Civic Intelligence

The Jack and Jt Snow Scientific Research Foundation

990 • Fiscal year 2022 • EIN 45-5308117

Jan 01, 2022 to Dec 31, 2022 • Filed on May 09, 2023

PO Box 50224Clayton, MO 63105

(636) 448-4134

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.00x

Higher debt load relative to assets than 61% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

61st percentile

0.00x

Higher debt load relative to revenue than 61% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

50th percentile

5.0%

Higher net margin than 50% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

88th percentile

$30,000

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 10.1% of source-year revenue.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

55th percentile

4.4%

Faster asset growth than 55% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

51st percentile

11%

Faster revenue growth than 51% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Assets

Up

$351,722

Up $14,767 (+4.4%) from 2021

Net Assets

Up

$350,828

Up $14,842 (+4.4%) from 2021

Liabilities

Down

$894

Down $75 (-7.7%) from 2021

Revenue

Up

$297,516

Up $28,904 (+11%) from 2021

Expenses

Up

$282,674

Up $148,693 (+111%) from 2021

Net Income

Down

$14,842

Down $119,789 (-89%) from 2021

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0-$500KAssets 2013: $89,327Liabilities 2013: $0Net Assets 2013: $89,3272013Assets 2014: $198,161Liabilities 2014: $5,503Net Assets 2014: $192,6582014Assets 2015: $231,789Liabilities 2015: $1,809Net Assets 2015: $229,9802015Assets 2016: $148,009Liabilities 2016: $2,173Net Assets 2016: $145,8362016Assets 2017: $152,698Liabilities 2017: $245Net Assets 2017: $152,4532017Assets 2018: $76,306Liabilities 2018: $6,780Net Assets 2018: $69,5262018Assets 2019: $170,702Liabilities 2019: $11,188Net Assets 2019: $159,5142019Assets 2020: $209,369Liabilities 2020: $8,014Net Assets 2020: $201,3552020Assets 2021: $336,955Liabilities 2021: $969Net Assets 2021: $335,9862021Assets 2022: $351,722Liabilities 2022: $894Net Assets 2022: $350,8282022Assets 2023: $603,694Liabilities 2023: $304Net Assets 2023: $603,3902023Assets 2024: $972,917Liabilities 2024: -$54Net Assets 2024: $972,9712024

Highlighted filing

2022

Assets$351,722
Liabilities$894
Net Assets$350,828

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2013: $101,497Expenses 2013: $39,840Net Income 2013: $61,6572013Revenue 2014: $270,469Expenses 2014: $167,138Net Income 2014: $103,3312014Revenue 2015: $509,734Expenses 2015: $472,412Net Income 2015: $37,3222015Revenue 2016: $368,035Expenses 2016: $452,179Net Income 2016: -$84,1442016Revenue 2017: $214,512Expenses 2017: $207,895Net Income 2017: $6,6172017Revenue 2018: $176,133Expenses 2018: $259,060Net Income 2018: -$82,9272018Revenue 2019: $259,079Expenses 2019: $169,091Net Income 2019: $89,9882019Revenue 2020: $171,082Expenses 2020: $129,241Net Income 2020: $41,8412020Revenue 2021: $268,612Expenses 2021: $133,981Net Income 2021: $134,6312021Revenue 2022: $297,516Expenses 2022: $282,674Net Income 2022: $14,8422022Revenue 2023: $477,435Expenses 2023: $224,873Net Income 2023: $252,5622023Revenue 2024: $607,564Expenses 2024: $237,983Net Income 2024: $369,5812024

Highlighted filing

2022

Revenue$297,516
Expenses$282,674
Net Income$14,842
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
May 9, 2023
Return Version
2022v5.0
Gross Receipts
$323,882
Mission and Program Overview

Mission

The snow foundation is a collective voice for wolfram syndrome patients, working towards a cure for wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration.

Provide financial support for wolfram syndrome research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$333,900$347,775▲ $13,875
Land, Buildings, and Equipment, Net$3,055$3,947▲ $892
Total Assets$336,955$351,722▲ $14,767
Liabilities
Accounts Payable and Accrued Expenses$969$894▼ $75
Total Liabilities$969$894▼ $75
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$335,986$350,828▲ $14,842
Total Net Assets Fund Balance$335,986$350,828▲ $14,842
Total Liabilities and Net Assets / Fund Balance$336,955$351,722▲ $14,767

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$3,947$6,940$10,887
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Stephanie GebelChairman/CEOFT$30,000$30,000

Board Members and Trustees

NameTitle
Jt SnowDirector of Communications
Saad NaseerDirector/medical Advisor
Pat GibiliscoPatient Advocacy Liaison
Tod StephensSecretary
Robert HaggertyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$313,382
Program Service Revenue
$0
Investment Income
$-1,065
Other Revenue
$-14,801
All Other Contributions
$244,168
Change in Net Assets
$14,842
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$167,942
Other Expenses$84,732
Salaries, Compensation, and Employee Benefits$30,000
Total Fundraising Expense$9,510
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Foreign Grants$166,926--$166,926
Fees for Services Other$41,564$1,084$424$43,072
Current Officers, Directors, Trustees, and Key Employees$24,000$3,000$3,000$30,000
Travel$9,253-$1,992$11,245
Office Expenses$3,384$1,256$1,302$5,942
Fees for Services Accounting-$5,187-$5,187
Conferences and Meetings$1,131$1,217$350$2,698
Information Technology-$2,524-$2,524
Other Expenses$8,391-$2,442$2,442
Insurance-$1,643-$1,643
Depreciation Depletion-$1,316-$1,316
Grants to Domestic Orgs$1,016--$1,016
Advertising$272--$272
Total Functional Expenses$255,937$17,227$9,510$282,674
International Activity

International Summary

Offices
0
Employees
0
Spending
$166,926

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grants to Recipients Located in the RegionResearch Grants00$166,926
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$25,301
Fundraising Gross Income$10,500
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Tournament$74,714$5,500$3,915$1,585
Total Events$79,714$10,500$25,301$-14,801
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Stephanie GebelFamily Member of J.t. Snow, Director of CommunicationsEmploymentNo$30,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Stephanie gebel, chairman/ceo, has a family relationship with j.t. Snow, director of communications.

Form 990, Part VI, Section B, Line 11B

The form 990 is prepared by the organization's outside accountant. Prior to filing with the irs, a copy is made available to management and the board members for comment.

Form 990, Part VI, Section B, Line 12C

Management, the governing board of directors, and volunteers are required to sign a conflict of interest acknowledgement and disclosure statement annually.

Form 990, Part VI, Section B, Line 15

Compensation for management was determined by the governing board and set at a reasonable market rate after thorough market research. The foundation does not presently compensate any other key employees. If such persons are compensated in the future, a similar policy will be implemented to approve compensation.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy, and financial statements available upon request.

Filing and Contact Details

Filer

Filer Name
The Snow Foundation
EIN
45-5308117
Phone
6364484134
Address
PO BOX 50224, CLAYTON, MO 63105

Signing Officer

Name
Stephanie Gebel
Title
Chairman/CEO
Phone
6364484134
Signed
2023-05-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Stephanie Gebel
Formed
2012
Legal Domicile
Mo
Voting Board Members
6
Independent Board Members
4
Employees
0
Volunteers
8

Preparer

Firm
Armanino Llp
Address
6 CITYPLACE DRIVE SUITE 900, ST LOUIS, MO 63141
Preparer
Jennifer M Vacha
Phone
3149831200
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

Clinical research services: program service expenses 40,690. Management and general expenses 0. Fundraising expenses 0. Total expenses 40,690. Other professional services: program service expenses 467. Management and general expenses 1,084. Fundraising expenses 424. Total expenses 1,975. Patient registry: program service expenses 407. Management and general expenses 0. Fundraising expenses 0. Total expenses 407.

