Liabilities / Assets
26th percentile
Tied with the lowest-debt nonprofits in its peer group.
990 • Fiscal year 2016 • EIN 47-4219478
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
26th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
26th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
93rd percentile
Higher net margin than 93% of similar nonprofits.
Top Officer Pay
74th percentile
Higher top officer pay than 74% of similar nonprofits.
Top officer pay equals 8.3% of source-year revenue.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Assets
$466,756
No earlier filing loaded for comparison.
Net Assets
$466,756
No earlier filing loaded for comparison.
Liabilities
$0
No earlier filing loaded for comparison.
Revenue
$775,823
No earlier filing loaded for comparison.
Expenses
$351,902
No earlier filing loaded for comparison.
Net Income
$423,921
No earlier filing loaded for comparison.
Creating global pulmonary hypertension awareness through engagement and innovation to forge a new course to a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $20,008 | $418,107 | ▲ $398,099 |
| Cash and Non-Interest-Bearing Accounts | $21,152 | $45,298 | ▲ $24,146 |
| Land, Buildings, and Equipment, Net | - | $3,351 | - |
| Total Assets | $41,160 | $466,756 | ▲ $425,596 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $41,160 | $466,756 | ▲ $425,596 |
| Total Net Assets Fund Balance | $41,160 | $466,756 | ▲ $425,596 |
| Total Liabilities and Net Assets / Fund Balance | $41,160 | $466,756 | ▲ $425,596 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $3,351 | $559 | $3,910 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Marie Rand | Managing Director | FT | $64,201 | $64,201 |
| Name | Title |
|---|---|
| Harry Rozakis | Chairman |
| Stephen Van Wormer | President |
| John Hess | Director |
| Marina Van Wormer | Director |
| Line Item | Amount |
|---|---|
| Other Expenses | $260,399 |
| Salaries, Compensation, and Employee Benefits | $91,503 |
| Total Fundraising Expense | $67,708 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $55,392 | $31,992 | - | $87,384 |
| Advertising | $285 | - | $67,708 | $67,993 |
| Travel | $47,739 | $18,870 | - | $66,609 |
| Other Salaries and Wages | $58,852 | $5,350 | - | $64,202 |
| Payroll Taxes | $25,026 | $2,275 | - | $27,301 |
| Office Expenses | $8,367 | $3,493 | - | $11,860 |
| Insurance | $7,651 | - | - | $7,651 |
| Information Technology | $4,036 | $2,252 | - | $6,288 |
| Fees for Services Legal | $3,848 | - | - | $3,848 |
| Depreciation Depletion | - | $2,234 | - | $2,234 |
| All Other Expenses | $1,061 | $50 | - | $1,111 |
| Fees for Services Accounting | $850 | - | - | $850 |
| Other Expenses | $529 | $528 | - | $529 |
| Total Functional Expenses | $215,656 | $68,538 | $67,708 | $351,902 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Marina van wormer steve van wormer director president spouse”
“Form 990 will be provided to the board and reviewed for any necessary corrections or changes before filing.”
“All applicable parties annualy disclose possible conflicts of interest and any issues noted are reviewed by the board. Given the small size of the governing board, any conflicts of interest are readily transparent.”
“Prior to formation of the organization, the potential for and compensation level of the managing director was discussed by the board.”
“Salary levels are reviewed from publicly available guides listing compensation levels for similar 501(c)(3) organizations.”
“AVAILABLE UPON REQUEST.”
“AWARENESS.”
“Given pulmonary hypertension is a rare disease often misdiagnosed, we are leveraging state-of-the-art social media hardware and software to extend knowledge of this disease beyond the traditional affinity group to create awareness and to educate. Additionally, phaware is developing apps which, from a patient/doctor perspective, are designed to create greater patient-physician connectivity, as well as provide real time health data for physicians and clinicians focused on seeking a cure for this rare disease. One of our prime objectives is to leverage innovative technology and use it capture, engage and enable diagnosed and undiagnosed ph patients, caregivers, and medical professionals by providing them with digital content focused on education, resources and knowledge.”
