Civic Intelligence

Huntington Study Group Ltd.

990 • Fiscal year 2024 • EIN 45-5557987

Jan 01, 2024 to Dec 31, 2024 • Filed on Sep 17, 2025

Organization ProfileWWW.HUNTINGTONSTUDYGROUP.ORG

View Organization Page

95 Allens Creek Bldg 1 132Rochester, NY 14618

(800) 487-7671

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

54th percentile

0.15x

Higher debt load relative to assets than 54% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

60th percentile

0.24x

Higher debt load relative to revenue than 60% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

45th percentile

2.5%

Higher net margin than 45% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

86th percentile

$282,263

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 5.6% of source-year revenue.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Asset Growth

29th percentile

-1.4%

Faster asset growth than 29% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

13th percentile

-21%

Faster revenue growth than 13% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets54th percentile

Assets

Down

$8,061,578

Down $111,604 (-1.4%) from 2023

Net Assets

Up

$6,828,844

Up $555,012 (+8.8%) from 2023

Liabilities

Down

$1,232,734

Down $666,616 (-35%) from 2023

Revenue And Expenses
Liabilities / Revenue60th percentileNet Margin45th percentile

Revenue

Down

$5,041,772

Down $1,318,108 (-21%) from 2023

Expenses

Down

$4,916,902

Down $1,647,183 (-25%) from 2023

Net Income

Up

$124,870

Up $329,075 (+161%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth29th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0-$5.0MAssets 2012: $122,118Liabilities 2012: $139,106Net Assets 2012: -$16,9882012Assets 2013: $1,388,134Liabilities 2013: $411,332Net Assets 2013: $976,8022013Assets 2014: $2,418,412Liabilities 2014: $945,756Net Assets 2014: $1,472,6562014Assets 2015: $4,189,297Liabilities 2015: $1,573,697Net Assets 2015: $2,615,6002015Assets 2016: $5,486,806Liabilities 2016: $2,416,198Net Assets 2016: $3,070,6082016Assets 2017: $5,438,462Liabilities 2017: $2,210,913Net Assets 2017: $3,227,5492017Assets 2018: $5,832,539Liabilities 2018: $2,562,999Net Assets 2018: $3,269,5402018Assets 2019: $7,722,690Liabilities 2019: $3,859,881Net Assets 2019: $3,862,8092019Assets 2020: $7,657,910Liabilities 2020: $2,461,013Net Assets 2020: $5,196,8972020Assets 2021: $10,251,900Liabilities 2021: $3,736,123Net Assets 2021: $6,515,7772021Assets 2022: $8,704,616Liabilities 2022: $2,783,750Net Assets 2022: $5,920,8662022Assets 2023: $8,173,182Liabilities 2023: $1,899,350Net Assets 2023: $6,273,8322023Assets 2024: $8,061,578Liabilities 2024: $1,232,734Net Assets 2024: $6,828,8442024

Highlighted filing

2024

Assets$8,061,578
Liabilities$1,232,734
Net Assets$6,828,844
Open 2024 Filing

Operations Trend

Revenue Growth13th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MRevenue 2012: $56,045Expenses 2012: $73,033Net Income 2012: -$16,9882012Revenue 2013: $3,735,270Expenses 2013: $2,741,480Net Income 2013: $993,7902013Revenue 2014: $6,987,372Expenses 2014: $6,491,518Net Income 2014: $495,8542014Revenue 2015: $7,564,038Expenses 2015: $6,375,601Net Income 2015: $1,188,4372015Revenue 2016: $9,461,750Expenses 2016: $9,087,801Net Income 2016: $373,9492016Revenue 2017: $8,183,725Expenses 2017: $8,176,383Net Income 2017: $7,3422017Revenue 2018: $9,752,778Expenses 2018: $9,546,664Net Income 2018: $206,1142018Revenue 2019: $13,110,561Expenses 2019: $12,788,592Net Income 2019: $321,9692019Revenue 2020: $11,167,411Expenses 2020: $10,180,312Net Income 2020: $987,0992020Revenue 2021: $9,967,496Expenses 2021: $9,091,521Net Income 2021: $875,9752021Revenue 2022: $6,746,002Expenses 2022: $6,756,731Net Income 2022: -$10,7292022Revenue 2023: $6,359,880Expenses 2023: $6,564,085Net Income 2023: -$204,2052023Revenue 2024: $5,041,772Expenses 2024: $4,916,902Net Income 2024: $124,8702024

