Civic Intelligence

Hope 4 Harper

990 • Fiscal year 2021 • EIN 45-4886455

Jan 01, 2021 to Dec 31, 2021 • Filed on May 08, 2022

PO Box 116952Carrollton, TX 75011

(214) 529-6952

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

1st percentile

-0.00x

Higher debt load relative to assets than 1% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Liabilities / Revenue

1st percentile

-0.00x

Higher debt load relative to revenue than 1% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Net Margin

23rd percentile

-3.6%

Higher net margin than 23% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Top Officer Pay

57th percentile

$18,000

Higher top officer pay than 57% of similar nonprofits.

Top officer pay equals 3.5% of source-year revenue.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Asset Growth

7th percentile

-18%

Faster asset growth than 7% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Revenue Growth

89th percentile

128%

Faster revenue growth than 89% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Assets

Down

$183,031

Down $39,337 (-18%) from 2020

Net Assets

Down

$183,324

Down $20,734 (-10%) from 2020

Liabilities

Down

-$293

Down $18,603 (-102%) from 2020

Revenue

Up

$511,294

Up $286,678 (+128%) from 2020

Expenses

Up

$529,837

Up $327,941 (+162%) from 2020

Net Income

Down

-$18,543

Down $41,263 (-182%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0-$100KAssets 2019: $180,931Liabilities 2019: $1,388Net Assets 2019: $179,5432019Assets 2020: $222,368Liabilities 2020: $18,310Net Assets 2020: $204,0582020Assets 2021: $183,031Liabilities 2021: -$293Net Assets 2021: $183,3242021Assets 2022: $89,089Liabilities 2022: -$629Net Assets 2022: $89,7182022Assets 2023: $103,779Liabilities 2023: $4,552Net Assets 2023: $99,2272023Assets 2024: $75,717Liabilities 2024: $4,322Net Assets 2024: $71,3952024

Highlighted filing

2021

Assets$183,031
Liabilities-$293
Net Assets$183,324

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2019: $473,833Expenses 2019: $326,898Net Income 2019: $146,9352019Revenue 2020: $224,616Expenses 2020: $201,896Net Income 2020: $22,7202020Revenue 2021: $511,294Expenses 2021: $529,837Net Income 2021: -$18,5432021Revenue 2022: $440,256Expenses 2022: $530,755Net Income 2022: -$90,4992022Revenue 2023: $170,377Expenses 2023: $160,868Net Income 2023: $9,5092023Revenue 2024: $4,280Expenses 2024: $32,466Net Income 2024: -$28,1862024

Highlighted filing

2021

Revenue$511,294
Expenses$529,837
Net Income-$18,543
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
May 8, 2022
Return Version
2021v4.2
Gross Receipts
$511,294
Mission and Program Overview

Mission

Hope4Harper is a 501c3 not for profit organization created to provide hope, through research and awareness, to those living with CDKL5 disorder and other related diseases.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$212,494$109,245▼ $103,249
Savings and Temporary Cash Investments$8,000$72,514▲ $64,514
Loans From Officers Directors$1,388$1,388→ $0
Land, Buildings, and Equipment, Net$1,874$1,272▼ $602
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Investments in Publicly Traded Securities$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$222,368$183,031▼ $39,337
Other Assets Total$0$0→ $0
Liabilities
Other Liabilities$18,307$3,042▼ $15,265
Grants Payable$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Accounts Payable and Accrued Expenses$-1,385$-4,723▼ $3,338
Total Liabilities$18,310$-293▼ $18,603
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$204,058$183,324▼ $20,734
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$204,058$183,324▼ $20,734
Total Liabilities and Net Assets / Fund Balance$222,368$183,031▼ $39,337

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,272$2,829$3,498
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Penny HowardCEOPT$18,000$18,000

Board Members and Trustees

NameTitle
Dustin HowardDirector
Natalie Howarddirector
Revenue and Support

Revenue Composition

Contributions and Grants
$511,294
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$511,294
Change in Net Assets
$-18,543
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$390,924
Grants and Similar Amounts Paid$75,000
Salaries, Compensation, and Employee Benefits$63,913
Total Fundraising Expense$4,017
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Foreign Grants$75,000--$75,000
Other Salaries and Wages$28,209$12,090-$40,299
Current Officers, Directors, Trustees, and Key Employees-$18,000-$18,000
Fees for Services Accounting-$9,472-$9,472
Fees for Services Other-$8,954-$8,954
Office Expenses$1,358$4,057$1,324$6,739
Travel-$5,662$113$5,775
Payroll Taxes$2,562$1,954$1,098$5,614
Insurance-$1,283-$1,283
Depreciation Depletion$438$509$269$1,216
Conferences and Meetings--$1,045$1,045
Information Technology$272$316$168$756
Advertising-$346-$346
Other Expenses$353,735$259-$259
Total Functional Expenses$461,574$64,246$4,017$529,837
International Activity

International Summary

Spending
$75,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Middle East and North AfricaProgram ServicesTherapy Research--$75,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Gaming Direct Expenses$0
Gaming Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$1,388$1,388→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
TX Unemployment Tax$1,731
Federal Taxes$790
CA Pit/sdi$521
Sba Loan$0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Hope 4 Harper
EIN
45-4886455
In Care Of
% PENNY HOWARD
Phone
2145296952
Address
PO BOX 116952, CARROLLTON, TX 75011

Signing Officer

Name
Penny Howard
Title
Principal Officer
Phone
2145296952
Signed
2022-05-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Penny Howard
Formed
2012
Legal Domicile
TX
Voting Board Members
3
Independent Board Members
2
Employees
2
Volunteers
6

Preparer

Firm
Bruce E Bernstien & Associates
Address
10440 N CENTRAL EXPRESSWAY STE 1040, DALLAS, TX 75231
Preparer
Bruce Bernstien
Phone
2147060840
Supplemental Narrative

Additional Explanations

family relationship or A business relationship

Form 990, page 6, Part VI, Section A, question 2: Dustin Howard is married to founder Penny Howard and Natalie Howard is the sister of Dustin Howard

This 990 Review Process

Form 990, Page 6, Part VI, Section B, Question 11: The review of the form 990 is done by the member of the board.

how organization made its governing documents

Form 990, Page 6, Part VI, Section C, Question 19: Form 990 available Upon request

