Liabilities / Assets
60th percentile
Higher debt load relative to assets than 60% of similar nonprofits.
Down with Dystonia
990EZ • Fiscal year 2021 • EIN 46-1319824
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
63rd percentile
Higher debt load relative to revenue than 63% of similar nonprofits.
Net Margin
5th percentile
Higher net margin than 5% of similar nonprofits.
Top Officer Pay
82nd percentile
Higher top officer pay than 82% of similar nonprofits.
Top officer pay equals 41.2% of source-year revenue.
Asset Growth
8th percentile
Faster asset growth than 8% of similar nonprofits.
Revenue Growth
12th percentile
Faster revenue growth than 12% of similar nonprofits.
Balance Sheet
Assets
Down$56,594
Down $55,680 (-50%) from 2020
Net Assets
$56,361
No earlier filing loaded for comparison.
Liabilities
Down$233
Down $5,780 (-96%) from 2020
Revenue And Expenses
Revenue
Down$28,233
Down $46,720 (-62%) from 2020
Expenses
Up$78,133
Up $18,189 (+30%) from 2020
Net Income
Down-$49,900
Down $64,909 (-432%) from 2020
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2021 to Dec 31, 2021
- Signed
- Oct 17, 2022
- Return Version
- 2021v4.0
- Gross Receipts
- $28,233
Mission and Program Overview
Mission
To support people living with Dystonia through awareness
Program Services
| Description | Grants | Expenses |
|---|---|---|
| Kept Down with Dystonia in the public eye through campaigns on FaceBook, and other forms of social media. | $0 | $21,807 |
| Production of Dance with Dystonia videos to promote Dystonia awareness | $0 | $12,229 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Keith Burke | Director | PT | $11,625 | - | $11,625 |
| Devin McClernan | Founder, President | PT | $0 | - | - |
| Dr Kevin Hutton | Director | - | $0 | - | - |
| Stephanie McClernan | C.F.O., Director | PT | $0 | - | - |
| Gail Hutton | Director | PT | $0 | - | - |
| Gary McClernan | Secretary | PT | $0 | - | - |
| Dr Christopher Hutton | Director | - | $0 | - | - |
| Joan Giguere | Director | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Down With Dystonia
- EIN
- 46-1319824
- Phone
- 7075290283
- Address
- PO Box 1126, Kenwood, CA 95452
Signing Officer
- Name
- Gary McClernan
- Title
- Secretary
- Phone
- 7075290283
- Signed
- 2022-10-17
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 16
“Other expenses can broadly be categorized into three sections: 1) Marketing expenses related to maintaining an online presence through FaceBook, Instagram, and Donorbox. The continued lockdowns due to Covid-19 made these efforts largely cost ineffective. 2) Travel and Meetings by the CEO of the organization to support ongoing efforts for "Dance for Dystonia" campaign, meetings with vendors, attendance at board meetings, and meetings with Board of Director members. 3) Overhead included insurance expense, accounting fees, website development and maintenance printing, copying and supplies”
Form 990-EZ, Part II, Line 24
“1)Prepaid Expenses for $4,148 2)prototype for a future campaign $500 3) Net fixed assets of $614”
Form 990-EZ, Part II, Line 26
“Credit Card Liability”
Raw XML Appendix194 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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|---|---|---|
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| IRS990EZ/BenefitsPaidToOrForMembersAmt | 0 | 0 |
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| IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
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| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 6 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 7 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 0 | Devin McClernan |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 1 | Keith Burke |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 2 | Dr Kevin Hutton |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 3 | Stephanie McClernan |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 4 | Gail Hutton |
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| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 6 | Dr Christopher Hutton |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 7 | Joan Giguere |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 0 | Founder, President |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 1 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 2 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 3 | C.F.O., Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 4 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 5 | Secretary |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 6 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 7 | Director |
| IRS990EZ/OperateHospitalInd | 0 | 0 |
| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | 0 |
| IRS990EZ/OrganizationHadUBIInd | 0 | 0 |
| IRS990EZ/OtherAssetsTotalDetail/BOYAmt | 0 | 5562 |
| IRS990EZ/OtherAssetsTotalDetail/EOYAmt | 0 | 5262 |
| IRS990EZ/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990EZ/OtherExpensesTotalAmt | 0 | 46551 |
| IRS990EZ/OtherRevenueTotalAmt | 0 | 0 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | 0 |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | To support people living with Dystonia through awareness |