Highlighted filing

2024

Revenue$5,041,772
Expenses$4,916,902
Net Income$124,870
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Sep 17, 2025
Return Version
2024v5.2
Gross Receipts
$5,041,772
Mission and Program Overview

Mission

The huntington study group (hsg) is dedicated to the mission: to seek treatments that make a difference to those affected by huntington disease. Description continued on schedule o.specifically, the hsg focuses on the conception, conduct, analyses, scientific reporting, and communication of clinical research, including treatment and observational trials, aimed at relieving the burdens and slowing the progression of hd. The hsg 1) identifies and prioritizes initiatives that can have an impact on patient care; 2) advances knowledge about the cause, disease progression and treatment of hd and related disorders; and 3) collaborates with government, foundations, industry, and the hd community to effectively plan, execute and disseminate research and new knowledge related to hd.

See schedule o for organization's mission and most significant activities.the organization aims to advance knowledge about the cause(s), disease progression and treatment of huntington disease and related disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$5,717,150$6,332,571▲ $615,421
Accounts Receivable$935,116$512,154▼ $422,962
Prepaid Expenses and Deferred Charges$90,111$63,324▼ $26,787
Cash and Non-Interest-Bearing Accounts$1,010,052$47,928▼ $962,124
Land, Buildings, and Equipment, Net$25,103$32,893▲ $7,790
Total Assets$8,173,182$8,061,578▼ $111,604
Other Assets Total$395,650$1,072,708▲ $677,058
Liabilities
Deferred Revenue$806,525$854,715▲ $48,190
Accounts Payable and Accrued Expenses$1,092,825$378,019▼ $714,806
Total Liabilities$1,899,350$1,232,734▼ $666,616
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$6,273,832$6,828,844▲ $555,012
Total Net Assets Fund Balance$6,273,832$6,828,844▲ $555,012
Total Liabilities and Net Assets / Fund Balance$8,173,182$8,061,578▼ $111,604

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$32,893$59,536$92,429
Other Assets Org$1,072,708--
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Shari Kinel JdCEO/secretary (until 7/3/24)FT$252,692$29,571$282,263
Anne Van DusenCOOFT$259,537$20,080$279,617
Michael LentineCFOFT$226,668$9,077$235,745
Daniel ClaassenCEO (begin 9/1/24)FT$155,934$5,700$161,634
Melissa AustinDir, Clinical OperationsFT$132,625$27,848$160,473
Elizabeth De BlieckSr. Dir, Project ManagementFT$146,924$7,268$154,192
Kelley MorganSr. Project ManagerFT$121,595$18,739$140,334
Elise Kayson-rubinVP of Clinical OperationsFT$125,483$11,231$136,714

Board Members and Trustees

NameTitle
Peter Schmidt PhdChair
William HohVice Chair
Arvind SreedharanBoard Member
Joni SteinmanTreasurer (until Nov. 2024)

Highest Paid Contractors

ContractorServicesLocationCompensation
University Of Rochester ChetcctcProject & Data Management265 CRITTENDEN BLVD, Rochester, NY 14642$623,452
Cincinnati Hyatt OperatingConference Services151 W FIFTH ST, Cincinnati, OH 45202$310,791
University Of TexasScientific LeadershipPO BOX 301418, Dallas, TX 75303$155,250
Hereditary Neurological Disease CentreSite Fees9300 E 29TH ST NORTH SUITE 350, Wichita, KS 67226$145,403
Upstream VisionPlatform Fees2715 BRANSFORD AVENUE, Nashville, TN 37204$124,558
Revenue and Support

