Met Ed Co

“Program Service Expenses 141,723, Grants and allocations 110,000, Revenue 32,290 September 2019 Metabolic University, an interactive, didactic program designed to provide training to dietitians and other medical professionals working in the field of inborn errors of metabolism. The workshop focused heavily on experience-based small group participation and discussion, diet calcuations and counseling in a digital learning format.”

“Program Service Expenses 206,415, Grants and allocations 207,143, Revenue 0 My 2019 Argentina--Speakers include expert metabolic clinicians and researchers from South America and the U.S. This program offered the opportunity to network and share ideas about managing children and adults with PKU. Participants learned to identify the childhood and adult burden of disease identify neorupsyciatric symptoms due to high phenylalanine explore solutions to PKU management and learn updated research on PKU.”

“Program Service Expenses 7,607, Grants and allocations 12,500, Revenue 0 A series of one-page summaries on the management of metabolic disorders. There are eight disorders covered in the At A Glance series phenylketonuria homocystinuria hereditary tyrosinemia type 1 maple syrup urine disease glutaric acidemia propionic acidemia urea cycle disorders and fatty acid oxidation disorders. The goal of creating At A Glance is to provide an easy-to-read reference with the basic information necessary to manage the diets of individuals with select metabolic disorders.”

“Program Service Expenses 43,314, Grants and allocations 45,754, Revenue 0 Memphis Advisory Board--WIth the introduction of Palynziq therapy for adults with PKU, the role of the metabolic dietitian is changing from that of prescribing a phenylalanine-restricted diet to promoting higher protein intake once a patients blood phenylalanine is reduced. This exciting treatment option is unfamiliar to PKU dietitians and presents new educational challenges about diet during Palynziq therapy. Met Ed held a focus group prior to the start of the Abbott Metabolic Educational Conference. The focus group consisted of metabolic dietitians who were not part of the clinical trials and are therefore relatively new to managing patients with Palynziq. The focus group assessed the educational needs of patients on Palynziq so that materials can be developed.”

“Program Service Expenses 53,394, Grants and allocations 53,628, Revenue 0 Memphis Dinner Program--A dinner session was held the first night of the Abbott Nutrition Metabolic Conference. Met Ed developed and implemented the program. An adult patient with PKU who participated in the clinicial trials for Palynziq told her story, guided by questions from the session moderator. The audience was surveyed via live polling technology concerning how they handle issues in their Palynzig clinics. The moderator identified areas of variation in practice and areas of agreement and compared polling results to current published management guidance.”

“Program Service Expenses 49,992, Grants and allocations 50,000, Revenue 0 Peer-to-Peer Slide Deck--Met Ed developed a slide deck to educate dietitians who are either following patients treated with Palynziq or considering it. The deck contains an overview about Palynziq and focuses on practical aspects of the nutritional management of Palynziq patients.”

“Program Service Expenses 5,010, Grants and allocations 5,010, Revenue 0 Vitaflo April 2019 Meeting--Met Ed facilitated a meeting focused on providing an overview of nutritional management educational tools used in PKU from the perspectives of clinicians, parents and patients.”

“Program Service Expenses 32,632, Grants and allocations 30,160, Revenue 0 Vitaflo October 2019 Educational Summit--Met Ed facilitated two eight-hour programs designed for Metabolic Dietitians and other health care professionals to educate them about current practices on the nutrition management of inherited metabolic diseases. The learning objectives for each disorder included a review of the pathophysiology discussion of curreent nutrition and medical management understanding the role medical food and cofactors.”

“Program Service Expenses 9,759, Grants and allocations 0, Revenue 9,850 Stepping Up Your Protein--This book is a guide for learning about adding protein to ones diet. The traditional diet management of PKU is based on limiting protein from food while taking a metabolic formula to complete ones protein needs. With medical management now available to help maintain blood Phenylaline in the target range. This tool is intended to help with the transition from ones current diet to meeting ones protein needs with food in conjunction with medical management.”