Civic Intelligence

Kcnq2 Cure Alliance

EIN 47-1810644 • 501(c)3 • Denver, CO

Profile

Kcnq2 cure alliance is a non-profit organization dedicated to raising research funds for kcnq2 epileptic encephalopathy, a rare and catastrophic form of epilepsy. By offering research grants for kcnq2 research with a novel approach, we can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.

3700 Quebec St Unit 100-118Denver, CO 80207

www.kcnq2cure.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

32nd percentile

0.01x

Higher debt load relative to assets than 32% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

36th percentile

0.02x

Higher debt load relative to revenue than 36% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

96th percentile

81%

Higher net margin than 96% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

40th percentile

$0

Higher top officer pay than 40% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

88th percentile

40%

Faster asset growth than 88% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

84th percentile

53%

Faster revenue growth than 84% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Up

$1,234,962

Up $353,250 (+40%) from 2023

Liabilities

Up

$11,319

Up $11,319 from 2023

Net Assets

Up

$1,223,643

Up $341,931 (+39%) from 2023

Revenue

Up

$458,475

Up $159,748 (+53%) from 2023

Expenses

Down

$86,234

Down $48,157 (-36%) from 2023

Net Income

Up

$372,241

Up $207,905 (+127%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2015: $48,786Liabilities 2015: $0Net Assets 2015: $48,7862015Assets 2016: $281,955Liabilities 2016: $0Net Assets 2016: $281,9552016Assets 2017: $300,383Liabilities 2017: $0Net Assets 2017: $300,3832017Assets 2018: $363,741Liabilities 2018: $0Net Assets 2018: $363,7412018Assets 2019: $373,686Liabilities 2019: $0Net Assets 2019: $373,6862019Assets 2020: $534,796Liabilities 2020: $0Net Assets 2020: $534,7962020Assets 2021: $601,426Liabilities 2021: $0Net Assets 2021: $601,4262021Assets 2022: $730,127Liabilities 2022: $0Net Assets 2022: $730,1272022Assets 2023: $881,712Liabilities 2023: $0Net Assets 2023: $881,7122023Assets 2024: $1,234,962Liabilities 2024: $11,319Net Assets 2024: $1,223,6432024

Highlighted filing

2024

Assets$1,234,962
Liabilities$11,319
Net Assets$1,223,643

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0Revenue 2015: $66,532Expenses 2015: $22,257Net Income 2015: $44,2752015Revenue 2016: $361,755Expenses 2016: $128,586Net Income 2016: $233,1692016Revenue 2017: $102,885Expenses 2017: $84,457Net Income 2017: $18,4282017Revenue 2018: $168,271Expenses 2018: $132,509Net Income 2018: $35,7622018Revenue 2019: $182,915Expenses 2019: $172,970Net Income 2019: $9,9452019Revenue 2020: $177,690Expenses 2020: $16,581Net Income 2020: $161,1092020Revenue 2021: $185,161Expenses 2021: $118,531Net Income 2021: $66,6302021Revenue 2022: $172,403Expenses 2022: $43,702Net Income 2022: $128,7012022Revenue 2023: $298,727Expenses 2023: $134,391Net Income 2023: $164,3362023Revenue 2024: $458,475Expenses 2024: $86,234Net Income 2024: $372,2412024

Highlighted filing

2024

Revenue$458,475
Expenses$86,234
Net Income$372,241

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 19, 2025
Return Version
2024v5.2
Gross Receipts
$458,475
Mission and Program Overview

Mission

Kcnq2 cure alliance is a non-profit organization dedicated to raising research funds for kcnq2 epileptic encephalopathy, a rare and catastrophic form of epilepsy. By offering research grants for kcnq2 research with a novel approach, we can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities-$712,588-
Cash and Non-Interest-Bearing Accounts$881,085$521,022▼ $360,063
Land, Buildings, and Equipment, Net$627$1,352▲ $725
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$881,712$1,234,962▲ $353,250
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses-$9,776-
Other Liabilities-$1,543-
Total Liabilities$0$11,319▲ $11,319
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$881,712$1,223,643▲ $341,931
Total Net Assets Fund Balance$881,712$1,223,643▲ $341,931
Total Liabilities and Net Assets / Fund Balance$881,712$1,234,962▲ $353,250

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$627--
Equipment$725$213-
Compensation and Service Providers

Board Members and Trustees

NameTitle
Jim JohnsonPresident
Sara JamesVice President
Matthew FoxDirector
Colin SanfordSecretary
Caroline LoewyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$387,797
Program Service Revenue
$0
Investment Income
$70,678
Other Revenue
$0
All Other Contributions
$387,797
Change in Net Assets
$372,241
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$71,117
Grants and Similar Amounts Paid$15,117
Total Fundraising Expense$6,773
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$15,117--$15,117
Fees for Services Management-$11,853-$11,853
Travel-$2,260$2,915$5,175
Information Technology$4,768$288-$5,056
Fees for Services Accounting-$4,025-$4,025
All Other Expenses-$1,583$1,331$2,914
Insurance-$2,071-$2,071
Other Expenses$1,500$1,482$1,464$1,500
Depreciation Depletion-$244-$244
Advertising-$159-$159
Office Expenses-$98-$98
Total Functional Expenses$55,398$24,063$6,773$86,234
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
SynGAP Research FundPasadena, CA-KCNQ2 research$15,117
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Card$1,543
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The return is furnished to the foundation's treasurer for review and submitted to the Executive Board (Executive Director, President, Vice President, Treasurer, and Secretary) for approval before being submitted for filing.

Form 990, Part VI, Section B, Line 12C

Any interests that could give rise to a conflict must be disclosed to the Board. However, no contract or transaction between the Foundation and one or more of its members, directors, or officers, or any other foundation, partnership, association, or other organization in which one or more of this Foundation?s directors or officers are directors or officers, or have a financial interest, shall be void or voidable solely for such reason, or solely because the member, director, or officer is present or participates in the meeting of the Board of Directors which authorizes the contract or transaction, or solely because his or their votes are counted for such purpose if: The material facts as to the relationship or interest and as to the contract or transaction are disclosed or are known to the Board of Directors, and the Board of Directors in good faith authorizes the contract or transaction by the affirmative votes of a majority of the disinterested directors, even though the disinterested directors are less than a quorum; The material facts as to his relationship or interest and as to the contract or transaction are disclosed or are known to the Board of Directors, and the contract or transaction is specifically approved in good faith by a vote of such directors; or The contract or transaction is fair as to the Foundation as of the time it is authorized, approved, or ratified by the Board of Directors.

Form 990, Part VI, Section B, Line 15A

The Compensation Committee shall consist of the Vice President and Treasurer. They will review the contract rate and other benefits of the Executive Director. As part of this review, the Compensation Committee will make a recommendation to the Board of Directors regarding the Executive Director?s contract rate and other benefits to be paid for the upcoming year. This shall be done on an annual basis. The vote of a majority of the directors entitled to vote at a meeting at which a quorum is present shall determine the rate and other benefits of the Executive Director. This shall be done on an annual basis, no later than sixty (60) days after the anniversary date of the Executive Director?s date of hire.

Form 990, Part VI, Section C, Line 19

The foundation made its governing documents, conflict of interest policy, and financial statements available to the public on its website and Guidestar upon request.

Filing and Contact Details

Filer

Filer Name
KCNQ2 Cure Alliance
EIN
47-1810644
Phone
3038879532
Address
3700 Quebec St Unit 100-118, Denver, CO 80207

Signing Officer

Name
Jim Johnson
Title
President
Signed
2025-08-19
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Scotty Sims
Formed
2015
Legal Domicile
Co
Voting Board Members
5
Independent Board Members
4
Employees
0
Volunteers
4

Preparer

Firm
Attolero
Address
9508 Devonshire Drive, Huntersville, NC 28078
Preparer
Robert Bales
Phone
7046412949
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0290960
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IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01147569
IRS990ScheduleA/TotalSupportAmt01218247
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
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IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
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IRS990ScheduleD/EquipmentGrp/DepreciationAmt0213
IRS990ScheduleD/EquipmentGrp/InvestmentCostOrOtherBasisAmt0938
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt0627
IRS990ScheduleD/OtherLandBuildingsGrp/InvestmentCostOrOtherBasisAmt0627
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IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0Credit Card
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IRS990ScheduleD/TotalBookValueSecuritiesAmt0712588
IRS990ScheduleD/TotalLiabilityAmt01543
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IRS990ScheduleI/RecipientTable/CashGrantAmt015117
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0KCNQ2 research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0SynGAP Research Fund
IRS990ScheduleI/RecipientTable/RecipientEIN0831200789
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0PO Box 104191
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Pasadena
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0CA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd091189
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0A written scientific progress report regarding the project must be submitted to the Foundation six (6) months from the effective date for the release of funding described in the grant agreement. A final scientific progress report and financial report detailing all expenditures for the life of the grant will be due no later than sixty (60) days following the expiration or termination of the grant, as described in the Foundation?s policy statement on research support. In addition, annual financial reports must be submitted to the Foundation to substantiate expenses for the applicable period.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Grantmaker's Description of How Grants are Used
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The return is furnished to the foundation's treasurer for review and submitted to the Executive Board (Executive Director, President, Vice President, Treasurer, and Secretary) for approval before being submitted for filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Any interests that could give rise to a conflict must be disclosed to the Board. However, no contract or transaction between the Foundation and one or more of its members, directors, or officers, or any other foundation, partnership, association, or other organization in which one or more of this Foundation?s directors or officers are directors or officers, or have a financial interest, shall be void or voidable solely for such reason, or solely because the member, director, or officer is present or participates in the meeting of the Board of Directors which authorizes the contract or transaction, or solely because his or their votes are counted for such purpose if: The material facts as to the relationship or interest and as to the contract or transaction are disclosed or are known to the Board of Directors, and the Board of Directors in good faith authorizes the contract or transaction by the affirmative votes of a majority of the disinterested directors, even though the disinterested directors are less than a quorum; The material facts as to his relationship or interest and as to the contract or transaction are disclosed or are known to the Board of Directors, and the contract or transaction is specifically approved in good faith by a vote of such directors; or The contract or transaction is fair as to the Foundation as of the time it is authorized, approved, or ratified by the Board of Directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The Compensation Committee shall consist of the Vice President and Treasurer. They will review the contract rate and other benefits of the Executive Director. As part of this review, the Compensation Committee will make a recommendation to the Board of Directors regarding the Executive Director?s contract rate and other benefits to be paid for the upcoming year. This shall be done on an annual basis. The vote of a majority of the directors entitled to vote at a meeting at which a quorum is present shall determine the rate and other benefits of the Executive Director. This shall be done on an annual basis, no later than sixty (60) days after the anniversary date of the Executive Director?s date of hire.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The foundation made its governing documents, conflict of interest policy, and financial statements available to the public on its website and Guidestar upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, Line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, Line 19
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IRS990/TotalFunctionalExpensesGrp/TotalAmt086234
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IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0458475
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IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt01234962
IRS990/TravelGrp/FundraisingAmt02915
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IRS990/TravelGrp/TotalAmt05175
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
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IRS990/WebsiteAddressTxt0www.kcnq2cure.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Jim Johnson
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-08-19
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0KCNQ2 Cure Alliance
ReturnHeader/Filer/BusinessNameControlTxt0KCNQ
ReturnHeader/Filer/EIN0471810644
ReturnHeader/Filer/PhoneNum03038879532
ReturnHeader/Filer/USAddress/AddressLine1Txt03700 Quebec St Unit 100-118
ReturnHeader/Filer/USAddress/CityNm0Denver
ReturnHeader/Filer/USAddress/StateAbbreviationCd0CO
ReturnHeader/Filer/USAddress/ZIPCd080207
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0815169849
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Attolero
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt09508 Devonshire Drive
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Huntersville
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd028078
ReturnHeader/PreparerPersonGrp/PhoneNum07046412949
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Robert Bales
ReturnHeader/ReturnTs02025-08-19T15:26:16-07:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31

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