Liabilities / Assets
4th percentile
Tied with the lowest-debt nonprofits in its peer group.
990 • Fiscal year 2017 • EIN 46-4322131
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
4th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
4th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
98th percentile
Higher net margin than 98% of similar nonprofits.
Top Officer Pay
33rd percentile
Higher top officer pay than 33% of similar nonprofits.
Top officer pay equals 2.9% of source-year revenue.
Asset Growth
98th percentile
Faster asset growth than 98% of similar nonprofits.
Revenue Growth
99th percentile
Faster revenue growth than 99% of similar nonprofits.
Assets
Up$11,442,880
Up $6,931,426 (+154%) from 2016
Net Assets
Up$11,442,880
Up $6,931,426 (+154%) from 2016
Liabilities
Flat$0
Flat from 2016
Revenue
Up$4,433,546
Up $3,831,786 (+637%) from 2016
Expenses
Up$599,120
Up $303,958 (+103%) from 2016
Net Income
Up$3,834,426
Up $3,527,828 (+1151%) from 2016
SEE ATTACHED STATEMENT
To advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo Syndrome
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $2,707,091 | $7,025,621 | ▲ $4,318,530 |
| Savings and Temporary Cash Investments | - | $3,212,361 | - |
| Cash and Non-Interest-Bearing Accounts | $1,804,363 | $1,204,896 | ▼ $599,467 |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Prepaid Expenses and Deferred Charges | - | $0 | - |
| Total Assets | $4,511,454 | $11,442,880 | ▲ $6,931,426 |
| Other Assets Total | - | $2 | - |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $4,511,454 | $11,442,880 | ▲ $6,931,426 |
| Total Net Assets Fund Balance | $4,511,454 | $11,442,880 | ▲ $6,931,426 |
| Total Liabilities and Net Assets / Fund Balance | $4,511,454 | $11,442,880 | ▲ $6,931,426 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Glenn O'Neill | Executive Director | FT | $122,000 | $8,000 | $130,000 |
| Name | Title |
|---|---|
| Faith McAngus | Director |
| Katie Walton | Director |
| Rachael Best | Director |
| Valerie Byers | Director |
| Cara O'Neill | Scientific Director |
| Shelby Leonardi | Secretary |
| Daniel Fraley | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 4 | $70,324 | Fair Market Value (FMV) |
| Total Noncash Contributions | 4 | $70,324 | - |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $312,878 |
| Salaries, Compensation, and Employee Benefits | $167,925 |
| Other Expenses | $92,202 |
| Total Fundraising Expense | $87,280 |
| Professional Fundraising Fees | $26,115 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $170,452 | - | - | $170,452 |
| Foreign Grants | $142,426 | - | - | $142,426 |
| Current Officers, Directors, Trustees, and Key Employees | $75,000 | $15,000 | $40,000 | $130,000 |
| Fees for Services Professional Fundraising | - | - | $26,115 | $26,115 |
| Advertising | $18,000 | - | $7,732 | $25,732 |
| Other Employee Benefits | $14,694 | $2,939 | $7,837 | $25,470 |
| Travel | $15,000 | $3,780 | - | $18,780 |
| Fees for Services Legal | $12,669 | - | - | $12,669 |
| Payroll Taxes | - | $9,771 | - | $9,771 |
| Information Technology | $5,847 | - | - | $5,847 |
| Insurance | - | $3,005 | - | $3,005 |
| Pension Plan Contributions | $1,548 | $310 | $826 | $2,684 |
| All Other Expenses | - | $1,270 | - | $1,270 |
| Conferences and Meetings | $600 | $624 | - | $1,224 |
| Fees for Services Management | - | $901 | - | $901 |
| Other Expenses | $694 | $1,752 | $4,770 | $694 |
| Total Functional Expenses | $472,488 | $39,352 | $87,280 | $599,120 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Nationwide Childrens Hospita | Columbus, OH | - | Research Preexisting AAV Antibodies | $97,880 |
| University of California San | La Jolla, CA | - | Intranasal Delivery of Sulfamidase | $32,595 |
| Nationwide Childrens Hospita | Columbus, OH | - | Intravenuous AAV9 Gene Therapy | $18,920 |
| University of Florida | Gainesville, FL | - | Stem Cell Therapy for Sanfilippo | $17,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $137,700 |
| Professional Fundraising Fees | $26,115 |
| Fundraising Direct Expenses | $25,569 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Golf / Auction Event | $57,505 | $46,745 | $1,356 | $45,389 |
| Dinner/Auction 2 | $37,031 | $29,331 | - | $29,331 |
| Total Events | $168,410 | $137,700 | $25,569 | $112,131 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Glenn ONeill and Cara ONeill MD FAAP are husband and wife and only get one vote together.”
