Civic Intelligence

Cloves Syndrome Community

990 • Fiscal year 2020 • EIN 45-3056921

Jul 01, 2019 to Jun 30, 2020 • Filed on Aug 26, 2020

Organization Profilewww.clovessyndrome.org
PO Box 406West Kennebunk, ME 04094

(833) 425-6837

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Liabilities / Revenue

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Net Margin

92nd percentile

63%

Higher net margin than 92% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Top Officer Pay

84th percentile

$20,867

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 6.1% of source-year revenue.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2020

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2020

Balance Sheet
Liabilities / Assets55th percentile

Assets

$275,671

No earlier filing loaded for comparison.

Net Assets

$275,671

No earlier filing loaded for comparison.

Liabilities

$0

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin92nd percentile

Revenue

$341,821

No earlier filing loaded for comparison.

Expenses

$125,482

No earlier filing loaded for comparison.

Net Income

$216,339

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset GrowthScore unavailable

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2020: $275,671Liabilities 2020: $0Net Assets 2020: $275,6712020Assets 2021: $448,828Liabilities 2021: $0Net Assets 2021: $448,8282021Assets 2022: $382,355Liabilities 2022: $0Net Assets 2022: $382,3552022Assets 2023: $231,402Liabilities 2023: $0Net Assets 2023: $231,4022023Assets 2025: $173,453Liabilities 2025: $0Net Assets 2025: $173,4532025

Highlighted filing

2020

Assets$275,671
Liabilities$0
Net Assets$275,671
Open 2020 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200KRevenue 2020: $341,821Expenses 2020: $125,482Net Income 2020: $216,3392020Revenue 2021: $384,237Expenses 2021: $210,991Net Income 2021: $173,2462021Revenue 2022: $310,706Expenses 2022: $377,179Net Income 2022: -$66,4732022Revenue 2023: $141,229Expenses 2023: $292,253Net Income 2023: -$151,0242023Revenue 2025: $130,197Expenses 2025: $118,679Net Income 2025: $11,5182025

Highlighted filing

2020

Revenue$341,821
Expenses$125,482
Net Income$216,339
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2019 to Jun 30, 2020
Signed
Aug 26, 2020
Return Version
2019v5.1
Gross Receipts
$341,821
Mission and Program Overview

Mission

CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$59,332$275,671▲ $216,339
Total Assets$59,332$275,671▲ $216,339
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$59,332$275,671▲ $216,339
Total Net Assets Fund Balance$59,332$275,671▲ $216,339
Total Liabilities and Net Assets / Fund Balance$59,332$275,671▲ $216,339
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kristen DavisExecutive DirectorPT$20,867$20,867

Board Members and Trustees

NameTitle
Emily BurgessVice Chair
Alice FuiszBoard Member
Joe BarclayBoard Member
Lindsey GodarBoard Member
Sara RobertsonBoard Member
Brenda AlexanderSecretary
Ashley McNamaraTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$341,821
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$341,821
Change in Net Assets
$216,339
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$105,482
Grants and Similar Amounts Paid$20,000
Total Fundraising Expense$2,334
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
All Other Expenses$24,060$1,256$2,334$27,650
Foreign Grants$20,000--$20,000
Other Expenses$9,045$6,198-$9,045
Conferences and Meetings-$7,500-$7,500
Travel$3,219$3,219-$6,438
Office Expenses-$5,902-$5,902
Fees for Services Other-$2,125-$2,125
Total Functional Expenses$96,948$26,200$2,334$125,482
International Activity

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Digital Turfhusband of EDwebsite designNo$12,000
Kristen DavisExecutive DirectorCSC has consulting agreement w/ Novartis Pharmaceuticals as they are launching a drug in CLOVES/PROS space. Novartis paid CSC, which was paid to Kristen Davis for a consulting fee.No$1,875
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

“The Treasurer and Executive Director are related.”

Form 990, Part VI, Section A, line 8B

“there is only the board of directors. they are no subcommittes.”

Form 990, Part VI, Section B, line 11B

“Executive Director and Treasurer review the 990 before it is filed.”

Form 990, Part VI, Section C, line 19

“Documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Cloves Syndrome Community
EIN
45-3056921
Phone
8334256837
Address
PO Box 406, West Kennebunk, ME 04094

Signing Officer

Name
Kristen Davis
Title
Executive Director
Phone
8334256837
Signed
2020-08-26

Organization Details

Principal Officer
Kristen Davis
Formed
2011
Legal Domicile
Me
Voting Board Members
8
Independent Board Members
7
Employees
0
Volunteers
15

Preparer

Firm
Pgm LLC
Address
265 Main Street, Biddeford, ME 04005
Phone
2074155714
Supplemental Narrative

Additional Explanations

Form 990, Part IX, line 24E

“Other program expenses: Program service expenses 7215. Management and general expenses 0. Fundraising expenses 0. Total expenses 7215. COVID-19 Emergency Funding: Program service expenses 5500. Management and general expenses 0. Fundraising expenses 0. Total expenses 5500. Back to School Bucks: Program service expenses 3750. Management and general expenses 0. Fundraising expenses 0. Total expenses 3750. Family Assistance Program: Program service expenses 3268. Management and general expenses 0. Fundraising expenses 0. Total expenses 3268. Cloves camp: Program service expenses 2577. Management and general expenses 0. Fundraising expenses 0. Total expenses 2577. Fundraising expense: Program service expenses 0. Management and general expenses 0. Fundraising expenses 2334. Total expenses 2334. Conference/Travel Assistance: Program service expenses 1750. Management and general expenses 0. Fundraising expenses 0. Total expenses 1750. Four Leaf Clover postage: Program service expenses 0. Management and general expenses 738. Fundraising expenses 0. Total expenses 738. RAO Indirect costs: Program service expenses 0. Management and general expenses 518. Fundraising expenses 0. Total expenses 518.”

