Liabilities / Assets
61st percentile
Higher debt load relative to assets than 61% of similar nonprofits.
990 • Fiscal year 2022 • EIN 45-5308117
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
61st percentile
Higher debt load relative to assets than 61% of similar nonprofits.
Liabilities / Revenue
61st percentile
Higher debt load relative to revenue than 61% of similar nonprofits.
Net Margin
50th percentile
Higher net margin than 50% of similar nonprofits.
Top Officer Pay
88th percentile
Higher top officer pay than 88% of similar nonprofits.
Top officer pay equals 10.1% of source-year revenue.
Asset Growth
55th percentile
Faster asset growth than 55% of similar nonprofits.
Revenue Growth
51st percentile
Faster revenue growth than 51% of similar nonprofits.
Assets
Up$351,722
Up $14,767 (+4.4%) from 2021
Net Assets
Up$350,828
Up $14,842 (+4.4%) from 2021
Liabilities
Down$894
Down $75 (-7.7%) from 2021
Revenue
Up$297,516
Up $28,904 (+11%) from 2021
Expenses
Up$282,674
Up $148,693 (+111%) from 2021
Net Income
Down$14,842
Down $119,789 (-89%) from 2021
The snow foundation is a collective voice for wolfram syndrome patients, working towards a cure for wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration.
Provide financial support for wolfram syndrome research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $333,900 | $347,775 | ▲ $13,875 |
| Land, Buildings, and Equipment, Net | $3,055 | $3,947 | ▲ $892 |
| Total Assets | $336,955 | $351,722 | ▲ $14,767 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $969 | $894 | ▼ $75 |
| Total Liabilities | $969 | $894 | ▼ $75 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $335,986 | $350,828 | ▲ $14,842 |
| Total Net Assets Fund Balance | $335,986 | $350,828 | ▲ $14,842 |
| Total Liabilities and Net Assets / Fund Balance | $336,955 | $351,722 | ▲ $14,767 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $3,947 | $6,940 | $10,887 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Stephanie Gebel | Chairman/CEO | FT | $30,000 | $30,000 |
| Name | Title |
|---|---|
| Jt Snow | Director of Communications |
| Saad Naseer | Director/medical Advisor |
| Pat Gibilisco | Patient Advocacy Liaison |
| Tod Stephens | Secretary |
| Robert Haggerty | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $167,942 |
| Other Expenses | $84,732 |
| Salaries, Compensation, and Employee Benefits | $30,000 |
| Total Fundraising Expense | $9,510 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Foreign Grants | $166,926 | - | - | $166,926 |
| Fees for Services Other | $41,564 | $1,084 | $424 | $43,072 |
| Current Officers, Directors, Trustees, and Key Employees | $24,000 | $3,000 | $3,000 | $30,000 |
| Travel | $9,253 | - | $1,992 | $11,245 |
| Office Expenses | $3,384 | $1,256 | $1,302 | $5,942 |
| Fees for Services Accounting | - | $5,187 | - | $5,187 |
| Conferences and Meetings | $1,131 | $1,217 | $350 | $2,698 |
| Information Technology | - | $2,524 | - | $2,524 |
| Other Expenses | $8,391 | - | $2,442 | $2,442 |
| Insurance | - | $1,643 | - | $1,643 |
| Depreciation Depletion | - | $1,316 | - | $1,316 |
| Grants to Domestic Orgs | $1,016 | - | - | $1,016 |
| Advertising | $272 | - | - | $272 |
| Total Functional Expenses | $255,937 | $17,227 | $9,510 | $282,674 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe (including Iceland & Greenland) | Grants to Recipients Located in the Region | Research Grants | 0 | 0 | $166,926 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $25,301 |
| Fundraising Gross Income | $10,500 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Golf Tournament | $74,714 | $5,500 | $3,915 | $1,585 |
| Total Events | $79,714 | $10,500 | $25,301 | $-14,801 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| Stephanie Gebel | Family Member of J.t. Snow, Director of Communications | Employment | No | $30,000 |
“Stephanie gebel, chairman/ceo, has a family relationship with j.t. Snow, director of communications.”
