Civic Intelligence

Cure Sanfilippo Foundation Elizas Story

990 • Fiscal year 2014 • EIN 46-4322131

Jan 01, 2014 to Dec 31, 2014 • Filed on Aug 10, 2015

Organization Profilewww.curesff.org

View Organization Page

PO Box 6901Columbia, SC 29260

(803) 413-0525

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

13th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

13th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

98th percentile

92%

Higher net margin than 98% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

34th percentile

$0

Higher top officer pay than 34% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

100th percentile

5490%

Faster asset growth than 100% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

100th percentile

5432%

Faster revenue growth than 100% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets13th percentile

Assets

Up

$2,208,202

Up $2,168,702 (+5490%) from 2013

Net Assets

Up

$2,208,202

Up $2,168,702 (+5490%) from 2013

Liabilities

Flat

$0

Flat from 2013

Revenue And Expenses
Liabilities / Revenue13th percentileNet Margin98th percentile

Revenue

Up

$2,348,262

Up $2,305,813 (+5432%) from 2013

Expenses

Up

$179,860

Up $176,911 (+5999%) from 2013

Net Income

Up

$2,168,402

Up $2,128,902 (+5390%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth100th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2013: $39,500Liabilities 2013: $0Net Assets 2013: $39,5002013Assets 2014: $2,208,202Liabilities 2014: $0Net Assets 2014: $2,208,2022014Assets 2015: $3,213,561Liabilities 2015: $0Net Assets 2015: $3,213,5612015Assets 2016: $4,511,454Liabilities 2016: $0Net Assets 2016: $4,511,4542016Assets 2017: $11,442,880Liabilities 2017: $0Net Assets 2017: $11,442,8802017Assets 2018: $10,817,840Liabilities 2018: $0Net Assets 2018: $10,817,8402018Assets 2019: $10,749,584Liabilities 2019: $27,553Net Assets 2019: $10,722,0312019Assets 2020: $10,163,332Liabilities 2020: $63,451Net Assets 2020: $10,099,8812020Assets 2021: $10,337,575Liabilities 2021: $0Net Assets 2021: $10,337,5752021Assets 2022: $9,625,770Liabilities 2022: $21,192Net Assets 2022: $9,604,5782022Assets 2023: $11,198,610Liabilities 2023: $24,536Net Assets 2023: $11,174,0742023Assets 2024: $13,871,255Liabilities 2024: $135,072Net Assets 2024: $13,736,1832024

Highlighted filing

2014

Assets$2,208,202
Liabilities$0
Net Assets$2,208,202
Open 2014 Filing

Operations Trend

Revenue Growth100th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2013: $42,449Expenses 2013: $2,949Net Income 2013: $39,5002013Revenue 2014: $2,348,262Expenses 2014: $179,860Net Income 2014: $2,168,4022014Revenue 2015: $438,943Expenses 2015: $339,313Net Income 2015: $99,6302015Revenue 2016: $601,760Expenses 2016: $295,162Net Income 2016: $306,5982016Revenue 2017: $4,433,546Expenses 2017: $599,120Net Income 2017: $3,834,4262017Revenue 2018: $2,058,979Expenses 2018: $1,153,410Net Income 2018: $905,5692018Revenue 2019: $1,345,798Expenses 2019: $1,263,898Net Income 2019: $81,9002019Revenue 2020: $2,083,251Expenses 2020: $3,140,290Net Income 2020: -$1,057,0392020Revenue 2021: $2,229,880Expenses 2021: $2,586,338Net Income 2021: -$356,4582021Revenue 2022: $2,707,445Expenses 2022: $2,287,097Net Income 2022: $420,3482022Revenue 2023: $2,106,392Expenses 2023: $1,292,685Net Income 2023: $813,7072023Revenue 2024: $2,781,149Expenses 2024: $1,572,959Net Income 2024: $1,208,1902024

Highlighted filing

2014

Revenue$2,348,262
Expenses$179,860
Net Income$2,168,402
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Aug 10, 2015
Return Version
2014v5.0
Gross Receipts
$2,380,305
Mission and Program Overview

Mission

SEE ATTACHED STATEMENT

To advocate for and fund research directed towards a cure and treatment options for patients with Sanfilippo Syndrome

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$39,800$1,258,202▲ $1,218,402
Investments Program Related-$950,000-
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$39,800$2,208,202▲ $2,168,402
Other Assets Total-$0-
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$39,800$2,208,202▲ $2,168,402
Total Net Assets Fund Balance$39,800$2,208,202▲ $2,168,402
Total Liabilities and Net Assets / Fund Balance$39,800$2,208,202▲ $2,168,402
Compensation and Service Providers
Top Officer Pay34th percentile