Raw XML Appendix382 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Research grant for a project called "The systems biology of activating PIK3CA mutations in mosaic endothelial cell models"
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IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0Part III Accounting Method:
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IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0Kristen Davis
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm1Digital Turf
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0Executive Director
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IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt112000
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0CSC has consulting agreement w/ Novartis Pharmaceuticals as they are launching a drug in CLOVES/PROS space. Novartis paid CSC, which was paid to Kristen Davis for a consulting fee.
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc1website design
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The Treasurer and Executive Director are related.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1there is only the board of directors. they are no subcommittes.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Executive Director and Treasurer review the 990 before it is filed.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Other program expenses: Program service expenses 7215. Management and general expenses 0. Fundraising expenses 0. Total expenses 7215. COVID-19 Emergency Funding: Program service expenses 5500. Management and general expenses 0. Fundraising expenses 0. Total expenses 5500. Back to School Bucks: Program service expenses 3750. Management and general expenses 0. Fundraising expenses 0. Total expenses 3750. Family Assistance Program: Program service expenses 3268. Management and general expenses 0. Fundraising expenses 0. Total expenses 3268. Cloves camp: Program service expenses 2577. Management and general expenses 0. Fundraising expenses 0. Total expenses 2577. Fundraising expense: Program service expenses 0. Management and general expenses 0. Fundraising expenses 2334. Total expenses 2334. Conference/Travel Assistance: Program service expenses 1750. Management and general expenses 0. Fundraising expenses 0. Total expenses 1750. Four Leaf Clover postage: Program service expenses 0. Management and general expenses 738. Fundraising expenses 0. Total expenses 738. RAO Indirect costs: Program service expenses 0. Management and general expenses 518. Fundraising expenses 0. Total expenses 518.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, line 8b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part IX, line 24e
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt059332
IRS990/TotalAssetsEOYAmt0275671
IRS990/TotalAssetsGrp/BOYAmt059332
IRS990/TotalAssetsGrp/EOYAmt0275671
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0341821
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt02334
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt026200
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt096948
IRS990/TotalFunctionalExpensesGrp/TotalAmt0125482
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt059332
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0275671
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt096948
IRS990/TotalReportableCompFromOrgAmt020867
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0341821
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt015
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt059332
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0275671
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ManagementAndGeneralAmt03219
IRS990/TravelGrp/ProgramServicesAmt03219
IRS990/TravelGrp/TotalAmt06438
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0PO Box 406
IRS990/USAddress/CityNm0West Kennebunk
IRS990/USAddress/StateAbbreviationCd0ME
IRS990/USAddress/ZIPCd004094
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt07
IRS990/WebsiteAddressTxt0www.clovessyndrome.org
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02021-01-29 14:40:06Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Kristen Davis
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Executive Director
ReturnHeader/BusinessOfficerGrp/PhoneNum08334256837
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-08-26
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Cloves Syndrome Community
ReturnHeader/Filer/BusinessNameControlTxt0CLOV
ReturnHeader/Filer/EIN0453056921
ReturnHeader/Filer/PhoneNum08334256837
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO Box 406
ReturnHeader/Filer/USAddress/CityNm0West Kennebunk
ReturnHeader/Filer/USAddress/StateAbbreviationCd0ME
ReturnHeader/Filer/USAddress/ZIPCd004094
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId075FDAFE49B98669341A52F5AC170EEB2B3E863E5
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId03F9056DF507FCFA6CE5B6CD4F31CAED81F9AD9F8
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt067.255.90.99
ReturnHeader/FilingSecurityInformation/IPDt02020-09-16
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0ED
ReturnHeader/FilingSecurityInformation/IPTm011:07:56
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0824812448
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0PGM LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0265 Main Street
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Biddeford
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0ME
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd004005
ReturnHeader/PreparerPersonGrp/PhoneNum02074155714
ReturnHeader/ReturnTs02020-09-16T11:08:00-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-07-01
ReturnHeader/TaxPeriodEndDt02020-06-30
ReturnHeader/TaxYr02019

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$275,671
Liabilities
$0
Net assets
$275,671
Revenue
$341,821
Expenses
$125,482
Net income
$216,339
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.73$0.00$1.73$1.30$1.19$0.12
2023Summary only. Only limited summary data is available for this year.$2.31$0.00$2.31$1.41$2.92$1.51
2022Summary only. Only limited summary data is available for this year.$3.82$0.00$3.82$3.11$3.77$0.66
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.49$0.00$4.49$3.84$2.11$1.73
2020Detailed filing. Detailed filing data is available for this year.$2.76$0.00$2.76$3.42$1.25$2.16