Revenue Composition

Contributions and Grants
$347,233
Program Service Revenue
$4,418,045
Investment Income
$220,465
Other Revenue
$56,029
All Other Contributions
$347,233
Change in Net Assets
$124,870

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,041,772
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$430,143
Total Revenue per Audited Statements
$5,471,915
Total Revenue per Form 990
$5,041,772
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,315,216
Salaries, Compensation, and Employee Benefits$1,601,686
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages-$687,517-$687,517
Current Officers, Directors, Trustees, and Key Employees-$679,642-$679,642
Information Technology-$278,153-$278,153
Fees for Services Other$179,588$90,095-$269,683
Payroll Taxes-$227,830-$227,830
Insurance-$147,084-$147,084
Fees for Services Legal-$57,443-$57,443
Advertising$39,685--$39,685
Other Expenses$562,782$32,792-$32,792
Occupancy-$29,400-$29,400
Office Expenses-$25,110-$25,110
Fees for Services Accounting-$16,000-$16,000
Depreciation Depletion-$10,004-$10,004
Other Employee Benefits-$6,697-$6,697
Conferences and Meetings-$2,043-$2,043
All Other Expenses$2,499$-370,268-$-367,769
Total Functional Expenses$2,955,272$1,961,630$0$4,916,902

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$4,916,902
Total Expenses per Audited Statements$4,916,902
Total Expenses per Form 990$4,916,902
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 is reviewed internally by the executive director and director of finance and then shared with the board before filing.”

Form 990, Part VI, Section B, Line 12C

“Each director, officer, committee member or employee shall sign annually a statement that confirms that they have received the conflict of interest policy, understands the policy, has agreed to comply with the policy and understands that the organization is a tax exempt entity and that in order to maintain its exemption it must engage primarily in activities that accomplish one or more of its tax exempt purposes. Periodic reviews are conducted to ensure compliance with this policy.”

Form 990, Part VI, Section B, Line 15

“The amount of compensation was based on a decision to offer a stipend to board members for the significant amount of time and commitment spent by the board members on an annual basis. The executive director has determined that the stipends are deemed to be reasonable in relation to the amount of time spent by the board of directors.”

Form 990, Part VI, Section C, Line 19

“All documents are available upon request”

Filing and Contact Details

Filer

Filer Name
Huntington Study Group Ltd
EIN
45-5557987
Phone
8004877671
Address
95 ALLENS CREEK BLDG 1 132, ROCHESTER, NY 14618

Signing Officer

Name
Michael Lentine
Title
CFO
Phone
8004877671
Signed
2025-09-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Daniel Claassen Md Ms
Formed
2012
Legal Domicile
Ny
Voting Board Members
4
Independent Board Members
3
Employees
36
Volunteers
211

Preparer

Firm
Efpr Group Cpas Pllc
Address
100 SOUTH CLINTON AVE SUITE 1500, ROCHESTER, NY 14604
Preparer
Christopher Johnston
Phone
5854278900
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“No change from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is exempt from federal income tax under section 501(c)(3) of the internal revenue code. However, income from certain activities not directly related to the organization's tax-exempt purpose is subject to taxation as unrelated business income. In accordance with asc 740-10-50, the organization recognizes tax benefits from uncertain tax positions only if it is more likely than not that the tax position will be sustained on examination by the taxing authorities. Management believes that the organization is currently operating in compliance with the applicable requirements of the internal revenue code. Therefore, no liability for unrecognized tax benefits has been included on the organization's financial statements. The exempt organization's informational returns are subject to audit by various taxing authorities.”

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IRS990/Desc0THE HSG IS A NETWORK OF CLINICIANS, RESEARCH INVESTIGATORS, SCIENTISTS AND HUNTINGTON DISEASE (HD) EXPERTS, LARGELY FROM ACADEMIC/RESEARCH INSTITUTIONS WORLDWIDE WORKING TOGETHER WITH A VARIETY OF SPONSORS (GOVERNMENT, INDUSTRY, FOUNDATION) TO DEVELOP TREATMENTS THAT MAKE A DIFFERENCE FOR HD PATIENTS AND FAMILIES. WE PARTNER WITH HD CARE AND ADVOCACY GROUPS IN ORDER TO FULFILL OUR MISSION MOST EFFECTIVELY.DESCRIPTION CONTINUED ON SCHEDULE O.THE HSG HAS CARRIED OUT COOPERATIVE THERAPEUTIC RESEARCH SINCE 1993, BEGINNING WITH THE DEVELOPMENT OF THE UNIFIED HUNTINGTON'S DISEASE RATING SCALE (UHDRS) AND LONGITUDINAL DATABASE. THE HSG, THROUGH CLINICAL TRIALS, HAS BROUGHT THE ONLY TWO FDA-APPROVED HD TREATMENTS (TETRABENAZINE AND DUTETRABENAZINE) TO MARKET. WE CONTINUE TO SERVE OUR CONSTITUENTS THROUGH CLINICAL RESEARCH STUDIES. THE HSG HAS PARTNERED WITH PHARMACEUTICAL COMPANIES, PRIVATE FOUNDATIONS, THE NATIONAL INSTITUTES OF HEALTH (NIH), AND THE FDA ORPHAN DRUG PRODUCTS DIVISIONS IN DEVELOPING AND CONDUCTING TRIALS AND OBSERVATIONAL STUDIES.THE HSG IS COMMITTED TO 1) ADVANCE KNOWLEDGE ABOUT THE CAUSE, DISEASE PROGRESSION AND TREATMENT OF HD AND RELATED DISORDERS; 2) DEVELOPMENT, ACCESS TO, AND MAINTENANCE OF STUDY DATABASES; 3) FULL DISCLOSURE OF RESEARCH RESULTS IN SCIENTIFIC JOURNALS AFTER INDEPENDENT EXPERT REVIEW; 4) PROTECTION AGAINST CONFLICT OF INTEREST; 5) UNIFORM CONTRACTING AND SUB-CONTRACTING ACROSS ALL RESEARCH SITES; AND 6) DEMOCRATIC GOVERNANCE OF ITS ORGANIZATIONS AND ACTIVITIES.
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt55700
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt69077
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt720080
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt87268
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt911231
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1027848
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1118739
IRS990/Form990PartVIISectionAGrp/PersonNm0JONI STEINMAN
IRS990/Form990PartVIISectionAGrp/PersonNm1SHARI KINEL JD
IRS990/Form990PartVIISectionAGrp/PersonNm2PETER SCHMIDT PHD
IRS990/Form990PartVIISectionAGrp/PersonNm3WILLIAM HOH
IRS990/Form990PartVIISectionAGrp/PersonNm4ARVIND SREEDHARAN
IRS990/Form990PartVIISectionAGrp/PersonNm5DANIEL CLAASSEN
IRS990/Form990PartVIISectionAGrp/PersonNm6MICHAEL LENTINE
IRS990/Form990PartVIISectionAGrp/PersonNm7ANNE VAN DUSEN
IRS990/Form990PartVIISectionAGrp/PersonNm8ELIZABETH DE BLIECK
IRS990/Form990PartVIISectionAGrp/PersonNm9ELISE KAYSON-RUBIN
IRS990/Form990PartVIISectionAGrp/PersonNm10MELISSA AUSTIN
IRS990/Form990PartVIISectionAGrp/PersonNm11KELLEY MORGAN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1252692
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt5155934
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt6226668
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt7259537
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt8146924
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt9125483
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10132625
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt11121595
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/TitleTxt0TREASURER (UNTIL NOV. 2024)
IRS990/Form990PartVIISectionAGrp/TitleTxt1CEO/SECRETARY (UNTIL 7/3/24)
IRS990/Form990PartVIISectionAGrp/TitleTxt2CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5CEO (BEGIN 9/1/24)
IRS990/Form990PartVIISectionAGrp/TitleTxt6CFO
IRS990/Form990PartVIISectionAGrp/TitleTxt7COO
IRS990/Form990PartVIISectionAGrp/TitleTxt8SR. DIR, PROJECT MANAGEMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt9VP OF CLINICAL OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIR, CLINICAL OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt11SR. PROJECT MANAGER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02012
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt04
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt05041772
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt03
IRS990/IndivRcvdGreaterThan100KCnt013
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0278153
IRS990/InformationTechnologyGrp/TotalAmt0278153
IRS990/InsuranceGrp/ManagementAndGeneralAmt0147084
IRS990/InsuranceGrp/TotalAmt0147084
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt0220465
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0220465
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt05717150
IRS990/InvestmentsPubTradedSecGrp/EOYAmt06332571
IRS990/IRPDocumentCnt018
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt059536
IRS990/LandBldgEquipBasisNetGrp/BOYAmt025103
IRS990/LandBldgEquipBasisNetGrp/EOYAmt032893
IRS990/LandBldgEquipCostOrOtherBssAmt092429
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE HUNTINGTON STUDY GROUP (HSG) IS DEDICATED TO THE MISSION: TO SEEK TREATMENTS THAT MAKE A DIFFERENCE TO THOSE AFFECTED BY HUNTINGTON DISEASE. DESCRIPTION CONTINUED ON SCHEDULE O.SPECIFICALLY, THE HSG FOCUSES ON THE CONCEPTION, CONDUCT, ANALYSES, SCIENTIFIC REPORTING, AND COMMUNICATION OF CLINICAL RESEARCH, INCLUDING TREATMENT AND OBSERVATIONAL TRIALS, AIMED AT RELIEVING THE BURDENS AND SLOWING THE PROGRESSION OF HD. THE HSG 1) IDENTIFIES AND PRIORITIZES INITIATIVES THAT CAN HAVE AN IMPACT ON PATIENT CARE; 2) ADVANCES KNOWLEDGE ABOUT THE CAUSE, DISEASE PROGRESSION AND TREATMENT OF HD AND RELATED DISORDERS; AND 3) COLLABORATES WITH GOVERNMENT, FOUNDATIONS, INDUSTRY, AND THE HD COMMUNITY TO EFFECTIVELY PLAN, EXECUTE AND DISSEMINATE RESEARCH AND NEW KNOWLEDGE RELATED TO HD.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt06273832
IRS990/NetAssetsOrFundBalancesEOYAmt06828844
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0430143
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt06273832
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt06828844
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt029400
IRS990/OccupancyGrp/TotalAmt029400
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt025110
IRS990/OfficeExpensesGrp/TotalAmt025110
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0395650
IRS990/OtherAssetsTotalGrp/EOYAmt01072708
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt06697
IRS990/OtherEmployeeBenefitsGrp/TotalAmt06697
IRS990/OtherExpensesGrp/Desc0SITE EXPENSES
IRS990/OtherExpensesGrp/Desc1ANNUAL MEETING
IRS990/OtherExpensesGrp/Desc2LICENSES AND FEES
IRS990/OtherExpensesGrp/Desc3TELEPHONE
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt042088
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt132792
IRS990/OtherExpensesGrp/ProgramServicesAmt02170718
IRS990/OtherExpensesGrp/ProgramServicesAmt1562782
IRS990/OtherExpensesGrp/TotalAmt02170718
IRS990/OtherExpensesGrp/TotalAmt1562782
IRS990/OtherExpensesGrp/TotalAmt242088
IRS990/OtherExpensesGrp/TotalAmt332792
IRS990/OtherRevenueMiscGrp/BusinessCd0541700
IRS990/OtherRevenueMiscGrp/Desc0OTHER REVENUE
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt056029
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt056029
IRS990/OtherRevenueTotalAmt056029
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0687517
IRS990/OtherSalariesAndWagesGrp/TotalAmt0687517
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0227830
IRS990/PayrollTaxesGrp/TotalAmt0227830
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt090111
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt063324
IRS990/PrincipalOfficerNm0DANIEL CLAASSEN MD MS
IRS990/PriorPeriodAdjustmentsAmt0-1
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541700
IRS990/ProgramServiceRevenueGrp/BusinessCd1541700
IRS990/ProgramServiceRevenueGrp/BusinessCd2541700
IRS990/ProgramServiceRevenueGrp/BusinessCd3541700
IRS990/ProgramServiceRevenueGrp/Desc0PROGRAM SERVICE REVENU
IRS990/ProgramServiceRevenueGrp/Desc1LICENSE FEES
IRS990/ProgramServiceRevenueGrp/Desc2ANNUAL MEETING REVENUE
IRS990/ProgramServiceRevenueGrp/Desc3MANAGEMENT FEE
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt03882430
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt1288836
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt2126779
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt3120000
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt03882430
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt1288836
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt2126779
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt3120000
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0507661
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt0149088
IRS990/PYOtherExpensesAmt04790022
IRS990/PYOtherRevenueAmt052205
IRS990/PYProgramServiceRevenueAmt05650926
IRS990/PYRevenuesLessExpensesAmt0-204205
IRS990/PYSalariesCompEmpBnftPaidAmt01774063
IRS990/PYTotalExpensesAmt06564085
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt06359880
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0124870
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd01
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd01
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt04694539
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0347233
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0507661
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0343063
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0422109
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0267472
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01887538
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt0220465
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt0149088
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt0111436
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt0128373
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt072054
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0681416
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt04418045
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt05650926
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt06190676
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt09308123
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt010738229
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt036305999
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt0220465
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt0149088
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt0111436
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt0128373
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt072054
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0681416
IRS990ScheduleA/InvestmentIncomeCYPct00.01740
IRS990ScheduleA/InvestmentIncomePYPct00.01120
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt056029
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt052205
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt037035
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt0108891
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus4YearsAmt089656
IRS990ScheduleA/OtherIncome509Grp/TotalAmt0343816
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.97390
IRS990ScheduleA/PublicSupportPY509Pct00.98150
IRS990ScheduleA/PublicSupportTotal509Amt038193537
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt04765278
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt06158587
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt06533739
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt09730232
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt011005701
IRS990ScheduleA/Total509Grp/TotalAmt038193537
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt05041772
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt06359880
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt06682210
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt09967496
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt011167411

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Filings

Displayed year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$8,061,578
Liabilities
$1,232,734
Net assets
$6,828,844
Revenue
$5,041,772
Expenses
$4,916,902
Net income
$124,870
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.06$1.23$6.83$5.04$4.92$0.12
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.17$1.90$6.27$6.36$6.56$0.20
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.70$2.78$5.92$6.75$6.76$0.01
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.3$3.74$6.52$9.97$9.09$0.88
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.66$2.46$5.20$11.2$10.2$0.99
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.72$3.86$3.86$13.1$12.8$0.32
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.83$2.56$3.27$9.75$9.55$0.21
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.44$2.21$3.23$8.18$8.18$0.01
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.49$2.42$3.07$9.46$9.09$0.37
2015Detailed filing. Detailed filing data is available for this year.$4.19$1.57$2.62$7.56$6.38$1.19
2014XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.42$0.95$1.47$6.99$6.49$0.50
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.39$0.41$0.98$3.74$2.74$0.99
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.12$0.14$0.02$0.06$0.07$0.02