Civic Intelligence

Cloves Syndrome Community

990 • Fiscal year 2022 • EIN 45-3056921

Jul 01, 2021 to Jun 30, 2022 • Filed on Feb 15, 2023

Organization Profilewww.clovessyndrome.org
PO Box 406West Kennebunk, ME 04094

(833) 425-6837

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

18th percentile

-21%

Higher net margin than 18% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

92nd percentile

$49,671

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 16.0% of source-year revenue.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

26th percentile

-15%

Faster asset growth than 26% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

24th percentile

-19%

Faster revenue growth than 24% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets58th percentile

Assets

Flat

$382,355

Flat from 2022

Net Assets

Flat

$382,355

Flat from 2022

Liabilities

Flat

$0

Flat from 2022

Revenue And Expenses
Liabilities / Revenue58th percentileNet Margin18th percentile

Revenue

Flat

$310,706

Flat from 2022

Expenses

Flat

$377,179

Flat from 2022

Net Income

Flat

-$66,473

Flat from 2022

Historical Trend

Balance Sheet Trend

Asset Growth26th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2020: $275,671Liabilities 2020: $0Net Assets 2020: $275,6712020Assets 2021: $448,828Liabilities 2021: $0Net Assets 2021: $448,8282021Assets 2022: $382,355Liabilities 2022: $0Net Assets 2022: $382,3552022Assets 2022: $382,355Liabilities 2022: $0Net Assets 2022: $382,3552022Assets 2023: $231,402Liabilities 2023: $0Net Assets 2023: $231,4022023Assets 2025: $173,453Liabilities 2025: $0Net Assets 2025: $173,4532025

Highlighted filing

2022

Assets$382,355
Liabilities$0
Net Assets$382,355
Open 2022 Filing

Operations Trend

Revenue Growth24th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200KRevenue 2020: $341,821Expenses 2020: $125,482Net Income 2020: $216,3392020Revenue 2021: $384,237Expenses 2021: $210,991Net Income 2021: $173,2462021Revenue 2022: $310,706Expenses 2022: $377,179Net Income 2022: -$66,4732022Revenue 2022: $310,706Expenses 2022: $377,179Net Income 2022: -$66,4732022Revenue 2023: $141,229Expenses 2023: $292,253Net Income 2023: -$151,0242023Revenue 2025: $130,197Expenses 2025: $118,679Net Income 2025: $11,5182025

Highlighted filing

2022

Revenue$310,706
Expenses$377,179
Net Income-$66,473
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2021 to Jun 30, 2022
Signed
Feb 15, 2023
Return Version
2021v4.2
Gross Receipts
$310,706
Mission and Program Overview

Mission

CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$443,828$377,355▼ $66,473
Accounts Receivable$5,000$5,000→ $0
Total Assets$448,828$382,355▼ $66,473
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$448,828$382,355▼ $66,473
Total Net Assets Fund Balance$448,828$382,355▼ $66,473
Total Liabilities and Net Assets / Fund Balance$448,828$382,355▼ $66,473
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kristen DavisExecutive DirectorFT$49,671$49,671

Board Members and Trustees

NameTitle
Irina PivnevaBoard Member
Joe BarclayBoard Member
Kyle CaposselaBoard Member
Lindsey GodarBoard Member
Sara RobertsonBoard Member
Steve HandelBoard Member
Ashley McNamaraTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$289,999
Program Service Revenue
$20,707
Investment Income
$0
Other Revenue
$0
All Other Contributions
$272,715
Change in Net Assets
$-66,473
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$201,140
Grants and Similar Amounts Paid$126,368
Salaries, Compensation, and Employee Benefits$49,671
Total Fundraising Expense$5,383
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$59,408--$59,408
Current Officers, Directors, Trustees, and Key Employees$24,836$24,835-$49,671
Grants to Domestic Individuals$39,198--$39,198
Foreign Grants$27,762--$27,762
All Other Expenses$4,470$8,421$5,383$18,274
Fees for Services Other$12,120$5,195-$17,315
Other Expenses$11,464$11,052-$11,464
Office Expenses-$8,258-$8,258
Conferences and Meetings$500--$500
Travel$299--$299
Total Functional Expenses$314,035$57,761$5,383$377,179
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of North Carolina Chapel HillAtlanta, GA-2022 research recipent.$50,000
Washington University Attn Joe GindhartSt Louis, MO-2022 Vascular Anomalies Communication Project$9,408

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Addy's Run$12,000---
2021 Cloves Awareness Day$970---
Total Events$17,284---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Digital TurfHusband of EDWebsite designNo$6,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

“The Treasurer and Executive Director are related.”