Raw XML AppendixShowing 400 of 444 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0-1385
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0-4723
IRS990/AccountsReceivableGrp/BOYAmt00
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0Hope4Harper is a 501c3 not for profit organization created to provide hope, through research and awareness, to those living with CDKL5 disorder and other related diseases.
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0346
IRS990/AdvertisingGrp/TotalAmt0346
IRS990/AllOtherContributionsAmt0511294
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0PENNY HOWARD
IRS990/BooksInCareOfDetail/PhoneNum02145296952
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0PO BOX 116952
IRS990/BooksInCareOfDetail/USAddress/CityNm0CARROLLTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0TX
IRS990/BooksInCareOfDetail/USAddress/ZIPCd075011
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0212494
IRS990/CashNonInterestBearingGrp/EOYAmt0109245
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt018000
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt018000
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/FundraisingAmt01045
IRS990/ConferencesMeetingsGrp/TotalAmt01045
IRS990/ConflictOfInterestPolicyInd0false
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CostOfGoodsSoldAmt00
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0511294
IRS990/CYGrantsAndSimilarPaidAmt075000
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt0390924
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-18543
IRS990/CYSalariesCompEmpBnftPaidAmt063913
IRS990/CYTotalExpensesAmt0529837
IRS990/CYTotalFundraisingExpenseAmt04017
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0511294
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DeferredRevenueGrp/BOYAmt00
IRS990/DeferredRevenueGrp/EOYAmt00
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/FundraisingAmt0269
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt0509
IRS990/DepreciationDepletionGrp/ProgramServicesAmt0438
IRS990/DepreciationDepletionGrp/TotalAmt01216
IRS990/Desc0PreClinical Research - We collaborate with and support leading research laboratories around the world, and fill the gaps of information that will help accelerate the development of treatments for CDKL5 Deficiency Disorder. Life After CDKL5 - Provide resources and support to families who have lost family members to the CDKL5 Deficiency Disorder.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt00
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt00
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt02
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/EscrowAccountLiabilityGrp/BOYAmt00
IRS990/EscrowAccountLiabilityGrp/EOYAmt00
IRS990/ExpenseAmt0461574
IRS990/FamilyOrBusinessRlnInd0true
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt09472
IRS990/FeesForServicesAccountingGrp/TotalAmt09472
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt08954
IRS990/FeesForServicesOtherGrp/TotalAmt08954
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0true
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/ProgramServicesAmt075000
IRS990/ForeignGrantsGrp/TotalAmt075000
IRS990/ForeignOfficeInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.0
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.0
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.0
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt020.0
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt15.0
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.0
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/PersonNm0Penny Howard
IRS990/Form990PartVIISectionAGrp/PersonNm1Dustin Howard
IRS990/Form990PartVIISectionAGrp/PersonNm2Natalie Howard
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt018000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1Director
IRS990/Form990PartVIISectionAGrp/TitleTxt2director
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02012
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/FundraisingDirectExpensesAmt00
IRS990/FundraisingGrossIncomeAmt00
IRS990/GamingActivitiesInd0false
IRS990/GamingDirectExpensesAmt00
IRS990/GamingGrossIncomeAmt00
IRS990/GoverningBodyVotingMembersCnt03
IRS990/GrantsPayableGrp/BOYAmt00
IRS990/GrantsPayableGrp/EOYAmt00
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0511294
IRS990/GrossSalesOfInventoryAmt00
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt02
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0168
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0316
IRS990/InformationTechnologyGrp/ProgramServicesAmt0272
IRS990/InformationTechnologyGrp/TotalAmt0756
IRS990/InsuranceGrp/ManagementAndGeneralAmt01283
IRS990/InsuranceGrp/TotalAmt01283
IRS990/IntangibleAssetsGrp/BOYAmt00
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/BOYAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt00
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt00
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/IRPDocumentCnt03
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02226
IRS990/LandBldgEquipBasisNetGrp/BOYAmt01874
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01272
IRS990/LandBldgEquipCostOrOtherBssAmt03498
IRS990/LegalDomicileStateCd0TX
IRS990/LoanOutstandingInd0true
IRS990/LoansFromOfficersDirectorsGrp/BOYAmt01388
IRS990/LoansFromOfficersDirectorsGrp/EOYAmt01388
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfGoverningBodyInd0false
IRS990/MissionDesc0HOPE4HARPER IS A 501C3 NOT FOR PROFIT ORGANIZATION CREATED TO PROVIDE HOPE, THROUGH RESEARCH AND AWARENESS, TO THOSE LIVING WITH CDKL5 DISORDER AND OTHER RELATED DISEASES.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt00
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt00
IRS990/NetAssetsOrFundBalancesBOYAmt0204058
IRS990/NetAssetsOrFundBalancesEOYAmt0183324
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0204058
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0183324
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt01324
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt04057
IRS990/OfficeExpensesGrp/ProgramServicesAmt01358
IRS990/OfficeExpensesGrp/TotalAmt06739
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0RESEARCH
IRS990/OtherExpensesGrp/Desc1GIFTS
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01344
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1259
IRS990/OtherExpensesGrp/ProgramServicesAmt0353735
IRS990/OtherExpensesGrp/TotalAmt0355079
IRS990/OtherExpensesGrp/TotalAmt1259
IRS990/OtherLiabilitiesGrp/BOYAmt018307
IRS990/OtherLiabilitiesGrp/EOYAmt03042
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt012090
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt028209
IRS990/OtherSalariesAndWagesGrp/TotalAmt040299
IRS990/OthNotesLoansReceivableNetGrp/BOYAmt00
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt01098
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01954
IRS990/PayrollTaxesGrp/ProgramServicesAmt02562
IRS990/PayrollTaxesGrp/TotalAmt05614
