Civic Intelligence

National Ataxia Foundation Incorporated

990 • Fiscal year 2019 • EIN 51-0144795

Jan 01, 2019 to Dec 31, 2019 • Filed on Sep 22, 2020

Organization Profilewww.ataxia.org
600 Highway 169 S No 1725Minneapolis, MN 55426

(763) 553-0020

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Liabilities / Revenue

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Net Margin

16th percentile

-20%

Higher net margin than 16% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Top Officer Pay

77th percentile

$0

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Asset Growth

11th percentile

-43%

Faster asset growth than 11% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

35th percentile

-8.8%

Faster revenue growth than 35% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets57th percentile

Assets

Down

$10,289

Down $7,696 (-43%) from 2018

Net Assets

Down

$10,289

Down $7,696 (-43%) from 2018

Liabilities

Flat

$0

Flat from 2018

Revenue And Expenses
Liabilities / Revenue57th percentileNet Margin16th percentile

Revenue

Down

$8,160

Down $785 (-8.8%) from 2018

Expenses

Up

$9,788

Up $630 (+6.9%) from 2018

Net Income

Down

-$1,628

Down $1,415 (-664%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth11th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30K$20K$10K$0Assets 2010: $15,664Liabilities 2010: $0Net Assets 2010: $15,6642010Assets 2011: $22,891Liabilities 2011: $0Net Assets 2011: $22,8912011Assets 2012: $15,726Liabilities 2012: $0Net Assets 2012: $15,7262012Assets 2013: $17,217Liabilities 2013: $0Net Assets 2013: $17,2172013Assets 2014: $18,861Liabilities 2014: $0Net Assets 2014: $18,8612014Assets 2015: $23,517Liabilities 2015: $0Net Assets 2015: $23,5172015Assets 2016: $16,720Liabilities 2016: $0Net Assets 2016: $16,7202016Assets 2017: $18,198Liabilities 2017: $0Net Assets 2017: $18,1982017Assets 2018: $17,985Liabilities 2018: $0Net Assets 2018: $17,9852018Assets 2019: $10,289Liabilities 2019: $0Net Assets 2019: $10,2892019Assets 2020: $0Liabilities 2020: $0Net Assets 2020: $02020

Highlighted filing

2019

Assets$10,289
Liabilities$0
Net Assets$10,289
Open 2019 Filing

Operations Trend

Revenue Growth35th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$30K$20K$10K$0-$10K-$20KExpenses 2010: $11,8222010Expenses 2011: $7,4722011Expenses 2012: $21,4962012Revenue 2013: $9,189Expenses 2013: $7,698Net Income 2013: $1,4912013Revenue 2014: $10,331Expenses 2014: $8,687Net Income 2014: $1,6442014Revenue 2015: $12,499Expenses 2015: $7,843Net Income 2015: $4,6562015Revenue 2016: $10,936Expenses 2016: $17,733Net Income 2016: -$6,7972016Revenue 2017: $6,265Expenses 2017: $4,787Net Income 2017: $1,4782017Revenue 2018: $8,945Expenses 2018: $9,158Net Income 2018: -$2132018Revenue 2019: $8,160Expenses 2019: $9,788Net Income 2019: -$1,6282019Revenue 2020: $5,620Expenses 2020: $15,909Net Income 2020: -$10,2892020

Highlighted filing

2019

Revenue$8,160
Expenses$9,788
Net Income-$1,628
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Sep 22, 2020
Return Version
2019v5.1
Gross Receipts
$8,160
Mission and Program Overview

Mission

The national ataxia foundation is dedicated to improving the lives of persons affected by ataxia through support, education and research.

Education, research and awareness of ataxia.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$17,985$10,289▼ $7,696
Total Assets$17,985$10,289▼ $7,696
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$17,985$10,289▼ $7,696
Total Net Assets Fund Balance$17,985$10,289▼ $7,696
Total Liabilities and Net Assets / Fund Balance$17,985$10,289▼ $7,696
Compensation and Service Providers
Top Officer Pay77th percentile

Board Members and Trustees

NameTitle
Carolyn DavisPresident-Chesapeake
Camille DaglioPresident-Mississippi
Joe DeCrescenzoTreasurer-Chesapeke
Peter HanksTreasurer-Mississippi
Revenue and Support

Revenue Composition

Contributions and Grants
$8,160
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$8,160
Change in Net Assets
$-1,628
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$9,788
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Payments to Affiliates$9,628--$9,628
Conferences and Meetings$160--$160
Total Functional Expenses$9,788$0$0$9,788
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 6

“Each chapter has members. An active membership does allow for the member to vote for its chapter's directors.”

Form 990, Part VI, Section A, line 7A

“Each chapter has members. An active membership does allow for the member to vote for its chapter's directors.”

Form 990, Part VI, Section B, line 11B

“The group form 990 is prepared by the certified public accountant with the help of the Executive Director. The preliminary form is reviewed as needed. The form 990 is then prepared and is presented at the Executive Board meeting prior to the return being signed and submitted to the Internal Revenue Service.”

Form 990, Part VI, Section C, line 19

“The Organization will furnish all requests for organizing documents, conflict of interest policies and financial statements upon request. The financial statements are posted on the parent organization's website.”

