Civic Intelligence

The Jack and Jt Snow Scientific Research Foundation

990 • Fiscal year 2024 • EIN 45-5308117

Jan 01, 2024 to Dec 31, 2024 • Filed on Feb 18, 2025

PO Box 50224Clayton, MO 63105

(636) 448-4134

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

1st percentile

-0.00x

Higher debt load relative to assets than 1% of similar nonprofits.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

1st percentile

-0.00x

Higher debt load relative to revenue than 1% of similar nonprofits.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

93rd percentile

61%

Higher net margin than 93% of similar nonprofits.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

71st percentile

$60,000

Higher top officer pay than 71% of similar nonprofits.

Top officer pay equals 9.9% of source-year revenue.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

90th percentile

61%

Faster asset growth than 90% of similar nonprofits.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

71st percentile

27%

Faster revenue growth than 71% of similar nonprofits.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Assets

Up

$972,917

Up $369,223 (+61%) from 2023

Net Assets

Up

$972,971

Up $369,581 (+61%) from 2023

Liabilities

Down

-$54

Down $358 (-118%) from 2023

Revenue

Up

$607,564

Up $130,129 (+27%) from 2023

Expenses

Up

$237,983

Up $13,110 (+5.8%) from 2023

Net Income

Up

$369,581

Up $117,019 (+46%) from 2023

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0-$500KAssets 2013: $89,327Liabilities 2013: $0Net Assets 2013: $89,3272013Assets 2014: $198,161Liabilities 2014: $5,503Net Assets 2014: $192,6582014Assets 2015: $231,789Liabilities 2015: $1,809Net Assets 2015: $229,9802015Assets 2016: $148,009Liabilities 2016: $2,173Net Assets 2016: $145,8362016Assets 2017: $152,698Liabilities 2017: $245Net Assets 2017: $152,4532017Assets 2018: $76,306Liabilities 2018: $6,780Net Assets 2018: $69,5262018Assets 2019: $170,702Liabilities 2019: $11,188Net Assets 2019: $159,5142019Assets 2020: $209,369Liabilities 2020: $8,014Net Assets 2020: $201,3552020Assets 2021: $336,955Liabilities 2021: $969Net Assets 2021: $335,9862021Assets 2022: $351,722Liabilities 2022: $894Net Assets 2022: $350,8282022Assets 2023: $603,694Liabilities 2023: $304Net Assets 2023: $603,3902023Assets 2024: $972,917Liabilities 2024: -$54Net Assets 2024: $972,9712024

Highlighted filing

2024

Assets$972,917
Liabilities-$54
Net Assets$972,971

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2013: $101,497Expenses 2013: $39,840Net Income 2013: $61,6572013Revenue 2014: $270,469Expenses 2014: $167,138Net Income 2014: $103,3312014Revenue 2015: $509,734Expenses 2015: $472,412Net Income 2015: $37,3222015Revenue 2016: $368,035Expenses 2016: $452,179Net Income 2016: -$84,1442016Revenue 2017: $214,512Expenses 2017: $207,895Net Income 2017: $6,6172017Revenue 2018: $176,133Expenses 2018: $259,060Net Income 2018: -$82,9272018Revenue 2019: $259,079Expenses 2019: $169,091Net Income 2019: $89,9882019Revenue 2020: $171,082Expenses 2020: $129,241Net Income 2020: $41,8412020Revenue 2021: $268,612Expenses 2021: $133,981Net Income 2021: $134,6312021Revenue 2022: $297,516Expenses 2022: $282,674Net Income 2022: $14,8422022Revenue 2023: $477,435Expenses 2023: $224,873Net Income 2023: $252,5622023Revenue 2024: $607,564Expenses 2024: $237,983Net Income 2024: $369,5812024

Highlighted filing

2024

Revenue$607,564
Expenses$237,983
Net Income$369,581
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Feb 18, 2025
Return Version
2024v5.0
Gross Receipts
$667,712
Mission and Program Overview

Mission

The snow foundation is a collective voice for wolfram syndrome patients, working towards a cure for wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration.

Provide financial support for wolfram sydrome research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$600,219$969,516▲ $369,297
Land, Buildings, and Equipment, Net$3,475$3,401▼ $74
Total Assets$603,694$972,917▲ $369,223
Liabilities
Accounts Payable and Accrued Expenses$304$-54▼ $358
Total Liabilities$304$-54▼ $358
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$603,390$972,971▲ $369,581
Total Net Assets Fund Balance$603,390$972,971▲ $369,581
Total Liabilities and Net Assets / Fund Balance$603,694$972,917▲ $369,223

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$3,401$8,845$12,246
Other Land Buildings$0$2,008$2,008
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Stephanie S GebelPresidentFT$60,000$60,000
Patricia M GibiliscoPatient Advocacy LiaisonPT$24,000$24,000

Board Members and Trustees

NameTitle
Jack Thomas SnowDirector Communications
Sarah J Gladstone MdChief Scientific Officer
Spencer W Owens EsqSecretary
Robert W HaggertyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$630,248
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$-22,684
All Other Contributions
$395,387
Change in Net Assets
$369,581
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$94,751
Salaries, Compensation, and Employee Benefits$86,322
Grants and Similar Amounts Paid$56,910
Total Fundraising Expense$8,516
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$78,000$3,000$3,000$84,000
Conferences and Meetings$31,339--$31,339
Grants to Domestic Orgs$30,000--$30,000
Foreign Grants$26,910--$26,910
Travel$11,686$726$2,863$15,275
Fees for Services Management$8,113$1,087-$9,200
Office Expenses$3,898$1,800$1,619$7,317
Advertising$6,943--$6,943
Fees for Services Accounting-$6,769-$6,769
Fees for Services Other$5,796$26-$5,822
Information Technology-$2,500-$2,500
Comp Disqual Persons$2,322--$2,322
Depreciation Depletion-$1,956-$1,956
Insurance-$1,817-$1,817
Other Expenses$154$60$1,034$1,248
Total Functional Expenses$206,701$22,766$8,516$237,983
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Washington University School of MedicineSt Louis, MO501 C 3Glp1 Research$0

International Summary

Offices
0
Employees
0
Spending
$26,910

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grants to Recipients Located in the RegionResearch Grants00$24,591
South AmericaGrants to Recipients Located in the RegionEye Exams00$2,319
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$60,148
Fundraising Gross Income$37,464
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Shootout$157,523$24,400$4,282$20,118
Fishing for Ford$114,802$13,064$7,666$5,398
Total Events$272,325$37,464$60,147$-22,683
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Stephanie GebelFamily Member of Jack Thomas SnowContractorNo$60,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Stephanie s gebel, president and jack thomas snow, director of communications are siblings.

Form 990, Part VI, Section B, Line 11B

President reviews form 990. Copies are available for board of directors.

Form 990, Part VI, Section B, Line 12C

Management, the governing board of directors, and volunteers are required to sign a conflict of interest acknowledgement and disclosure statement annually.

Form 990, Part VI, Section B, Line 15

Compensation for management was determined by the governing board and set a reasonable market rate after thorough market research. The foundation does not presently compensate other key employees. If such persons are compensated in the future, a similar policy will be implemented to approve compensation.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy, and financial statements available upon request.

Filing and Contact Details

Filer

Filer Name
The Snow Foundation
EIN
45-5308117
Phone
6364484134
Address
PO BOX 50224, CLAYTON, MO 63105

Signing Officer

Name
Stephanie Gebel
Title
President
Phone
4026941354
Signed
2025-02-18
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Stephanie Gebel
Formed
2012
Legal Domicile
Mo
Voting Board Members
6
Independent Board Members
4
Employees
0
Volunteers
8

