Civic Intelligence

Curing Retinal Blindness Foundation Inc.

990 • Fiscal year 2016 • EIN 46-1084479

Jan 01, 2016 to Dec 31, 2016 • Filed on Nov 07, 2017

Organization ProfileWWW.CRB1.ORG
PO Box 8909Warner Robins, GA 31095

(478) 320-8601

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.08x

Higher debt load relative to assets than 58% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Liabilities / Revenue

78th percentile

0.27x

Higher debt load relative to revenue than 78% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Net Margin

71st percentile

13%

Higher net margin than 71% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Top Officer Pay

49th percentile

$0

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Asset Growth

62nd percentile

6.3%

Faster asset growth than 62% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Revenue Growth

51st percentile

3.4%

Faster revenue growth than 51% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets58th percentile

Assets

Up

$748,773

Up $44,336 (+6.3%) from 2015

Net Assets

Up

$692,481

Up $26,857 (+4.0%) from 2015

Liabilities

Up

$56,292

Up $17,479 (+45%) from 2015

Revenue And Expenses
Liabilities / Revenue78th percentileNet Margin71st percentile

Revenue

Up

$205,796

Up $6,726 (+3.4%) from 2015

Expenses

Up

$178,939

Up $120,279 (+205%) from 2015

Net Income

Down

$26,857

Down $113,553 (-81%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth62nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2014: $528,673Liabilities 2014: $3,459Net Assets 2014: $525,2142014Assets 2015: $704,437Liabilities 2015: $38,813Net Assets 2015: $665,6242015Assets 2016: $748,773Liabilities 2016: $56,292Net Assets 2016: $692,4812016Assets 2017: $804,897Liabilities 2017: $12,223Net Assets 2017: $792,6742017Assets 2018: $899,500Liabilities 2018: $23,898Net Assets 2018: $875,6022018Assets 2019: $800,737Liabilities 2019: $2,334Net Assets 2019: $798,4032019Assets 2020: $721,738Liabilities 2020: $16,010Net Assets 2020: $705,7282020Assets 2021: $685,072Liabilities 2021: $60,000Net Assets 2021: $625,0722021Assets 2022: $640,023Liabilities 2022: $0Net Assets 2022: $640,0232022Assets 2023: $612,210Liabilities 2023: $0Net Assets 2023: $612,2102023Assets 2024: $737,558Liabilities 2024: $0Net Assets 2024: $737,5582024

Highlighted filing

2016

Assets$748,773
Liabilities$56,292
Net Assets$692,481
Open 2016 Filing

Operations Trend

Revenue Growth51st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2014: $533,216Expenses 2014: $8,002Net Income 2014: $525,2142014Revenue 2015: $199,070Expenses 2015: $58,660Net Income 2015: $140,4102015Revenue 2016: $205,796Expenses 2016: $178,939Net Income 2016: $26,8572016Revenue 2017: $182,033Expenses 2017: $81,840Net Income 2017: $100,1932017Revenue 2018: $164,727Expenses 2018: $81,799Net Income 2018: $82,9282018Revenue 2019: $89,548Expenses 2019: $166,747Net Income 2019: -$77,1992019Revenue 2020: $59,380Expenses 2020: $152,055Net Income 2020: -$92,6752020Revenue 2021: $139,563Expenses 2021: $220,219Net Income 2021: -$80,6562021Revenue 2022: $192,322Expenses 2022: $177,371Net Income 2022: $14,9512022Revenue 2023: $158,539Expenses 2023: $186,352Net Income 2023: -$27,8132023Revenue 2024: $242,091Expenses 2024: $116,743Net Income 2024: $125,3482024

Highlighted filing

2016

Revenue$205,796
Expenses$178,939
Net Income$26,857
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Nov 7, 2017
Return Version
2016v3.0
Gross Receipts
$264,741
Mission and Program Overview