“All Board Members have reviewed the Form 990.”
“Conflicts of interest are reviewed during Board Meetings”
“The Employment Committee was established to determine compensation for the Executive Director. The Committee reviewed multiple 990s to establish reasonable compensation for the Executive Director.The Executive Director, Glenn O'Neill, reports to the Board's Employment Committee. This Employment Committee includes Dan Fraley, Shelby Leonardi, Valerie Byers, Faith McAngus, Rachael Best, and Katie Walton. The Employment committee is responsible for all hiring decisions including compensation, benefits, job performance, etc.”
“The organization's governing documents, policies, and financial statements are available upon request. The Form 990 is uploaded on the Guidestar website.”
“As of the time of filing this 990, Cure Sanfilippo Foundation is undergoing an Audit for Calendar Year 2017”
“The University of California, San Diego, Department of Cellular and Molecular Medicine, a nonprofit organization at 9500 Gilman Drive, La Jolla CA 92039-0687 received $32,595.00 in 2017 from Cure Sanfilippo Foundation, for an extension study on INTRANASAL DELIVERY OF SULFAMIDASE”
“The Foundation made an Investment in ABEONA Therapeutics LLC (ABEONA LLC) of $950,000 in 2014 to fund drug production & toxicology studies for a Gene Therapy Clinical Trial for Sanfilippo Syndrome, and in return received Class A Units. ABEONA LLC merged with a publicly traded company in May of 2015 and for those units, the Foundation received total ABEO stock shares of 542,915. These shares became unrestricted in October 2017. In November 2017, the Foundation sold 200,000 ABEO shares for $3,266,296.57.”
“University of Florida, a nonprofit organization at 1600 SW Archer Rd, Gainesville, Florida, 32610, received $17,000.00 in 2017 from Cure Sanfilippo Foundation, for NEURAL AND MESENCHYMAL STEM CELL MEDIATED GENE THERAPY FOR SANFILIPPO SYNDROME TYPE B”
“Fondazione Telethon, a nonprofit organization at Via Varese 16/B, Rome, Italy 00185, received $60,000.00 in 2017 from Cure Sanfilippo Foundation, for REPURPOSING OF FDA APPROVED DRUGS FOR THE TREATMENT OF MUCOPOLYSACCHARIDOSES (MPSS)”
“The Research Institute at Nationwide Childrens Hospital, at 700 Childrens Drive, Columbus, OH 43205 received $97.879.50 in 2017 from Cure Sanfilippo Foundation, for RESEARCH STRATEGY FOR PRE-EXISTING AAV (ADENO-ASSOCIATED VIRUS) ANTIBODIES”
“The Hospital for Sick Children, a nonprofit at 555 University Avenue, Toronto, Ontario, M5G 1X8, Canada received $82,426.00 in 2017 from Cure Sanfilippo Foundation, for SUBSTRATE REDUCTION THERAPY FOR SIX MUCOPOLYSACCHARIDOSES”
“The Research Institute at Nationwide Childrens Hospital, a nonprofit organization at 700 Childrens Drive, Columbus, OH 43205 received $18,919.75 in 2017 from Cure Sanfilippo Foundation, for SUPPORT FOR INTRAVENUOUS AAV9 GENE THERAPY FOR MPSIIIA and MPSIIIB”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo Syndrome |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 7732 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 18000 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 25732 |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 1347002 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1270 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 1270 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | false |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Glenn O'Neill |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8034130525 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 5 Calendar Court |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Columbia |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | SC |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 29206 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1804363 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1204896 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 40000 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 15000 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 75000 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 130000 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 624 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 600 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 1224 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 30710 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1377712 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 312878 |
| IRS990/CYInvestmentIncomeAmt | 0 | 2943703 |
| IRS990/CYOtherExpensesAmt | 0 | 92202 |
| IRS990/CYOtherRevenueAmt | 0 | 112131 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 3834426 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 167925 |
| IRS990/CYTotalExpensesAmt | 0 | 599120 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 87280 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 26115 |
| IRS990/CYTotalRevenueAmt | 0 | 4433546 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | true |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | To advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo Syndrome |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 472488 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 12669 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 12669 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 901 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 901 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesProfFundraising/FundraisingAmt | 0 | 26115 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 26115 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 142426 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 142426 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 30.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 8000 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Rachael Best |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Faith McAngus |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Valerie Byers |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Katie Walton |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Glenn O'Neill |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Cara O'Neill |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Daniel Fraley |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Shelby Leonardi |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 122000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Executive Dir. |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Scientific Dir |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Secretary |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | false |
| IRS990/FormationYr | 0 | 2013 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 30710 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 25569 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 137700 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 2916297 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 170452 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 170452 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 3266297 |
| IRS990/GrossReceiptsAmt | 0 | 4809115 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 7 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 5847 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 5847 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 3005 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 3005 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 27406 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 27406 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 2707091 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 7025621 |
| IRS990/InvestTaxExemptBondsInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | SC |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 350000 |
