Liabilities / Assets
1st percentile
Higher debt load relative to assets than 1% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
1st percentile
Higher debt load relative to assets than 1% of similar nonprofits.
Liabilities / Revenue
1st percentile
Higher debt load relative to revenue than 1% of similar nonprofits.
Net Margin
23rd percentile
Higher net margin than 23% of similar nonprofits.
Top Officer Pay
57th percentile
Higher top officer pay than 57% of similar nonprofits.
Top officer pay equals 3.5% of source-year revenue.
Asset Growth
7th percentile
Faster asset growth than 7% of similar nonprofits.
Revenue Growth
89th percentile
Faster revenue growth than 89% of similar nonprofits.
Assets
Down$183,031
Down $39,337 (-18%) from 2020
Net Assets
Down$183,324
Down $20,734 (-10%) from 2020
Liabilities
Down-$293
Down $18,603 (-102%) from 2020
Revenue
Up$511,294
Up $286,678 (+128%) from 2020
Expenses
Up$529,837
Up $327,941 (+162%) from 2020
Net Income
Down-$18,543
Down $41,263 (-182%) from 2020
Hope4Harper is a 501c3 not for profit organization created to provide hope, through research and awareness, to those living with CDKL5 disorder and other related diseases.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $212,494 | $109,245 | ▼ $103,249 |
| Savings and Temporary Cash Investments | $8,000 | $72,514 | ▲ $64,514 |
| Loans From Officers Directors | $1,388 | $1,388 | → $0 |
| Land, Buildings, and Equipment, Net | $1,874 | $1,272 | ▼ $602 |
| Accounts Receivable | $0 | $0 | → $0 |
| Other Notes and Loans Receivable, Net | $0 | $0 | → $0 |
| Pledges and Grants Receivable | $0 | $0 | → $0 |
| Receivable From Disqualified Prsn | $0 | $0 | → $0 |
| Receivables From Officers Etc | $0 | $0 | → $0 |
| Investments Other Securities | $0 | $0 | → $0 |
| Investments Program Related | $0 | $0 | → $0 |
| Investments in Publicly Traded Securities | $0 | $0 | → $0 |
| Intangible Assets | $0 | $0 | → $0 |
| Inventories for Sale or Use | $0 | $0 | → $0 |
| Prepaid Expenses and Deferred Charges | $0 | $0 | → $0 |
| Total Assets | $222,368 | $183,031 | ▼ $39,337 |
| Other Assets Total | $0 | $0 | → $0 |
| Liabilities | |||
| Other Liabilities | $18,307 | $3,042 | ▼ $15,265 |
| Grants Payable | $0 | $0 | → $0 |
| Mortgage Notes Payable Secured by Investment Property | $0 | $0 | → $0 |
| Unsecured Notes Loans Payable | $0 | $0 | → $0 |
| Deferred Revenue | $0 | $0 | → $0 |
| Escrow Account Liability | $0 | $0 | → $0 |
| Tax Exempt Bond Liabilities | $0 | $0 | → $0 |
| Accounts Payable and Accrued Expenses | $-1,385 | $-4,723 | ▼ $3,338 |
| Total Liabilities | $18,310 | $-293 | ▼ $18,603 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $204,058 | $183,324 | ▼ $20,734 |
| Net Assets With Donor Restrictions | $0 | $0 | → $0 |
| Total Net Assets Fund Balance | $204,058 | $183,324 | ▼ $20,734 |
| Total Liabilities and Net Assets / Fund Balance | $222,368 | $183,031 | ▼ $39,337 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $1,272 | $2,829 | $3,498 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Penny Howard | CEO | PT | $18,000 | $18,000 |
| Name | Title |
|---|---|
| Dustin Howard | Director |
| Natalie Howard | director |
| Line Item | Amount |
|---|---|
| Other Expenses | $390,924 |
| Grants and Similar Amounts Paid | $75,000 |
| Salaries, Compensation, and Employee Benefits | $63,913 |
| Total Fundraising Expense | $4,017 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Foreign Grants | $75,000 | - | - | $75,000 |
| Other Salaries and Wages | $28,209 | $12,090 | - | $40,299 |
| Current Officers, Directors, Trustees, and Key Employees | - | $18,000 | - | $18,000 |
| Fees for Services Accounting | - | $9,472 | - | $9,472 |
| Fees for Services Other | - | $8,954 | - | $8,954 |
| Office Expenses | $1,358 | $4,057 | $1,324 | $6,739 |
| Travel | - | $5,662 | $113 | $5,775 |
| Payroll Taxes | $2,562 | $1,954 | $1,098 | $5,614 |
| Insurance | - | $1,283 | - | $1,283 |
| Depreciation Depletion | $438 | $509 | $269 | $1,216 |
| Conferences and Meetings | - | - | $1,045 | $1,045 |
| Information Technology | $272 | $316 | $168 | $756 |
| Advertising | - | $346 | - | $346 |
| Other Expenses | $353,735 | $259 | - | $259 |
| Total Functional Expenses | $461,574 | $64,246 | $4,017 | $529,837 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Middle East and North Africa | Program Services | Therapy Research | - | - | $75,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $0 |
| Fundraising Gross Income | $0 |
| Gaming Direct Expenses | $0 |
| Gaming Gross Income | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Loans from Officers, Directors, Trustees, and Key Employees | $1,388 | $1,388 | → $0 |
| Receivables from Disqualified Persons | $0 | $0 | → $0 |
| Receivables from Officers, Directors, Trustees, and Key Employees | $0 | $0 | → $0 |
| Liability | Amount |
|---|---|
| TX Unemployment Tax | $1,731 |
| Federal Taxes | $790 |
| CA Pit/sdi | $521 |
| Sba Loan | $0 |
“Form 990, page 6, Part VI, Section A, question 2: Dustin Howard is married to founder Penny Howard and Natalie Howard is the sister of Dustin Howard”
“Form 990, Page 6, Part VI, Section B, Question 11: The review of the form 990 is done by the member of the board.”
“Form 990, Page 6, Part VI, Section C, Question 19: Form 990 available Upon request”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | -1385 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | -4723 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 0 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | Hope4Harper is a 501c3 not for profit organization created to provide hope, through research and awareness, to those living with CDKL5 disorder and other related diseases. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 346 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 346 |
| IRS990/AllOtherContributionsAmt | 0 | 511294 |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | PENNY HOWARD |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2145296952 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO BOX 116952 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CARROLLTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 75011 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 212494 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 109245 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 18000 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 18000 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 1045 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 1045 |
| IRS990/ConflictOfInterestPolicyInd | 0 | false |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CostOfGoodsSoldAmt | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 511294 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 75000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 390924 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -18543 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 63913 |
| IRS990/CYTotalExpensesAmt | 0 | 529837 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 4017 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 511294 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 0 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 269 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 509 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 438 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 1216 |
| IRS990/Desc | 0 | PreClinical Research - We collaborate with and support leading research laboratories around the world, and fill the gaps of information that will help accelerate the development of treatments for CDKL5 Deficiency Disorder. Life After CDKL5 - Provide resources and support to families who have lost family members to the CDKL5 Deficiency Disorder. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountLiabilityGrp/BOYAmt | 0 | 0 |
| IRS990/EscrowAccountLiabilityGrp/EOYAmt | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 461574 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 9472 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 9472 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 8954 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 8954 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 75000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 75000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 20.0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.0 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Penny Howard |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Dustin Howard |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Natalie Howard |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 18000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2012 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/FundraisingDirectExpensesAmt | 0 | 0 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GamingDirectExpensesAmt | 0 | 0 |
| IRS990/GamingGrossIncomeAmt | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 3 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 0 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 0 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 511294 |
| IRS990/GrossSalesOfInventoryAmt | 0 | 0 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 2 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 168 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 316 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 272 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 756 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1283 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1283 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 0 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/BOYAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/BOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 2226 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 1874 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 1272 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 3498 |
| IRS990/LegalDomicileStateCd | 0 | TX |
| IRS990/LoanOutstandingInd | 0 | true |
| IRS990/LoansFromOfficersDirectorsGrp/BOYAmt | 0 | 1388 |
| IRS990/LoansFromOfficersDirectorsGrp/EOYAmt | 0 | 1388 |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfGoverningBodyInd | 0 | false |
| IRS990/MissionDesc | 0 | HOPE4HARPER IS A 501C3 NOT FOR PROFIT ORGANIZATION CREATED TO PROVIDE HOPE, THROUGH RESEARCH AND AWARENESS, TO THOSE LIVING WITH CDKL5 DISORDER AND OTHER RELATED DISEASES. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt | 0 | 0 |
| IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 204058 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 183324 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 204058 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 183324 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/TotalAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1324 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 4057 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1358 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 6739 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 0 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | RESEARCH |
| IRS990/OtherExpensesGrp/Desc | 1 | GIFTS |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1344 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 259 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 353735 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 355079 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 259 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 18307 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 3042 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 12090 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 28209 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 40299 |
| IRS990/OthNotesLoansReceivableNetGrp/BOYAmt | 0 | 0 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1098 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1954 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 2562 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 5614 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | PENNY HOWARD |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | -2191 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 224615 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 111234 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 64842 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 22720 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 25820 |
| IRS990/PYTotalExpensesAmt | 0 | 201896 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 224616 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/BOYAmt | 0 | 0 |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/BOYAmt | 0 | 0 |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -18543 |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/RentalIncomeOrLossGrp/PersonalAmt | 0 | 0 |
| IRS990/RentalIncomeOrLossGrp/RealAmt | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | true |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 8000 |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 224615 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 473832 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 23231 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 23806 |
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| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 3 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 46242 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.21625 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.49452 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 271783 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 984995 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsPY170Ind | 0 | X |
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| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 23231 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 23806 |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
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| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 1272 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 2829 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 3498 |
| IRS990ScheduleD/FederalIncomeTaxLiabilityAmt | 0 | 0 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 1731 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 1 | 790 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 2 | 0 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 3 | 521 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | TX UNEMPLOYMENT TAX |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 1 | FEDERAL TAXES |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 2 | SBA LOAN |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 3 | CA PIT/SDI |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 1272 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 3042 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 75000 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | Middle East and North Africa |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | THERAPY RESEARCH |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | Program Services |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
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| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 75000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | THERAPY RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | Middle East and North Africa |
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| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 75000 |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | Our organizational grants are gifts to the laboratories' projects pertaining to CDKL5 research. We do follow up calls, visits at conferences in person and occasional emails to check on the progress of the project. But because we are not a formal grant program we do not control the project. This allows the researcher freedom to move the project towards a viable result to get to a treatment faster. |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | procedure of monitoring the use for the grants outside the US |
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| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt | 0 | 1388 |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd | 0 | true |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd | 0 | false |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt | 0 | REIMBURSEMENT |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd | 0 | X |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt | 0 | 1388 |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm | 0 | PENNY HOWARD |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt | 0 | CEO |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd | 0 | false |
| IRS990ScheduleL/TotalBalanceDueAmt | 0 | 1388 |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Form 990, page 6, Part VI, Section A, question 2: Dustin Howard is married to founder Penny Howard and Natalie Howard is the sister of Dustin Howard |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Form 990, Page 6, Part VI, Section B, Question 11: The review of the form 990 is done by the member of the board. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Form 990, Page 6, Part VI, Section C, Question 19: Form 990 available Upon request |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | family relationship or a business relationship |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | THIS 990 REVIEW PROCESS |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | how organization made its governing documents |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
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| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/TaxExemptBondLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 222368 |
| IRS990/TotalAssetsEOYAmt | 0 | 183031 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 222368 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 183031 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 511294 |
| IRS990/TotalEmployeeCnt | 0 | 2 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 4017 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 64246 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 461574 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 529837 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 18310 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | -293 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 18310 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | -293 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 204058 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 183324 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 461574 |
| IRS990/TotalProgramServiceRevenueAmt | 0 | 0 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 18000 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 511294 |
| IRS990/TotalVolunteersCnt | 0 | 6 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 222368 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 183031 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TravelGrp/FundraisingAmt | 0 | 113 |
| IRS990/TravelGrp/ManagementAndGeneralAmt | 0 | 5662 |
| IRS990/TravelGrp/TotalAmt | 0 | 5775 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.