation program to retain, attract and reward key employees and achieves clear alignment between total remuneration and delivered business and personal performance over the short and long-terms. The compensation is reviewed by the compensation committee to ensure: - comparability, - proper review, and - substantiation in setting the compensation.”

“The organization makes its governing documents available for public inspection on its website, other's websites, and upon public request. The tsc alliance endowment fund requires that all directors, officers, and employees disclose any potential or known conflicts and communicate such disclosures to the board of directors prior to any approval, vote, or other action on any financial transaction or other matter identified by board members. Annually, each member of the board receives notice of the organization's conflict of interest statement. Each member is provided with a statement to make disclosure of any potential conflict of interest.”

“Other professional fees: program service expenses 0. Management and general expenses 520. Fundraising expenses 70,500. Total expenses 71,020.”

“Change value split interest -11,445.”