| IRS990EZ/PrintingPublicationsPostageAmt | 0 | 3138 |
| IRS990EZ/ProgramServiceRevenueAmt | 0 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | Kept Down with Dystonia in the public eye through campaigns on FaceBook, and other forms of social media. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | Production of Dance with Dystonia videos to promote Dystonia awareness |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 0 | 0 |
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 1 | 12229 |
| IRS990EZ/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990EZ/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990EZ/SalariesOtherCompEmplBnftAmt | 0 | 0 |
| IRS990EZ/SaleOfAssetsGrossAmt | 0 | 0 |
| IRS990EZ/SchoolOperatingInd | 0 | 0 |
| IRS990EZ/SpecialEventsDirectExpensesAmt | 0 | 0 |
| IRS990EZ/SpecialEventsNetIncomeLossAmt | 0 | 0 |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 0 | CA |
| IRS990EZ/SubjectToProxyTaxInd | 0 | 0 |
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| IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt | 0 | 233 |
| IRS990EZ/TanningServicesProvidedInd | 0 | 0 |
| IRS990EZ/TaxImposedOnOrganizationMgrAmt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4911Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4912Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4955Amt | 0 | 0 |
| IRS990EZ/TaxReimbursedByOrganizationAmt | 0 | 0 |
| IRS990EZ/TotalExpensesAmt | 0 | 78133 |
| IRS990EZ/TotalProgramServiceExpensesAmt | 0 | 34036 |
| IRS990EZ/TotalRevenueAmt | 0 | 28233 |
| IRS990EZ/TransactionWithControlEntInd | 0 | 0 |
| IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990EZ/TypeOfOrganizationCorpInd | 0 | X |
| IRS990EZ/WebsiteAddressTxt | 0 | www.downwithdystonia.org |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 28088 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 74523 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 134520 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 29468 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4200 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 270799 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.66765 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.7329 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 180799 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 90000 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 28088 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 74523 |
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| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4200 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 270799 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 270799 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Other expenses can broadly be categorized into three sections: 1) Marketing expenses related to maintaining an online presence through FaceBook, Instagram, and Donorbox. The continued lockdowns due to Covid-19 made these efforts largely cost ineffective. 2) Travel and Meetings by the CEO of the organization to support ongoing efforts for "Dance for Dystonia" campaign, meetings with vendors, attendance at board meetings, and meetings with Board of Director members. 3) Overhead included insurance expense, accounting fees, website development and maintenance printing, copying and supplies |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | 1)Prepaid Expenses for $4,148 2)prototype for a future campaign $500 3) Net fixed assets of $614 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Credit Card Liability |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990-EZ, Part II, Line 24 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990-EZ, Part II, Line 26 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd | 0 | AAL2 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/LastSubmissionRqrOOBCd | 0 | 0 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/OOBSecurityVerificationCd | 0 | 11 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd | 0 | 0 |
| ReturnHeader/BuildTS | 0 | 2022-09-23 18:48:47Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Gary McClernan |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Secretary |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 7075290283 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2022-10-17 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | DOWN WITH DYSTONIA |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | DOWN |
| ReturnHeader/Filer/EIN | 0 | 461319824 |
| ReturnHeader/Filer/PhoneNum | 0 | 7075290283 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | PO Box 1126 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Kenwood |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 95452 |
| ReturnHeader/ReturnTs | 0 | 2022-10-17T22:43:55-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2021-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2021-12-31 |
| ReturnHeader/TaxYr | 0 | 2021 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2021 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $56,594
- Liabilities
- $233
- Net assets
- $56,361
- Revenue
- $28,233
- Expenses
- $78,133
- Net income
- -$49,900