Civic Intelligence

Cloves Syndrome Community

990 • Fiscal year 2021 • EIN 45-3056921

Jul 01, 2020 to Jun 30, 2021 • Filed on Nov 08, 2021

Organization Profilewww.clovessyndrome.org
PO Box 406West Kennebunk, ME 04094

(833) 425-6837

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Net Margin

84th percentile

45%

Higher net margin than 84% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Top Officer Pay

92nd percentile

$48,221

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 12.5% of source-year revenue.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Asset Growth

84th percentile

63%

Faster asset growth than 84% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Annualized from 2020 to 2021

Revenue Growth

57th percentile

12%

Faster revenue growth than 57% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets56th percentile

Assets

Up

$448,828

Up $173,157 (+63%) from 2020

Net Assets

Up

$448,828

Up $173,157 (+63%) from 2020

Liabilities

Flat

$0

Flat from 2020

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin84th percentile

Revenue

Up

$384,237

Up $42,416 (+12%) from 2020

Expenses

Up

$210,991

Up $85,509 (+68%) from 2020

Net Income

Down

$173,246

Down $43,093 (-20%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth84th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2020: $275,671Liabilities 2020: $0Net Assets 2020: $275,6712020Assets 2021: $448,828Liabilities 2021: $0Net Assets 2021: $448,8282021Assets 2022: $382,355Liabilities 2022: $0Net Assets 2022: $382,3552022Assets 2023: $231,402Liabilities 2023: $0Net Assets 2023: $231,4022023Assets 2025: $173,453Liabilities 2025: $0Net Assets 2025: $173,4532025

Highlighted filing

2021

Assets$448,828
Liabilities$0
Net Assets$448,828
Open 2021 Filing

Operations Trend

Revenue Growth57th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200KRevenue 2020: $341,821Expenses 2020: $125,482Net Income 2020: $216,3392020Revenue 2021: $384,237Expenses 2021: $210,991Net Income 2021: $173,2462021Revenue 2022: $310,706Expenses 2022: $377,179Net Income 2022: -$66,4732022Revenue 2023: $141,229Expenses 2023: $292,253Net Income 2023: -$151,0242023Revenue 2025: $130,197Expenses 2025: $118,679Net Income 2025: $11,5182025

Highlighted filing

2021

Revenue$384,237
Expenses$210,991
Net Income$173,246
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2020 to Jun 30, 2021
Signed
Nov 8, 2021
Return Version
2020v4.1
Gross Receipts
$384,237
Mission and Program Overview

Mission

CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$275,671$443,828▲ $168,157
Accounts Receivable-$5,000-
Total Assets$275,671$448,828▲ $173,157
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$275,671$448,828▲ $173,157
Total Net Assets Fund Balance$275,671$448,828▲ $173,157
Total Liabilities and Net Assets / Fund Balance$275,671$448,828▲ $173,157
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kristen DavisExecutive DirectorPT$45,996$2,225$48,221

Board Members and Trustees

NameTitle
Emily BurgessVice Chair
Alice FuiszBoard Member
Joe BarclayBoard Member
Lindsey GodarBoard Member
Sara RobertsonBoard Member
Ashley McNamaraTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$376,468
Program Service Revenue
$7,769
Investment Income
$0
Other Revenue
$0
All Other Contributions
$369,380
Change in Net Assets
$173,246
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$175,991
Grants and Similar Amounts Paid$35,000
Total Fundraising Expense$1,722
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Foreign Grants$25,000--$25,000
All Other Expenses$14,500$7,790$1,722$24,012
Other Expenses$14,896$5,467-$14,896
Conferences and Meetings$13,500--$13,500
Grants to Domestic Orgs$10,000--$10,000
Office Expenses-$4,900-$4,900
Fees for Services Other-$175-$175
Total Functional Expenses$178,144$31,125$1,722$210,991
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Washington University Attn Joe GindhartSt Louis, MO-Seed grants for the Vascular Anomalies Communication Project$10,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Digital TurfHusband of EDWebsite designNo$15,000
Kristen DavisExecutive DirectorCSC has consulting agreement w/ Novartis Pharmaceuticals as they are launching a drug in CLOVES/PROS space. Novartis paid CSC, which was paid to Kristen Davis for a consulting feeNo$2,225
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

“The Treasurer and Executive Director are related.”

Form 990, Part VI, Section A, line 8B

“There is only the Board of Directors. There are no subcommittees.”

Form 990, Part VI, Section B, line 11B

“Executive Director and Treasurer review the 990 before it is filed.”

Form 990, Part VI, Section B, line 15A

“The Board of Directors votes on the Executive Director's annual compensation.”