Raw XML AppendixShowing 400 of 427 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0969
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0894
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0PROVIDE FINANCIAL SUPPORT FOR WOLFRAM SYNDROME RESEARCH.
IRS990/AdvertisingGrp/ProgramServicesAmt0272
IRS990/AdvertisingGrp/TotalAmt0272
IRS990/AllOtherContributionsAmt0244168
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0THE ORGANIZATION
IRS990/BooksInCareOfDetail/PhoneNum06364484134
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0PO BOX 50224
IRS990/BooksInCareOfDetail/USAddress/CityNm0CLAYTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MO
IRS990/BooksInCareOfDetail/USAddress/ZIPCd063105
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd01
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0333900
IRS990/CashNonInterestBearingGrp/EOYAmt0347775
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt03000
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt03000
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt024000
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt030000
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConferencesMeetingsGrp/FundraisingAmt0350
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt01217
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt01131
IRS990/ConferencesMeetingsGrp/TotalAmt02698
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt069214
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0313382
IRS990/CYGrantsAndSimilarPaidAmt0167942
IRS990/CYInvestmentIncomeAmt0-1065
IRS990/CYOtherExpensesAmt084732
IRS990/CYOtherRevenueAmt0-14801
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt014842
IRS990/CYSalariesCompEmpBnftPaidAmt030000
IRS990/CYTotalExpensesAmt0282674
IRS990/CYTotalFundraisingExpenseAmt09510
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0297516
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt01316
IRS990/DepreciationDepletionGrp/TotalAmt01316
IRS990/Desc0THE SNOW FOUNDATION FOCUSES EFFORTS ON THREE PILLARS: RESEARCH, PATIENTS, AND MOBILIZATION OF THE WOLFRAM SYNDROME (WS) COMMUNITY. IN 2022, THE SNOW FOUNDATION CONTINUED EFFORTS IN RESEARCH AND FUNDING - SEEKING OUT THE BEST POSSIBLE WORLDWIDE RESEARCH WITH THE POWER TO MOVE THE NEEDLE ON DRUG THERAPIES FOR WS PATIENTS. PATIENTS CONTINUE TO BE THE MAJOR FOCUS OF FOUNDATION EFFORTS IN 2022 WITH THE LAUNCH OF THE WS GLOBAL PATIENT REGISTRY. THE REGISTRY PROVIDES PATIENTS WITH OWNERSHIP OF THE INFORMATION THEY NEED TO MAKE THE BEST MEDICAL DECISIONS FOR THEIR PERSONAL AND UNIQUE CIRCUMSTANCES. THROUGH THE REGISTRY, ALL PATIENTS RECEIVE IMMEDIATE ACCESS TO THE SAME INFORMATION AS IT BECOMES AVAILABLE. NEW DATA AND...(SEE SCH. O) RESEARCH RESULTS ARE NO LONGER LOCKED AWAY IN INSTITUTIONS AWAITING DISSEMINATION TO THOSE DEEMED NECESSARY. THROUGH THE REGISTRY, PATIENTS HAVE THE POWER TO DRIVE THEIR OWN HEALTHCARE EDUCATION AND DECISIONS. THEY WILL HEAR ABOUT NEW DRUGS AND TECHNIQUES WITHOUT HAVING TO RELY ON INSTITUTIONS TO SHARE THE KNOWLEDGE. THE ADDED BENEFIT OF THE REGISTRY IS THAT IT ACTS AS AN AUTOMATIC FACILITATOR TO CONTINUED MOBILIZATION OF THE WS COMMUNITY - PROVIDING GREATER OPPORTUNITIES FOR COLLABORATION AND PATIENT INTERACTION!AS DESCRIBED ABOVE, THE SNOW FOUNDATION HAS QUICKLY BECOME THE LARGEST INDEPENDENT SUPPORTER OF WS RESEARCH IN THE WORLD AND PLAYS A CENTRAL ROLE IN ADVANCING INTERNATIONAL COLLABORATIVE RESEARCH AND TREATMENT EFFORTS. WOLFRAM SYNDROME IS A DEVASTATING FORM OF DIABETES THAT LEADS TO THE DEGRADATION OF NERVE CELLS IN THE EYES, EARS, AND BRAIN. IN 60% OF CASES, PATIENTS WITH WS DIE BEFORE THEIR 40TH BIRTHDAY.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonorAdvisedFundInd00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0255937
IRS990/FamilyOrBusinessRlnInd01
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt05187
IRS990/FeesForServicesAccountingGrp/TotalAmt05187
IRS990/FeesForServicesOtherGrp/FundraisingAmt0424
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt01084
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt041564
IRS990/FeesForServicesOtherGrp/TotalAmt043072
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt0166926
IRS990/ForeignGrantsGrp/TotalAmt0166926
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt38.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt55.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/PersonNm0STEPHANIE GEBEL
IRS990/Form990PartVIISectionAGrp/PersonNm1ROBERT HAGGERTY
IRS990/Form990PartVIISectionAGrp/PersonNm2TOD STEPHENS
IRS990/Form990PartVIISectionAGrp/PersonNm3SAAD NASEER
IRS990/Form990PartVIISectionAGrp/PersonNm4JT SNOW
IRS990/Form990PartVIISectionAGrp/PersonNm5PAT GIBILISCO
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt030000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN/CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR/MEDICAL ADVISOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR OF COMMUNICATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt5PATIENT ADVOCACY LIAISON