Mission

The foundation promotes the treatment and cure of degenerative diseases that affect the retina and cause blindness. The foundation solicites donations and contributions through various fundraising events in order to provide grants to further the research into therapies for these diseases.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$565,921$615,244▲ $49,323
Savings and Temporary Cash Investments$128,099$128,112▲ $13
Loans From Officers Directors$26,159$56,292▲ $30,133
Intangible Assets$10,417$5,417▼ $5,000
Total Assets$704,437$748,773▲ $44,336
Liabilities
Accounts Payable and Accrued Expenses$12,654--
Total Liabilities$38,813$56,292▲ $17,479
Net Assets / Fund Balance
Unrestricted Net Assets$665,624$692,481▲ $26,857
Total Net Assets Fund Balance$665,624$692,481▲ $26,857
Total Liabilities and Net Assets / Fund Balance$704,437$748,773▲ $44,336
Compensation and Service Providers
Top Officer Pay49th percentile

Board Members and Trustees

NameTitle
Kristin SmedleyPresident
Bob SmedleyDirector
Dan JonesDirector
Kim HoffmanDirector
Lisa BillingsleyDirector
Susan SchneiderDirector
Vyto KabDirector
Tricia SmithSecretary
Wendy RankineTreasurer
Michael SmedleyVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$104,352
Program Service Revenue
$0
Investment Income
$13
Other Revenue
$101,431
All Other Contributions
$66,724
Change in Net Assets
$26,857
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$148,275
Other Expenses$30,664
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Foreign Grants$100,000--$100,000
Grants to Domestic Orgs$48,275--$48,275
Conferences and Meetings-$16,827-$16,827
Depreciation Depletion-$5,000-$5,000
Fees for Services Accounting-$3,740-$3,740
Advertising-$3,068-$3,068
Office Expenses-$641-$641
Other Expenses-$250-$250
Total Functional Expenses$148,275$30,664$0$178,939
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Trustees of the University of PaPhiladelphia, PA501c3Fund Research$48,275

International Summary

Spending
$100,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrantGenetic Research--$70,000
EuropeGrantGenetic Research--$30,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$160,376
Fundraising Direct Expenses$58,945
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Cocktails for T$62,091$56,091$7,107$48,984
Bike the Basin$54,762$49,262$6,062$43,200
Total Events$198,004$160,376$58,945$101,431
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$26,159$56,292▲ $30,133
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

“Kristin smedley michael smedley president v president family relationship bob smedley michael smedley director v president family relationship bob smedley kristin smedley director president family relationship susan schneider kristin smedley director president family relationship susan schneider michael smedley director v president family relationship vyto kab kristin smedley director president family relationship”

Form 990, Page 6, Part VI, Line 11B

“Review of the form 990 will be performed by the treasurer prior to filing.”

Form 990, Page 6, Part VI, Line 12C

“All reimbursements are monitored under conflict of interest policy”

Form 990, Page 6, Part VI, Line 19

“Documents will be made available upon request.”

Filing and Contact Details

Filer

Filer Name
Curing Retinal Blindness
EIN
46-1084479
Phone
4783208601
Address
PO BOX 8909, WARNER ROBINS, GA 31095

Signing Officer

Name
Wendy Rankine
Title
Treasurer
Phone
4783208601
Signed
2017-11-07

Organization Details

Principal Officer
Kristin Smedley
Formed
2012
Legal Domicile
Pa
Voting Board Members
10
Independent Board Members
10
Employees
0
Volunteers
100

Preparer

Firm
Schroedel Scullin & Bestic LLC
Address
196 NORTH BROAD STREET, CANFIELD, OH 44406
Preparer
Janice T Jasinski CPA
Phone
3305331131
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“The foundation promotes the treatment and cure of degenerative diseases that affect the retina and cause blindness. The foundation solicites donations and contributions through various fundraising events in order to provide grants to further the research into therapies for these diseases.”

Form 990, Page 2, Part III, Line 4D

“The foundation made contributions to another organization to further the research into therapies for the treatment and cure of degenerative diseases that affect the retina and cause blindness.”

Raw XML AppendixShowing 400 of 467 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0true
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt012654
IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0THE FOUNDATION PROMOTES THE TREATMENT AND CURE OF DEGENERATIVE DISEASES THAT AFFECT THE RETINA AND CAUSE BLINDNESS. THE FOUNDATION SOLICITES DONATIONS AND CONTRIBUTIONS THROUGH VARIOUS FUNDRAISING EVENTS IN ORDER TO PROVIDE GRANTS TO FURTHER THE RESEARCH INTO THERAPIES FOR THESE DISEASES.
IRS990/AdvertisingGrp/ManagementAndGeneralAmt03068
IRS990/AdvertisingGrp/TotalAmt03068
IRS990/AllOtherContributionsAmt066724
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BooksInCareOfDetail/PersonNm0WENDY RANKINE
IRS990/BooksInCareOfDetail/PhoneNum04783208601
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0PO BOX 8909
IRS990/BooksInCareOfDetail/USAddress/CityNm0WARNER ROBINS
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0GA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd031095
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0565921
IRS990/CashNonInterestBearingGrp/EOYAmt0615244
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt016827
IRS990/ConferencesMeetingsGrp/TotalAmt016827
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt037628
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0104352
IRS990/CYGrantsAndSimilarPaidAmt0148275
IRS990/CYInvestmentIncomeAmt013
IRS990/CYOtherExpensesAmt030664
IRS990/CYOtherRevenueAmt0101431
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt026857
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0178939
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0205796
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt05000
IRS990/DepreciationDepletionGrp/TotalAmt05000
IRS990/Desc0GRANT MADE TO FURTHER THE RESEARCH INTO GENETIC THERAPIES FOR THE TREATMENT AND CURE OF DEGENERATIVE DISEASES THAT AFFECT THE RETINA AND CAUSE BLINDNESS.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt030000
IRS990/FamilyOrBusinessRlnInd0true
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt03740
IRS990/FeesForServicesAccountingGrp/TotalAmt03740
IRS990/ForeignActivitiesInd0true
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/ProgramServicesAmt0100000
IRS990/ForeignGrantsGrp/TotalAmt0100000
IRS990/ForeignOfficeInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt115.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt215.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt315.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt415.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt515.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt615.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/PersonNm0KRISTIN SMEDLEY
IRS990/Form990PartVIISectionAGrp/PersonNm1WENDY RANKINE
IRS990/Form990PartVIISectionAGrp/PersonNm2MICHAEL SMEDLEY
IRS990/Form990PartVIISectionAGrp/PersonNm3TRICIA SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm4LISA BILLINGSLEY
IRS990/Form990PartVIISectionAGrp/PersonNm5KIM HOFFMAN
IRS990/Form990PartVIISectionAGrp/PersonNm6DAN JONES
IRS990/Form990PartVIISectionAGrp/PersonNm7VYTO KAB
IRS990/Form990PartVIISectionAGrp/PersonNm8SUSAN SCHNEIDER
IRS990/Form990PartVIISectionAGrp/PersonNm9BOB SMEDLEY
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDE
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02012
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt037628
IRS990/FundraisingDirectExpensesAmt058945
IRS990/FundraisingGrossIncomeAmt0160376
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantAmt030000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt048275
IRS990/GrantsToDomesticOrgsGrp/TotalAmt048275
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0264741
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt010
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/IntangibleAssetsGrp/BOYAmt010417
IRS990/IntangibleAssetsGrp/EOYAmt05417
IRS990/InvestmentIncomeGrp/ExclusionAmt013
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt013
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0PA
IRS990/LoanOutstandingInd0true
IRS990/LoansFromOfficersDirectorsGrp/BOYAmt026159
IRS990/LoansFromOfficersDirectorsGrp/EOYAmt056292
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0THE FOUNDATION PROMOTES THE TREATMENT AND CURE OF DEGENERATIVE DISEASES THAT AFFECT THE RETINA AND CAUSE BLINDNESS. THE FOUNDATION SOLICITES DONATIONS AND CONTRIBUTIONS THROUGH VARIOUS FUNDRAISING EVENTS IN ORDER TO PROVIDE GRANTS TO FURTHER THE RESEARCH INTO THERAPIES FOR THESE DISEASES.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/NetAssetsOrFundBalancesBOYAmt0665624
IRS990/NetAssetsOrFundBalancesEOYAmt0692481
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0101431
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0641
IRS990/OfficeExpensesGrp/TotalAmt0641
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherExpensesGrp/Desc0MEMBERSHIPS
IRS990/OtherExpensesGrp/Desc1STATE LICENSES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01138
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1250
IRS990/OtherExpensesGrp/TotalAmt01138
IRS990/OtherExpensesGrp/TotalAmt1250