Form 990, Part VI, Section C, line 19

“Documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Cloves Syndrome Community
EIN
45-3056921
Phone
8334256837
Address
PO Box 406, West Kennebunk, ME 04094

Signing Officer

Name
Kristen Davis
Title
Executive Director
Phone
8334256837
Signed
2021-11-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kristen Davis
Formed
2011
Legal Domicile
Me
Voting Board Members
7
Independent Board Members
6
Employees
0
Volunteers
15

Preparer

Firm
Pgm LLC
Address
319 Main Street, Biddeford, ME 04005
Phone
2074155714
Supplemental Narrative

Additional Explanations

Form 990, Part IX, line 24E

“RAO Publications: Program service expenses 4000. Management and general expenses 4000. Fundraising expenses 0. Total expenses 8000. Conference: Program service expenses 5995. Management and general expenses 0. Fundraising expenses 0. Total expenses 5995. Global Genes Awards: Program service expenses 4505. Management and general expenses 0. Fundraising expenses 0. Total expenses 4505. RAO Indirect costs: Program service expenses 0. Management and general expenses 3540. Fundraising expenses 0. Total expenses 3540. Fundraising expense: Program service expenses 0. Management and general expenses 0. Fundraising expenses 1722. Total expenses 1722. RAO Patient Registry: Program service expenses 0. Management and general expenses 250. Fundraising expenses 0. Total expenses 250.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleI/RecipientTable/RecipientEIN0430653611
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0700 Rosedale Avenue
IRS990ScheduleI/RecipientTable/USAddress/CityNm0St Louis
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MO
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd063112
IRS990/ScheduleJRequiredInd00
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0Kristen Davis
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm1Digital Turf
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0Executive Director
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt1Husband of ED
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd00
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd10
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt02225
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt115000
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0CSC has consulting agreement w/ Novartis Pharmaceuticals as they are launching a drug in CLOVES/PROS space. Novartis paid CSC, which was paid to Kristen Davis for a consulting fee
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc1Website design
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The Treasurer and Executive Director are related.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1There is only the Board of Directors. There are no subcommittees.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Executive Director and Treasurer review the 990 before it is filed.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The Board of Directors votes on the Executive Director's annual compensation.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5RAO Publications: Program service expenses 4000. Management and general expenses 4000. Fundraising expenses 0. Total expenses 8000. Conference: Program service expenses 5995. Management and general expenses 0. Fundraising expenses 0. Total expenses 5995. Global Genes Awards: Program service expenses 4505. Management and general expenses 0. Fundraising expenses 0. Total expenses 4505. RAO Indirect costs: Program service expenses 0. Management and general expenses 3540. Fundraising expenses 0. Total expenses 3540. Fundraising expense: Program service expenses 0. Management and general expenses 0. Fundraising expenses 1722. Total expenses 1722. RAO Patient Registry: Program service expenses 0. Management and general expenses 250. Fundraising expenses 0. Total expenses 250.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, line 8b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section C, line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part IX, line 24e
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0275671
IRS990/TotalAssetsEOYAmt0448828
IRS990/TotalAssetsGrp/BOYAmt0275671
IRS990/TotalAssetsGrp/EOYAmt0448828
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0376468
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt01722
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt031125
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0178144
IRS990/TotalFunctionalExpensesGrp/TotalAmt0210991
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0275671
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0448828
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0178144
IRS990/TotalProgramServiceRevenueAmt07769
IRS990/TotalReportableCompFromOrgAmt045996
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt07769
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0384237
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt015
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0275671
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0448828
IRS990/TotReportableCompRltdOrgAmt02225
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0PO Box 406
IRS990/USAddress/CityNm0West Kennebunk
IRS990/USAddress/StateAbbreviationCd0ME
IRS990/USAddress/ZIPCd004094
IRS990/VotingMembersGoverningBodyCnt07
IRS990/VotingMembersIndependentCnt06
IRS990/WebsiteAddressTxt0www.clovessyndrome.org
IRS990/WhistleblowerPolicyInd00
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd02
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0Kristen Davis
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Executive Director
ReturnHeader/BusinessOfficerGrp/PhoneNum08334256837
ReturnHeader/BusinessOfficerGrp/SignatureDt02021-11-08
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Cloves Syndrome Community
ReturnHeader/Filer/BusinessNameControlTxt0CLOV
ReturnHeader/Filer/EIN0453056921
ReturnHeader/Filer/PhoneNum08334256837
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO Box 406
ReturnHeader/Filer/USAddress/CityNm0West Kennebunk
ReturnHeader/Filer/USAddress/StateAbbreviationCd0ME
ReturnHeader/Filer/USAddress/ZIPCd004094
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0824812448
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0PGM LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0319 Main Street
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Biddeford
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0ME
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd004005
ReturnHeader/PreparerPersonGrp/PhoneNum02074155714
ReturnHeader/ReturnTs02021-11-08T06:37:31-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0Kristen
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0Davis
ReturnHeader/TaxPeriodBeginDt02020-07-01

Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$448,828
Liabilities
$0
Net assets
$448,828
Revenue
$384,237
Expenses
$210,991
Net income
$173,246
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.73$0.00$1.73$1.30$1.19$0.12
2023Summary only. Only limited summary data is available for this year.$2.31$0.00$2.31$1.41$2.92$1.51
2022Summary only. Only limited summary data is available for this year.$3.82$0.00$3.82$3.11$3.77$0.66
2021Detailed filing. Detailed filing data is available for this year.$4.49$0.00$4.49$3.84$2.11$1.73
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.76$0.00$2.76$3.42$1.25$2.16