Liabilities / Assets
74th percentile
Higher debt load relative to assets than 74% of similar nonprofits.
EIN 47-2329330 • 501(c)3 • Tampa, FL
Profile
Our mission is to educate women of childbearing age about congenital CMV. Our purpose is to prevent CMV infection in women of childbearing age, by:Empowering women, parents, families and local community networks through grassroots engagement to facilitate conversation and champion the cause.Delivering consistent, clear messaging and evidence-based data that aids in prevention, educates the public and increases its understanding of congenital CMV.Influencing CMV research priorities regarding CMV prevention, treatment and intervention.Advocating for a CMV vaccine.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
74th percentile
Higher debt load relative to assets than 74% of similar nonprofits.
Liabilities / Revenue
76th percentile
Higher debt load relative to revenue than 76% of similar nonprofits.
Net Margin
15th percentile
Higher net margin than 15% of similar nonprofits.
Top Officer Pay
84th percentile
Higher top officer pay than 84% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
31st percentile
Faster asset growth than 31% of similar nonprofits.
Revenue Growth
65th percentile
Faster revenue growth than 65% of similar nonprofits.
Assets
Down$295,527
Down $129,110 (-30%) from 2023
Liabilities
Up$12,821
Up $7,827 (+157%) from 2023
Net Assets
Down$282,706
Down $136,937 (-33%) from 2023
Revenue
Down$346,360
Down $35,671 (-9.3%) from 2023
Expenses
Up$492,551
Up $36,586 (+8.0%) from 2023
Net Income
Down-$146,191
Down $72,257 (-98%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
Our mission is to educate women of childbearing age about congenital CMV. Our purpose is to prevent CMV infection in women of childbearing age, by:Empowering women, parents, families and local community networks through grassroots engagement to facilitate conversation and champion the cause.Delivering consistent, clear messaging and evidence-based data that aids in prevention, educates the public and increases its understanding of congenital CMV.Influencing CMV research priorities regarding CMV prevention, treatment and intervention.Advocating for a CMV vaccine.
Our program activities are focused around congenital CMV education and advocacy. We deliver education about congenital CMV to families and women of childbearing age through digital platforms, strategic partnerships, public health initiatives, and grassroots advocacy efforts. We advocate for the screening of newborns so we may properly evaluate and identify these babies to enroll them in the proper treatment as standard of care. Our programs include the CMV Community Alliance; CMV Partnership Alliance; education & outreach services targeting the women of childbearing age and general public, childcare providers, and healthcare providers; advocacy support; and early career research awards
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $125,495 | $138,737 | ▲ $13,242 |
| Cash and Non-Interest-Bearing Accounts | $280,646 | $130,348 | ▼ $150,298 |
| Savings and Temporary Cash Investments | $18,496 | $20,149 | ▲ $1,653 |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Prepaid Expenses and Deferred Charges | - | $0 | - |
| Total Assets | $424,637 | $295,527 | ▼ $129,110 |
| Other Assets Total | - | $6,293 | - |
| Liabilities | |||
| Other Liabilities | $4,994 | $12,821 | ▲ $7,827 |
| Total Liabilities | $4,994 | $12,821 | ▲ $7,827 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $419,643 | $282,706 | ▼ $136,937 |
| Total Net Assets Fund Balance | $419,643 | $282,706 | ▼ $136,937 |
| Total Liabilities and Net Assets / Fund Balance | $424,637 | $295,527 | ▼ $129,110 |
| Name | Title |
|---|---|
| Danielle Kinkel | President |
| Andy Jones | Vice President |
| Amy Sheridan | Director |
| Benjamin Cohen | Director |
| Danielle Jones | Director |
| Megan Pesch | Director |
| Stephanie English | Director |
| Suresh Boppana | Director |
| Andrew Vereeke | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $279,021 |
| Other Expenses | $213,530 |
| Total Fundraising Expense | $52,947 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $122,552 | $82,697 | $39,613 | $244,862 |
| Advertising | $46,329 | - | - | $46,329 |
| Fees for Services Lobbying | - | $46,000 | - | $46,000 |
| Payroll Taxes | $11,071 | $6,777 | $3,144 | $20,992 |
| Information Technology | $17,209 | $906 | - | $18,115 |
| All Other Expenses | $2,219 | $7,712 | - | $9,931 |
| Other Employee Benefits | $5,626 | $352 | $1,055 | $7,033 |
| Pension Plan Contributions | $4,907 | $307 | $920 | $6,134 |
| Travel | $5,563 | - | - | $5,563 |
| Conferences and Meetings | $4,961 | - | - | $4,961 |
| Fees for Services Accounting | - | $2,500 | - | $2,500 |
| Office Expenses | - | $2,399 | - | $2,399 |
| Other Expenses | $43,812 | $2,291 | $8,215 | $2,291 |
| Fees for Services Other | - | $1,696 | - | $1,696 |
| Fees for Services Management | $1,376 | - | - | $1,376 |
| Insurance | - | $1,288 | - | $1,288 |
| Total Functional Expenses | $265,625 | $173,979 | $52,947 | $492,551 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
| Liability | Amount |
|---|---|
| Retirement Plan Liability | $12,820 |
| Rounding | $1 |
“Form 990 reviewed by president and select board members for accuracy and completeness.”
“Each board member completes a conflift of interest declaration form annually.”
“Financial statements and organization documents available on the organizations website.”
“Amending to correct part vi, section a, line 1b to reflect 9 independent members.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/Desc | 0 | Public Health Awareness: The National CMV Foundation creates and disseminates evidence-based health education on congenital CMV, including prevention strategies during pregnancy, modes of transmission, potential outcomes, newborn screening, treatment options, and relevant public health policies. Through diverse communication channels, such as web content, email marketing, social media, paid media, print materials, videos, toolkits, educational downloads, and continuing education activities, the Foundation reaches women of childbearing age, families, child care providers, and healthcare professionals nationwide.In 2024, the Foundations advocacy leadership contributed to the introduction of the Stop CMV Act, the first federally coordinated effort aiming to provide funding and incentives to increase screening of newborns for congenital cytomegalovirus. |
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| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 352 |
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| IRS990/OtherExpensesGrp/Desc | 0 | CONTRACT LABOR |
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| IRS990/OtherExpensesGrp/Desc | 2 | LICENSES AND FEES |
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| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2738 |
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| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 2291 |
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| IRS990/OtherExpensesGrp/TotalAmt | 0 | 54765 |
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| IRS990/OtherExpensesGrp/TotalAmt | 2 | 4479 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2291 |
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| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 12821 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
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| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 82697 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 122552 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 244862 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3144 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 6777 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 11071 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 20992 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 920 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 307 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 4907 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 6134 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | DANIELLE KINKEL |
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| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Community Building: Representatives of the National CMV Foundation hosted a variety of in-person and virtual events designed to strengthen community engagement, raise awareness, and expand advocacy for congenital CMV risk reduction. These gatherings included educational webinars, advocacy trainings, and fundraising events that united families, healthcare professionals, and partners nationwide, building connection, empowerment, and sustained support for those impacted by CMV. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 99547 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | RESEARCH SUPPORT: The National CMV Foundation supports a range of research initiatives and efforts, including workshops and grants for young investigators and early-career researchers studying maternal or congenital CMV infection. Areas of focus include public health, epidemiology, diagnosis, treatment, outcomes, basic science, and vaccine development, all aligned with the Foundations mission to promote maternal and newborn health and reduce the incidence of congenital CMV in the United States. Representatives of the National CMV Foundation were also instrumental in securing the FY '24 inclusion of congenital CMV in the Department of Defenses Peer-Reviewed Medical Research Program, opening new opportunities for federally funded CMV research and innovation, totaling over $700,000. |
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| IRS990/PYInvestmentIncomeAmt | 0 | 3302 |
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| IRS990/PYRevenuesLessExpensesAmt | 0 | -73934 |
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| IRS990/PYTotalExpensesAmt | 0 | 455965 |
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| IRS990ScheduleC/MailingsMembersInd | 0 | false |
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| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 12820 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 1 | 1 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | RETIREMENT PLAN LIABILITY |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | FORM 990 REVIEWED BY PRESIDENT AND SELECT BOARD MEMBERS FOR ACCURACY AND COMPLETENESS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | EACH BOARD MEMBER COMPLETES A CONFLIFT OF INTEREST DECLARATION FORM ANNUALLY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | FINANCIAL STATEMENTS AND ORGANIZATION DOCUMENTS AVAILABLE ON THE ORGANIZATIONS WEBSITE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | AMENDING TO CORRECT PART VI, SECTION A, LINE 1B TO REFLECT 9 INDEPENDENT MEMBERS. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part VI, Section B, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Section B, Line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Section C, Line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Amended Explanation |
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| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | AK |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 1 | AL |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 2 | AR |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 3 | AZ |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 4 | CA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 5 | CO |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 6 | CT |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 7 | DC |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 8 | FL |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 9 | GA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 10 | HI |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 11 | IL |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 12 | KS |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 13 | KY |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 14 | LA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 15 | MA |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 16 | MD |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 17 | ME |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 18 | MI |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 19 | MN |
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