Civic Intelligence

National Ataxia Foundation Incorporated

EIN 51-0144795 • 501(c)3 • Minneapolis, MN

Profile

The national ataxia foundation is dedicated to improving the lives of persons affected by ataxia through support, education and research.

600 Highway 169 S No 1725Minneapolis, MN 55426

www.ataxia.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2020

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2020

Net Margin

7th percentile

-183%

Higher net margin than 7% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2020

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

9th percentile

-100%

Faster asset growth than 9% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Revenue Growth

25th percentile

-31%

Faster revenue growth than 25% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Assets

Down

$0

Down $10,289 (-100%) from 2019

Liabilities

Flat

$0

Flat from 2019

Net Assets

Down

$0

Down $10,289 (-100%) from 2019

Revenue

Down

$5,620

Down $2,540 (-31%) from 2019

Expenses

Up

$15,909

Up $6,121 (+63%) from 2019

Net Income

Down

-$10,289

Down $8,661 (-532%) from 2019

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$30K$20K$10K$0Assets 2010: $15,664Liabilities 2010: $0Net Assets 2010: $15,6642010Assets 2011: $22,891Liabilities 2011: $0Net Assets 2011: $22,8912011Assets 2012: $15,726Liabilities 2012: $0Net Assets 2012: $15,7262012Assets 2013: $17,217Liabilities 2013: $0Net Assets 2013: $17,2172013Assets 2014: $18,861Liabilities 2014: $0Net Assets 2014: $18,8612014Assets 2015: $23,517Liabilities 2015: $0Net Assets 2015: $23,5172015Assets 2016: $16,720Liabilities 2016: $0Net Assets 2016: $16,7202016Assets 2017: $18,198Liabilities 2017: $0Net Assets 2017: $18,1982017Assets 2018: $17,985Liabilities 2018: $0Net Assets 2018: $17,9852018Assets 2019: $10,289Liabilities 2019: $0Net Assets 2019: $10,2892019Assets 2020: $0Liabilities 2020: $0Net Assets 2020: $02020

Highlighted filing

2020

Assets$0
Liabilities$0
Net Assets$0

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$30K$20K$10K$0-$10K-$20KExpenses 2010: $11,8222010Expenses 2011: $7,4722011Expenses 2012: $21,4962012Revenue 2013: $9,189Expenses 2013: $7,698Net Income 2013: $1,4912013Revenue 2014: $10,331Expenses 2014: $8,687Net Income 2014: $1,6442014Revenue 2015: $12,499Expenses 2015: $7,843Net Income 2015: $4,6562015Revenue 2016: $10,936Expenses 2016: $17,733Net Income 2016: -$6,7972016Revenue 2017: $6,265Expenses 2017: $4,787Net Income 2017: $1,4782017Revenue 2018: $8,945Expenses 2018: $9,158Net Income 2018: -$2132018Revenue 2019: $8,160Expenses 2019: $9,788Net Income 2019: -$1,6282019Revenue 2020: $5,620Expenses 2020: $15,909Net Income 2020: -$10,2892020

Highlighted filing

2020

Revenue$5,620
Expenses$15,909
Net Income-$10,289

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Jul 1, 2021
Return Version
2020v4.1
Gross Receipts
$5,620
Mission and Program Overview

Mission

The national ataxia foundation is dedicated to improving the lives of persons affected by ataxia through support, education and research.

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$10,289$0▼ $10,289
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$10,289$0▼ $10,289
Other Assets Total-$0-
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$10,289$0▼ $10,289
Total Net Assets Fund Balance$10,289$0▼ $10,289
Total Liabilities and Net Assets / Fund Balance$10,289$0▼ $10,289
Compensation and Service Providers

Board Members and Trustees

NameTitle
Carolyn DavisPresident-Chesapeake
Camille DaglioPresident-Mississippi
Joe DeCrescenzoTreasurer-Chesapeke
Peter HanksTreasurer-Mississippi
Revenue and Support

Revenue Composition

Contributions and Grants
$5,620
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$5,620
Change in Net Assets
$-10,289
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$15,909
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Payments to Affiliates$15,364--$15,364
Conferences and Meetings$545--$545
Total Functional Expenses$15,909$0$0$15,909
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 6

Each chapter has members. An active membership does allow for the member to vote for its chapter's directors.

