Civic Intelligence

Usher 1F Collaborative Inc

EIN 46-4309387 • 501(c)3 • Newtonville, MA

View Organization Page

Profile

To fund medical research to find an effective treatment to save or restore the vision of those affected with Usher Syndrome Type 1F.

321 Walnut Street STE 228Newtonville, MA 02460

www.usher1f.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

46th percentile

0.01x

Higher debt load relative to assets than 46% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2023

Liabilities / Revenue

50th percentile

0.02x

Higher debt load relative to revenue than 50% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2023

Net Margin

8th percentile

-45%

Higher net margin than 8% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2023

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

7th percentile

-38%

Faster asset growth than 7% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2023

Revenue Growth

4th percentile

-59%

Faster revenue growth than 4% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets46th percentile

Assets

Down

$691,312

Down $90,237 (-12%) from 2024

Liabilities

Up

$55,407

Up $51,676 (+1385%) from 2024

Net Assets

Down

$635,905

Down $141,913 (-18%) from 2024

Operations
Liabilities / Revenue50th percentileNet Margin8th percentile

Revenue

Down

$743,572

Down $102,144 (-12%) from 2024

Expenses

Up

$885,485

Up $14,386 (+1.7%) from 2024

Net Income

Down

-$141,913

Down $116,530 (-459%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth7th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2014: $14,265Liabilities 2014: $02014Assets 2015: $127,188Liabilities 2015: $0Net Assets 2015: $127,1882015Assets 2016: $370,001Liabilities 2016: $0Net Assets 2016: $370,0012016Assets 2017: $355,469Liabilities 2017: $0Net Assets 2017: $355,4692017Assets 2018: $298,956Liabilities 2018: $0Net Assets 2018: $298,9562018Assets 2019: $646,863Liabilities 2019: $0Net Assets 2019: $646,8632019Assets 2020: $1,398,235Liabilities 2020: $0Net Assets 2020: $1,398,2352020Assets 2021: $1,173,759Liabilities 2021: $28,890Net Assets 2021: $1,144,8692021Assets 2022: $1,300,335Liabilities 2022: $5,320Net Assets 2022: $1,295,0152022Assets 2023: $810,900Liabilities 2023: $7,699Net Assets 2023: $803,2012023Assets 2024: $781,549Liabilities 2024: $3,731Net Assets 2024: $777,8182024Assets 2025: $691,312Liabilities 2025: $55,407Net Assets 2025: $635,9052025

Highlighted filing

2025

Assets$691,312
Liabilities$55,407
Net Assets$635,905
Open 2025 Filing

Operations Trend

Revenue Growth4th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2014: $23,785Expenses 2014: $11,571Net Income 2014: $12,2142014Revenue 2015: $215,611Expenses 2015: $102,688Net Income 2015: $112,9232015Revenue 2016: $469,810Expenses 2016: $226,997Net Income 2016: $242,8132016Revenue 2017: $425,468Expenses 2017: $440,000Net Income 2017: -$14,5322017Revenue 2018: $409,468Expenses 2018: $465,981Net Income 2018: -$56,5132018Revenue 2019: $783,556Expenses 2019: $435,650Net Income 2019: $347,9062019Revenue 2020: $1,233,929Expenses 2020: $482,557Net Income 2020: $751,3722020Revenue 2021: $597,802Expenses 2021: $840,065Net Income 2021: -$242,2632021Revenue 2022: $1,082,978Expenses 2022: $932,832Net Income 2022: $150,1462022Revenue 2023: $446,533Expenses 2023: $646,264Net Income 2023: -$199,7312023Revenue 2024: $845,716Expenses 2024: $871,099Net Income 2024: -$25,3832024Revenue 2025: $743,572Expenses 2025: $885,485Net Income 2025: -$141,9132025

