Liabilities / Assets
33rd percentile
Tied with the lowest-debt nonprofits in its peer group.
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
33rd percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
99th percentile
Higher net margin than 99% of similar nonprofits.
Top Officer Pay
57th percentile
Higher top officer pay than 57% of similar nonprofits.
Top officer pay equals 1.2% of source-year revenue.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Balance Sheet
Assets
Up$806,967
Up $803,215 (+21408%) from 2014
Net Assets
$806,967
No earlier filing loaded for comparison.
Liabilities
Flat$0
Flat from 2014
Revenue And Expenses
Revenue
Up$803,670
Up $798,488 (+15409%) from 2014
Expenses
Up$19,040
Up $17,610 (+1231%) from 2014
Net Income
Up$784,630
Up $780,878 (+20812%) from 2014
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2024 to Dec 31, 2024
- Signed
- May 14, 2025
- Return Version
- 2024v5.0
- Gross Receipts
- $803,670
Mission and Program Overview
Mission
At heterotaxy connection, our mission is to create a world where individuals and families affected by heterotaxy find the support, education, and empowerment they need to live their best lives. We are dedicated to making a positive impact in the lives of those touched by this rare congenital condition.
Balance Sheet Detail
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Pledges and Grants Receivable | - | $700,000 | - |
| Savings and Temporary Cash Investments | $19,210 | $103,191 | ▲ $83,981 |
| Cash and Non-Interest-Bearing Accounts | $3,127 | $3,776 | ▲ $649 |
| Total Assets | $22,337 | $806,967 | ▲ $784,630 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | - | $700,000 | - |
| Net Assets Without Donor Restrictions | $22,337 | $106,967 | ▲ $84,630 |
| Total Net Assets Fund Balance | $22,337 | $806,967 | ▲ $784,630 |
| Total Liabilities and Net Assets / Fund Balance | $22,337 | $806,967 | ▲ $784,630 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Necia Sabin | President & | FT | $9,746 | $9,746 |
Board Members and Trustees
| Name | Title |
|---|---|
| Nick Sabin | Director |
| Monica Bloom | Marketing Di |
| Karli Richards | Secretary & |
| Rene Harrell | Treasurer |
| Alison Chandra | Vice Pres & |
Revenue and Support
Revenue Composition
- Contributions and Grants
- $802,924
- Program Service Revenue
- $0
- Investment Income
- $746
- Other Revenue
- $0
- All Other Contributions
- $802,924
- Change in Net Assets
- $784,630
Expenses and Functional Allocation
Major Expense Lines
| Line Item | Amount |
|---|---|
| Other Expenses | $19,040 |
| Total Fundraising Expense | $149 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
Functional Expense Allocation
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Management | - | $9,746 | - | $9,746 |
| Travel | - | $2,644 | - | $2,644 |
| Information Technology | - | $2,522 | - | $2,522 |
| Office Expenses | $1,137 | $832 | - | $1,969 |
| Conferences and Meetings | $1,290 | $416 | $125 | $1,831 |
| Advertising | - | $250 | $24 | $274 |
| Fees for Services Other | - | $54 | - | $54 |
| Total Functional Expenses | $2,427 | $16,464 | $149 | $19,040 |
Fundraising, Events, and Gaming
- Fundraising activities
- No
- Gaming activities
- No
- Professional fundraiser used
- No
Fundraising and Gaming Totals
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
Political and Lobbying Activity
- Political campaign activity
- No
- Lobbying activity
- No
- Subject to proxy tax
- No
Governance and Compliance
Governance Checklist
- Compiled or reviewed by an accountant
- No
- Annual disclosure for covered persons
- Yes
- Business relationship with 35% controlled entity
- No
- Business relationship with family members
- No
- Business relationship with organization members
- No
- Material changes to governing documents
- No
- Compensation from other sources disclosed
- No
- CEO compensation reviewed
- No
- Other officer compensation reviewed
- No
- Conflict-of-interest policy
- Yes
- Audited financial statements prepared
- No
- Key decisions subject to board approval
- No
- Management duties delegated
- No
Governance Explanations
Form 990, Page 6, Part VI, Line 2
“Necia sabin nick sabin president director spouses”
Form 990, Page 6, Part VI, Line 11B
“The 990 will be discussed and reviewed by the board prior to approval.”