“The form 990 is prepared by the organization's outside accountant. Prior to filing with the irs, a copy is made available to management and the board members for comment.”
“Management, the governing board of directors, and volunteers are required to sign a conflict of interest acknowledgement and disclosure statement annually.”
“Compensation for management was determined by the governing board and set at a reasonable market rate after thorough market research. The foundation does not presently compensate any other key employees. If such persons are compensated in the future, a similar policy will be implemented to approve compensation.”
“The organization makes its governing documents, conflict of interest policy, and financial statements available upon request.”
“Clinical research services: program service expenses 40,690. Management and general expenses 0. Fundraising expenses 0. Total expenses 40,690. Other professional services: program service expenses 467. Management and general expenses 1,084. Fundraising expenses 424. Total expenses 1,975. Patient registry: program service expenses 407. Management and general expenses 0. Fundraising expenses 0. Total expenses 407.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 969 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 894 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | PROVIDE FINANCIAL SUPPORT FOR WOLFRAM SYNDROME RESEARCH. |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 272 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 272 |
| IRS990/AllOtherContributionsAmt | 0 | 244168 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | THE ORGANIZATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6364484134 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO BOX 50224 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CLAYTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MO |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 63105 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 1 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 333900 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 347775 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 3000 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 3000 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 24000 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 30000 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 350 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 1217 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 1131 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 2698 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 69214 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 313382 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 167942 |
| IRS990/CYInvestmentIncomeAmt | 0 | -1065 |
| IRS990/CYOtherExpensesAmt | 0 | 84732 |
| IRS990/CYOtherRevenueAmt | 0 | -14801 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 14842 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 30000 |
| IRS990/CYTotalExpensesAmt | 0 | 282674 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 9510 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 297516 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 1316 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 1316 |
| IRS990/Desc | 0 | THE SNOW FOUNDATION FOCUSES EFFORTS ON THREE PILLARS: RESEARCH, PATIENTS, AND MOBILIZATION OF THE WOLFRAM SYNDROME (WS) COMMUNITY. IN 2022, THE SNOW FOUNDATION CONTINUED EFFORTS IN RESEARCH AND FUNDING - SEEKING OUT THE BEST POSSIBLE WORLDWIDE RESEARCH WITH THE POWER TO MOVE THE NEEDLE ON DRUG THERAPIES FOR WS PATIENTS. PATIENTS CONTINUE TO BE THE MAJOR FOCUS OF FOUNDATION EFFORTS IN 2022 WITH THE LAUNCH OF THE WS GLOBAL PATIENT REGISTRY. THE REGISTRY PROVIDES PATIENTS WITH OWNERSHIP OF THE INFORMATION THEY NEED TO MAKE THE BEST MEDICAL DECISIONS FOR THEIR PERSONAL AND UNIQUE CIRCUMSTANCES. THROUGH THE REGISTRY, ALL PATIENTS RECEIVE IMMEDIATE ACCESS TO THE SAME INFORMATION AS IT BECOMES AVAILABLE. NEW DATA AND...(SEE SCH. O) RESEARCH RESULTS ARE NO LONGER LOCKED AWAY IN INSTITUTIONS AWAITING DISSEMINATION TO THOSE DEEMED NECESSARY. THROUGH THE REGISTRY, PATIENTS HAVE THE POWER TO DRIVE THEIR OWN HEALTHCARE EDUCATION AND DECISIONS. THEY WILL HEAR ABOUT NEW DRUGS AND TECHNIQUES WITHOUT HAVING TO RELY ON INSTITUTIONS TO SHARE THE KNOWLEDGE. THE ADDED BENEFIT OF THE REGISTRY IS THAT IT ACTS AS AN AUTOMATIC FACILITATOR TO CONTINUED MOBILIZATION OF THE WS COMMUNITY - PROVIDING GREATER OPPORTUNITIES FOR COLLABORATION AND PATIENT INTERACTION!AS DESCRIBED ABOVE, THE SNOW FOUNDATION HAS QUICKLY BECOME THE LARGEST INDEPENDENT SUPPORTER OF WS RESEARCH IN THE WORLD AND PLAYS A CENTRAL ROLE IN ADVANCING INTERNATIONAL COLLABORATIVE RESEARCH AND TREATMENT EFFORTS. WOLFRAM SYNDROME IS A DEVASTATING FORM OF DIABETES THAT LEADS TO THE DEGRADATION OF NERVE CELLS IN THE EYES, EARS, AND BRAIN. IN 60% OF CASES, PATIENTS WITH WS DIE BEFORE THEIR 40TH BIRTHDAY. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 255937 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 5187 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 5187 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 424 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 1084 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 41564 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 43072 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 166926 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 166926 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 8.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | STEPHANIE GEBEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ROBERT HAGGERTY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | TOD STEPHENS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | SAAD NASEER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | JT SNOW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | PAT GIBILISCO |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 30000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIRMAN/CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR/MEDICAL ADVISOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR OF COMMUNICATIONS |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | PATIENT ADVOCACY LIAISON |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2012 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedInd | 0 | 0 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 69214 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 25301 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 10500 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | -1065 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantAmt | 0 | 167942 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 1016 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 1016 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 323882 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 4 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 2524 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 2524 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1643 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1643 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 2 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 6940 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 3055 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 3947 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 10887 |
| IRS990/LegalDomicileStateCd | 0 | MO |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 1065 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE SNOW FOUNDATION IS A COLLECTIVE VOICE FOR WOLFRAM SYNDROME PATIENTS, WORKING TOWARDS A CURE FOR WOLFRAM SYNDROME AND DEVELOPING NOVEL THERAPIES FOR DIABETES, VISION LOSS, HEARING LOSS, AND NEURODEGENERATION. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 335986 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 350828 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | -1065 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -1065 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -14801 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -14801 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 335986 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 350828 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1302 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1256 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 3384 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 5942 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | OTHER PROGRAM EXP |
| IRS990/OtherExpensesGrp/Desc | 1 | EVENT SUPPLIES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 2442 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 8391 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 8391 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 2442 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | STEPHANIE GEBEL |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 285057 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 105664 |
| IRS990/PYOtherRevenueAmt | 0 | -16445 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 134631 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 25520 |
| IRS990/PYTotalExpensesAmt | 0 | 133981 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 2797 |
| IRS990/PYTotalRevenueAmt | 0 | 268612 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 14842 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 313382 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 285057 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 171082 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 295308 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 180984 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1245813 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.88520 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.89880 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1102775 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 143038 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 313382 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 285057 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 171082 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 295308 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 180984 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1245813 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1245813 |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 3947 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 6940 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 10887 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 3947 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt | 0 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt | 0 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 166926 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | EUROPE (INCLUDING ICELAND & GREENLAND) |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | RESEARCH GRANTS |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | GRANTS TO RECIPIENTS LOCATED IN THE REGION |
| IRS990ScheduleF/BoycottCountriesInd | 0 | 0 |
| IRS990ScheduleF/ContinuationSpentAmt | 0 | 0 |
| IRS990ScheduleF/ContinuationTotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/ContinuationTotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | 0 |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | 0 |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 166926 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | WIRE TRANSFER |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | EUROPE (INCLUDING ICELAND & GREENLAND) |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | 0 |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | 0 |
| IRS990ScheduleF/SubtotalEmployeesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalOfficesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 166926 |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | AS A SCIENTIFIC RESEARCH FOUNDATION, THE SNOW FOUNDATION IS COMMITTED TO SUPPORTING RESEARCH AND WORKING TOWARDS A CURE FOR WOLFRAM SYNDROME. MANAGEMENT AND THE GOVERNING BOARD OF DIRECTORS CONSIDER POTENTIAL RESEARCH PROGRAMS AND SELECT WHICH PROGRAMS TO FUND AS GRANT MONIES ARE AVAILABLE. GRANT FUNDS ARE DISBURSED DIRECTLY TO THE ORGANIZATIONS WITH DEMONSTRATED PROGRAMS IN PLACE TO FURTHER MISSION-RELATED RESEARCH. |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART I, LINE 2: |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART III ACCOUNTING METHOD: |