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02012
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt069214
IRS990/FundraisingDirectExpensesAmt025301
IRS990/FundraisingGrossIncomeAmt010500
IRS990/GainOrLossGrp/OtherAmt0-1065
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt06
IRS990/GrantAmt0167942
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01016
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01016
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0323882
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt04
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt02524
IRS990/InformationTechnologyGrp/TotalAmt02524
IRS990/InsuranceGrp/ManagementAndGeneralAmt01643
IRS990/InsuranceGrp/TotalAmt01643
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt02
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt06940
IRS990/LandBldgEquipBasisNetGrp/BOYAmt03055
IRS990/LandBldgEquipBasisNetGrp/EOYAmt03947
IRS990/LandBldgEquipCostOrOtherBssAmt010887
IRS990/LegalDomicileStateCd0MO
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt01065
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE SNOW FOUNDATION IS A COLLECTIVE VOICE FOR WOLFRAM SYNDROME PATIENTS, WORKING TOWARDS A CURE FOR WOLFRAM SYNDROME AND DEVELOPING NOVEL THERAPIES FOR DIABETES, VISION LOSS, HEARING LOSS, AND NEURODEGENERATION.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt0335986
IRS990/NetAssetsOrFundBalancesEOYAmt0350828
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-1065
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-1065
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-14801
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-14801
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0335986
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0350828
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt01302
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01256
IRS990/OfficeExpensesGrp/ProgramServicesAmt03384
IRS990/OfficeExpensesGrp/TotalAmt05942
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0OTHER PROGRAM EXP
IRS990/OtherExpensesGrp/Desc1EVENT SUPPLIES
IRS990/OtherExpensesGrp/FundraisingAmt02442
IRS990/OtherExpensesGrp/ProgramServicesAmt08391
IRS990/OtherExpensesGrp/TotalAmt08391
IRS990/OtherExpensesGrp/TotalAmt12442
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0STEPHANIE GEBEL
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0285057
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt0105664
IRS990/PYOtherRevenueAmt0-16445
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0134631
IRS990/PYSalariesCompEmpBnftPaidAmt025520
IRS990/PYTotalExpensesAmt0133981
IRS990/PYTotalProfFndrsngExpnsAmt02797
IRS990/PYTotalRevenueAmt0268612
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt014842
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0313382
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0285057
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0171082
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0295308
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0180984
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01245813
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.88520
IRS990ScheduleA/PublicSupportPY170Pct00.89880
IRS990ScheduleA/PublicSupportTotal170Amt01102775
IRS990ScheduleA/SubstantialContributorsTotAmt0143038
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0313382
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0285057
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0171082
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0295308
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0180984
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01245813
IRS990ScheduleA/TotalSupportAmt01245813
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt03947
IRS990ScheduleD/EquipmentGrp/DepreciationAmt06940
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt010887
IRS990ScheduleD/TotalBookValueLandBuildingsAmt03947
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt0166926
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0RESEARCH GRANTS
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANTS TO RECIPIENTS LOCATED IN THE REGION
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt0166926
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt0166926
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0AS A SCIENTIFIC RESEARCH FOUNDATION, THE SNOW FOUNDATION IS COMMITTED TO SUPPORTING RESEARCH AND WORKING TOWARDS A CURE FOR WOLFRAM SYNDROME. MANAGEMENT AND THE GOVERNING BOARD OF DIRECTORS CONSIDER POTENTIAL RESEARCH PROGRAMS AND SELECT WHICH PROGRAMS TO FUND AS GRANT MONIES ARE AVAILABLE. GRANT FUNDS ARE DISBURSED DIRECTLY TO THE ORGANIZATIONS WITH DEMONSTRATED PROGRAMS IN PLACE TO FURTHER MISSION-RELATED RESEARCH.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc1PART III ACCOUNTING METHOD:
IRS990ScheduleF/Total501c3OrgCnt00
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalOtherOrgCnt01