Board Members and Trustees

NameTitle
Cara O'NeillDirector
Daniel FraleyDirector
Faith McAngusDirector
Glenn O'NeillDirector
Katie WaltonDirector
Rachael BestDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$2,330,092
Program Service Revenue
$0
Investment Income
$817
Other Revenue
$17,353
All Other Contributions
$2,230,930
Change in Net Assets
$2,168,402
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Total Fundraising Expense$161,543
Other Expenses$93,791
Professional Fundraising Fees$86,069
Grants and Similar Amounts Paid$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Professional Fundraising--$86,069$86,069
Other Expenses$1,634$413$3,197$3,610
All Other Expenses$1,799$837$547$3,183
Advertising--$1,500$1,500
Total Functional Expenses$15,433$2,884$161,543$179,860
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$86,069
Fundraising Gross Income$49,396
Fundraising Direct Expenses$32,043

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Dinner/Auction$50,180$19,754$1,787$17,967
Dinner/Auction$30,672$17,042-$17,042
Total Events$148,558$49,396$32,043$17,353
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
No
Audit committee
Yes
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et

“Glenn ONeill and Cara ONeill MD FAAP are husband and wife and only get one vote together.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“All Board Members will review the Form 990.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“The organization's governing documents, policies, and financial statements are available upon request.”

Filing and Contact Details

Filer

Filer Name
Cure Sanfilippo Foundation
EIN
46-4322131
Phone
8034130525
Address
PO Box 6901, Columbia, SC 29260

Signing Officer

Name
Glenn O'Neill
Title
Director
Signed
2015-08-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Glenn O'Neill
Formed
2013
Legal Domicile
Sc
Voting Board Members
5
Independent Board Members
5
Employees
0

Preparer

Firm
The Hobbs Group PA
Address
1704 Laurel Street, Columbia, SC 29201
Preparer
Will Stevens CPA
Phone
8037990555
Supplemental Narrative

Additional Explanations

Investments - Program Related

“The organization invested $950,000 in Abeona. This amount is contracually used for Drug Production and Toxicology studies for the Sanfilippo Syndrome gene therapy clinical trial.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleG/FundraiserActivityInfoGrp/ActivityTxt0Funding Website
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IRS990ScheduleG/FundraiserActivityInfoGrp/GrossReceiptsAmt01721380
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IRS990ScheduleG/FundraiserActivityInfoGrp/OrganizationBusinessName/BusinessNameLine1Txt0GoFundMe
IRS990ScheduleG/FundraiserActivityInfoGrp/RetainedByContractorAmt086069
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/AddressLine1Txt01010 Second Ave
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/CityNm0San Diego
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/StateAbbreviationCd0CA
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/ZIPCd092101
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt099162
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IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt013630
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt055106
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IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentOtherEventsAmt01500
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Glenn ONeill and Cara ONeill MD FAAP are husband and wife and only get one vote together.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1All Board Members will review the Form 990.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The organization's governing documents, policies, and financial statements are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The organization invested $950,000 in Abeona. This amount is contracually used for Drug Production and Toxicology studies for the Sanfilippo Syndrome gene therapy clinical trial.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Line 11b: Form 990 Review Process
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Line 19: Other Organization Documents Publicly Available
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Investments - Program Related
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IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
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IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0PO Box 6901
IRS990/USAddress/CityNm0Columbia
IRS990/USAddress/StateAbbreviationCd0SC
IRS990/USAddress/ZIPCd029260
IRS990/VotingMembersGoverningBodyCnt05
IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0www.curesff.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02016-04-25 22:37:26Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,208,202
Liabilities
$0
Net assets
$2,208,202
Revenue
$2,348,262
Expenses
$179,860
Net income
$2,168,402
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$13.9$0.14$13.7$2.78$1.57$1.21
2023Detailed filing. Detailed filing data is available for this year.$11.2$0.02$11.2$2.11$1.29$0.81
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.63$0.02$9.60$2.71$2.29$0.42
2021Detailed filing. Detailed filing data is available for this year.$10.3$0.00$10.3$2.23$2.59$0.36
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.2$0.06$10.1$2.08$3.14$1.06
2019Detailed filing. Detailed filing data is available for this year.$10.7$0.03$10.7$1.35$1.26$0.08
2018Detailed filing. Detailed filing data is available for this year.$10.8$0.00$10.8$2.06$1.15$0.91
2017Detailed filing. Detailed filing data is available for this year.$11.4$0.00$11.4$4.43$0.60$3.83
2016Summary only. Only limited summary data is available for this year.$4.51$0.00$4.51$0.60$0.30$0.31
2015Detailed filing. Detailed filing data is available for this year.$3.21$0.00$3.21$0.44$0.34$0.10
2014Detailed filing. Detailed filing data is available for this year.$2.21$0.00$2.21$2.35$0.18$2.17
2013Detailed filing. Detailed filing data is available for this year.$0.04$0.00$0.04$0.04$0.00$0.04