Liabilities / Assets
32nd percentile
Higher debt load relative to assets than 32% of similar nonprofits.
EIN 47-1810644 • 501(c)3 • Denver, CO
Profile
Kcnq2 cure alliance is a non-profit organization dedicated to raising research funds for kcnq2 epileptic encephalopathy, a rare and catastrophic form of epilepsy. By offering research grants for kcnq2 research with a novel approach, we can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
32nd percentile
Higher debt load relative to assets than 32% of similar nonprofits.
Liabilities / Revenue
36th percentile
Higher debt load relative to revenue than 36% of similar nonprofits.
Net Margin
96th percentile
Higher net margin than 96% of similar nonprofits.
Top Officer Pay
40th percentile
Higher top officer pay than 40% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
88th percentile
Faster asset growth than 88% of similar nonprofits.
Revenue Growth
84th percentile
Faster revenue growth than 84% of similar nonprofits.
Assets
Up$1,234,962
Up $353,250 (+40%) from 2023
Liabilities
Up$11,319
Up $11,319 from 2023
Net Assets
Up$1,223,643
Up $341,931 (+39%) from 2023
Revenue
Up$458,475
Up $159,748 (+53%) from 2023
Expenses
Down$86,234
Down $48,157 (-36%) from 2023
Net Income
Up$372,241
Up $207,905 (+127%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
Kcnq2 cure alliance is a non-profit organization dedicated to raising research funds for kcnq2 epileptic encephalopathy, a rare and catastrophic form of epilepsy. By offering research grants for kcnq2 research with a novel approach, we can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | - | $712,588 | - |
| Cash and Non-Interest-Bearing Accounts | $881,085 | $521,022 | ▼ $360,063 |
| Land, Buildings, and Equipment, Net | $627 | $1,352 | ▲ $725 |
| Savings and Temporary Cash Investments | - | $0 | - |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Prepaid Expenses and Deferred Charges | - | $0 | - |
| Total Assets | $881,712 | $1,234,962 | ▲ $353,250 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | - | $9,776 | - |
| Other Liabilities | - | $1,543 | - |
| Total Liabilities | $0 | $11,319 | ▲ $11,319 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $881,712 | $1,223,643 | ▲ $341,931 |
| Total Net Assets Fund Balance | $881,712 | $1,223,643 | ▲ $341,931 |
| Total Liabilities and Net Assets / Fund Balance | $881,712 | $1,234,962 | ▲ $353,250 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $627 | - | - |
| Equipment | $725 | $213 | - |
| Name | Title |
|---|---|
| Jim Johnson | President |
| Sara James | Vice President |
| Matthew Fox | Director |
| Colin Sanford | Secretary |
| Caroline Loewy | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $71,117 |
| Grants and Similar Amounts Paid | $15,117 |
| Total Fundraising Expense | $6,773 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $15,117 | - | - | $15,117 |
| Fees for Services Management | - | $11,853 | - | $11,853 |
| Travel | - | $2,260 | $2,915 | $5,175 |
| Information Technology | $4,768 | $288 | - | $5,056 |
| Fees for Services Accounting | - | $4,025 | - | $4,025 |
| All Other Expenses | - | $1,583 | $1,331 | $2,914 |
| Insurance | - | $2,071 | - | $2,071 |
| Other Expenses | $1,500 | $1,482 | $1,464 | $1,500 |
| Depreciation Depletion | - | $244 | - | $244 |
| Advertising | - | $159 | - | $159 |
| Office Expenses | - | $98 | - | $98 |
| Total Functional Expenses | $55,398 | $24,063 | $6,773 | $86,234 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| SynGAP Research Fund | Pasadena, CA | - | KCNQ2 research | $15,117 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
| Liability | Amount |
|---|---|
| Credit Card | $1,543 |
“The return is furnished to the foundation's treasurer for review and submitted to the Executive Board (Executive Director, President, Vice President, Treasurer, and Secretary) for approval before being submitted for filing.”
“Any interests that could give rise to a conflict must be disclosed to the Board. However, no contract or transaction between the Foundation and one or more of its members, directors, or officers, or any other foundation, partnership, association, or other organization in which one or more of this Foundation?s directors or officers are directors or officers, or have a financial interest, shall be void or voidable solely for such reason, or solely because the member, director, or officer is present or participates in the meeting of the Board of Directors which authorizes the contract or transaction, or solely because his or their votes are counted for such purpose if: The material facts as to the relationship or interest and as to the contract or transaction are disclosed or are known to the Board of Directors, and the Board of Directors in good faith authorizes the contract or transaction by the affirmative votes of a majority of the disinterested directors, even though the disinterested directors are less than a quorum; The material facts as to his relationship or interest and as to the contract or transaction are disclosed or are known to the Board of Directors, and the contract or transaction is specifically approved in good faith by a vote of such directors; or The contract or transaction is fair as to the Foundation as of the time it is authorized, approved, or ratified by the Board of Directors.”
“The Compensation Committee shall consist of the Vice President and Treasurer. They will review the contract rate and other benefits of the Executive Director. As part of this review, the Compensation Committee will make a recommendation to the Board of Directors regarding the Executive Director?s contract rate and other benefits to be paid for the upcoming year. This shall be done on an annual basis. The vote of a majority of the directors entitled to vote at a meeting at which a quorum is present shall determine the rate and other benefits of the Executive Director. This shall be done on an annual basis, no later than sixty (60) days after the anniversary date of the Executive Director?s date of hire.”