| IRS990/LicensedMoreThanOneStateInd | 0 | false |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo Syndrome |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 4511454 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 11442880 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 2916297 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 2916297 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 112131 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 3097000 |
| IRS990/NoncashContributionsAmt | 0 | 70324 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/TotalAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OnBehalfOfIssuerInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OrgFiledInLieuOfForm1041Ind | 0 | false |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 2 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 7837 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2939 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 14694 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 25470 |
| IRS990/OtherExpensesGrp/Desc | 0 | Printing and Publications |
| IRS990/OtherExpensesGrp/Desc | 1 | Web Service |
| IRS990/OtherExpensesGrp/Desc | 2 | Bank Fees |
| IRS990/OtherExpensesGrp/Desc | 3 | Membership Dues |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 4770 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1752 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 6000 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 9558 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 694 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 10770 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 9558 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 1752 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 694 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 0 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 9771 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 9771 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 826 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 310 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 1548 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 2684 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | Glenn O'Neill |
| IRS990/ProfessionalFundraisingInd | 0 | true |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 538854 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 152638 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1521 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 84487 |
| IRS990/PYOtherRevenueAmt | 0 | 61385 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 306598 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 49854 |
| IRS990/PYTotalExpensesAmt | 0 | 295162 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 8183 |
| IRS990/PYTotalRevenueAmt | 0 | 601760 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 3834426 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 3212361 |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1515412 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 636440 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 582508 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2379488 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 42449 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 5156297 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 2943703 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1521 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | -120540 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | -33660 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 2791024 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 791 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 80 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 871 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.00000 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 5156297 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1515412 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 636440 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 582508 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2379488 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 42449 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 5156297 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 7948192 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 0 |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 82426 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 1 | 60000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | Check |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 1 | Wire Trans |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | See Sch O |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 1 | See Sch O |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | Ontario, Canada |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 1 | Rome, Italy |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc | 0 | FMV |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc | 1 | FMV |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 2 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | true |
| IRS990ScheduleG/AgrmtProfFundraisingActyInd | 0 | true |
| IRS990ScheduleG/EmailSolicitationsInd | 0 | X |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 30710 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 10760 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 7700 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 12250 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 25569 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | Golf / Auction Event |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | Dinner/Auction 2 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 5336 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageOtherEventsAmt | 0 | 1375 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 6711 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 57505 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 37031 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 73874 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 168410 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 46745 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 29331 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 61624 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 137700 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 112131 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt | 0 | 690 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt | 0 | 690 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 3299 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 4655 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 1356 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 2 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 3047 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt | 0 | 9031 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt | 0 | 1435 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 13513 |
| IRS990ScheduleG/InPersonSolicitationsInd | 0 | X |
| IRS990ScheduleG/LicensedStatesCd | 0 | SC |
| IRS990ScheduleG/LicensedStatesCd | 1 | AL |
| IRS990ScheduleG/LicensedStatesCd | 2 | AK |
| IRS990ScheduleG/LicensedStatesCd | 3 | AR |
| IRS990ScheduleG/LicensedStatesCd | 4 | CA |
| IRS990ScheduleG/LicensedStatesCd | 5 | CO |
| IRS990ScheduleG/LicensedStatesCd | 6 | CT |
| IRS990ScheduleG/LicensedStatesCd | 7 | FL |
| IRS990ScheduleG/LicensedStatesCd | 8 | KS |
| IRS990ScheduleG/LicensedStatesCd | 9 | KY |
| IRS990ScheduleG/LicensedStatesCd | 10 | ME |
| IRS990ScheduleG/LicensedStatesCd | 11 | MD |
| IRS990ScheduleG/LicensedStatesCd | 12 | MA |
| IRS990ScheduleG/LicensedStatesCd | 13 | MO |
| IRS990ScheduleG/LicensedStatesCd | 14 | NV |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.