IRS990ScheduleF/TotalSpentAmt0166926
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt069214
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt069214
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt00
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt025301
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GOLF TOURNAMENT
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt05348
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt05348
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt074714
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt05000
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt079714
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt05500
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt05000
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt010500
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-14801
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt05302
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesOtherEventsAmt02211
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt07513
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt03915
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt03915
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt02
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt08525
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt08525
IRS990/ScheduleJRequiredInd00
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0STEPHANIE GEBEL
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0FAMILY MEMBER OF J.T. SNOW, DIRECTOR OF COMMUNICATIONS
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd00
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt030000
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0EMPLOYMENT
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0STEPHANIE GEBEL, CHAIRMAN/CEO, HAS A FAMILY RELATIONSHIP WITH J.T. SNOW, DIRECTOR OF COMMUNICATIONS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE FORM 990 IS PREPARED BY THE ORGANIZATION'S OUTSIDE ACCOUNTANT. PRIOR TO FILING WITH THE IRS, A COPY IS MADE AVAILABLE TO MANAGEMENT AND THE BOARD MEMBERS FOR COMMENT.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2MANAGEMENT, THE GOVERNING BOARD OF DIRECTORS, AND VOLUNTEERS ARE REQUIRED TO SIGN A CONFLICT OF INTEREST ACKNOWLEDGEMENT AND DISCLOSURE STATEMENT ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3COMPENSATION FOR MANAGEMENT WAS DETERMINED BY THE GOVERNING BOARD AND SET AT A REASONABLE MARKET RATE AFTER THOROUGH MARKET RESEARCH. THE FOUNDATION DOES NOT PRESENTLY COMPENSATE ANY OTHER KEY EMPLOYEES. IF SUCH PERSONS ARE COMPENSATED IN THE FUTURE, A SIMILAR POLICY WILL BE IMPLEMENTED TO APPROVE COMPENSATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5CLINICAL RESEARCH SERVICES: PROGRAM SERVICE EXPENSES 40,690. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 40,690. OTHER PROFESSIONAL SERVICES: PROGRAM SERVICE EXPENSES 467. MANAGEMENT AND GENERAL EXPENSES 1,084. FUNDRAISING EXPENSES 424. TOTAL EXPENSES 1,975. PATIENT REGISTRY: PROGRAM SERVICE EXPENSES 407. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 407.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION B, LINE 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART IX, LINE 11G
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0336955
IRS990/TotalAssetsEOYAmt0351722
IRS990/TotalAssetsGrp/BOYAmt0336955
IRS990/TotalAssetsGrp/EOYAmt0351722
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0313382
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt09510
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt017227
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0255937
IRS990/TotalFunctionalExpensesGrp/TotalAmt0282674
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0969
IRS990/TotalLiabilitiesEOYAmt0894
IRS990/TotalLiabilitiesGrp/BOYAmt0969
IRS990/TotalLiabilitiesGrp/EOYAmt0894
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0335986
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0350828
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0255937
IRS990/TotalReportableCompFromOrgAmt030000
IRS990/TotalRevenueGrp/ExclusionAmt0-15866
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0297516
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt08
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0336955
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0351722
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/FundraisingAmt01992
IRS990/TravelGrp/ProgramServicesAmt09253
IRS990/TravelGrp/TotalAmt011245
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0PO BOX 50224
IRS990/USAddress/CityNm0CLAYTON
IRS990/USAddress/StateAbbreviationCd0MO
IRS990/USAddress/ZIPCd063105
IRS990/VotingMembersGoverningBodyCnt06
IRS990/VotingMembersIndependentCnt04
IRS990/WebsiteAddressTxt0THESNOWFOUNDATION.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd02
ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0STEPHANIE GEBEL

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings