Civic Intelligence

Bcm Families Foundation

990 • Fiscal year 2016 • EIN 47-1327738

Jan 01, 2016 to Dec 31, 2016 • Filed on Apr 21, 2017

Organization ProfileN/A
PO Box 7711Jupiter, FL 33458

(440) 864-6256

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

81st percentile

0.16x

Higher debt load relative to assets than 81% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Liabilities / Revenue

73rd percentile

0.03x

Higher debt load relative to revenue than 73% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Net Margin

20th percentile

-14%

Higher net margin than 20% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Top Officer Pay

75th percentile

$0

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Asset Growth

13th percentile

-34%

Faster asset growth than 13% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

20th percentile

-25%

Faster revenue growth than 20% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets81st percentile

Assets

Down

$49,693

Down $26,141 (-34%) from 2015

Net Assets

Down

$41,535

Down $33,244 (-44%) from 2015

Liabilities

Up

$8,158

Up $7,103 (+673%) from 2015

Revenue And Expenses
Liabilities / Revenue73rd percentileNet Margin20th percentile

Revenue

Down

$244,390

Down $81,898 (-25%) from 2015

Expenses

Down

$277,634

Down $135,210 (-33%) from 2015

Net Income

Up

-$33,244

Up $53,312 (+62%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth13th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$200K$150K$100K$50K$0-$50KAssets 2014: $161,335Net Assets 2014: $161,3352014Assets 2015: $75,834Liabilities 2015: $1,055Net Assets 2015: $74,7792015Assets 2016: $49,693Liabilities 2016: $8,158Net Assets 2016: $41,5352016Assets 2017: $22,501Liabilities 2017: $11,286Net Assets 2017: $11,2152017Assets 2018: $32,623Liabilities 2018: $25,397Net Assets 2018: $7,2262018Assets 2019: $19,662Liabilities 2019: $14,973Net Assets 2019: $4,6892019Assets 2020: $38,276Liabilities 2020: $19,170Net Assets 2020: $19,1062020Assets 2021: $77,856Liabilities 2021: $19,255Net Assets 2021: $58,6012021Assets 2022: $186,176Liabilities 2022: $15,315Net Assets 2022: $170,8612022Assets 2023: $85,687Liabilities 2023: $95,670Net Assets 2023: -$9,9832023Assets 2024: $114,252Liabilities 2024: $53,583Net Assets 2024: $60,6692024Assets 2025: $136,096Liabilities 2025: $333Net Assets 2025: $135,7632025

Highlighted filing

2016

Assets$49,693
Liabilities$8,158
Net Assets$41,535
Open 2016 Filing

Operations Trend

Revenue Growth20th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2014: $197,505Expenses 2014: $36,170Net Income 2014: $161,3352014Revenue 2015: $326,288Expenses 2015: $412,844Net Income 2015: -$86,5562015Revenue 2016: $244,390Expenses 2016: $277,634Net Income 2016: -$33,2442016Revenue 2017: $261,784Expenses 2017: $292,104Net Income 2017: -$30,3202017Revenue 2018: $68,028Expenses 2018: $72,017Net Income 2018: -$3,9892018Revenue 2019: $101,679Expenses 2019: $104,216Net Income 2019: -$2,5372019Revenue 2020: $47,138Expenses 2020: $32,721Net Income 2020: $14,4172020Revenue 2021: $92,429Expenses 2021: $52,934Net Income 2021: $39,4952021Revenue 2022: $170,126Expenses 2022: $57,866Net Income 2022: $112,2602022Revenue 2023: $156,105Expenses 2023: $336,805Net Income 2023: -$180,7002023Revenue 2024: $175,825Expenses 2024: $105,173Net Income 2024: $70,6522024Revenue 2025: $173,939Expenses 2025: $98,845Net Income 2025: $75,0942025

Highlighted filing

2016

Revenue$244,390
Expenses$277,634
Net Income-$33,244
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Apr 21, 2017
Return Version
2016v3.0
Gross Receipts
$244,390
Mission and Program Overview

Mission

To provide financial support for research, projects, activities and organizations related to the diagnosis, treatment or cure of blue cone monochromacy (bcm). Also to establish networks and synergies with other groups and organizations dedicated to eye and/or other rare disease issues and to educate the general public regarding bcm.

To provide financial support for research, projects, activities and organizations related to the diagnosis, treatment or cure of blue cone monochromacy ("bcm"). Also to establish networks and synergies with other groups and organizations dedicated to eye and/or other rare disease issues and to educate the general public regarding bcm.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$75,834$49,693▼ $26,141
Total Assets$75,834$49,693▼ $26,141
Liabilities
Accounts Payable and Accrued Expenses$1,055$8,158▲ $7,103
Total Liabilities$1,055$8,158▲ $7,103
Net Assets / Fund Balance
Unrestricted Net Assets$74,779$41,535▼ $33,244
Total Net Assets Fund Balance$74,779$41,535▼ $33,244
Total Liabilities and Net Assets / Fund Balance$75,834$49,693▼ $26,141
Compensation and Service Providers
Top Officer Pay75th percentile

Board Members and Trustees

NameTitle
Renata SarnoPresident and Director
Kay J MccrarySecretary and Director
Barbara SergentTreasurer and Director
Revenue and Support

Revenue Composition

Contributions and Grants
$244,390
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$244,390
Change in Net Assets
$-33,244
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$243,761
Other Expenses$33,873
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$224,761--$224,761
Fees for Services Legal$24,409$1,397$0$25,806
Foreign Grants$19,000--$19,000
Fees for Services Accounting$0$6,190$0$6,190
Insurance$0$975$0$975
Other Expenses$0$150$0$150
Office Expenses$0$116$0$116
Total Functional Expenses$268,806$8,828$0$277,634
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of PennsylvaniaPhiladelphia, PAGOV'T BODYResearch$199,524
University of Florida Board of TrusteesGainesville, FLGOV'T BODYResearch$25,237

International Summary

Offices
0
Employees
1

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeFundraising-01-
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Bcm Families Foundation
EIN
47-1327738
Phone
4408646256
Address
PO BOX 7711, JUPITER, FL 33458

Signing Officer

Name
Renata Sarno
Title
President
Phone
4408646256
Signed
2017-04-21
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Renata Sarno
Formed
2014
Legal Domicile
Fl
Voting Board Members
1
Independent Board Members
1
Employees
0
Volunteers
6

Preparer

Firm
Richlak Lawyer & Co
Address
9140 Tyler Boulevard, Mentor, OH 44060
Preparer
Dale E Richlak CPA
Phone
4402554400
Supplemental Narrative

Additional Explanations

Pt VI, Line 6

“The foundation is organized under its bylaws to have members.”

Pt VI, Line 7A

“The voting members may appoint members to the governing body.”

Pt VI, Line 12C

“The board reviews and monitors compliance regarding conflicts of interest as it relates to the foundation.”

Pt VI, Line 11B

“The members review and approve the form 990 before filing.”

Pt VI, Line 19

“The foundation provides copies of policies upon request.”

Form 990EZ, Part I, Line 16

“Dues, subscriptions & licenses”

Form 990EZ, Part I, Line 16

“OFFICE EXPENSE”

Raw XML Appendix349 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0IN 2016 BCM FAMILIES FOUNDATION CONTINUED UNTIL JUNE 30TH AND THEN EXTENDED THE SRAS WITH UNIVERSITY OF PENNSYLVANIA ($99,524+ $100,000) AND UNIVERSITY OF FLORIDA ($25,237 + NO COST EXTENSION). SRAS' EXTENSIONS WILL END ON JUNE 30TH 2017. SCIENTISTS HAVE BEEN WORKING ON CLINICAL ASPECTS OF THE CURE AT UNIVERSITY OF PENNSYLVANIA AND ON GENE THERAPY DEVELOPMENT AT UNIVERSITY OF FLORIDA. PUBLICATION OBTAINED IN 2016: S.G. JACOBSON AT AL. 'DEVELOPING AN OUTCOME MEASURE WITH HIGH LUMINANCE FOR OPTOGENETICS TREATMENT OF SEVERE RETINAL DEGENERATIONS AND FOR GENE THERAPY OF CONE DISEASES" INVEST OPHTHALMOL VIS SCI. 2016 JUN 1;57(7):3211-21. DOI: 10.1167/IOVS.16-19586. BCMFF SIGNED A 1 YEAR COLLABORATION AGREEMENT WITH UNIVERSITIES OF TUEBINGEN, GERMANY, IN OCTOBER 2016 ($ 19,000) WITH THE AIM TO INVESTIGATE GENETIC BCM CAUSATIVE MUTATIONS. THIS STRATEGIC COLLABORATION WILL ALSO HELP BCMFF TO OFFER DNA TEST TO BCMFF CONNECTED PATIENTS HELPING THEM WITH GENETIC CONFIRMATION OF THEIR DIAGNOSIS. MOREOVER UNIVERSITY OF TUEBINGEN RECENTLY PERFORMED A GENE THERAPY CLINICAL TRIAL FOR A SIMILAR DISEASE, ACHROMATOPSIA, AND COULD BECOME AN EUROPEAN CLINICAL CENTER FOR OUR DISEASE ENLARGING THE POTENTIAL POOL OF PATIENTS WHO CAN BENEFIT FROM THE THERAPY AND GIVING RAISE TO A MORE POWERFUL CONSORTIA OF INSTITUITIONS WORKING TOWARDS A CURE FOR BCM. AT THE END OF 2016 WE SIGNED A CONTRACT WITH OMNI ATLANTA HOTEL IN ATLANTA, GA, THAT WILL HOST THE FIRST INTERNATIONAL MEETING OF FAMILIES AFFECTED BY BCM NEXT AUGUST 4-6TH 2017.
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IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0The Foundation receives contributions from Europe and
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt1no expenses are related to procuring those donations.
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt2Scientists will provide BCMFF one report after 6 months from the effective date and a final report at the end of the performance period. The reports will address the progress of the project, funds expended and also summarize any interactions with FDA/EMA, including any IND submission, related to the Sponsored Research. Both reports will be submitted to BCMFF Scientific Advisory Board in order to assess progress.
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IRS990ScheduleI/RecipientTable/USAddress/CityNm0PHILADELPHIA
IRS990ScheduleI/RecipientTable/USAddress/CityNm1GAINESVILLE
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0PA
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION IS ORGANIZED UNDER ITS BYLAWS TO HAVE MEMBERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE VOTING MEMBERS MAY APPOINT MEMBERS TO THE GOVERNING BODY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE BOARD REVIEWS AND MONITORS COMPLIANCE REGARDING CONFLICTS OF INTEREST AS IT RELATES TO THE FOUNDATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE MEMBERS REVIEW AND APPROVE THE FORM 990 BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE FOUNDATION PROVIDES COPIES OF POLICIES UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5DUES, SUBSCRIPTIONS & LICENSES
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6OFFICE EXPENSE
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Pt VI, Line 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Pt VI, Line 7a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Pt VI, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Pt VI, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Pt VI, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990EZ, Part I, Line 16
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Form 990EZ, Part I, Line 16
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IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
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IRS990/TotalContributionsAmt0244390
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IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt08828
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0268806
IRS990/TotalFunctionalExpensesGrp/TotalAmt0277634
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt01055
IRS990/TotalLiabilitiesEOYAmt08158
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IRS990/TotalProgramServiceExpensesAmt0268806
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0244390
IRS990/TotalVolunteersCnt06
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt075834
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IRS990/USAddress/AddressLine1Txt0PO BOX 7711
IRS990/USAddress/CityNm0JUPITER
IRS990/USAddress/StateAbbreviationCd0FL
IRS990/USAddress/ZIPCd033468
IRS990/VotingMembersGoverningBodyCnt01
IRS990/VotingMembersIndependentCnt01
IRS990/WebsiteAddressTxt0N/A
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02017-02-10 21:41:12Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0RENATA SARNO
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum04408646256
ReturnHeader/BusinessOfficerGrp/SignatureDt02017-04-21
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0BCM FAMILIES FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0BCMF
ReturnHeader/Filer/EIN0471327738
ReturnHeader/Filer/PhoneNum04408646256
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO BOX 7711
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ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId03714F9188D864BF130158D1B5DA99F77803018F0
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId03714F9188D864BF130158D1B5DA99F77803018F0
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt074.219.220.94
ReturnHeader/FilingSecurityInformation/IPDt02017-05-06
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0PD
ReturnHeader/FilingSecurityInformation/IPTm012:08:57
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Richlak Lawyer & Co
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt09140 Tyler Boulevard
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Mentor
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0OH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd044060
ReturnHeader/PreparerPersonGrp/PhoneNum04402554400
ReturnHeader/PreparerPersonGrp/PreparationDt02017-05-06
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0DALE E RICHLAK CPA
ReturnHeader/ReturnTs02017-05-06T12:09:11-07:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02016-01-01
ReturnHeader/TaxPeriodEndDt02016-12-31
ReturnHeader/TaxYr02016

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$49,693
Liabilities
$8,158
Net assets
$41,535
Revenue
$244,390
Expenses
$277,634
Net income
-$33,244
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.36$0.00$1.36$1.74$0.99$0.75
2024Detailed filing. Detailed filing data is available for this year.$1.14$0.54$0.61$1.76$1.05$0.71
2023Detailed filing. Detailed filing data is available for this year.$0.86$0.96$0.10$1.56$3.37$1.81
2022Detailed filing. Detailed filing data is available for this year.$1.86$0.15$1.71$1.70$0.58$1.12
2021Detailed filing. Detailed filing data is available for this year.$0.78$0.19$0.59$0.92$0.53$0.39
2020Detailed filing. Detailed filing data is available for this year.$0.38$0.19$0.19$0.47$0.33$0.14
2019Detailed filing. Detailed filing data is available for this year.$0.20$0.15$0.05$1.02$1.04$0.03
2018Detailed filing. Detailed filing data is available for this year.$0.33$0.25$0.07$0.68$0.72$0.04
2017Detailed filing. Detailed filing data is available for this year.$0.23$0.11$0.11$2.62$2.92$0.30
2016Detailed filing. Detailed filing data is available for this year.$0.50$0.08$0.42$2.44$2.78$0.33
2015Detailed filing. Detailed filing data is available for this year.$0.76$0.01$0.75$3.26$4.13$0.87
2014Detailed filing. Detailed filing data is available for this year.$1.61$1.61$1.98$0.36$1.61