“The foundation made its governing documents, conflict of interest policy, and financial statements available to the public on its website and Guidestar upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/ActivityOrMissionDesc | 0 | KCNQ2 Cure Alliance is a non-profit organization dedicated to raising research funds for KCNQ2 epileptic encephalopathy, a rare and catastrophic form of epilepsy. By offering research grants for KCNQ2 research with a novel approach, we can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families. |
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| IRS990/Desc | 0 | Funding of patient-derived DNA and clinical data to identify modifiers of the KCNQ2 phenotype. Identifying these genetic and environmental modifiers will improve our capability to make an accurate prognosis for individual patients, can help to define current best treatment strategies and will help to identify novel disease pathways that can be targeted to improve outcome in the general KCNQ2-RD population. |
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| IRS990/MissionDesc | 0 | KCNQ2 Cure Alliance is a non-profit organization dedicated to raising research funds for KCNQ2 epileptic encephalopathy, a rare and catastrophic form of epilepsy. By offering research grants for KCNQ2 research with a novel approach, we can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families. |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 290960 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 115903 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 177319 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 175590 |
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| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 70678 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.94200 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1147569 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 0 |
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| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 115903 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 177319 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 175590 |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
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| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 627 |
| IRS990ScheduleD/OtherLandBuildingsGrp/InvestmentCostOrOtherBasisAmt | 0 | 627 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 1543 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | Credit Card |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 1352 |
| IRS990ScheduleD/TotalBookValueSecuritiesAmt | 0 | 712588 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 1543 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
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| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | KCNQ2 research |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | SynGAP Research Fund |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 831200789 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | PO Box 104191 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Pasadena |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 91189 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | A written scientific progress report regarding the project must be submitted to the Foundation six (6) months from the effective date for the release of funding described in the grant agreement. A final scientific progress report and financial report detailing all expenditures for the life of the grant will be due no later than sixty (60) days following the expiration or termination of the grant, as described in the Foundation?s policy statement on research support. In addition, annual financial reports must be submitted to the Foundation to substantiate expenses for the applicable period. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Grantmaker's Description of How Grants are Used |
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| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | The return is furnished to the foundation's treasurer for review and submitted to the Executive Board (Executive Director, President, Vice President, Treasurer, and Secretary) for approval before being submitted for filing. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Any interests that could give rise to a conflict must be disclosed to the Board. However, no contract or transaction between the Foundation and one or more of its members, directors, or officers, or any other foundation, partnership, association, or other organization in which one or more of this Foundation?s directors or officers are directors or officers, or have a financial interest, shall be void or voidable solely for such reason, or solely because the member, director, or officer is present or participates in the meeting of the Board of Directors which authorizes the contract or transaction, or solely because his or their votes are counted for such purpose if: The material facts as to the relationship or interest and as to the contract or transaction are disclosed or are known to the Board of Directors, and the Board of Directors in good faith authorizes the contract or transaction by the affirmative votes of a majority of the disinterested directors, even though the disinterested directors are less than a quorum; The material facts as to his relationship or interest and as to the contract or transaction are disclosed or are known to the Board of Directors, and the contract or transaction is specifically approved in good faith by a vote of such directors; or The contract or transaction is fair as to the Foundation as of the time it is authorized, approved, or ratified by the Board of Directors. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | The Compensation Committee shall consist of the Vice President and Treasurer. They will review the contract rate and other benefits of the Executive Director. As part of this review, the Compensation Committee will make a recommendation to the Board of Directors regarding the Executive Director?s contract rate and other benefits to be paid for the upcoming year. This shall be done on an annual basis. The vote of a majority of the directors entitled to vote at a meeting at which a quorum is present shall determine the rate and other benefits of the Executive Director. This shall be done on an annual basis, no later than sixty (60) days after the anniversary date of the Executive Director?s date of hire. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | The foundation made its governing documents, conflict of interest policy, and financial statements available to the public on its website and Guidestar upon request. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part VI, Section B, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Section B, Line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Section B, Line 15a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990, Part VI, Section C, Line 19 |
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| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 55398 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 86234 |
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| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 0 |
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| IRS990/TravelGrp/FundraisingAmt | 0 | 2915 |
| IRS990/TravelGrp/ManagementAndGeneralAmt | 0 | 2260 |
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| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
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| IRS990/VotingMembersIndependentCnt | 0 | 4 |
| IRS990/WebsiteAddressTxt | 0 | www.kcnq2cure.org |
| IRS990/WhistleblowerPolicyInd | 0 | false |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Jim Johnson |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-08-19 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | KCNQ2 Cure Alliance |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | KCNQ |
| ReturnHeader/Filer/EIN | 0 | 471810644 |
| ReturnHeader/Filer/PhoneNum | 0 | 3038879532 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 3700 Quebec St Unit 100-118 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Denver |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CO |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 80207 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | true |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 815169849 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | Attolero |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 9508 Devonshire Drive |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | Huntersville |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | NC |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 28078 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 7046412949 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | Robert Bales |
| ReturnHeader/ReturnTs | 0 | 2025-08-19T15:26:16-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
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