Form 990, Page 6, Part VI, Line 19
“Governing documents are available upon request.”
Filing and Contact Details
Filer
- Filer Name
- Heterotaxy Connection
- EIN
- 46-5498856
- Phone
- 8018995153
- Address
- 2882 E RUBY VALLEY DRIVE, EAGLE MOUNTAIN, UT 84005
Signing Officer
- Name
- Necia Sabin
- Title
- President & Exec Director
- Phone
- 8018995153
- Signed
- 2025-05-14
Organization Details
- Principal Officer
- Necia Sabin
- Formed
- 2014
- Legal Domicile
- Ut
- Voting Board Members
- 6
- Independent Board Members
- 5
- Employees
- 0
- Volunteers
- 8
Preparer
- Firm
- Mansour Partners LLC
- Address
- 321 MAIN STREET, WOODBRIDGE, NJ 07095
- Preparer
- Haley Johnson Ea
- Phone
- 2013775965
Supplemental Narrative
Additional Explanations
FORM 990 - ORGANIZATION'S MISSION
“At heterotaxy connection, our mission is to create a world where individuals and families affected by heterotaxy find the support, education, and empowerment they need to live their best lives. We are dedicated to making a positive impact in the lives of those touched by this rare congenital condition. Supporting families and individuals: we are committed to providing unwavering support and a nurturing community for families and individuals dealing with heterotaxy. Our goal is to be a trusted resource, offering emotional and practical support throughout their journey. We believe that no one should face this challenge alone, and we strive to create a strong, compassionate network that fosters understanding, connection, and resilience. Educating through medical conferences with experts: heterotaxy connection is dedicated to promoting awareness and understanding of heterotaxy among the medical community and the general public. We organize and participate in medical conferences, bringing together world-renowned experts, researchers, and healthcare professionals to share knowledge, advancements, and best practices. By facilitating these educational opportunities, we aim to enhance the quality of care and support available to those affected by heterotaxy. Empowering those with the condition: we believe that individuals with heterotaxy can lead fulfilling lives and reach their full potential. Heterotaxy connection is committed to empowering those with the condition, providing resources and guidance to help them overcome challenges and achieve their goals. Through advocacy, mentorship, and a strong community, we inspire hope and encourage every individual to embrace their unique journey, fostering a sense of pride and confidence. By uniting families, healthcare professionals, and individuals affected by heterotaxy, heterotaxy connection strives to build a world where every heart with heterotaxy beats with strength, resilience, and a sense of belonging. Together, we work towards a future where the impact of heterotaxy is minimized, and where everyone can live their best life.”
Form 990, Page 2, Part III, Line 2
“The organization began hosting scientific conferences to educate clinicians on heterotaxy.”