Form 990, Part VI, Section A, line 8B

“There is only the Board of Directors. There are no subcommittees.”

Form 990, Part VI, Section B, line 11B

“Executive Director and Treasurer review the 990 before it is filed.”

Form 990, Part VI, Section B, line 15A

“The Board of Directors votes on the Executive Director's annual compensation.”

Form 990, Part VI, Section C, line 19

“Documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Cloves Syndrome Community
EIN
45-3056921
Phone
8334256837
Address
PO Box 406, West Kennebunk, ME 04094

Signing Officer

Name
Kristen Davis
Title
Executive Director
Phone
8334256837
Signed
2023-02-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kristen Davis
Formed
2011
Legal Domicile
Me
Voting Board Members
7
Independent Board Members
6
Employees
0
Volunteers
15

Preparer

Firm
Pgm LLC
Address
319 Main Street, Biddeford, ME 04005
Phone
2074155714
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IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt10
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Research RFP 2021
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1Research donation
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0Edinburgh, Scotland
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt1London, England
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt00
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0Part III Accounting Method:
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalOtherOrgCnt02
IRS990ScheduleF/TotalSpentAmt00
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/AgrmtProfFundraisingActyInd01
IRS990ScheduleG/FundraiserActivityInfoGrp/ActivityTxt0Fundraising services
IRS990ScheduleG/FundraiserActivityInfoGrp/FundraiserControlOfFundsInd00
IRS990ScheduleG/FundraiserActivityInfoGrp/GrossReceiptsAmt032396
IRS990ScheduleG/FundraiserActivityInfoGrp/NetToOrganizationAmt00
IRS990ScheduleG/FundraiserActivityInfoGrp/PersonNm0Laura Gabriele
IRS990ScheduleG/FundraiserActivityInfoGrp/RetainedByContractorAmt032396
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/AddressLine1Txt031 Birch Road
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/CityNm0Darien
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/StateAbbreviationCd0CT
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/ZIPCd006820
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt017284
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0970
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt012000
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt04314
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm02021 Cloves Awareness Day
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0Addy's Run
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0970
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt012000
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt04314
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt017284
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt03
IRS990ScheduleG/TotalGrossReceiptsAmt032396
IRS990ScheduleG/TotalRetainedByContractorsAmt032396
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt039198
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0Scholarships
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt026
IRS990ScheduleI/RecipientTable/CashGrantAmt09408
IRS990ScheduleI/RecipientTable/CashGrantAmt150000
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt02022 Vascular Anomalies Communication Project
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt12022 research recipent.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Washington University Attn Joe Gindhart
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1University of North Carolina Chapel Hill
IRS990ScheduleI/RecipientTable/RecipientEIN0430653611
IRS990ScheduleI/RecipientTable/RecipientEIN1566001393
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0700 Rosedale Avenue
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1Po Box 402420
IRS990ScheduleI/RecipientTable/USAddress/CityNm0St Louis
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Atlanta
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MO
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1GA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd063112
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd130384
IRS990ScheduleI/TotalOtherOrgCnt02
IRS990/ScheduleJRequiredInd00
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0Digital Turf
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0Husband of ED
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd00
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt06000
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0Website design
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The Treasurer and Executive Director are related.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1There is only the Board of Directors. There are no subcommittees.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Executive Director and Treasurer review the 990 before it is filed.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The Board of Directors votes on the Executive Director's annual compensation.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, line 8b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section C, line 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0448828
IRS990/TotalAssetsEOYAmt0382355
IRS990/TotalAssetsGrp/BOYAmt0448828
IRS990/TotalAssetsGrp/EOYAmt0382355
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0289999
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt05383
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt057761
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0314035
IRS990/TotalFunctionalExpensesGrp/TotalAmt0377179
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0448828
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0382355
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0314035

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$382,355
Liabilities
$0
Net assets
$382,355
Revenue
$310,706
Expenses
$377,179
Net income
-$66,473
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.73$0.00$1.73$1.30$1.19$0.12
2023Summary only. Only limited summary data is available for this year.$2.31$0.00$2.31$1.41$2.92$1.51
2022Detailed filing. Detailed filing data is available for this year.$3.82$0.00$3.82$3.11$3.77$0.66
2022Summary only. Only limited summary data is available for this year.$3.82$0.00$3.82$3.11$3.77$0.66
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.49$0.00$4.49$3.84$2.11$1.73
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.76$0.00$2.76$3.42$1.25$2.16