Civic Intelligence

Ellie White Foundation for Rare Genetic Disorders Inc.

990EZ • Fiscal year 2019 • EIN 45-5517280

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 05, 2020

Organization Profilewww.elliewhitefoundation.org
6359 S Netherland CircleCentennial, CO 80016-1323

(303) 642-1608

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Liabilities / Revenue

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Net Margin

6th percentile

-79%

Higher net margin than 6% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Top Officer Pay

77th percentile

$0

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Asset Growth

10th percentile

-46%

Faster asset growth than 10% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

33rd percentile

-11%

Faster revenue growth than 33% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets57th percentile

Assets

Down

$54,757

Down $46,369 (-46%) from 2018

Net Assets

Down

$54,757

Down $46,369 (-46%) from 2018

Liabilities

Flat

$0

Flat from 2018

Revenue And Expenses
Liabilities / Revenue57th percentileNet Margin6th percentile

Revenue

Down

$59,047

Down $7,143 (-11%) from 2018

Expenses

Up

$105,416

Up $103,375 (+5065%) from 2018

Net Income

Down

-$46,369

Down $110,518 (-172%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth10th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$150K$100K$50K$0Assets 2015: $44,439Liabilities 2015: $02015Assets 2016: $35,629Net Assets 2016: $35,6292016Assets 2017: $36,977Liabilities 2017: $0Net Assets 2017: $36,9772017Assets 2018: $101,126Liabilities 2018: $0Net Assets 2018: $101,1262018Assets 2019: $54,757Liabilities 2019: $0Net Assets 2019: $54,7572019Assets 2020: $72,598Liabilities 2020: $0Net Assets 2020: $72,5982020Assets 2021: $7,713Liabilities 2021: $0Net Assets 2021: $7,7132021Assets 2022: $39,052Liabilities 2022: $0Net Assets 2022: $39,0522022

Highlighted filing

2019

Assets$54,757
Liabilities$0
Net Assets$54,757
Open 2019 Filing

Operations Trend

Revenue Growth33rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$150K$100K$50K$0-$50K-$100KRevenue 2015: $82,176Expenses 2015: $65,070Net Income 2015: $17,1062015Revenue 2016: $78,473Expenses 2016: $87,283Net Income 2016: -$8,8102016Revenue 2017: $63,607Expenses 2017: $62,259Net Income 2017: $1,3482017Revenue 2018: $66,190Expenses 2018: $2,041Net Income 2018: $64,1492018Revenue 2019: $59,047Expenses 2019: $105,416Net Income 2019: -$46,3692019Revenue 2020: $19,272Expenses 2020: $1,431Net Income 2020: $17,8412020Revenue 2021: $37,294Expenses 2021: $102,179Net Income 2021: -$64,8852021Revenue 2022: $33,006Expenses 2022: $1,667Net Income 2022: $31,3392022

Highlighted filing

2019

Revenue$59,047
Expenses$105,416
Net Income-$46,369
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 5, 2020
Return Version
2019v5.1
Gross Receipts
$72,913
Mission and Program Overview

Mission

The mission of the Ellie White Foundation for Rare Genetic Disorders is to fund state-of-the-art research to develop a cure for Wolfram Syndrome and other rare genetic disorders.

Program Services

DescriptionGrantsExpenses
A grant is provided to Washington University in St. Louis Missouri. Washington University has a research team headed by Dr. Fumihiko Urano. The ultimate goal of Dr. Urano's research is to find a cure for Wolfram Syndrome, a genetic form of Diabetes (Type 1 Diabetes). For more please see http://wolframsyndrome.dom.wustl.edu/dr-uranos-labNote Grant was provided in early 2019$100,000$5,416
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Irene E WhitePresident-$0--
Barbara NoelTreasurer-$0--
Moira HagenSecretaryPT$0--
Fundraising, Events, and Gaming

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Birthday 5K Walk$18,321$18,321-$18,321
Wilmington Dinner$14,810$11,913-$11,913
Total Events$35,896$32,999-$32,999
Filing and Contact Details

Filer

Filer Name
Ellie White Foundation
EIN
45-5517280
Phone
3036421608
Address
6359 S Netherland Circle, Centennial, CO 80016-1323

Signing Officer

Name
Irene E White
Title
President
Phone
3036421608
Signed
2020-11-05
Discuss with paid preparer
Yes

Preparer

Firm
McGaughey & Associates PC
Address
7000 E Belleview Ave Suite 250, Greenwood Village, CO 80111
Preparer
G Lance McGaughey
Phone
7207213405
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid

“Activity Classification: Lab Research. Grantee Name: Washington University. Grantee Address: One Brookings Drive St. Louis, MO 83130. Grantee Relationship: None. Date of Gift: 01/24/19. Amount Given: 100,000.”

Form 990-EZ, Part I, Line 16 - Other Expenses

“Description: Office supplies and Bank Fees. Amount: 772. Description: Website and Domain. Amount: 1,145. Description: P.O. Box. Amount: 93. Description: Constant Contacts. Amount: 725. Description: Car Rental. Amount: 976. Description: Miscellaneous expenses. Amount: 1,705. Total to Form 990-EZ, line 16: 5,416.”

Raw XML Appendix165 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0Irene E White
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1Barbara Noel
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2Moira Hagen
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0President
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1Treasurer
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2Secretary
IRS990EZ/OperateHospitalInd00
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IRS990EZ/OrganizationDissolvedEtcInd00
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IRS990EZ/OtherChangesInNetAssetsAmt00
IRS990EZ/OtherExpensesTotalAmt05416
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IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd00
IRS990EZ/PrimaryExemptPurposeTxt0The mission of the Ellie White Foundation for Rare Genetic Disorders is to fund state-of-the-art research to develop a cure for Wolfram Syndrome and other rare genetic disorders.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0A grant is provided to Washington University in St. Louis Missouri. Washington University has a research team headed by Dr. Fumihiko Urano. The ultimate goal of Dr. Urano's research is to find a cure for Wolfram Syndrome, a genetic form of Diabetes (Type 1 Diabetes). For more please see http://wolframsyndrome.dom.wustl.edu/dr-uranos-labNote Grant was provided in early 2019
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IRS990EZ/ProhibitedTaxShelterTransInd00
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IRS990EZ/SpecialEventsNetIncomeLossAmt019133
IRS990EZ/SubjectToProxyTaxInd00
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IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd00
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt039914
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt063462
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt068081
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt090716
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt082176
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IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt039914
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt082176
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IRS990ScheduleA/TotalSupportAmt0344349
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt02765
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt011913
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt02765
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IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt032999
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Activity Classification: Lab Research. Grantee Name: Washington University. Grantee Address: One Brookings Drive St. Louis, MO 83130. Grantee Relationship: None. Date of Gift: 01/24/19. Amount Given: 100,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Description: Office supplies and Bank Fees. Amount: 772. Description: Website and Domain. Amount: 1,145. Description: P.O. Box. Amount: 93. Description: Constant Contacts. Amount: 725. Description: Car Rental. Amount: 976. Description: Miscellaneous expenses. Amount: 1,705. Total to Form 990-EZ, line 16: 5,416.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990-EZ, Part I, Line 16 - Other Expenses
TransferPrsnlBnftContractsDecl/DeclarationDesc0The organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract.
ReturnHeader/BuildTS02021-04-22 16:20:28Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0Irene E White
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/PhoneNum03036421608
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-11-05
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Ellie White Foundation
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0For Rare Genetic Disorders
ReturnHeader/Filer/BusinessNameControlTxt0ELLI
ReturnHeader/Filer/EIN0455517280
ReturnHeader/Filer/PhoneNum03036421608
ReturnHeader/Filer/USAddress/AddressLine1Txt06359 S Netherland Circle
ReturnHeader/Filer/USAddress/CityNm0Centennial
ReturnHeader/Filer/USAddress/StateAbbreviationCd0CO
ReturnHeader/Filer/USAddress/ZIPCd0800161323
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ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt096.88.73.29
ReturnHeader/FilingSecurityInformation/IPDt02020-11-05
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0MS
ReturnHeader/FilingSecurityInformation/IPTm011:52:32
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0813098325
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0McGaughey & Associates PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt07000 E Belleview Ave Suite 250
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Greenwood Village
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd080111
ReturnHeader/PreparerPersonGrp/PhoneNum07207213405
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0G Lance McGaughey
ReturnHeader/ReturnTs02020-11-13T11:28:46-06:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$54,757
Liabilities
$0
Net assets
$54,757
Revenue
$59,047
Expenses
$105,416
Net income
-$46,369
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2022Detailed filing. Detailed filing data is available for this year.$0.39$0.00$0.39$0.33$0.02$0.31
2021Detailed filing. Detailed filing data is available for this year.$0.08$0.00$0.08$0.37$1.02$0.65
2020Detailed filing. Detailed filing data is available for this year.$0.73$0.00$0.73$0.19$0.01$0.18
2019Detailed filing. Detailed filing data is available for this year.$0.55$0.00$0.55$0.59$1.05$0.46
2018Detailed filing. Detailed filing data is available for this year.$1.01$0.00$1.01$0.66$0.02$0.64
2017Detailed filing. Detailed filing data is available for this year.$0.37$0.00$0.37$0.64$0.62$0.01
2016Detailed filing. Detailed filing data is available for this year.$0.36$0.36$0.78$0.87$0.09
2015Summary only. Only limited summary data is available for this year.$0.44$0.00$0.82$0.65$0.17