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/PrincipalOfficerNm0KRISTIN SMEDLEY
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0GRANT MADE TO FURTHER THE RESEARCH INTO GENETIC PATHWAY ANALYSIS FOR THE TREATMENT AND CURE OF DEGENERATIVE DISEASES THAT AFFECT THE RETINA AND CAUSE BLINDNESS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt070000
IRS990/ProgSrvcAccomActy2Grp/GrantAmt070000
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt048275
IRS990/ProgSrvcAccomActy3Grp/GrantAmt048275
IRS990/ProgSrvcAccomActyOtherGrp/Desc0THE FOUNDATION MADE CONTRIBUTIONS TO ANOTHER ORGANIZATION TO FURTHER THE RESEARCH INTO THERAPIES FOR THE TREATMENT AND CURE OF DEGENERATIVE DISEASES THAT AFFECT THE RETINA AND CAUSE BLINDNESS.
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt094661
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt030000
IRS990/PYOtherExpensesAmt028660
IRS990/PYOtherRevenueAmt0104409
IRS990/PYRevenuesLessExpensesAmt0140410
IRS990/PYTotalExpensesAmt058660
IRS990/PYTotalRevenueAmt0199070
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt026857
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0128099
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0128112
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt019245
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt013363
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt032608
IRS990ScheduleA/First5Years509Ind0X
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0104352
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt094661
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0362597
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0561610
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt013
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt013
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt0160376
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt0153394
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0211927
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0525697
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt013
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt013
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportTotal509Amt01016069
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt023300
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt022360
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt025578
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt071238
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt023300
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt03115
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus2YearsAmt012215
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt038630
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0264728
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0248055
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0574524
IRS990ScheduleA/Total509Grp/TotalAmt01087307
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0264741
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0248055
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0574524
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01087320
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt030000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt170000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1EUROPE
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0GENETIC RESEARCH
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt1GENETIC RESEARCH
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANT
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1GRANT
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt030000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt170000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt1CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0GENETIC RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1GENETIC RESEARCH
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SubtotalSpentAmt0100000
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0EUROPE 30,000 0 EUROPE 70,000 0
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE F, PAGE 1, PART I, LINE 3
IRS990ScheduleF/Total501c3OrgCnt02
IRS990ScheduleF/TotalSpentAmt0100000
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt037628
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt06000
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt05500
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt026128
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt058945
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt02300
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt02300
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0COCKTAILS FOR T
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0BIKE THE BASIN
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt01770
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageOtherEventsAmt0999
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt02769
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt062091
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt054762
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt081151
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0198004
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt056091
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt049262
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt055023
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0160376
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0101431
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt0200
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt0200
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt08151
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt021320
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt07107
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt06062
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt05
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt020615
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt011741
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt032356
IRS990ScheduleI/GrantRecordsMaintainedInd0false
IRS990ScheduleI/RecipientTable/CashGrantAmt048275
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501C3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0FUND RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0TRUSTEES OF THE UNIVERSITY OF PA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine2Txt0PENN ORPHAN DISEASE CENTER
IRS990ScheduleI/RecipientTable/RecipientEIN0231352685
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0125 SOUTH 31ST STREET
IRS990ScheduleI/RecipientTable/USAddress/CityNm0PHILADELPHIA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0PA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd019104
IRS990ScheduleI/Total501c3OrgCnt01
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt042730
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt113562
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd0true
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd1true
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd1false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt0CONFERENCE & FUNDRAISING EXPENSES
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt1CONFERENCE & FUNDRAISING EXPENSES
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd0X
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd1X
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt042730
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt126159
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm0KRISTIN SMEDLEY
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm1MICHAEL SMEDLEY
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt0PRESIDENT
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt1VICE PRESIDENT
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd1false
IRS990ScheduleL/TotalBalanceDueAmt056292
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION PROMOTES THE TREATMENT AND CURE OF DEGENERATIVE DISEASES THAT AFFECT THE RETINA AND CAUSE BLINDNESS. THE FOUNDATION SOLICITES DONATIONS AND CONTRIBUTIONS THROUGH VARIOUS FUNDRAISING EVENTS IN ORDER TO PROVIDE GRANTS TO FURTHER THE RESEARCH INTO THERAPIES FOR THESE DISEASES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE FOUNDATION MADE CONTRIBUTIONS TO ANOTHER ORGANIZATION TO FURTHER THE RESEARCH INTO THERAPIES FOR THE TREATMENT AND CURE OF DEGENERATIVE DISEASES THAT AFFECT THE RETINA AND CAUSE BLINDNESS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2KRISTIN SMEDLEY MICHAEL SMEDLEY PRESIDENT V PRESIDENT FAMILY RELATIONSHIP BOB SMEDLEY MICHAEL SMEDLEY DIRECTOR V PRESIDENT FAMILY RELATIONSHIP BOB SMEDLEY KRISTIN SMEDLEY DIRECTOR PRESIDENT FAMILY RELATIONSHIP SUSAN SCHNEIDER KRISTIN SMEDLEY DIRECTOR PRESIDENT FAMILY RELATIONSHIP SUSAN SCHNEIDER MICHAEL SMEDLEY DIRECTOR V PRESIDENT FAMILY RELATIONSHIP VYTO KAB KRISTIN SMEDLEY DIRECTOR PRESIDENT FAMILY RELATIONSHIP
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3REVIEW OF THE FORM 990 WILL BE PERFORMED BY THE TREASURER PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4ALL REIMBURSEMENTS ARE MONITORED UNDER CONFLICT OF INTEREST POLICY
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5DOCUMENTS WILL BE MADE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 2, PART III, LINE 4D
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PAGE 6, PART VI, LINE 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0PA
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0704437

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$748,773
Liabilities
$56,292
Net assets
$692,481
Revenue
$205,796
Expenses
$178,939
Net income
$26,857
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.38$0.00$7.38$2.42$1.17$1.25
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.12$0.00$6.12$1.59$1.86$0.28
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.40$0.00$6.40$1.92$1.77$0.15
2021Detailed filing. Detailed filing data is available for this year.$6.85$0.60$6.25$1.40$2.20$0.81
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.22$0.16$7.06$0.59$1.52$0.93
2019Detailed filing. Detailed filing data is available for this year.$8.01$0.02$7.98$0.90$1.67$0.77
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.00$0.24$8.76$1.65$0.82$0.83
2017Detailed filing. Detailed filing data is available for this year.$8.05$0.12$7.93$1.82$0.82$1.00
2016Detailed filing. Detailed filing data is available for this year.$7.49$0.56$6.92$2.06$1.79$0.27
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.04$0.39$6.66$1.99$0.59$1.40
2014Detailed filing. Detailed filing data is available for this year.$5.29$0.03$5.25$5.33$0.08$5.25