Highlighted filing

2025

Revenue$743,572
Expenses$885,485
Net Income-$141,913
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$691,312
Liabilities
$55,407
Net assets
$635,905
Revenue
$743,572
Expenses
$885,485
Net income
-$141,913
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$0.69$0.06$0.64$0.74$0.89$0.14
2024Detailed filing. Detailed filing data is available for this year.$0.78$0.00$0.78$0.85$0.87$0.03
2023Detailed filing. Detailed filing data is available for this year.$0.81$0.01$0.80$0.45$0.65$0.20
2022Detailed filing. Detailed filing data is available for this year.$1.30$0.01$1.30$1.08$0.93$0.15
2021Detailed filing. Detailed filing data is available for this year.$1.17$0.03$1.14$0.60$0.84$0.24
2020Detailed filing. Detailed filing data is available for this year.$1.40$0.00$1.40$1.23$0.48$0.75
2019Detailed filing. Detailed filing data is available for this year.$0.65$0.00$0.65$0.78$0.44$0.35
2018Detailed filing. Detailed filing data is available for this year.$0.30$0.00$0.30$0.41$0.47$0.06
2017Detailed filing. Detailed filing data is available for this year.$0.36$0.00$0.36$0.43$0.44$0.01
2016Detailed filing. Detailed filing data is available for this year.$0.37$0.00$0.37$0.47$0.23$0.24
2015Detailed filing. Detailed filing data is available for this year.$0.13$0.00$0.13$0.22$0.10$0.11
2014Summary only. Only limited summary data is available for this year.$0.01$0.00$0.02$0.01$0.01
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2025 to Dec 31, 2025
Signed
Feb 26, 2026
Return Version
2025v4.0
Gross Receipts
$826,632
Mission and Program Overview

Mission

The purpose of usher 1f collaborative is to fund medical research to find an effective treatment to save or restore the vision of those afflicted with usher syndrome type 1f.

To fund medical research to find an effective treatment to save or restore the vision of those affected with Usher Syndrome Type 1F.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$660,358$633,441▼ $26,917
Accounts Receivable$105,670$28,560▼ $77,110
Cash and Non-Interest-Bearing Accounts$15,521$18,062▲ $2,541
Prepaid Expenses and Deferred Charges-$11,249-
Total Assets$781,549$691,312▼ $90,237
Liabilities
Accounts Payable and Accrued Expenses$3,731$55,407▲ $51,676
Total Liabilities$3,731$55,407▲ $51,676
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$668,148$580,805▼ $87,343
Net Assets With Donor Restrictions$109,670$55,100▼ $54,570
Total Net Assets Fund Balance$777,818$635,905▼ $141,913
Total Liabilities and Net Assets / Fund Balance$781,549$691,312▼ $90,237
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Melissa ChaikofChair and Trustee
Elliot ChaikofVice Chair and Trustee
Jared RootSecretary and Trustee
Frank GentileTreasurer and Trustee
Dorie ShapiroTrustee
Eric HalperTrustee
Heather RosensteinTrustee
Joshua CohenTrustee
Julian SeewaldTrustee
Margi LevittTrustee
Rachel RootTrustee
Sari L SpringerTrustee
Revenue and Support

Revenue Composition

Contributions and Grants
$463,492
Program Service Revenue
$0
Investment Income
$15,727
Other Revenue
$264,353
All Other Contributions
$463,492
Change in Net Assets
$-141,913

Audited Revenue Reconciliation

Revenue per Audited Statements
$743,572
Total Revenue per Audited Statements
$743,572
Total Revenue per Form 990
$743,572
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$696,990
Total Fundraising Expense$135,617
Other Expenses$99,524
Salaries, Compensation, and Employee Benefits$88,971
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$696,990--$696,990
Other Salaries and Wages--$80,431$80,431
Fees for Services Other$2,986$8,628$29,363$40,977
Office Expenses-$14,532$10,396$24,928
Advertising$11,812-$6,756$18,568
Fees for Services Accounting-$9,555-$9,555
Payroll Taxes--$6,198$6,198
Insurance-$3,139-$3,139
Pension Plan Contributions--$2,342$2,342
Fees for Services Legal-$1,150-$1,150
Travel$778$28-$806
Conferences and Meetings$195-$131$326
Other Expenses$75--$75
Total Functional Expenses$712,836$37,032$135,617$885,485

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$885,485
Total Expenses per Audited Statements$885,485
Total Expenses per Form 990$885,485
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Harvard UniversityCambridge, MA501c3-$320,000
Foundation Fighting BlindnessColumbia, MD501c3-$200,000
Unravel BiosciencesMedford, MA501c3-$86,640
University of Oregon FoundationEugene, OR501c3-$80,000
LSU FoundationBaton Rouge, LA--$5,350
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$346,721
Fundraising Direct Expenses$83,060
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising$346,721$346,721$83,060$263,661
Total Events$346,721$346,721$83,060$263,661
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Melissa Chaikof is married to Elliot Chaikof. Rachel Root is married to Jared Root. Sari Springer is Elliot Chaikofs sister.”