“Bookkeeping 689 0 0 contractors 54,703 31,992 0 total 55,392 31,992 0”
“Book / tax depreciation difference 1,675”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | CREATING GLOBAL PULMONARY HYPERTENSION AWARENESS THROUGH ENGAGEMENT AND INNOVATION TO FORGE A NEW COURSE TO A CURE. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 67708 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 285 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 67993 |
| IRS990/AllOtherContributionsAmt | 0 | 762626 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 50 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 1061 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 1111 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | GINA BASSO |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3036010288 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1079 YALE CIRCLE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BOULDER |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CO |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 80305 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 21152 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 45298 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 762626 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 432 |
| IRS990/CYOtherExpensesAmt | 0 | 260399 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 12765 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 423921 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 91503 |
| IRS990/CYTotalExpensesAmt | 0 | 351902 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 67708 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 775823 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 2234 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 2234 |
| IRS990/Desc | 0 | GLOBAL OUTREACH INITIATIVE - USES PHAWARE'S UNIQUE ABILITIES TO LEVERAGE TODAY'S ADVANCED TECHNOLOGY TO CREATE GREATER PATIENT TO PATIENT, PATIENT TO DOCTOR, AND DOCTOR TO PATIENT CONNECTIVITY AND TO DRIVE AWARENESS AT A GLOBAL LEVEL. THIS INCLUDES "I'M AWARE THAT I'M RARE" PODCASTS, AWARENESS VIDEOS, AND LIVESTREAMS. WE BELIEVE THE LACK OF CONNECTIVITY AND THE DIFFICULTY IN EARLY DIAGNOSIS HAVE RESULTED IN A PATIENT AND MEDICAL POPULATION WHICH IS UNDERSERVED. PHAWARE WILL USE STATE-OF-THE-ART TOOLS TO DRIVE GLOBAL AWARENESS, ENHANCE DISEASE STATE EDUCATION, AND CULTIVATE GREATER DATA COLLECTION INSIDE AND OUTSIDE THE PH COMMUNITY. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 126278 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 850 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 850 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 3848 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 3848 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 31992 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 55392 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 87384 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MARIE RAND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | STEPHEN VAN WORMER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MARINA VAN WORMER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | HARRY ROZAKIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | JOHN HESS |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 64201 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | MANAGING DIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2015 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 4 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 775823 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 4 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 2252 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 4036 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 6288 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 7651 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 7651 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 432 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 432 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 8 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 559 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 3351 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 3910 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | CREATING GLOBAL PULMONARY HYPERTENSION AWARENESS THROUGH ENGAGEMENT AND INNOVATION TO FORGE A NEW COURSE TO A CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 41160 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 466756 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 3493 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 8367 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 11860 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 1675 |
| IRS990/OtherExpensesGrp/Desc | 0 | DUES & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | EQUIPMENT RENTALS |
| IRS990/OtherExpensesGrp/Desc | 2 | SUPPLIES |
| IRS990/OtherExpensesGrp/Desc | 3 | PAYROLL PROCESSING FEES |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 417 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1077 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 528 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 1363 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 125 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 532 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 529 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 1780 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 1202 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 1060 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 529 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 5350 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 58852 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 64202 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2275 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 25026 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 27301 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | STEPHEN VAN WORMER |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | AWARENESS T-SHIRT SALES |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | EVENT TICKETS |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 9165 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 1 | 3600 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 9165 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 3600 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | WALK.TALK.TRACK APP WALK.TALK.TRACK IS A PULMONARY HYPERTENSION RESEARCH APPLICATION DEVELOPED TO DETERMINE THE QUALITY OF LIFE OF PATIENTS WITH PULMONARY HYPERTENSION. THROUGH YOUR IPHONE AND CONNECTED APPLE WATCH OR FITBIT CHARGE, WE MAKE IT VERY EASY FOR YOU TO PARTICIPATE IN RESEARCH SURVEYS AND COMPLETE ACTIVITY CHALLENGES THAT ARE NORMALLY DONE AT THE HOSPITAL. THIS WILL HELP RESEARCHERS ACCURATELY DETERMINE HOW YOU FEEL ON A REGULAR BASIS AND HOW PHYSICALLY ACTIVE YOU ARE; THUS ALLOWING RESEARCHERS TO UNDERSTAND MORE ABOUT LIVING WITH PULMONARY HYPERTENSION. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 44835 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | EARLY DIAGNOSIS, PHAWARE365 PULMONARY HYPERTENSION (PH) IS A RARE, COMPLEX AND CHRONIC LUNG DISEASE, WHICH CURRENTLY HAS NO CURE. PH, OR HIGH BLOOD PRESSURE IN THE LUNGS, MAKES IT DIFFICULT FOR A PATIENT TO RECEIVE ADEQUATE OXYGEN AND FORCES THE HEART TO WORK HARDER, OFTEN RESULTING IN HEART FAILURE AND DEATH. IT IS OFTEN CONFUSED WITH ASTHMA OR COPD. PH CAN BE DIFFICULT TO DIAGNOSE IN A ROUTINE MEDICAL EXAM BECAUSE THE MOST COMMON SYMPTOMS OF PH ARE ALSO ASSOCIATED WITH MANY OTHER CONDITIONS. PH PATIENTS SPEND AN AVERAGE OF 2 TO 3 YEARS SEEKING AN ACCURATE DIAGNOSIS. 75% OF PATIENTS WILL HAVE ADVANCED PH BY THE TIME THEY ARE DIAGNOSED. PROPER AND EARLY DIAGNOSIS IS CRUCIAL FOR PATIENT CARE, AND IT BEGINS WITH AWARENESS. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 12201 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | GIVEN PULMONARY HYPERTENSION IS A RARE DISEASE OFTEN MISDIAGNOSED, WE ARE LEVERAGING STATE-OF-THE-ART SOCIAL MEDIA HARDWARE AND SOFTWARE TO EXTEND KNOWLEDGE OF THIS DISEASE BEYOND THE TRADITIONAL AFFINITY GROUP TO CREATE AWARENESS AND TO EDUCATE. ADDITIONALLY, PHAWARE IS DEVELOPING APPS WHICH, FROM A PATIENT/DOCTOR PERSPECTIVE, ARE DESIGNED TO CREATE GREATER PATIENT-PHYSICIAN CONNECTIVITY, AS WELL AS PROVIDE REAL TIME HEALTH DATA FOR PHYSICIANS AND CLINICIANS FOCUSED ON SEEKING A CURE FOR THIS RARE DISEASE. ONE OF OUR PRIME OBJECTIVES IS TO LEVERAGE INNOVATIVE TECHNOLOGY AND USE IT CAPTURE, ENGAGE AND ENABLE DIAGNOSED AND UNDIAGNOSED PH PATIENTS, CAREGIVERS, AND MEDICAL PROFESSIONALS BY PROVIDING THEM WITH DIGITAL CONTENT FOCUSED ON EDUCATION, RESOURCES AND KNOWLEDGE. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 32342 |
| IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt | 0 | 3600 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 71581 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 11 |
| IRS990/PYOtherExpensesAmt | 0 | 19992 |
| IRS990/PYOtherRevenueAmt | 0 | 2024 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 41160 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 12464 |
| IRS990/PYTotalExpensesAmt | 0 | 32456 |
| IRS990/PYTotalRevenueAmt | 0 | 73616 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 423921 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 9165 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 20008 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 418107 |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 762626 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 71581 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 834207 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 432 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 11 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 443 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 14789 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 834207 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 762626 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 71581 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 834207 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 834650 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 3351 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 559 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 3910 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 3351 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | AWARENESS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | GIVEN PULMONARY HYPERTENSION IS A RARE DISEASE OFTEN MISDIAGNOSED, WE ARE LEVERAGING STATE-OF-THE-ART SOCIAL MEDIA HARDWARE AND SOFTWARE TO EXTEND KNOWLEDGE OF THIS DISEASE BEYOND THE TRADITIONAL AFFINITY GROUP TO CREATE AWARENESS AND TO EDUCATE. ADDITIONALLY, PHAWARE IS DEVELOPING APPS WHICH, FROM A PATIENT/DOCTOR PERSPECTIVE, ARE DESIGNED TO CREATE GREATER PATIENT-PHYSICIAN CONNECTIVITY, AS WELL AS PROVIDE REAL TIME HEALTH DATA FOR PHYSICIANS AND CLINICIANS FOCUSED ON SEEKING A CURE FOR THIS RARE DISEASE. ONE OF OUR PRIME OBJECTIVES IS TO LEVERAGE INNOVATIVE TECHNOLOGY AND USE IT CAPTURE, ENGAGE AND ENABLE DIAGNOSED AND UNDIAGNOSED PH PATIENTS, CAREGIVERS, AND MEDICAL PROFESSIONALS BY PROVIDING THEM WITH DIGITAL CONTENT FOCUSED ON EDUCATION, RESOURCES AND KNOWLEDGE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | MARINA VAN WORMER STEVE VAN WORMER DIRECTOR PRESIDENT SPOUSE |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | FORM 990 WILL BE PROVIDED TO THE BOARD AND REVIEWED FOR ANY NECESSARY CORRECTIONS OR CHANGES BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | ALL APPLICABLE PARTIES ANNUALY DISCLOSE POSSIBLE CONFLICTS OF INTEREST AND ANY ISSUES NOTED ARE REVIEWED BY THE BOARD. GIVEN THE SMALL SIZE OF THE GOVERNING BOARD, ANY CONFLICTS OF INTEREST ARE READILY TRANSPARENT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | PRIOR TO FORMATION OF THE ORGANIZATION, THE POTENTIAL FOR AND COMPENSATION LEVEL OF THE MANAGING DIRECTOR WAS DISCUSSED BY THE BOARD. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | SALARY LEVELS ARE REVIEWED FROM PUBLICLY AVAILABLE GUIDES LISTING COMPENSATION LEVELS FOR SIMILAR 501(C)(3) ORGANIZATIONS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 8 | BOOKKEEPING 689 0 0 CONTRACTORS 54,703 31,992 0 TOTAL 55,392 31,992 0 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 9 | BOOK / TAX DEPRECIATION DIFFERENCE 1,675 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PAGE 2, PART III, LINE 4C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 2, PART III, LINE 4D |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PAGE 6, PART VI, LINE 15A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | FORM 990, PAGE 6, PART VI, LINE 15B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 7 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 8 | FORM 990, PART IX, LINE 11G |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 9 | FORM 990, PART XI, LINE 9 |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.