Liabilities / Assets
49th percentile
Higher debt load relative to assets than 49% of similar nonprofits.
990 • Fiscal year 2022 • EIN 45-5354811
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
49th percentile
Higher debt load relative to assets than 49% of similar nonprofits.
Liabilities / Revenue
34th percentile
Higher debt load relative to revenue than 34% of similar nonprofits.
Net Margin
20th percentile
Higher net margin than 20% of similar nonprofits.
Top Officer Pay
84th percentile
Higher top officer pay than 84% of similar nonprofits.
Top officer pay equals 3.2% of source-year revenue.
Asset Growth
3rd percentile
Faster asset growth than 3% of similar nonprofits.
Revenue Growth
35th percentile
Faster revenue growth than 35% of similar nonprofits.
Assets
Down$2,176,791
Down $1,137,857 (-34%) from 2021
Net Assets
Down$2,050,305
Down $523,984 (-20%) from 2021
Liabilities
Down$126,486
Down $613,873 (-83%) from 2021
Revenue
Down$4,765,109
Down $167,620 (-3.4%) from 2021
Expenses
Up$5,289,093
Up $888,755 (+20%) from 2021
Net Income
Down-$523,984
Down $1,056,375 (-198%) from 2021
A patient-centered approach to healthcare innovation for rare cancers and orphan diseases.
Provide patient-centered tools education and support to those with rare diseases using a patient-initiated data platform in collaboration with disease experts to improve outcomes and accelerate cures.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $2,945,929 | $1,286,697 | ▼ $1,659,232 |
| Pledges and Grants Receivable | $308,668 | $698,000 | ▲ $389,332 |
| Accounts Receivable | $0 | $130,218 | ▲ $130,218 |
| Land, Buildings, and Equipment, Net | $48,103 | $49,928 | ▲ $1,825 |
| Savings and Temporary Cash Investments | $0 | $0 | → $0 |
| Other Notes and Loans Receivable, Net | $0 | $0 | → $0 |
| Receivable From Disqualified Prsn | $0 | $0 | → $0 |
| Receivables From Officers Etc | $0 | $0 | → $0 |
| Investments Other Securities | $0 | $0 | → $0 |
| Investments Program Related | $0 | $0 | → $0 |
| Investments in Publicly Traded Securities | $0 | $0 | → $0 |
| Intangible Assets | $0 | $0 | → $0 |
| Inventories for Sale or Use | $0 | $0 | → $0 |
| Loans From Officers Directors | $0 | $0 | → $0 |
| Prepaid Expenses and Deferred Charges | $0 | $0 | → $0 |
| Total Assets | $3,314,648 | $2,176,791 | ▼ $1,137,857 |
| Other Assets Total | $11,948 | $11,948 | → $0 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $111,069 | $96,833 | ▼ $14,236 |
| Other Liabilities | $629,290 | $29,653 | ▼ $599,637 |
| Grants Payable | $0 | $0 | → $0 |
| Mortgage Notes Payable Secured by Investment Property | $0 | $0 | → $0 |
| Unsecured Notes Loans Payable | $0 | $0 | → $0 |
| Deferred Revenue | $0 | $0 | → $0 |
| Escrow Account Liability | $0 | $0 | → $0 |
| Tax Exempt Bond Liabilities | $0 | $0 | → $0 |
| Total Liabilities | $740,359 | $126,486 | ▼ $613,873 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,872,278 | $1,084,155 | ▼ $788,123 |
| Net Assets With Donor Restrictions | $702,011 | $966,150 | ▲ $264,139 |
| Total Net Assets Fund Balance | $2,574,289 | $2,050,305 | ▼ $523,984 |
| Total Liabilities and Net Assets / Fund Balance | $3,314,648 | $2,176,791 | ▼ $1,137,857 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $49,928 | $46,774 | $96,702 |
| Other Land Buildings | $0 | $4,487 | $4,487 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Todd Foster | Director of Product Management | FT | $142,174 | $9,202 | $151,376 |
| Glen Mella | Director | - | $142,174 | $9,202 | $151,376 |
| Juan Pablo Capdevila Ponce De Leon | Chief Technology Officer | FT | $138,302 | $3,294 | $141,596 |
| Greg Brozeit | Program Director | FT | $100,471 | $9,738 | $110,209 |
| Jennifer Ahlstrom | President CEO Director | FT | $83,266 | $11,562 | $94,828 |
| Rozalynn Hite | Secretary | FT | $50,832 | $7,804 | $58,636 |
| Ryan Miller | Financial Controller | FT | $39,519 | $3,971 | $43,490 |
| Name | Title |
|---|---|
| Brian Bertha | Director |
| Owen Legare | Director |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $3,533,328 |
| Other Expenses | $1,489,089 |
| Grants and Similar Amounts Paid | $266,676 |
| Total Fundraising Expense | $6,689 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $2,714,046 | $197,716 | $0 | $2,911,762 |
| Conferences and Meetings | $568,679 | $1,806 | $0 | $570,485 |
| Current Officers, Directors, Trustees, and Key Employees | $338,550 | $0 | $0 | $338,550 |
| Grants to Domestic Orgs | $266,676 | - | - | $266,676 |
| Payroll Taxes | $159,216 | $10,849 | $0 | $170,065 |
| Fees for Services Other | $8,382 | $135,159 | $6,689 | $150,230 |
| Advertising | $142,073 | $8,106 | $0 | $150,179 |
| Occupancy | $121,578 | $13,509 | $0 | $135,087 |
| Information Technology | $101,042 | $29,262 | $0 | $130,304 |
| Office Expenses | $64,339 | $59,683 | $0 | $124,022 |
| Other Employee Benefits | $85,815 | $27,136 | $0 | $112,951 |
| Fees for Services Accounting | $0 | $73,880 | $0 | $73,880 |
| Fees for Services Legal | $0 | $21,059 | $0 | $21,059 |
| Depreciation Depletion | $0 | $19,327 | $0 | $19,327 |
| Other Expenses | $8,638 | $6,576 | $0 | $15,214 |
| Insurance | $7,910 | $879 | $0 | $8,789 |
| All Other Expenses | $3,131 | $0 | $0 | $3,131 |
| Total Functional Expenses | $4,637,894 | $644,510 | $6,689 | $5,289,093 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $5,294,949 |
| Expenses per Audited Statements | $5,289,093 |
| Total Expenses per Form 990 | $5,289,093 |
| Expenses Not Reported on Form 990 | $5,856 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| ALS Crowd | Salt Lake City, UT | 501(c)(3) | ALS Support and Research | $216,061 |
| Memorial Sloan Kettering Cancer Center | New York City, NY | 501(c)(3) | Myeloma Research | $40,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $5,856 |
| Fundraising Gross Income | $0 |
| Gaming Direct Expenses | $0 |
| Gaming Gross Income | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Muscles for Myeloma | $19,600 | $0 | $5,856 | $-5,856 |
| Event 2 | $0 | $0 | $0 | $0 |
| Total Events | $19,600 | $0 | $5,856 | $-5,856 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| IsoTalent | Family member is key employee | Recruiting Services | No | $15,750 |
| - | Family member is key employee | Recruiting Services | No | $10,120 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Loans from Officers, Directors, Trustees, and Key Employees | $0 | $0 | → $0 |
| Receivables from Disqualified Persons | $0 | $0 | → $0 |
| Receivables from Officers, Directors, Trustees, and Key Employees | $0 | $0 | → $0 |
| Liability | Amount |
|---|---|
| Deferred Revenue | $29,653 |
“A copy of the return is provided to board members via email.”
“Covered annually via board meetings.”
“THE COMPENSATION COMMITTEE FOLLOWS THE REBUTTABLE PRESUMPTION OF REASONABLENESS PROCEDURE DESCRIBED IN IRS REGULATIONS SECTION 53.4958-6c WHEN SETTING COMPENSATION FOR THE POSITION OF PRESIDENT CEO AND UTILIZES COMPARABLE NON-PROFIT SALARY DATA FOR ESTABLISHING COMPENSATION LEVELS.”
“The organization's governing documents conflict of interest policy and financial statements are available to the public upon request.”
“| Description:, Expense Amount:, Grants Amount:, Revenue Amount:| THE FOUNDATION AGGREGATES AND SHARES THE LATEST RESEARCH IN PATIENT FRIENDLY LANGUAGE ON ALS AND PROVIDES SOCIAL MEDIA GROUPS WHERE PATIENTS CAN EXCHANGE INFORMATION. LIVE PATIENT MEETINGS AND SEMINARS ARE ALSO HELD TO SIMPLIFY PATIENT EDUCATION. ALS CROWD ALSO COLLECTS AND AGGREGATES ALL AVAILABLE PATIENT DATA INTO FORMATS THAT RESEARCHERS CAN USE TO HELP ACCELERATE RESEARCH. THE FOUNDATION DISCONTINUED THE ALS CROWD PROGRAM IN 2021 AND DONATED APPROXIMATELY $216,000 IN MARCH 2022 TO A COMPANY TO CONTINUE THESE EFFORTS., $261512, $261512, $0|”
“Fundraising Expense - $5,856”
“Fundraising Expense - $5,856”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 111069 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 96833 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 0 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 130218 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | PROVIDE PATIENT-CENTERED TOOLS EDUCATION AND SUPPORT TO THOSE WITH RARE DISEASES USING A PATIENT-INITIATED DATA PLATFORM IN COLLABORATION WITH DISEASE EXPERTS TO IMPROVE OUTCOMES AND ACCELERATE CURES. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 0 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 8106 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 142073 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 150179 |
| IRS990/AllOtherContributionsAmt | 0 | 4416880 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 3131 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 3131 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | RYAN MILLER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8012109050 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2600 West Executive Parkway |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine2Txt | 0 | Suite 380 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | LEHI |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | UT |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 84043 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | true |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 2945929 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1286697 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 338550 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 338550 |
| IRS990/CompDisqualPersonsGrp/FundraisingAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 1806 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 568679 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 570485 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 19600 |
| IRS990/CostOfGoodsSoldAmt | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 4436480 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 266676 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 1489089 |
| IRS990/CYOtherRevenueAmt | 0 | 328629 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -523984 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 3533328 |
| IRS990/CYTotalExpensesAmt | 0 | 5289093 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 6689 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 4765109 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 0 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 19327 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 19327 |
| IRS990/Desc | 0 | THE FOUNDATION PROVIDES A ROBUST SET OF EDUCATIONAL AND SUPPORT PROGRAMS TO HELP PATIENTS BECOME THEIR OWN BEST ADVOCATE AND OPTIMIZE THEIR OUTCOMES. THESE PROGRAMS INCLUDE DISEASE NEWS WEBSITES WEBINARS WITH EXPERTS A PODCAST FOCUSED ON CLINICAL TRIALS LIVE ROUNDTABLE MEETINGS WITH DISEASE EXPERTS AN EXTENSIVE ONLINE DISEASE "UNIVERSITY" TAUGHT BY EXPERTS A SPECIALIST DIRECTORY A JOURNAL FEATURE AND LIVE SUPPORT WITH KNOWLEDGEABLE PATIENT NAVIGATORS. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonatedServicesAndUseFcltsAmt | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 702011 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 966150 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 62 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountLiabilityGrp/BOYAmt | 0 | 0 |
| IRS990/EscrowAccountLiabilityGrp/EOYAmt | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 1879367 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FederatedCampaignsAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 73880 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 73880 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 21059 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 21059 |
| IRS990/FeesForServicesLobbyingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 6689 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 135159 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 8382 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 150230 |
| IRS990/FeesForServicesProfFundraising/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | true |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 45.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 45.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 45.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 45.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 45.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 45.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 11562 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 7804 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 3294 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 3971 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 9202 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 9738 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JENNIFER AHLSTROM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ROZALYNN HITE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JUAN PABLO CAPDEVILA PONCE DE LEON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | RYAN MILLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | OWEN LEGARE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | GLEN MELLA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | BRIAN BERTHA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | TODD FOSTER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | GREG BROZEIT |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 83266 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 50832 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 138302 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 39519 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 142174 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 100471 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT CEO DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHIEF TECHNOLOGY OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | FINANCIAL CONTROLLER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR OF PRODUCT MANAGEMENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | PROGRAM DIRECTOR |
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| IRS990/FormationYr | 0 | 2012 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 19600 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 5856 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 0 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GamingDirectExpensesAmt | 0 | 0 |
| IRS990/GamingGrossIncomeAmt | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 4 |
| IRS990/GovernmentGrantsAmt | 0 | 0 |
| IRS990/GrantAmt | 0 | 0 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 0 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 0 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 266676 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 266676 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 4770965 |
| IRS990/GrossRentsGrp/PersonalAmt | 0 | 0 |
| IRS990/GrossRentsGrp/RealAmt | 0 | 0 |
| IRS990/GrossSalesOfInventoryAmt | 0 | 0 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IncmFromInvestBondProceedsGrp/ExclusionAmt | 0 | 0 |
| IRS990/IncmFromInvestBondProceedsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IncmFromInvestBondProceedsGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 3 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 0 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 29262 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 101042 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 130304 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 0 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 879 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 7910 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 8789 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 0 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/FundraisingAmt | 0 | 0 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/InterestGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/BOYAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentExpenseAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/BOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 13 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 51260 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 48103 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 49928 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 101188 |
| IRS990/LegalDomicileStateCd | 0 | DE |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 0 |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 0 |
| IRS990/LessRentalExpensesGrp/PersonalAmt | 0 | 0 |
| IRS990/LessRentalExpensesGrp/RealAmt | 0 | 0 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LoansFromOfficersDirectorsGrp/BOYAmt | 0 | 0 |
| IRS990/LoansFromOfficersDirectorsGrp/EOYAmt | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembershipDuesAmt | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MiscellaneousRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/MiscellaneousRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/MiscellaneousRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/MiscellaneousRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/MissionDesc | 0 | PROVIDING PATIENT CENTERED TOOLS EDUCATION AND SUPPORT TO THOSE WITH RARE DISEASES SUCH AS MULTIPLE MYELOMA MM ACUTE MYELOID LEUKEMIA AML AND CHRONIC LYMPHOCYTIC LEUKEMIA CLL USING A PATIENT INITIATED DATA PLATFORM THAT ALLOWS THEM TO SHARE DATA ANONYMOUSLY WITH DISEASE EXPERTS RESEARCHERS AND THEIR MEDICAL TWINS TO IMPROVE OUTCOMES LIFESPANS AND ACCELERATE CURES. MORE INFORMATION REGARDING HEALTHTREE FOUNDATION CAN BE FOUND AT https: youtu.be Nao6RW0bcwU. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt | 0 | 0 |
| IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 2574289 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 2050305 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 0 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetGainOrLossInvestmentsGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -5856 |
| IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/ExclusionAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/ExclusionAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/ExclusionAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1872278 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1084155 |
| IRS990/NoncashContributionsAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 13509 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 121578 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 135087 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 59683 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 64339 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 124022 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 11948 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 11948 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 27136 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 85815 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 112951 |
| IRS990/OtherExpensesGrp/Desc | 0 | DUE & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | MEALS & ENTERTAINMENT |
| IRS990/OtherExpensesGrp/Desc | 2 | POSTAGE & MAILING |
| IRS990/OtherExpensesGrp/Desc | 3 | BANK FEES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 547 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 22886 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 16130 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 6576 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 32810 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 8740 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 6269 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 8638 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 33357 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 31626 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 22399 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 15214 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 629290 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 29653 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 812900 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MYELOMA CROWD WEBSITE ADVERTISING |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 334485 |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 1 | 0 |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 2 | 0 |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 1 | 0 |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 2 | 0 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 334485 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 1 | 0 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 2 | 0 |
| IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt | 1 | 0 |
| IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt | 2 | 0 |
| IRS990/OtherRevenueTotalAmt | 0 | 334485 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 197716 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 2714046 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 2911762 |
| IRS990/OthNotesLoansReceivableNetGrp/BOYAmt | 0 | 0 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/FundraisingAmt | 0 | 0 |
| IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt | 0 | 0 |
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Displayed year
2022 • Form 990Detailed filing. Detailed filing data is available for this year.