Form 990, Part VI, Section A, line 7A

Each chapter has members. An active membership does allow for the member to vote for its chapter's directors.

Form 990, Part VI, Section B, line 11B

The group form 990 is prepared by the certified public accountant with the help of the Executive Director. The preliminary form is reviewed as needed. The form 990 is then prepared and is presented at the Executive Board meeting prior to the return being signed and submitted to the Internal Revenue Service.

Form 990, Part VI, Section B, line 12C

Each responsible person (officer, employee or board member) shall annually complete a disclosure form identifying any relationships, positions or circumstances which could contribute to a potential conflict of interest. Prior to Board or Committee action, all facts shall be disclosed relating to the protential conflict of interest and such disclosure will be reflected in the minutes of the meeting. The person cannot be counted towards having a quorum to vote and is not allowed to vote on the issue. They are also not allowed to exert any personal influence in the matter. The policy shall be reviewed annually by each member of the Executive Committee.

Form 990, Part VI, Section B, line 15

Executive Director's position - an annual review is conducted by the Foundation's President. The performance review is based on achieving the annual goals of the Foundation. The President annually evaluates the performance in a written report and then presents the review and recommendations to the Board/Executive Committee who determine any actions, including pay raises. Other Employees - The Executive Director annually evaluates the performance of employees in a written reported saved in each employee's permanent file. The Executive Director has a salary budget as set by the full Board of Directors. The Executive Director has full discretion on the percentage of pay raises to individuals not to exceed the approved budget.

Form 990, Part VI, Section C, line 19

The Organization will furnish all requests for organizing documents, conflict of interest policies and financial statements upon request. The financial statements are posted on the parent organization's website.

Filing and Contact Details

Filer

Filer Name
National Ataxia Foundation Group Return
EIN
51-0144795
Phone
7635530020
Address
600 Highway 169 S No 1725, Minneapolis, MN 55426

Signing Officer

Name
Andrew Rosen
Title
Executive Director
Phone
7635530020
Signed
2021-07-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Andrew Rosen
Formed
1957
Legal Domicile
Mn
Voting Board Members
4
Independent Board Members
4
Employees
0
Volunteers
0

Preparer

Firm
Abdo Eick & Meyers LLP
Address
5201 Eden Ave Suite 250, Edina, MN 55436
Preparer
Steven Anseth
Phone
9528359090
Raw XML Appendix330 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0The National Ataxia Foundation encourages and promotes research on hereditary and sporadic ataxias through three research funding programs: (1) ataxia "seed money" for research grants; (2) ataxia fellowship awards;, and (3) ataxia young investigator awards. In addition, due to an anonymous donor, the Foundation was able to establish two additional research programs in 2011, the pioneer SCA Translational Research Award: one year $100,000 grants focusing on research investigations that will facilitate the development of treatments for the Spinocerebellar Ataxias (SCAs) and the Young Investigator (YI-SCA) Award for SCA Research: one year grants of $50,000 awarded to encourage young investigators to pursue a career in spinocerebellar ataxia (SCA) research.The Foundation grants funds for new and innovative research projects which have the potential to expand into major, multi-disciplinary research programs supported by government or private agencies. In addition, the Foundation helps to coordinate research efforts into the causes and early detection of ataxia through existing research centers throughout the world and supports scientific conferences on the ataxias.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Increased awareness about hereditary and sporadic ataxia disorders is promoted through a variety of education programs and materials for ataxia families, researchers, physicians, allied health professionals and the general public. The Foundation publishes 'Generations', a quarterly newsletter devoted to ataxia related articles, including the latest research and other information beneficial to individuals with ataxia. Other educational materials, such as books, videos and fact sheets are provided to persons with ataxia, family members and health care professionals on a "direct request" basis through the NAF office. The annual membership meeting, and sponsorship an/or/participation in national and international meetings, symposiums and seminars also serve to increase ataxia awareness.The National Ataxia Foundation attempts to locate people and families with hereditary and sporadic ataxia in order to provide them with information about ataxia. This is accomplished by providing updated information about ataxia to the general public by maintaining a website, creating public service announcements and publishing 'Generations'. The Foundation assists individuals and families by identifying clinical resources and making appropriate referrals for neurological care, genetic counseling and gene testing. The Foundation also assists people with locating resources within their own communities, including support groups.
IRS990/ProgSrvcAccomActy3Grp/Desc0The National Ataxia Foundation attempts to locate people with ataxia and their families in order to provide them with information and services. Offers each year a 3 day membership meeting which provides ataxia families with information on cutting-edge ataxia research efforts, information relating to specific types of ataxia, and a variety of topics of concern within the ataxia community. Development of local ataxia support groups to provide local ataxia families with the latest information on ataxia, as well as providing a setting for families to learn, share and network.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Each chapter has members. An active membership does allow for the member to vote for its chapter's directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Each chapter has members. An active membership does allow for the member to vote for its chapter's directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The group form 990 is prepared by the certified public accountant with the help of the Executive Director. The preliminary form is reviewed as needed. The form 990 is then prepared and is presented at the Executive Board meeting prior to the return being signed and submitted to the Internal Revenue Service.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Each responsible person (officer, employee or board member) shall annually complete a disclosure form identifying any relationships, positions or circumstances which could contribute to a potential conflict of interest. Prior to Board or Committee action, all facts shall be disclosed relating to the protential conflict of interest and such disclosure will be reflected in the minutes of the meeting. The person cannot be counted towards having a quorum to vote and is not allowed to vote on the issue. They are also not allowed to exert any personal influence in the matter. The policy shall be reviewed annually by each member of the Executive Committee.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Executive Director's position - an annual review is conducted by the Foundation's President. The performance review is based on achieving the annual goals of the Foundation. The President annually evaluates the performance in a written report and then presents the review and recommendations to the Board/Executive Committee who determine any actions, including pay raises. Other Employees - The Executive Director annually evaluates the performance of employees in a written reported saved in each employee's permanent file. The Executive Director has a salary budget as set by the full Board of Directors. The Executive Director has full discretion on the percentage of pay raises to individuals not to exceed the approved budget.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5The Organization will furnish all requests for organizing documents, conflict of interest policies and financial statements upon request. The financial statements are posted on the parent organization's website.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, line 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, line 7a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section B, line 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part VI, Section C, line 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd01
IRS990/TotalAssetsBOYAmt010289
IRS990/TotalAssetsEOYAmt00
IRS990/TotalAssetsGrp/BOYAmt010289
IRS990/TotalAssetsGrp/EOYAmt00
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt05620
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt00
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt015909
IRS990/TotalFunctionalExpensesGrp/TotalAmt015909
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt010289
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt00
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt015909
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt05620
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt00
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt010289
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt00
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationOtherInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0600 Hwy 169 S No 1725
IRS990/USAddress/CityNm0Minneapolis
IRS990/USAddress/StateAbbreviationCd0MN
IRS990/USAddress/ZIPCd055426
IRS990/VotingMembersGoverningBodyCnt04
IRS990/VotingMembersIndependentCnt04
IRS990/WebsiteAddressTxt0www.ataxia.org
IRS990/WhistleblowerPolicyInd01
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd02
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0Andrew Rosen
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Executive Director
ReturnHeader/BusinessOfficerGrp/PhoneNum07635530020
ReturnHeader/BusinessOfficerGrp/SignatureDt02021-07-01
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0National Ataxia Foundation Group Return
ReturnHeader/Filer/BusinessNameControlTxt0NATI
ReturnHeader/Filer/EIN0510144795
ReturnHeader/Filer/PhoneNum07635530020
ReturnHeader/Filer/USAddress/AddressLine1Txt0600 Highway 169 S No 1725
ReturnHeader/Filer/USAddress/CityNm0Minneapolis
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MN
ReturnHeader/Filer/USAddress/ZIPCd055426
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0411397419
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Abdo Eick & Meyers LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt05201 Eden Ave Suite 250
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Edina
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd055436
ReturnHeader/PreparerPersonGrp/PhoneNum09528359090
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Steven Anseth
ReturnHeader/ReturnTs02021-07-06T10:46:17-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0Andrew
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0Rosen
ReturnHeader/TaxPeriodBeginDt02020-01-01
ReturnHeader/TaxPeriodEndDt02020-12-31
ReturnHeader/TaxYr02020

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