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| IRS990ScheduleF/TotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOtherOrgCnt | 0 | 1 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 166926 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 69214 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 69214 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 25301 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | GOLF TOURNAMENT |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 5348 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 5348 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 74714 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 5000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 79714 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 5500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 5000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 10500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | -14801 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt | 0 | 5302 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesOtherEventsAmt | 0 | 2211 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt | 0 | 7513 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 3915 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 3915 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 2 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 8525 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 8525 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 0 | STEPHANIE GEBEL |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 0 | FAMILY MEMBER OF J.T. SNOW, DIRECTOR OF COMMUNICATIONS |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 0 | 0 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 0 | 30000 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 0 | EMPLOYMENT |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | STEPHANIE GEBEL, CHAIRMAN/CEO, HAS A FAMILY RELATIONSHIP WITH J.T. SNOW, DIRECTOR OF COMMUNICATIONS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE FORM 990 IS PREPARED BY THE ORGANIZATION'S OUTSIDE ACCOUNTANT. PRIOR TO FILING WITH THE IRS, A COPY IS MADE AVAILABLE TO MANAGEMENT AND THE BOARD MEMBERS FOR COMMENT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | MANAGEMENT, THE GOVERNING BOARD OF DIRECTORS, AND VOLUNTEERS ARE REQUIRED TO SIGN A CONFLICT OF INTEREST ACKNOWLEDGEMENT AND DISCLOSURE STATEMENT ANNUALLY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | COMPENSATION FOR MANAGEMENT WAS DETERMINED BY THE GOVERNING BOARD AND SET AT A REASONABLE MARKET RATE AFTER THOROUGH MARKET RESEARCH. THE FOUNDATION DOES NOT PRESENTLY COMPENSATE ANY OTHER KEY EMPLOYEES. IF SUCH PERSONS ARE COMPENSATED IN THE FUTURE, A SIMILAR POLICY WILL BE IMPLEMENTED TO APPROVE COMPENSATION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | CLINICAL RESEARCH SERVICES: PROGRAM SERVICE EXPENSES 40,690. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 40,690. OTHER PROFESSIONAL SERVICES: PROGRAM SERVICE EXPENSES 467. MANAGEMENT AND GENERAL EXPENSES 1,084. FUNDRAISING EXPENSES 424. TOTAL EXPENSES 1,975. PATIENT REGISTRY: PROGRAM SERVICE EXPENSES 407. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 407. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION A, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION B, LINE 15 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART IX, LINE 11G |
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| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | 0 |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
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| IRS990/TotalAssetsEOYAmt | 0 | 351722 |
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| IRS990/TotalAssetsGrp/EOYAmt | 0 | 351722 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 313382 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 9510 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 17227 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 255937 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 282674 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 969 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 894 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 969 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 894 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 335986 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 350828 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 255937 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 30000 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | -15866 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 297516 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
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| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 336955 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 351722 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TravelGrp/FundraisingAmt | 0 | 1992 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 9253 |
| IRS990/TravelGrp/TotalAmt | 0 | 11245 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | 0 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | PO BOX 50224 |
| IRS990/USAddress/CityNm | 0 | CLAYTON |
| IRS990/USAddress/StateAbbreviationCd | 0 | MO |
| IRS990/USAddress/ZIPCd | 0 | 63105 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 6 |
| IRS990/VotingMembersIndependentCnt | 0 | 4 |
| IRS990/WebsiteAddressTxt | 0 | THESNOWFOUNDATION.ORG |
| IRS990/WhistleblowerPolicyInd | 0 | 0 |
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| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd | 0 | IAL1 |
| ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd | 0 | 2 |
| ReturnHeader/BuildTS | 0 | 2023-04-26 12:10:37Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | 1 |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | STEPHANIE GEBEL |
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Displayed year
2022 • Form 990Detailed filing. Detailed filing data is available for this year.