Raw XML Appendix289 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/Desc | 0 | HETEROTAXY CONNECTION HOSTED THE FIRST EVER MULTIDISCIPLINARY SCIENTIFIC CONFERENCE DEDICATED TO THE DIAGNOSIS AND TREATMENT OF HETEROTAXY. THE CONFERENCE WAS HELD IN CONJUNCTION WITH HRC3, WAS RECORDED, AND IS AVAILABLE TO SHARE WITH MEDICAL TEAMS WORLDWIDE. THE FIRST CONFERENCE WAS PRESENTED AT NO COST TO ATTENDEES AND FEATURED 17 FACULTY MEMBERS/PHYSICIANS, 6 PHYSICIANS/MEDICAL PROFESSIONALS, AND 3 PARENT/FAMILY PRESENTERS. |
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| IRS990/ForeignFinancialAccountInd | 0 | false |
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| IRS990/MissionDesc | 0 | AT HETEROTAXY CONNECTION, OUR MISSION IS TO CREATE A WORLD WHERE INDIVIDUALS AND FAMILIES AFFECTED BY HETEROTAXY FIND THE SUPPORT, EDUCATION, AND EMPOWERMENT THEY NEED TO LIVE THEIR BEST LIVES. WE ARE DEDICATED TO MAKING A POSITIVE IMPACT IN THE LIVES OF THOSE TOUCHED BY THIS RARE CONGENITAL CONDITION. SUPPORTING FAMILIES AND INDIVIDUALS: WE ARE COMMITTED TO PROVIDING UNWAVERING SUPPORT AND A NURTURING COMMUNITY FOR FAMILIES AND INDIVIDUALS DEALING WITH HETEROTAXY. OUR GOAL IS TO BE A TRUSTED RESOURCE, OFFERING EMOTIONAL AND PRACTICAL SUPPORT THROUGHOUT THEIR JOURNEY. WE BELIEVE THAT NO ONE SHOULD FACE THIS CHALLENGE ALONE, AND WE STRIVE TO CREATE A STRONG, COMPASSIONATE NETWORK THAT FOSTERS UNDERSTANDING, CONNECTION, AND RESILIENCE. EDUCATING THROUGH MEDICAL CONFERENCES WITH EXPERTS: HETEROTAXY CONNECTION IS DEDICATED TO PROMOTING AWARENESS AND UNDERSTANDING OF HETEROTAXY AMONG THE MEDICAL COMMUNITY AND THE GENERAL PUBLIC. WE ORGANIZE AND PARTICIPATE IN MEDICAL CONFERENCES, BRINGING T |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | AT HETEROTAXY CONNECTION, OUR MISSION IS TO CREATE A WORLD WHERE INDIVIDUALS AND FAMILIES AFFECTED BY HETEROTAXY FIND THE SUPPORT, EDUCATION, AND EMPOWERMENT THEY NEED TO LIVE THEIR BEST LIVES. WE ARE DEDICATED TO MAKING A POSITIVE IMPACT IN THE LIVES OF THOSE TOUCHED BY THIS RARE CONGENITAL CONDITION. SUPPORTING FAMILIES AND INDIVIDUALS: WE ARE COMMITTED TO PROVIDING UNWAVERING SUPPORT AND A NURTURING COMMUNITY FOR FAMILIES AND INDIVIDUALS DEALING WITH HETEROTAXY. OUR GOAL IS TO BE A TRUSTED RESOURCE, OFFERING EMOTIONAL AND PRACTICAL SUPPORT THROUGHOUT THEIR JOURNEY. WE BELIEVE THAT NO ONE SHOULD FACE THIS CHALLENGE ALONE, AND WE STRIVE TO CREATE A STRONG, COMPASSIONATE NETWORK THAT FOSTERS UNDERSTANDING, CONNECTION, AND RESILIENCE. EDUCATING THROUGH MEDICAL CONFERENCES WITH EXPERTS: HETEROTAXY CONNECTION IS DEDICATED TO PROMOTING AWARENESS AND UNDERSTANDING OF HETEROTAXY AMONG THE MEDICAL COMMUNITY AND THE GENERAL PUBLIC. WE ORGANIZE AND PARTICIPATE IN MEDICAL CONFERENCES, BRINGING TOGETHER WORLD-RENOWNED EXPERTS, RESEARCHERS, AND HEALTHCARE PROFESSIONALS TO SHARE KNOWLEDGE, ADVANCEMENTS, AND BEST PRACTICES. BY FACILITATING THESE EDUCATIONAL OPPORTUNITIES, WE AIM TO ENHANCE THE QUALITY OF CARE AND SUPPORT AVAILABLE TO THOSE AFFECTED BY HETEROTAXY. EMPOWERING THOSE WITH THE CONDITION: WE BELIEVE THAT INDIVIDUALS WITH HETEROTAXY CAN LEAD FULFILLING LIVES AND REACH THEIR FULL POTENTIAL. HETEROTAXY CONNECTION IS COMMITTED TO EMPOWERING THOSE WITH THE CONDITION, PROVIDING RESOURCES AND GUIDANCE TO HELP THEM OVERCOME CHALLENGES AND ACHIEVE THEIR GOALS. THROUGH ADVOCACY, MENTORSHIP, AND A STRONG COMMUNITY, WE INSPIRE HOPE AND ENCOURAGE EVERY INDIVIDUAL TO EMBRACE THEIR UNIQUE JOURNEY, FOSTERING A SENSE OF PRIDE AND CONFIDENCE. BY UNITING FAMILIES, HEALTHCARE PROFESSIONALS, AND INDIVIDUALS AFFECTED BY HETEROTAXY, HETEROTAXY CONNECTION STRIVES TO BUILD A WORLD WHERE EVERY HEART WITH HETEROTAXY BEATS WITH STRENGTH, RESILIENCE, AND A SENSE OF BELONGING. TOGETHER, WE WORK TOWARDS A FUTURE WHERE THE IMPACT OF HETEROTAXY IS MINIMIZED, AND WHERE EVERYONE CAN LIVE THEIR BEST LIFE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE ORGANIZATION BEGAN HOSTING SCIENTIFIC CONFERENCES TO EDUCATE CLINICIANS ON HETEROTAXY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | NECIA SABIN NICK SABIN PRESIDENT DIRECTOR SPOUSES |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE 990 WILL BE DISCUSSED AND REVIEWED BY THE BOARD PRIOR TO APPROVAL. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990 - ORGANIZATION'S MISSION |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 2, PART III, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 19 |