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0PENNY HOWARD
IRS990/PriorPeriodAdjustmentsAmt0-2191
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0224615
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0111234
IRS990/PYInvestmentIncomeAmt01
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt064842
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt022720
IRS990/PYSalariesCompEmpBnftPaidAmt025820
IRS990/PYTotalExpensesAmt0201896
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0224616
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/BOYAmt00
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/BOYAmt00
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-18543
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt08000
IRS990/SavingsAndTempCashInvstGrp/EOYAmt072514
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0511294
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0224615
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0473832
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt023231
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt023806
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01256778
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt01
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt01
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt01
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt03
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt046242
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.21625
IRS990ScheduleA/PublicSupportPY170Pct00.49452
IRS990ScheduleA/PublicSupportTotal170Amt0271783
IRS990ScheduleA/SubstantialContributorsTotAmt0984995
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsPY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0511294
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0224615
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0473832
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt023231
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt023806
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01256778
IRS990ScheduleA/TotalSupportAmt01256781
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/EquipmentGrp/BookValueAmt01272
IRS990ScheduleD/EquipmentGrp/DepreciationAmt02829
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt03498
IRS990ScheduleD/FederalIncomeTaxLiabilityAmt00
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt01731
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt1790
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt20
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt3521
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0TX UNEMPLOYMENT TAX
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc1FEDERAL TAXES
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc2SBA LOAN
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc3CA PIT/SDI
IRS990ScheduleD/TotalBookValueLandBuildingsAmt01272
IRS990ScheduleD/TotalLiabilityAmt03042
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt075000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0Middle East and North Africa
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0THERAPY RESEARCH
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0Program Services
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt075000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0THERAPY RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0Middle East and North Africa
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SubtotalSpentAmt075000
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0Our organizational grants are gifts to the laboratories' projects pertaining to CDKL5 research. We do follow up calls, visits at conferences in person and occasional emails to check on the progress of the project. But because we are not a formal grant program we do not control the project. This allows the researcher freedom to move the project towards a viable result to get to a treatment faster.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0procedure of monitoring the use for the grants outside the US
IRS990ScheduleF/TotalOtherOrgCnt01
IRS990ScheduleF/TotalSpentAmt075000
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt01388
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd0true
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd0false
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt0REIMBURSEMENT
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanToOrganizationInd0X
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt01388
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm0PENNY HOWARD
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt0CEO
IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd0false
IRS990ScheduleL/TotalBalanceDueAmt01388
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Form 990, page 6, Part VI, Section A, question 2: Dustin Howard is married to founder Penny Howard and Natalie Howard is the sister of Dustin Howard
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Form 990, Page 6, Part VI, Section B, Question 11: The review of the form 990 is done by the member of the board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Form 990, Page 6, Part VI, Section C, Question 19: Form 990 available Upon request
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0family relationship or a business relationship
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1THIS 990 REVIEW PROCESS
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2how organization made its governing documents
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondLiabilitiesGrp/BOYAmt00
IRS990/TaxExemptBondLiabilitiesGrp/EOYAmt00
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0222368
IRS990/TotalAssetsEOYAmt0183031
IRS990/TotalAssetsGrp/BOYAmt0222368
IRS990/TotalAssetsGrp/EOYAmt0183031
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0511294
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt04017
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt064246
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0461574
IRS990/TotalFunctionalExpensesGrp/TotalAmt0529837
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt018310
IRS990/TotalLiabilitiesEOYAmt0-293
IRS990/TotalLiabilitiesGrp/BOYAmt018310
IRS990/TotalLiabilitiesGrp/EOYAmt0-293
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0204058
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0183324
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0461574
IRS990/TotalProgramServiceRevenueAmt00
IRS990/TotalReportableCompFromOrgAmt018000
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0511294
IRS990/TotalVolunteersCnt06
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0222368
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0183031
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/FundraisingAmt0113
IRS990/TravelGrp/ManagementAndGeneralAmt05662
IRS990/TravelGrp/TotalAmt05775

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings