Civic Intelligence

Kcnq2 Cure Alliance Inc.

990 • Fiscal year 2020 • EIN 47-1810644

Jan 01, 2020 to Dec 31, 2020 • Filed on Nov 09, 2021

Organization ProfileWWW.KCNQ2CURE.ORG
3700 Northfield Quebec St Unit 100Denver, CO 80207

(303) 887-9532

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

27th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Liabilities / Revenue

27th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Net Margin

98th percentile

91%

Higher net margin than 98% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Top Officer Pay

51st percentile

$0

Higher top officer pay than 51% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Asset Growth

80th percentile

43%

Faster asset growth than 80% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Revenue Growth

47th percentile

-2.9%

Faster revenue growth than 47% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets27th percentile

Assets

Up

$534,796

Up $161,110 (+43%) from 2019

Net Assets

Up

$534,796

Up $161,110 (+43%) from 2019

Liabilities

Flat

$0

Flat from 2019

Revenue And Expenses
Liabilities / Revenue27th percentileNet Margin98th percentile

Revenue

Down

$177,690

Down $5,225 (-2.9%) from 2019

Expenses

Down

$16,581

Down $156,389 (-90%) from 2019

Net Income

Up

$161,109

Up $151,164 (+1520%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth80th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2015: $48,786Liabilities 2015: $0Net Assets 2015: $48,7862015Assets 2016: $281,955Liabilities 2016: $0Net Assets 2016: $281,9552016Assets 2017: $300,383Liabilities 2017: $0Net Assets 2017: $300,3832017Assets 2018: $363,741Liabilities 2018: $0Net Assets 2018: $363,7412018Assets 2019: $373,686Liabilities 2019: $0Net Assets 2019: $373,6862019Assets 2020: $534,796Liabilities 2020: $0Net Assets 2020: $534,7962020Assets 2021: $601,426Liabilities 2021: $0Net Assets 2021: $601,4262021Assets 2022: $730,127Liabilities 2022: $0Net Assets 2022: $730,1272022Assets 2023: $881,712Liabilities 2023: $0Net Assets 2023: $881,7122023Assets 2024: $1,234,962Liabilities 2024: $11,319Net Assets 2024: $1,223,6432024

Highlighted filing

2020

Assets$534,796
Liabilities$0
Net Assets$534,796
Open 2020 Filing

Operations Trend

Revenue Growth47th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0Revenue 2015: $66,532Expenses 2015: $22,257Net Income 2015: $44,2752015Revenue 2016: $361,755Expenses 2016: $128,586Net Income 2016: $233,1692016Revenue 2017: $102,885Expenses 2017: $84,457Net Income 2017: $18,4282017Revenue 2018: $168,271Expenses 2018: $132,509Net Income 2018: $35,7622018Revenue 2019: $182,915Expenses 2019: $172,970Net Income 2019: $9,9452019Revenue 2020: $177,690Expenses 2020: $16,581Net Income 2020: $161,1092020Revenue 2021: $185,161Expenses 2021: $118,531Net Income 2021: $66,6302021Revenue 2022: $172,403Expenses 2022: $43,702Net Income 2022: $128,7012022Revenue 2023: $298,727Expenses 2023: $134,391Net Income 2023: $164,3362023Revenue 2024: $458,475Expenses 2024: $86,234Net Income 2024: $372,2412024

Highlighted filing

2020

Revenue$177,690
Expenses$16,581
Net Income$161,109
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Nov 9, 2021
Return Version
2020v4.0
Gross Receipts
$177,690
Mission and Program Overview

Mission

KCNQ2 Cure Alliance is a non-profit organization dedicated to raising research funds for KCNQ2 epileptic encephalophathy, a rate and catasrophic form of epilepsy. By offering research grants for KCNQ2 research with a novel approach, we can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.

Kcnq2 cure alliance is a non-profit organization dedicated to raising research funds for kcnq2 epileptic encephalopathy, a rare and catastrophic form of epilepsy. By offering research grants for kcnq2 research with a novel approach, we can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$373,687$534,796▲ $161,109
Total Assets$373,687$534,796▲ $161,109
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$373,687$534,796▲ $161,109
Total Net Assets Fund Balance$373,687$534,796▲ $161,109
Total Liabilities and Net Assets / Fund Balance$373,687$534,796▲ $161,109
Compensation and Service Providers
Top Officer Pay51st percentile

Board Members and Trustees

NameTitle
Jim JohnsonPresident
Scotty SimsSecretary
Caroline LoewyTreasurer
Sarah JamesVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$175,590
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$2,100
All Other Contributions
$175,590
Change in Net Assets
$161,109
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$9,991
Other Expenses$6,590
Total Fundraising Expense$478
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$9,991--$9,991
Office Expenses$1,314$1,027-$2,341
Insurance$1,310$437-$1,747
Information Technology$1,036$306$123$1,465
Conferences and Meetings$672--$672
Other Expenses$10-$355$10
Total Functional Expenses$14,333$1,770$478$16,581
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The treasurer and other board members review the form 990 prior to filing.”

Form 990, Page 6, Part VI, Line 19

“Governing and financial documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Kcnq2 Cure Alliance
EIN
47-1810644
Phone
3038879532
Address
3700 NORTHFIELD QUEBEC ST UNIT 100, DENVER, CO 80207

Signing Officer

Name
Jim Johnson
Title
President
Phone
3038879532
Signed
2021-11-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jim Johnson
Formed
2015
Legal Domicile
Co
Voting Board Members
4
Independent Board Members
4
Employees
0

Preparer

Firm
Taylor Roth and Company
Address
800 GRANT ST STE 205, DENVER, CO 80203-2944
Preparer
Ken Roth
Phone
3038308109
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Kcnq2 cure alliance is a non-profit organization dedicated to raising research funds for kcnq2 epileptic encephalopathy, a rare and catastrophic form of epilepsy. By offering research grants for kcnq2 research with a novel approach, we can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.”

Form 990, Page 2, Part III, Line 4A

“In collaboration with boston children's hospital the grant funded the acquisition and characterisation to an updated kcnq2 registry and draft natural history study of 74 international patients. Countries thus involved and expanded in the study include bulgaria, china, australia, canada, norway, spain, croatia, united kingdom and the united states. In total 42 questionnaires were returned and analyzed for relevant clinical and overall significance relevant to future trial study. Additionally, the grant research leads at bch are preparing a report on the overall statistical impact of building out a registry backed with published articles detailing the impact the data has provided to assist with the creation of human cell lines, crispr work and additional input to translational therapies such as rna and other gene therapy approaches.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION PROVIDED 500 EMERGENCY GRANTS TO INDIVIDUALS AFFECTED BY KCNQ EPILEPSY WHO NEEDED FINANCIAL ASSISTANCE DUE TO ECONOMIC FALLOUT FROM THE COVID19 PANDEMIC.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0KCNQ2 CURE ALLIANCE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING RESEARCH FUNDS FOR KCNQ2 EPILEPTIC ENCEPHALOPATHY, A RARE AND CATASTROPHIC FORM OF EPILEPSY. BY OFFERING RESEARCH GRANTS FOR KCNQ2 RESEARCH WITH A NOVEL APPROACH, WE CAN MOVE RESEARCHERS AND THE MEDICAL COMMUNITY FORWARD TO FIND BETTER TREATMENTS AND A CURE WHILE ASSISTING AFFLICTED INDIVIDUALS AND THEIR FAMILIES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1IN COLLABORATION WITH BOSTON CHILDREN'S HOSPITAL THE GRANT FUNDED THE ACQUISITION AND CHARACTERISATION TO AN UPDATED KCNQ2 REGISTRY AND DRAFT NATURAL HISTORY STUDY OF 74 INTERNATIONAL PATIENTS. COUNTRIES THUS INVOLVED AND EXPANDED IN THE STUDY INCLUDE BULGARIA, CHINA, AUSTRALIA, CANADA, NORWAY, SPAIN, CROATIA, UNITED KINGDOM AND THE UNITED STATES. IN TOTAL 42 QUESTIONNAIRES WERE RETURNED AND ANALYZED FOR RELEVANT CLINICAL AND OVERALL SIGNIFICANCE RELEVANT TO FUTURE TRIAL STUDY. ADDITIONALLY, THE GRANT RESEARCH LEADS AT BCH ARE PREPARING A REPORT ON THE OVERALL STATISTICAL IMPACT OF BUILDING OUT A REGISTRY BACKED WITH PUBLISHED ARTICLES DETAILING THE IMPACT THE DATA HAS PROVIDED TO ASSIST WITH THE CREATION OF HUMAN CELL LINES, CRISPR WORK AND ADDITIONAL INPUT TO TRANSLATIONAL THERAPIES SUCH AS RNA AND OTHER GENE THERAPY APPROACHES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE TREASURER AND OTHER BOARD MEMBERS REVIEW THE FORM 990 PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3GOVERNING AND FINANCIAL DOCUMENTS ARE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
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IRS990/TotalAssetsGrp/EOYAmt0534796
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IRS990/TotalContributionsAmt0175590
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt0478
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt01770
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt014333
IRS990/TotalFunctionalExpensesGrp/TotalAmt016581
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0373687
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0534796
IRS990/TotalProgramServiceExpensesAmt014333
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt02100
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0177690
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0373687
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0534796
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt03700 QUEBEC ST
IRS990/USAddress/AddressLine2Txt0UNIT 100-118
IRS990/USAddress/CityNm0DENVER
IRS990/USAddress/StateAbbreviationCd0CO
IRS990/USAddress/ZIPCd080207
IRS990/VotingMembersGoverningBodyCnt04
IRS990/VotingMembersIndependentCnt04
IRS990/WebsiteAddressTxt0WWW.KCNQ2CURE.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0JIM JOHNSON
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum03038879532
ReturnHeader/BusinessOfficerGrp/SignatureDt02021-11-09
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ReturnHeader/Filer/BusinessNameControlTxt0KCNQ
ReturnHeader/Filer/EIN0471810644
ReturnHeader/Filer/PhoneNum03038879532
ReturnHeader/Filer/USAddress/AddressLine1Txt03700 NORTHFIELD QUEBEC ST UNIT 100
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ReturnHeader/Filer/USAddress/StateAbbreviationCd0CO
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ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0203746583
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0TAYLOR ROTH AND COMPANY
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0800 GRANT ST STE 205
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0DENVER
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0802032944
ReturnHeader/PreparerPersonGrp/PhoneNum03038308109
ReturnHeader/PreparerPersonGrp/PreparationDt02021-11-10
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0KEN ROTH
ReturnHeader/ReturnTs02021-11-10T15:11:23-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0JIM
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0JOHNSON
ReturnHeader/TaxPeriodBeginDt02020-01-01
ReturnHeader/TaxPeriodEndDt02020-12-31
ReturnHeader/TaxYr02020

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$534,796
Liabilities
$0
Net assets
$534,796
Revenue
$177,690
Expenses
$16,581
Net income
$161,109
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.23$0.01$1.22$0.46$0.09$0.37
2023Detailed filing. Detailed filing data is available for this year.$0.88$0.00$0.88$0.30$0.13$0.16
2022Detailed filing. Detailed filing data is available for this year.$0.73$0.00$0.73$0.17$0.04$0.13
2021Detailed filing. Detailed filing data is available for this year.$0.60$0.00$0.60$0.19$0.12$0.07
2020Detailed filing. Detailed filing data is available for this year.$0.53$0.00$0.53$0.18$0.02$0.16
2019Detailed filing. Detailed filing data is available for this year.$0.37$0.00$0.37$0.18$0.17$0.01
2018Detailed filing. Detailed filing data is available for this year.$0.36$0.00$0.36$0.17$0.13$0.04
2017Detailed filing. Detailed filing data is available for this year.$0.30$0.00$0.30$0.10$0.08$0.02
2016Detailed filing. Detailed filing data is available for this year.$0.28$0.00$0.28$0.36$0.13$0.23
2015Detailed filing. Detailed filing data is available for this year.$0.05$0.00$0.05$0.07$0.02$0.04