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| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
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| IRS990/TotalAssetsEOYAmt | 0 | 806967 |
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| IRS990/TotalAssetsGrp/EOYAmt | 0 | 806967 |
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| IRS990/TotalEmployeeCnt | 0 | 0 |
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| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 16464 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 2427 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 19040 |
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| IRS990/TotalLiabilitiesEOYAmt | 0 | 0 |
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| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 0 |
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| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 806967 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 2427 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 9746 |
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| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 806967 |
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| IRS990/TravelGrp/TotalAmt | 0 | 2644 |
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| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 2882 E RUBY VALLEY DR |
| IRS990/USAddress/CityNm | 0 | EAGLE MOUNTAIN |
| IRS990/USAddress/StateAbbreviationCd | 0 | UT |
| IRS990/USAddress/ZIPCd | 0 | 84005 |
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| IRS990/VotingMembersIndependentCnt | 0 | 5 |
| IRS990/WebsiteAddressTxt | 0 | HTTPS://WWW.HETEROTAXY.ORG |
| IRS990/WhistleblowerPolicyInd | 0 | true |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | NECIA SABIN |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | PRESIDENT & EXEC DIR |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 8018995153 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-05-14 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | HETEROTAXY CONNECTION |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | HETE |
| ReturnHeader/Filer/EIN | 0 | 465498856 |
| ReturnHeader/Filer/PhoneNum | 0 | 8018995153 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 2882 E RUBY VALLEY DRIVE |
| ReturnHeader/Filer/USAddress/CityNm | 0 | EAGLE MOUNTAIN |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | UT |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 84005 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | true |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 208159668 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | MANSOUR PARTNERS LLC |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 321 MAIN STREET |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | WOODBRIDGE |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | NJ |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 07095 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 2013775965 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2025-05-14 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | HALEY JOHNSON EA |
| ReturnHeader/ReturnTs | 0 | 2025-05-14T14:05:05-04:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
- Assets
- $806,967
- Liabilities
- $0
- Net assets
- $806,967
- Revenue
- $803,670
- Expenses
- $19,040
- Net income
- $784,630