Filing and Contact Details

Filer

Filer Name
National Ataxia Foundation Group Return
EIN
51-0144795
Phone
7635530020
Address
600 Highway 169 S No 1725, Minneapolis, MN 55426

Signing Officer

Name
Andrew Rosen
Title
Executive Director
Phone
7635530020
Signed
2020-09-22
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Andrew Rosen
Formed
1957
Legal Domicile
Mn
Voting Board Members
4
Independent Board Members
4
Employees
0
Volunteers
30

Preparer

Firm
Abdo Eick & Meyers LLP
Address
5201 Eden Ave Suite 250, Edina, MN 55436
Preparer
Steven Anseth
Phone
9528359090
Supplemental Narrative

Additional Explanations

Form 990, Part XI, line 9:

“Discontinued chapter -6,068.”

Raw XML Appendix293 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0Andrew Rosen Executive Director
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IRS990/Desc0The National Ataxia Foundation encourages and promotes research on hereditary and sporadic ataxias through three research funding programs: (1) ataxia "seed money" for research grants; (2) ataxia fellowship awards;, and (3) ataxia young investigator awards. In addition, due to an anonymous donor, the Foundation was able to establish two additional research programs in 2011, the pioneer SCA Translational Research Award: one year $100,000 grants focusing on research investigations that will facilitate the development of treatments for the Spinocerebellar Ataxias (SCAs) and the Young Investigator (YI-SCA) Award for SCA Research: one year grants of $50,000 awarded to encourage young investigators to pursue a career in spinocerebellar ataxia (SCA) research.The Foundation grants funds for new and innovative research projects which have the potential to expand into major, multi-disciplinary research programs supported by government or private agencies. In addition, the Foundation helps to coordinate research efforts into the causes and early detection of ataxia through existing research centers throughout the world and supports scientific conferences on the ataxias.
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IRS990/MissionDesc0The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education and research.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Increased awareness about hereditary and sporadic ataxia disorders is promoted through a variety of education programs and materials for ataxia families, researchers, physicians, allied health professionals and the general public. The Foundation publishes 'Generations', a quarterly newsletter devoted to ataxia related articles, including the latest research and other information beneficial to individuals with ataxia. Other educational materials, such as books, videos and fact sheets are provided to persons with ataxia, family members and health care professionals on a "direct request" basis through the NAF office. The annual membership meeting, and sponsorship an/or/participation in national and international meetings, symposiums and seminars also serve to increase ataxia awareness.The National Ataxia Foundation attempts to locate people and families with hereditary and sporadic ataxia in order to provide them with information about ataxia. This is accomplished by providing updated information about ataxia to the general public by maintaining a website, creating public service announcements and publishing 'Generations'. The Foundation assists individuals and families by identifying clinical resources and making appropriate referrals for neurological care, genetic counseling and gene testing. The Foundation also assists people with locating resources within their own communities, including support groups.
IRS990/ProgSrvcAccomActy3Grp/Desc0The National Ataxia Foundation attempts to locate people with ataxia and their families in order to provide them with information and services. Offers each year a 3 day membership meeting which provides ataxia families with information on cutting-edge ataxia research efforts, information relating to specific types of ataxia, and a variety of topics of concern within the ataxia community. Development of local ataxia support groups to provide local ataxia families with the latest information on ataxia, as well as providing a setting for families to learn, share and network.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Each chapter has members. An active membership does allow for the member to vote for its chapter's directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Each chapter has members. An active membership does allow for the member to vote for its chapter's directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The group form 990 is prepared by the certified public accountant with the help of the Executive Director. The preliminary form is reviewed as needed. The form 990 is then prepared and is presented at the Executive Board meeting prior to the return being signed and submitted to the Internal Revenue Service.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The Organization will furnish all requests for organizing documents, conflict of interest policies and financial statements upon request. The financial statements are posted on the parent organization's website.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Discontinued chapter -6,068.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, line 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, line 7a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part XI, line 9:
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt05201 Eden Ave Suite 250
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Edina
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd055436
ReturnHeader/PreparerPersonGrp/PhoneNum09528359090
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Steven Anseth
ReturnHeader/ReturnTs02020-10-12T14:36:38-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$10,289
Liabilities
$0
Net assets
$10,289
Revenue
$8,160
Expenses
$9,788
Net income
-$1,628
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2020Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$5.62$15.9$10.3
2019Detailed filing. Detailed filing data is available for this year.$10.3$0.00$10.3$8.16$9.79$1.63
2018Detailed filing. Detailed filing data is available for this year.$18.0$0.00$18.0$8.95$9.16$0.21
2017Detailed filing. Detailed filing data is available for this year.$18.2$0.00$18.2$6.27$4.79$1.48
2016Detailed filing. Detailed filing data is available for this year.$16.7$0.00$16.7$10.9$17.7$6.80
2015Detailed filing. Detailed filing data is available for this year.$23.5$0.00$23.5$12.5$7.84$4.66
2014Detailed filing. Detailed filing data is available for this year.$18.9$0.00$18.9$10.3$8.69$1.64
2013Detailed filing. Detailed filing data is available for this year.$17.2$0.00$17.2$9.19$7.70$1.49
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.7$0.00$15.7$21.5
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$22.9$0.00$22.9$7.47
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.7$0.00$15.7$11.8