Cure Sanfilippo Foundation Elizas Story

“Glenn ONeill and Cara ONeill MD FAAP are husband and wife and only get one vote together.”

“All Board Members will review the Form 990.”

“The organization's governing documents, policies, and financial statements are available upon request.”

“Nationwide Children's Hospital(EIN) is 31-1036370Purpose of Grant:This 2 year grant funds two positions at Nationwide Children's Hospital. The first is the Initial funding for the Genetics Clinical Research Fellow to work on critical needed steps for the MPSIIIA and MPSIIIB clinical trial projects. The second is the Initial funding for a Program Manager to assist in the operationalization of MPSIIIA and MPSIIIB clinical trial projects.-----------------------------------------------------------Sainte Justine University HospitalCanada Registration #: 107491847RR0001Purpose of Grant: This grant investigates potential chaperone therapies for MPSIIIA and MPSIIIC.------------------------------------------------------------The Regents of the University of California(EIN) is 94-3067788Purpose of Grant:This grant investigates the development of a novel way (intranasal) to deliver enzyme replacement and optimize its delivery into the central nervous system, in MPSIIIA pre-clinical studies.-----------------------------------------------------------”

“It is noted that the Foundation's share of ABEONA LLCs net operating results in 2015, as represented on the final K-1 was a net loss of ($120,540). This net loss is currently reflected as a decrease in gross receipts on page 1 of the Foundations 2015 Form 990. The presentation of including this net loss from a K-1 with gross receipts, as dictated by the Form 990 instructions, serves to decrease the Foundation's actual gross receipts earned in the 2015 year from $582,588 to $462,048 on Page 1.”

“The Foundation made an Investment in ABEONA Therapeutics LLC (ABEONA LLC) of $950,000 in 2014, and those funds contractually were used to support ABEONA LLCs Toxicology studies and Drug Production in preparation for a Sanfilippo Syndrome clinical trial.”

“The Foundation made an Investment in ABEONA Therapeutics LLC (ABEONA LLC) of $950,000 in 2014. ABEONA LLC merged with a publicly traded company in May of 2015 and the Foundation thus received a final K-1 representing their investment in ABEONA LLC as liquidated. The Foundation received 488,624 shares of the publicly traded securities in the new corporation, ABEONA Therapeutics, Inc. (ABEONA Inc.) The Foundation expects to receive an additional 55,291 of hold back shares in ABEONA Inc. in the 2016 year. Any future return from selling shares will go directly and only to the mission of Cure Sanfilippo Foundation.”