Civic Intelligence

Usher 1F Collaborative Inc.

990 • Fiscal year 2023 • EIN 46-4309387

Jan 01, 2023 to Dec 31, 2023 • Filed on Apr 17, 2024

Organization Profilewww.usher1f.org

View Organization Page

321 Walnut Street STE 228Newtonville, MA 02460

(339) 221-2743

Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

Down

$810,900

Down $489,435 (-38%) from 2022

Net Assets

Down

$803,201

Down $491,814 (-38%) from 2022

Liabilities

Up

$7,699

Up $2,379 (+45%) from 2022

Revenue And Expenses

Revenue

Down

$446,533

Down $636,445 (-59%) from 2022

Expenses

Down

$646,264

Down $286,568 (-31%) from 2022

Net Income

Down

-$199,731

Down $349,877 (-233%) from 2022

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2014: $14,265Liabilities 2014: $02014Assets 2015: $127,188Liabilities 2015: $0Net Assets 2015: $127,1882015Assets 2016: $370,001Liabilities 2016: $0Net Assets 2016: $370,0012016Assets 2017: $355,469Liabilities 2017: $0Net Assets 2017: $355,4692017Assets 2018: $298,956Liabilities 2018: $0Net Assets 2018: $298,9562018Assets 2019: $646,863Liabilities 2019: $0Net Assets 2019: $646,8632019Assets 2020: $1,398,235Liabilities 2020: $0Net Assets 2020: $1,398,2352020Assets 2021: $1,173,759Liabilities 2021: $28,890Net Assets 2021: $1,144,8692021Assets 2022: $1,300,335Liabilities 2022: $5,320Net Assets 2022: $1,295,0152022Assets 2023: $810,900Liabilities 2023: $7,699Net Assets 2023: $803,2012023Assets 2024: $781,549Liabilities 2024: $3,731Net Assets 2024: $777,8182024Assets 2025: $691,312Liabilities 2025: $55,407Net Assets 2025: $635,9052025

Highlighted filing

2023

Assets$810,900
Liabilities$7,699
Net Assets$803,201
Open 2023 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2014: $23,785Expenses 2014: $11,571Net Income 2014: $12,2142014Revenue 2015: $215,611Expenses 2015: $102,688Net Income 2015: $112,9232015Revenue 2016: $469,810Expenses 2016: $226,997Net Income 2016: $242,8132016Revenue 2017: $425,468Expenses 2017: $440,000Net Income 2017: -$14,5322017Revenue 2018: $409,468Expenses 2018: $465,981Net Income 2018: -$56,5132018Revenue 2019: $783,556Expenses 2019: $435,650Net Income 2019: $347,9062019Revenue 2020: $1,233,929Expenses 2020: $482,557Net Income 2020: $751,3722020Revenue 2021: $597,802Expenses 2021: $840,065Net Income 2021: -$242,2632021Revenue 2022: $1,082,978Expenses 2022: $932,832Net Income 2022: $150,1462022Revenue 2023: $446,533Expenses 2023: $646,264Net Income 2023: -$199,7312023Revenue 2024: $845,716Expenses 2024: $871,099Net Income 2024: -$25,3832024Revenue 2025: $743,572Expenses 2025: $885,485Net Income 2025: -$141,9132025

Highlighted filing

2023

Revenue$446,533
Expenses$646,264
Net Income-$199,731
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Apr 17, 2024
Return Version
2023v5.0
Gross Receipts
$446,533
Mission and Program Overview

Mission

To fund medical research to find an effective treatment to save or restore the vision of those affected with Usher Syndrome Type 1F.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$930,431$753,285▼ $177,146
Cash and Non-Interest-Bearing Accounts$13,681$47,815▲ $34,134
Accounts Receivable$356,223$9,800▼ $346,423
Total Assets$1,300,335$810,900▼ $489,435
Liabilities
Accounts Payable and Accrued Expenses$5,320$7,699▲ $2,379
Total Liabilities$5,320$7,699▲ $2,379
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,104,973$799,201▼ $305,772
Net Assets With Donor Restrictions$190,042$4,000▼ $186,042
Total Net Assets Fund Balance$1,295,015$803,201▼ $491,814
Total Liabilities and Net Assets / Fund Balance$1,300,335$810,900▼ $489,435
Compensation and Service Providers

Board Members and Trustees

NameTitle
Melissa ChaikofChair and Trustee
Elliot ChaikofVice Chair and Trustee
Jared RootSecretary and Trustee
Frank GentileTreasurer and Trustee
Eric HalperTrustee
Heather RosensteinTrustee
Joshua CohenTrustee
Julian SeewaldTrustee
Laurie ShapiroTrustee
Lijun SunTrustee
Rachel RootTrustee
Sari L SpringerTrustee
Revenue and Support

Revenue Composition

Contributions and Grants
$429,829
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$16,704
All Other Contributions
$429,829
Change in Net Assets
$-199,731

Audited Revenue Reconciliation

Revenue per Audited Statements
$446,533
Total Revenue per Audited Statements
$446,533
Total Revenue per Form 990
$446,533
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$432,142
Total Fundraising Expense$180,713
Other Expenses$141,944
Salaries, Compensation, and Employee Benefits$72,178
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$427,500--$427,500
Fees for Services Other-$19,049$60,568$79,617
Other Salaries and Wages--$65,218$65,218
Office Expenses-$7,203$12,981$20,184
Conferences and Meetings--$18,591$18,591
Advertising$506-$8,491$8,997
Fees for Services Accounting--$7,871$7,871
Payroll Taxes--$5,012$5,012
Insurance-$4,681$33$4,714
Foreign Grants$4,642--$4,642
Pension Plan Contributions--$1,948$1,948
Fees for Services Legal$1,305--$1,305
Other Expenses-$665-$665
Total Functional Expenses$433,953$31,598$180,713$646,264

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$646,264
Total Expenses per Audited Statements$646,264
Total Expenses per Form 990$646,264
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Foundation Fighting BlindnessColumbia, MD501c3-$200,000
Harvard UniversityCambridge, MA501c3-$170,000
University of Oregon FoundationEugene, OR501c3-$32,500
University of Maryland Baltimore FoBaltimore, MD501c3-$25,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$10,749
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Melissa Chaikof is married to Elliot Chaikof. Rachel Root is married to Jared Root. Sari Springer is Elliot Chaikofs sister.”

Form 990 governing body review Part VI line 11

“The 990 is reviewed by an officer of The Board prior to filing.”

Governing documents etc available to public Part VI line 19

“The Organization will provide document copies upon request.”

Filing and Contact Details

Filer

Filer Name
Usher 1F Collaborative Inc
EIN
46-4309387
Address
321 Walnut Street STE 228, Newtonville, MA 02460

Signing Officer

Name
Melissa Chaikof
Title
Chair and Trust
Phone
3392212743
Signed
2024-04-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Melissa Chaikof
Formed
2013
Legal Domicile
Ma
Voting Board Members
12
Independent Board Members
12
Employees
1
Volunteers
17

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

Explanation of other changes in net assets or fund balances Part XI line 9

“Prior Period Adjustment of -$292,083. This adjustment was needed to reconcile the ending balance on the 2022 990 to the beginning balance on the 2023 Audited Financial Statements.”

List of other fees for services expenses Part IX line 11G

“Professional Services: $60,000Information Technology: $15,170Other: $3,868Admin: $579”

Financial Statement Notes

Footnote for uncertain tax position under FIN 48 (Part X)

“The accounting standard on accounting for uncertainty in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under that guidance, The Collaborative may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by taxing authorities based on the technical merits of the position. The tax benefits recognized in the financial statements from such a position are measured based on the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilities at year-end.The Collaboratives policy would be to recognize interest and penalties, if any, on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. No interest and penalties were assessed or recorded during the year.”

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IRS990/Desc0David Corey Lab at Harvard Medical School $170,000:-In April, Maryna Invanchenko, MD, PhD, presented at the Association for Research in Vision and Ophthalmology (ARVO) Annual Meeting. In her presentation she shared the exciting results that the mini gene developed to treat Usher 1F rescued vision in a zebrafish model. -In August, published results of a second strategy, utilizing base editing to successfully restore hearing in an Usher 1F mouse model-In November, published results revealed a third strategy gene therapy employing dual vectors also showed promising results in restoring vision in multiple retinal models, including human retinal organoids and non-human primate retina. -The lab continued its collaboration with the Samuel Pfaff Lab at the Salk Institute for Biological Studies, on a promising gene therapy approach called RNA end-joining (REJ) technology. Monte Westerfield Lab at University of Oregon Institute of Neuroscience $32,500:-In December, published results revealed that a potent antioxidant compound, Hexafluoro, improved visual function and slowed photoreceptor cell death in the Usher 1F zebrafish model. Zubair Ahmed Lab at University of Maryland School of Medicine $25,000:-In December, published results detailed sustained rescue of visual function in a mouse model of Usher 1F utilizing a dual AAV-based gene therapyRUSH1F Natural History Study, $200,000:-44 patients enrolled-Patients from first centers completed year 2 screening with two completing year 3-Patients from later centers added completed year 1 and beginning year 2 In addition, after our initial funding to our research labs, our Harvard team has raised an additional $6.5 million for their Usher 1F research projects, including $250,000 in 2023.
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IRS990/PrincipalOfficerNm0Melissa Chaikof
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IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt0535433
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt01224057
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IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt05955
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IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt097448
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt0535433
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IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt04134707
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IRS990/ScheduleBRequiredInd0true
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IRS990ScheduleD/FootnoteTextInd0X
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0The accounting standard on accounting for uncertainty in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under that guidance, The Collaborative may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by taxing authorities based on the technical merits of the position. The tax benefits recognized in the financial statements from such a position are measured based on the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilities at year-end.The Collaboratives policy would be to recognize interest and penalties, if any, on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. No interest and penalties were assessed or recorded during the year.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Footnote for uncertain tax position under FIN 48 (Part X)
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IRS990ScheduleI/RecipientTable/CashGrantAmt132500
IRS990ScheduleI/RecipientTable/CashGrantAmt225000
IRS990ScheduleI/RecipientTable/CashGrantAmt3200000
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IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Harvard University
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1University of Oregon Foundation
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2University of Maryland Baltimore Fo
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3Foundation Fighting Blindness
IRS990ScheduleI/RecipientTable/RecipientEIN0042103580
IRS990ScheduleI/RecipientTable/RecipientEIN1936015767
IRS990ScheduleI/RecipientTable/RecipientEIN2311678679
IRS990ScheduleI/RecipientTable/RecipientEIN3237135845
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt01033 Massachusetts Ave
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt11720 E 13th Ave
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2220 Arch St 13th Floor
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt36925 Oakland Mills Road
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Cambridge
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Eugene
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Baltimore
IRS990ScheduleI/RecipientTable/USAddress/CityNm3Columbia
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1OR
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2MD
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3MD
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd002138
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IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0The Organization receives written updates from the grant recipients every six months or as needed if there are important progress updates. The Organization also speaks to the funded researchers periodically to receive updated either via phone or email.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Monitoring procedures (Part I, line 2)
IRS990ScheduleI/Total501c3OrgCnt04
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Melissa Chaikof is married to Elliot Chaikof. Rachel Root is married to Jared Root. Sari Springer is Elliot Chaikofs sister.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The 990 is reviewed by an officer of The Board prior to filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The Organization will provide document copies upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Prior Period Adjustment of -$292,083. This adjustment was needed to reconcile the ending balance on the 2022 990 to the beginning balance on the 2023 Audited Financial Statements.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Professional Services: $60,000Information Technology: $15,170Other: $3,868Admin: $579
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Explanation of other changes in net assets or fund balances Part XI line 9
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4List of other fees for services expenses Part IX line 11g
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false

Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$810,900
Liabilities
$7,699
Net assets
$803,201
Revenue
$446,533
Expenses
$646,264
Net income
-$199,731
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$0.69$0.06$0.64$0.74$0.89$0.14
2024Detailed filing. Detailed filing data is available for this year.$0.78$0.00$0.78$0.85$0.87$0.03
2023Detailed filing. Detailed filing data is available for this year.$0.81$0.01$0.80$0.45$0.65$0.20
2022Detailed filing. Detailed filing data is available for this year.$1.30$0.01$1.30$1.08$0.93$0.15
2021Detailed filing. Detailed filing data is available for this year.$1.17$0.03$1.14$0.60$0.84$0.24
2020Detailed filing. Detailed filing data is available for this year.$1.40$0.00$1.40$1.23$0.48$0.75
2019Detailed filing. Detailed filing data is available for this year.$0.65$0.00$0.65$0.78$0.44$0.35
2018Detailed filing. Detailed filing data is available for this year.$0.30$0.00$0.30$0.41$0.47$0.06
2017Detailed filing. Detailed filing data is available for this year.$0.36$0.00$0.36$0.43$0.44$0.01
2016Detailed filing. Detailed filing data is available for this year.$0.37$0.00$0.37$0.47$0.23$0.24
2015Detailed filing. Detailed filing data is available for this year.$0.13$0.00$0.13$0.22$0.10$0.11
2014Summary only. Only limited summary data is available for this year.$0.01$0.00$0.02$0.01$0.01