Form 990 governing body review Part VI line 11

“The 990 is reviewed by an officer of The Board prior to filing.”

Conflict of interest policy compliance Part VI line 12C

“Individuals with any actual or possible conflict of interest must disclose its existence to The Board. The Board votes to decide if a conflict of interest exists. Board Members sign an annual statement confirming their knowledge and understanding of the conflict of interest policy.”

Governing documents etc available to public Part VI line 19

“The Organization will provide document copies upon request.”

Filing and Contact Details

Filer

Filer Name
Usher 1F Collaborative Inc
EIN
46-4309387
In Care Of
% Melissa Chaikof
Phone
3392212743
Address
321 Walnut Street STE 228, Newtonville, MA 02460

Signing Officer

Name
Melissa Chaikof
Title
Chair and Trustee
Phone
3392212743
Signed
2026-02-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Melissa Chaikof
Formed
2013
Legal Domicile
Ma
Voting Board Members
12
Independent Board Members
12
Employees
1
Volunteers
25

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

Explanation of other changes in net assets or fund balances Part XI line 9

“Prior Period Adjustment of -$292,083. This adjustment was needed to reconcile the ending balance on the 2022 990 to the beginning balance on the 2023 Audited Financial Statements.”

List of other fees for services expenses Part IX line 11G

“Professional Services: $60,000 Information Technology: $11,689 Other: $5,122”

Financial Statement Notes

Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740)

“The accounting standard on accounting for uncertainty in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under that guidance, The Collaborative may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by taxing authorities based on the technical merits of the position. The tax benefits recognized in the financial statements from such a position are measured based on the largest benefit that has a greater than 50 likelihood ofbeing realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilities at year-end.The Collaboratives policy would be to recognize interest and penalties, if any, on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. No interest and penalties were assessed or recorded during the year.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc02025 Grants to Research Labs: Harvard Medical School, David Corey Lab: $320,000 Development of gene therapies for Usher 1F University of Oregon Institute of Neuroscience, Monte Westerfield Lab: $80,000 Testing existing drugs for repurposing for Usher 1F 2025 Grant for year 4 of RUSH1F, 4-year natural history study in partnership with Foundation Fighting Blindness: $200,000. 2026 is year 4 of 4. This study will provide critical data for a future clinical trial. $5000 awarded to Usher Syndroom, Netherlands, for support/sponsorship of international Usher syndrome scientific research conference Total payment to Unravel Biosciences to identify drugs for repurposing for Usher 1F: $45,610 with an additional $45,610 due early 2026 at conclusion of study. Total grants awarded in 2025: $350,610 Key Research advances realized in 2025: Harvard conducting further preclinical testing of mini-gene Harvard team published the following paper in peer-reviewed journal: Mini-Pcdh15b Gene Therapy Rescues Visual Deficits in a Zebrafish Model of Usher Syndrome Type 1F https://www.biorxiv.org/content/10.1101/2025.11.05.686814v1 2 more papers in progress from Harvard lab for publication in 2026 Corey lab is now testing gene therapy from The Salk Institute, Samuel Pfaff lab, and early results are exciting. Hired a consultant to take our mini-gene through the next steps to apply for a clinical trial. Agreement in progress. Will include with 2026 audit since its not yet signed.
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IRS990/Form990PartVIISectionAGrp/PersonNm0Melissa Chaikof
IRS990/Form990PartVIISectionAGrp/PersonNm1Elliot Chaikof
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IRS990/Form990PartVIISectionAGrp/TitleTxt0Chair and Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice Chair and Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt2Treasurer and Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt3Secretary and Trustee
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0The accounting standard on accounting for uncertainty in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under that guidance, The Collaborative may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by taxing authorities based on the technical merits of the position. The tax benefits recognized in the financial statements from such a position are measured based on the largest benefit that has a greater than 50 likelihood ofbeing realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilities at year-end.The Collaboratives policy would be to recognize interest and penalties, if any, on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. No interest and penalties were assessed or recorded during the year.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740)
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IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2Unravel Biosciences
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3Foundation Fighting Blindness
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