Preparer

Firm
Donovan Roseman & Renfro LLC
Address
12412 POWERSCOURT DRIVE STE 35, ST LOUIS, MO 63131
Preparer
Kim R Renfro
Phone
3143942104
Raw XML AppendixShowing 400 of 452 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0304
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0-54
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0PROVIDE FINANCIAL SUPPORT FOR WOLFRAM SYDROME RESEARCH.
IRS990/AdvertisingGrp/ProgramServicesAmt06943
IRS990/AdvertisingGrp/TotalAmt06943
IRS990/AllOtherContributionsAmt0395387
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/PersonNm0THE SNOW FOUNDATION
IRS990/BooksInCareOfDetail/PhoneNum06364484134
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0PO BOX 50224
IRS990/BooksInCareOfDetail/USAddress/CityNm0CLAYTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MO
IRS990/BooksInCareOfDetail/USAddress/ZIPCd063105
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd01
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0600219
IRS990/CashNonInterestBearingGrp/EOYAmt0969516
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt03000
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt03000
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt078000
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt084000
IRS990/CompDisqualPersonsGrp/ProgramServicesAmt02322
IRS990/CompDisqualPersonsGrp/TotalAmt02322
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt031339
IRS990/ConferencesMeetingsGrp/TotalAmt031339
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt0234861
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0630248
IRS990/CYGrantsAndSimilarPaidAmt056910
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt094751
IRS990/CYOtherRevenueAmt0-22684
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0369581
IRS990/CYSalariesCompEmpBnftPaidAmt086322
IRS990/CYTotalExpensesAmt0237983
IRS990/CYTotalFundraisingExpenseAmt08516
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0607564
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt01956
IRS990/DepreciationDepletionGrp/TotalAmt01956
IRS990/Desc0THE FOUNDATION SUPPORTS AND COORDINATES INTERNATIONAL COLLABORATIVE RESEARCH EFFORTS. THE FOUNDATION IS FOCUSED ON FUELING KNOWLEDGE, SPEEDING BETTER TREATMENTS AND SYMPTOM MANAGEMENT THERAPIES, AND DRIVING ENHANCEMENTS IN THE HEALTH CARE DELIVERY FOR WOLFRAM SYNDROME PATIENTS.THE FOUNDATION ALSO ENCOURAGES THE ENTIRE WOLFRAM SYNDROME COMMUNITY TO COME TOGETHER AND SHARE COMMON LIFE EXPERIENCES, EDUCATION AND MUTUAL AID. BY PROVIDING THESE CRITICAL RESOURCES AND SUPPORT SERVICES, THE FOUNDATION ENABLES WOLFRAM SYNDROME PATIENTS, THEIR FAMILIES AND CAREGIVERS TO POWERFULLY ADVOCATE FOR WHAT THEY NEED, WHEN AND HOW THEY NEED IT.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonorAdvisedFundInd00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0206701
IRS990/FamilyOrBusinessRlnInd01
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt06769
IRS990/FeesForServicesAccountingGrp/TotalAmt06769
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt01087
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt08113
IRS990/FeesForServicesManagementGrp/TotalAmt09200
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt026
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt05796
IRS990/FeesForServicesOtherGrp/TotalAmt05822
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt026910
IRS990/ForeignGrantsGrp/TotalAmt026910
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt22.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt38.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt518.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/PersonNm0STEPHANIE S GEBEL
IRS990/Form990PartVIISectionAGrp/PersonNm1SPENCER W OWENS ESQ
IRS990/Form990PartVIISectionAGrp/PersonNm2ROBERT W HAGGERTY
IRS990/Form990PartVIISectionAGrp/PersonNm3SARAH J GLADSTONE MD
IRS990/Form990PartVIISectionAGrp/PersonNm4JACK THOMAS SNOW
IRS990/Form990PartVIISectionAGrp/PersonNm5PATRICIA M GIBILISCO
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt060000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt524000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR COMMUNICATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt5PATIENT ADVOCACY LIAISON
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02012
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0234861
IRS990/FundraisingDirectExpensesAmt060148
IRS990/FundraisingGrossIncomeAmt037464
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt06
IRS990/GrantAmt056910
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt030000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt030000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0667712
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt04
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt02500
IRS990/InformationTechnologyGrp/TotalAmt02500
IRS990/InsuranceGrp/ManagementAndGeneralAmt01817
IRS990/InsuranceGrp/TotalAmt01817
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt04
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt010853
IRS990/LandBldgEquipBasisNetGrp/BOYAmt03475
IRS990/LandBldgEquipBasisNetGrp/EOYAmt03401
IRS990/LandBldgEquipCostOrOtherBssAmt014254
IRS990/LegalDomicileStateCd0MO
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE SNOW FOUNDATION IS A COLLECTIVE VOICE FOR WOLFRAM SYNDROME PATIENTS, WORKING TOWARDS A CURE FOR WOLFRAM SYNDROME AND DEVELOPING NOVEL THERAPIES FOR DIABETES, VISION LOSS, HEARING LOSS AND NEURODEGENERATION.WOLFRAM SYNDROME SUPPORTS AND COORDINATES INTERNATIONAL COLLABORATIVE RESEARCH EFFORTS. THE FOUNDATION ALSO PROVIDES VALUABLE INSIGHT, RESOURCES, AND SUPPORT TO THE PATIENTS AND THEIRFAMILIES. THIS EMPOWERS THEM WITH THE KNOWLEDGE NECESSARY TO PARTICIPATE IN THEIR CARE AND POSITIVELY IMPACT THEIR FUTURE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt0603390
IRS990/NetAssetsOrFundBalancesEOYAmt0972971
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-22684
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-22684
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0603390
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0972971
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt01619
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01800
IRS990/OfficeExpensesGrp/ProgramServicesAmt03898
IRS990/OfficeExpensesGrp/TotalAmt07317
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0WEBSITE MAINTENANCE
IRS990/OtherExpensesGrp/Desc1PATIENT REGISTRY & OTHE
IRS990/OtherExpensesGrp/Desc2BANK FEES
IRS990/OtherExpensesGrp/FundraisingAmt01034
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03025
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt160
IRS990/OtherExpensesGrp/ProgramServicesAmt01540
IRS990/OtherExpensesGrp/ProgramServicesAmt1154
IRS990/OtherExpensesGrp/TotalAmt03025
IRS990/OtherExpensesGrp/TotalAmt11540
IRS990/OtherExpensesGrp/TotalAmt21248
IRS990/PartialLiquidationInd00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0STEPHANIE GEBEL
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0489988
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt038764
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt0148109
IRS990/PYOtherRevenueAmt0-12553
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0252562
IRS990/PYSalariesCompEmpBnftPaidAmt038000
IRS990/PYTotalExpensesAmt0224873
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0477435
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/ReconcilationRevenueExpnssAmt0369581
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0667712
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0501988
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0313382
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0285057
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0171082
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01939221
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt01939221
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct01.00000
IRS990ScheduleA/PublicSupportPY170Pct01.00000
IRS990ScheduleA/PublicSupportTotal170Amt01939221
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0667712
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0501988
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0313382
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0285057
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0171082
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01939221
IRS990ScheduleA/TotalSupportAmt01939221
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt03401
IRS990ScheduleD/EquipmentGrp/DepreciationAmt08845
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt012246
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt00
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt02008
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt02008
IRS990ScheduleD/TotalBookValueLandBuildingsAmt03401
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt024591
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt12319
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1SOUTH AMERICA
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0RESEARCH GRANTS
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt1EYE EXAMS
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANTS TO RECIPIENTS LOCATED IN THE REGION
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1GRANTS TO RECIPIENTS LOCATED IN THE REGION
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt022218
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0WIRE
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0MEDICAL RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc0CASH
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt026910
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0AS A SCIENTIFIC RESEARCH FOUNDATION, THE SNOW FOUNDATION IS COMMITTED TO SUPPORTING RESEARCH AND WORKING TOWARDS A CURE FOR WOLFRAM SYNDROME. MANAGEMENT AND THE GOVERNING BOARD OF DIRECTORS CONSIDER POTENTIAL RESEARCH PROGRAMS AND SELECT WHICH PROGRAMS TO FUND AS GRANT MONIES ARE AVAILABLE. GRANT FUNDS ARE DISBURSED DIRECTLY TO THE ORGANIZATIONS WITH DEMOSTRATED PROGRAMS IN PLACE TO FURTHER MISSION RELATED RESEARCH.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalOtherOrgCnt03
IRS990ScheduleF/TotalSpentAmt026910
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent1Amt01375
IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesTotalEventsAmt01375
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0234861
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0133123
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt0101738
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt060147
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt0339
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent2Amt05900
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt06239
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GOLF SHOOTOUT
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0FISHING FOR FORD
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt012427
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt013555
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt025982
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0157523
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt0114802
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0272325
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt024400
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt013064
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt037464
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-22683
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt05003
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt05003
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt011948
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt04282
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt07666
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt09600
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt09600
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt00
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501 C 3
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt030000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0GLP1 RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0WASHINGTON UNIVERSITY SCHOOL OF MEDICINE
IRS990ScheduleI/RecipientTable/RecipientEIN0431519670
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0CAMPUS BOX 1157 ONE BROOKINGS DR
IRS990ScheduleI/RecipientTable/USAddress/CityNm0ST LOUIS
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MO
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd063130
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc0CASH
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0MANAGEMENT AND THE GOVERNING BOARD OF DIRECTORS CONSIDER POTENTIAL RESEARCH PROGRAMS AND SELECT WHICH PROGRAMS TO FUND AS GRANT MONIES ARE AVAILABLE. GRANT FUNDS ARE DISBURSED DIRECTLY TO THE ORGANIZATIONS WITH DEMOSTRATED PROGRAMS IN PLACE TO FURTHER MISSION RELATED RESEARCH.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990/ScheduleJRequiredInd00
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0STEPHANIE GEBEL
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0FAMILY MEMBER OF JACK THOMAS SNOW
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd00
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt060000
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0CONTRACTOR
IRS990ScheduleL/SupplementalInformationDetail/ExplanationTxt0STEPHANIE GEBEL IS A FAMILY MEMBER OF JACK THOMAS SNOW, DIRECTOR OF COMMUNICATIONS.
IRS990ScheduleL/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE L, PART IV, BUSINESS TRANSACTIONS INVOLVING INTEREST PARTIES
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0STEPHANIE S GEBEL, PRESIDENT AND JACK THOMAS SNOW, DIRECTOR OF COMMUNICATIONS ARE SIBLINGS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1PRESIDENT REVIEWS FORM 990. COPIES ARE AVAILABLE FOR BOARD OF DIRECTORS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2MANAGEMENT, THE GOVERNING BOARD OF DIRECTORS, AND VOLUNTEERS ARE REQUIRED TO SIGN A CONFLICT OF INTEREST ACKNOWLEDGEMENT AND DISCLOSURE STATEMENT ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3COMPENSATION FOR MANAGEMENT WAS DETERMINED BY THE GOVERNING BOARD AND SET A REASONABLE MARKET RATE AFTER THOROUGH MARKET RESEARCH. THE FOUNDATION DOES NOT PRESENTLY COMPENSATE OTHER KEY EMPLOYEES. IF SUCH PERSONS ARE COMPENSATED IN THE FUTURE, A SIMILAR POLICY WILL BE IMPLEMENTED TO APPROVE COMPENSATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION B, LINE 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0603694
IRS990/TotalAssetsEOYAmt0972917
IRS990/TotalAssetsGrp/BOYAmt0603694
IRS990/TotalAssetsGrp/EOYAmt0972917
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0630248
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt08516
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt022766
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0206701
IRS990/TotalFunctionalExpensesGrp/TotalAmt0237983
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0304
IRS990/TotalLiabilitiesEOYAmt0-54
IRS990/TotalLiabilitiesGrp/BOYAmt0304
IRS990/TotalLiabilitiesGrp/EOYAmt0-54
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0603390
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0972971
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0206701
IRS990/TotalReportableCompFromOrgAmt084000
IRS990/TotalRevenueGrp/ExclusionAmt0-22684

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings