Ellie White Foundation for Rare Genetic Disorders Inc.

990EZ • Fiscal year 2016 • EIN 45-5517280

Jan 01, 2016 to Dec 31, 2016 • Filed on Feb 28, 2017

Organization Profile WWW.ELLIEWHITEFOUNDATION.ORG

6359 S Netherland CircleCentennial, CO 80016-1323

(303) 598-7633

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2016

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2016

-11%

Higher net margin than 22% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

-20%

Faster asset growth than 21% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

-4.5%

Faster revenue growth than 41% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Balance Sheet

Liabilities / AssetsScore unavailable

Assets

Down

$35,629

Down $8,810 (-20%) from 2015

Net Assets

$35,629

No earlier filing loaded for comparison.

Liabilities

No earlier filing loaded for comparison.

Revenue And Expenses

Liabilities / RevenueScore unavailable Net Margin22nd percentile

Revenue

Down

$78,473

Down $3,703 (-4.5%) from 2015

Expenses

$87,283

Up $22,213 (+34%) from 2015

Net Income

Down

-$8,810

Down $25,916 (-152%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth21st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

Highlighted filing

2016

Assets$35,629

Liabilities-

Net Assets$35,629

Open 2016 Filing

Operations Trend

Revenue Growth41st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

Highlighted filing

2016

Revenue$78,473

Expenses$87,283

Net Income-$8,810

Open 2016 Filing

Jump To

Filing Snapshot

Filing Period: Jan 1, 2016 to Dec 31, 2016
Signed: Feb 28, 2017
Return Version: 2016v3.0
Gross Receipts: $103,622

Mission and Program Overview

Mission

The mission of the Ellie White Foundation for Rare Genetic Disorders is to fund state-of-the-art research to develop a cure for Wolfram Syndrome and other rare genetic disorders.

The mission of the ellie white foundation for rare genetic disorders is to fund state-of-the art research to develop a cure for wolfram syndrome and other rare genetic disorders.

Program Services

Description	Grants	Expenses
FROM FUND RAISING EFFORTS A GRANT IS PROVIDED TO WASHINGTON UNIVERSITY IN ST. LOUIS MISSOURI. WASHINGTON UNIVERSITY HAS A RESEARCH TEAM HEADED BY DR. FUMIHIKO URANO. THE ULTIMATE GOAL OF DR. URANO'S RESEARCH IS TO FIND A CURE FOR WOLFRAM SYNDROME, A GENETIC FORM OF DIABETES, AND TYPE 1 DIABETES. FOR MORE PLEASE SEE HTTP://WOLFRAMSYNDROME.DOM.WUSTL.EDU/DR-URANOS-LAB/	$85,000	$87,283

Compensation and Service Providers

Top Officer Pay75th percentile

Employees

Name	Title	Full / Part Time	Base	Other	Total
IRENE E WHITE	President	-	$0	-	-
BARBARA NOEL	Treasurer	-	$0	-	-
MOIRA HAGEN	Secretary	PT	$0	-	-

Filing and Contact Details

Filer

Filer Name: Ellie White Foundation
EIN: 45-5517280
Phone: 3035987633
Address: 6359 S NETHERLAND CIRCLE, CENTENNIAL, CO 80016-1323

Signing Officer

Name: Irene E White
Title: President
Phone: 3036421608
Signed: 2017-02-28

Preparer

Firm: Mcgaughey Amfahr & Associates Pc
Address: 9250 E COSTILLA AVE STE 450, GREENWOOD VILLAGE, CO 80112
Preparer: G Lance Mcgaughey
Phone: 3037923020

Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 10

“Washington university one brookings drive st. Louis, mo 63130 85,000 0 0”

Form 990-ez, Part I, Line 16

“Expenses office expenses 2,283 total 2,283”

Form 990-ez, Part III

“The mission of the ellie white foundation for rare genetic disorders is to fund state-of-the art research to develop a cure for wolfram syndrome and other rare genetic disorders.”

Form 990-ez, Part III, Line 31

“From fund raising efforts a grant is provided to washington university in st. Louis missouri. Washington university has a research team headed by dr. Fumihiko urano. The ultimate goal of dr. Urano's research is to find a cure for wolfram syndrome, a genetic form of diabetes, and type 1 diabetes. For more please see http://wolframsyndrome.dom.wustl.edu/dr-uranos-lab/”

Raw XML Appendix130 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path	#	Value
IRS990EZ/ActivitiesNotPreviouslyRptInd	0	false
IRS990EZ/BooksInCareOfDetail/PersonNm	0	MOIRA HAGEN
IRS990EZ/BooksInCareOfDetail/PhoneNum	0	3035987633
IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt	0	2226 HIGH ST
IRS990EZ/BooksInCareOfDetail/USAddress/CityNm	0	DENVER
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd	0	CO
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd	0	80205
IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt	0	44439
IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt	0	35629
IRS990EZ/ChgMadeToOrgnzngDocNotRptInd	0	false
IRS990EZ/ContributionsGiftsGrantsEtcAmt	0	90716
IRS990EZ/DonorAdvisedFndsInd	0	false
IRS990EZ/EngagedInExcessBenefitTransInd	0	false
IRS990EZ/ExcessOrDeficitForYearAmt	0	-8810
IRS990EZ/FiledScheduleAInd	0	true
IRS990EZ/ForeignFinancialAccountInd	0	false
IRS990EZ/ForeignOfficeInd	0	false
IRS990EZ/Form1120PolFiledInd	0	false
IRS990EZ/Form990TotalAssetsGrp/BOYAmt	0	44439
IRS990EZ/Form990TotalAssetsGrp/EOYAmt	0	35629
IRS990EZ/FundraisingGrossIncomeAmt	0	12906
IRS990EZ/GrantsAndSimilarAmountsPaidAmt	0	85000
IRS990EZ/GrossReceiptsAmt	0	103622
IRS990EZ/InfoInScheduleOPartIIIInd	0	X
IRS990EZ/InfoInScheduleOPartIInd	0	X
IRS990EZ/LobbyingActivitiesInd	0	false
IRS990EZ/MadeLoansToFromOfficersInd	0	false
IRS990EZ/MethodOfAccountingAccrualInd	0	X
IRS990EZ/NetAssetsOrFundBalancesBOYAmt	0	44439
IRS990EZ/NetAssetsOrFundBalancesEOYAmt	0	35629
IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt	0	44439
IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt	0	35629
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	0	1.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	1	4.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt	2	6.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	0	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	1	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt	2	0
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	0	IRENE E WHITE
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	1	BARBARA NOEL
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm	2	MOIRA HAGEN
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	0	PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	1	TREASURER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt	2	SECRETARY
IRS990EZ/OperateHospitalInd	0	false
IRS990EZ/Organization501c3Ind	0	X
IRS990EZ/OrganizationDissolvedEtcInd	0	false
IRS990EZ/OrganizationHadUBIInd	0	false
IRS990EZ/OtherExpensesTotalAmt	0	2283
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt	0	NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt	0	NONE
IRS990EZ/PoliticalCampaignActyInd	0	false
IRS990EZ/PrimaryExemptPurposeTxt	0	THE MISSION OF THE ELLIE WHITE FOUNDATION FOR RARE GENETIC DISORDERS IS TO FUND STATE-OF-THE ART RESEARCH TO DEVELOP A CURE FOR WOLFRAM SYNDROME AND OTHER RARE GENETIC DISORDERS.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt	0	FROM FUND RAISING EFFORTS A GRANT IS PROVIDED TO WASHINGTON UNIVERSITY IN ST. LOUIS MISSOURI. WASHINGTON UNIVERSITY HAS A RESEARCH TEAM HEADED BY DR. FUMIHIKO URANO. THE ULTIMATE GOAL OF DR. URANO'S RESEARCH IS TO FIND A CURE FOR WOLFRAM SYNDROME, A GENETIC FORM OF DIABETES, AND TYPE 1 DIABETES. FOR MORE PLEASE SEE HTTP://WOLFRAMSYNDROME.DOM.WUSTL.EDU/DR-URANOS-LAB/
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt	0	85000
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt	0	87283
IRS990EZ/ProhibitedTaxShelterTransInd	0	false
IRS990EZ/RelatedOrganizationCtrlEntInd	0	false
IRS990EZ/SchoolOperatingInd	0	false
IRS990EZ/SpecialEventsDirectExpensesAmt	0	25149
IRS990EZ/SpecialEventsNetIncomeLossAmt	0	-12243
IRS990EZ/SubjectToProxyTaxInd	0	false
IRS990EZ/TanningServicesProvidedInd	0	false
IRS990EZ/TotalExpensesAmt	0	87283
IRS990EZ/TotalProgramServiceExpensesAmt	0	87283
IRS990EZ/TotalRevenueAmt	0	78473
IRS990EZ/TransactionWithControlEntInd	0	false
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd	0	false
IRS990EZ/TypeOfOrganizationCorpInd	0	X
IRS990EZ/WebsiteAddressTxt	0	WWW.ELLIEWHITEFOUNDATION.ORG
IRS990ScheduleA/CommunityTrustInd	0	X
IRS990ScheduleA/First5Years170Ind	0	X
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt	0	90716
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt	0	82176
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt	0	35315
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt	0	21808
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt	0	230015
IRS990ScheduleA/PublicSupportTotal170Amt	0	230015
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt	0	90716
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt	0	82176
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt	0	35315
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt	0	21808
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt	0	230015
IRS990ScheduleA/TotalSupportAmt	0	230015
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode	0	RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt	0	RESTRICTED
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	0	WASHINGTON UNIVERSITY ONE BROOKINGS DRIVE ST. LOUIS, MO 63130 85,000 0 0
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	1	EXPENSES OFFICE EXPENSES 2,283 TOTAL 2,283
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	2	THE MISSION OF THE ELLIE WHITE FOUNDATION FOR RARE GENETIC DISORDERS IS TO FUND STATE-OF-THE ART RESEARCH TO DEVELOP A CURE FOR WOLFRAM SYNDROME AND OTHER RARE GENETIC DISORDERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt	3	FROM FUND RAISING EFFORTS A GRANT IS PROVIDED TO WASHINGTON UNIVERSITY IN ST. LOUIS MISSOURI. WASHINGTON UNIVERSITY HAS A RESEARCH TEAM HEADED BY DR. FUMIHIKO URANO. THE ULTIMATE GOAL OF DR. URANO'S RESEARCH IS TO FIND A CURE FOR WOLFRAM SYNDROME, A GENETIC FORM OF DIABETES, AND TYPE 1 DIABETES. FOR MORE PLEASE SEE HTTP://WOLFRAMSYNDROME.DOM.WUSTL.EDU/DR-URANOS-LAB/
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	0	FORM 990-EZ, PART I, LINE 10
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	1	FORM 990-EZ, PART I, LINE 16
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	2	FORM 990-EZ, PART III
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	3	FORM 990-EZ, PART III, LINE 31
ReturnHeader/BuildTS	0	2017-02-10 21:41:12Z
ReturnHeader/BusinessOfficerGrp/PersonNm	0	IRENE E WHITE
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt	0	PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum	0	3036421608
ReturnHeader/BusinessOfficerGrp/SignatureDt	0	2017-02-28
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt	0	ELLIE WHITE FOUNDATION
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt	0	FOR RARE GENETIC DISORDERS
ReturnHeader/Filer/BusinessNameControlTxt	0	ELLI
ReturnHeader/Filer/EIN	0	455517280
ReturnHeader/Filer/PhoneNum	0	3035987633
ReturnHeader/Filer/USAddress/AddressLine1Txt	0	6359 S NETHERLAND CIRCLE
ReturnHeader/Filer/USAddress/CityNm	0	CENTENNIAL
ReturnHeader/Filer/USAddress/StateAbbreviationCd	0	CO
ReturnHeader/Filer/USAddress/ZIPCd	0	800161323
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId	0	DD170E2A8F46204E79AA46F4E8DC240A06685430
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId	0	DD170E2A8F46204E79AA46F4E8DC240A06685430
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN	0	813098325
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt	0	MCGAUGHEY AMFAHR & ASSOCIATES PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt	0	9250 E COSTILLA AVE STE 450
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm	0	GREENWOOD VILLAGE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd	0	CO
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd	0	80112
ReturnHeader/PreparerPersonGrp/PhoneNum	0	3037923020
ReturnHeader/PreparerPersonGrp/PreparationDt	0	2017-02-28
ReturnHeader/PreparerPersonGrp/PreparerPersonNm	0	G LANCE MCGAUGHEY
ReturnHeader/ReturnTs	0	2017-03-11T13:20:20-07:00
ReturnHeader/ReturnTypeCd	0	990EZ
ReturnHeader/TaxPeriodBeginDt	0	2016-01-01
ReturnHeader/TaxPeriodEndDt	0	2016-12-31
ReturnHeader/TaxYr	0	2016

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2016 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing

Assets: $35,629
Liabilities: -
Net assets: $35,629
Revenue: $78,473
Expenses: $87,283
Net income: -$8,810

	Balance Sheet			Operations
Year	Assets	Liabilities	Net Assets	Revenue	Expenses	Net Income
2022Detailed filing. Detailed filing data is available for this year.	$0.39	$0.00	$0.39	$0.33	$0.02	$0.31
2021Detailed filing. Detailed filing data is available for this year.	$0.08	$0.00	$0.08	$0.37	$1.02	$0.65
2020Detailed filing. Detailed filing data is available for this year.	$0.73	$0.00	$0.73	$0.19	$0.01	$0.18
2019Detailed filing. Detailed filing data is available for this year.	$0.55	$0.00	$0.55	$0.59	$1.05	$0.46
2018Detailed filing. Detailed filing data is available for this year.	$1.01	$0.00	$1.01	$0.66	$0.02	$0.64
2017Detailed filing. Detailed filing data is available for this year.	$0.37	$0.00	$0.37	$0.64	$0.62	$0.01
2016Detailed filing. Detailed filing data is available for this year.	$0.36		$0.36	$0.78	$0.87	$0.09
2015Summary only. Only limited summary data is available for this year.	$0.44	$0.00		$0.82	$0.65	$0.17