Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et
“Brad and Monika Jones are married.”
990 • Fiscal year 2019 • EIN 45-2571898
Scores are not available for this record yet.
Assets
Flat$77,153
Flat from 2019
Net Assets
Flat$76,400
Flat from 2019
Liabilities
Flat$753
Flat from 2019
Revenue
Flat$427,663
Flat from 2019
Expenses
Flat$435,296
Flat from 2019
Net Income
Flat-$7,633
Flat from 2019
We enhance the lives of children who need neurosurgery to treat their medication-resistant seizures by empowering families with resources, financial aid, support services, and research before and after surgery.
The Brain Recovery Project helps children reach their full potential after surgery where part of the brain is removed, disconnected, destroyed, or stimulated to stop seizures by inspiring and funding research, empowering families with research-based information and programs, and providing emotional and financial support.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $42,809 | $63,638 | ▲ $20,829 |
| Pledges and Grants Receivable | $38,822 | $0 | ▼ $38,822 |
| Accounts Receivable | $9,120 | $13,515 | ▲ $4,395 |
| Prepaid Expenses and Deferred Charges | $10,000 | $0 | ▼ $10,000 |
| Savings and Temporary Cash Investments | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $100,751 | $77,153 | ▼ $23,598 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $16,718 | $753 | ▼ $15,965 |
| Total Liabilities | $16,718 | $753 | ▼ $15,965 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $59,900 | $56,119 | ▼ $3,781 |
| Net Assets With Donor Restrictions | $24,133 | $20,281 | ▼ $3,852 |
| Total Net Assets Fund Balance | $84,033 | $76,400 | ▼ $7,633 |
| Total Liabilities and Net Assets / Fund Balance | $100,751 | $77,153 | ▼ $23,598 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Monika A Jones Esq | Director/CEO | FT | $48,000 | $48,000 |
| Name | Title |
|---|---|
| Luke Shepard | Chairman |
| Dr Gary W Mathern | Director |
| Kevin O'Connor | Director |
| Matt Flesch | Secretary |
| Bradley R Jones | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $367,415 |
| Salaries, Compensation, and Employee Benefits | $48,000 |
| Grants and Similar Amounts Paid | $17,256 |
| Total Fundraising Expense | $8,750 |
| Professional Fundraising Fees | $2,625 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $124,981 | $9,103 | $979 | $135,063 |
| Conferences and Meetings | $114,293 | $242 | $1,032 | $115,567 |
| Travel | $68,748 | $522 | $85 | $69,355 |
| Current Officers, Directors, Trustees, and Key Employees | $40,285 | $6,000 | $1,715 | $48,000 |
| Fees for Services Accounting | - | $13,374 | - | $13,374 |
| Grants to Domestic Orgs | $11,532 | - | - | $11,532 |
| Grants to Domestic Individuals | $5,724 | - | - | $5,724 |
| Advertising | $3,704 | $823 | $169 | $4,696 |
| Other Expenses | $2,497 | $350 | $648 | $2,847 |
| Office Expenses | $1,143 | $1,531 | - | $2,674 |
| Fees for Services Professional Fundraising | - | - | $2,625 | $2,625 |
| Insurance | - | $2,436 | - | $2,436 |
| All Other Expenses | $1,067 | $167 | - | $1,234 |
| Total Functional Expenses | $388,975 | $37,571 | $8,750 | $435,296 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| California Institute of Tech | Pasadena, CA | - | - | $6,982 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $2,625 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Brad and Monika Jones are married.”
“The full Board reviews the Form 990 prior to filing.”
“The Board reviews reasonable compensation for the geographical area and organization size.”
“Available upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/ActivityOrMissionDesc | 0 | The Brain Recovery Project helps children reach their full potential after surgery where part of the brain is removed, disconnected, destroyed, or stimulated to stop seizures by inspiring and funding research, empowering families with research-based information and programs, and providing emotional and financial support. |
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| IRS990/Desc | 0 | EDUCATION AND SUPPORT:Resource guides were download 6,922 times in 2019;Webinars and educational videos were viewed over 20,000 times in 2019;A record-breaking 405 attendees attended our family conference in July of 2019, where we presented 30 sessions and workshops covering a wide range of topics. While parents attended sessions, children attended camp run by a professional childcare firm. Teens and young adults in attendance enjoyed three free chaperoned excursions to the Rock n Roll Hall of Fame, the Great Lakes Science Center, and a fun bowling and pizza night. This gave them time to bond and form powerful peer relationships.Provided peer support through 2900+ touchpoints referrals from the clinician community, social medial post responses, direct messaging, email, or phone calls.92 parents and educators watched our intensive IEP training videos or attended live, virtual training sessions on the effects of various epilepsy surgeries on school performance.623 parents, teachers of the visually impaired, orientation and mobility specialist, and other school team members watched our Vision After Surgeries Which Remove An Occipital Lobe produced in collaboration with Perkins School for the Blind.Collaborated with several strategic partners in the rare epilepsy space to bring our community three webinars to help managing the toll of caregiver trauma.Provided over $5,700 in financial aid to families to help with travel costs such as airfare, hotel, and food.RESEARCH:Launched the Global Pediatric Epilepsy Surgery Registry, the first patient-powered long-term study to track the developmental progress of children after epilepsy surgery and how epilepsy surgery impacts their daily lives. Registry data will give information to researchers and doctors about surgery outcomes beyond seizure control and will lead to new and exciting discoveries for the 2,600 children per year who have epilepsy surgery in the U.S. (as well as those internationally). Convened a research meeting of over 40 patient, clinician, and research stakeholders to understand the state of research which addresses outcomes after large resective/disconnected epilepsy surgeries, including their effects on cognition, memory, behavior, speech, literacy, motor function, and other outcomes beyond seizure control. Established research goals andEstablished a working group of parents, researchers, and clinicians willing to move forward with us to further patient-centered outcomes research related to the side effects of resective and disconnective pediatric epilepsy surgery. Physician members will help us draft a guide to best practices after pediatric epilepsy surgery, which will include suggestions for the type of physicians who should follow a child after epilepsy surgery. Our recruiting and funding efforts led to the publication of two peer-reviewed research papers and two abstracts in 2019:Kliemann D, Adolphs R, Tyszka JM, et al. Intrinsic functional connectivity of the brain in adults with a single cerebral hemisphere . Cell Rep 2019;29(8):23982407Chen MF, Meer E, Velez FG, Jones M, Mathern GW, Pineles SL. Etiology and Age Modifies Subjective Visual Function After Cerebral Hemispherectomy. J Child Neurol. 2019;34(8):446451. doi:10.1177/0883073819834430Shaw, S., Kasayama, J., Blydt-Hansen, E, Intensive therapy utilizing robotic mobility technology improves motor function post-cerebral hemispherectomy. Poster presented at the American Congress of Rehabilitation Medicine; 2019 Nov 3 8, Chicago, Illinois.Jones, M, Moshe, S., Fallah, A. A web-based, patient-driven (by proxy) registry for pediatric epilepsy surgery: the Global Pediatric Epilepsy Surgery Registry. Poster presented at Annual Meeting of the American Epilepsy Society; 2019 Dec 1 5; Baltimore, MD.Recruited and funded travel and lodging for six children to participate in our research collaboration with Rancho Los Amigos National Rehabilitation Center Robocamp. This is the worlds first intensive physical and occupationa |
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| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 10000 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Special Education Advocac |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 105222 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 105222 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 223893 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 5702 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 160471 |
| IRS990/PYOtherRevenueAmt | 0 | 1777 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 20123 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 46020 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 33600 |
| IRS990/PYTotalExpensesAmt | 0 | 199773 |
| IRS990/PYTotalRevenueAmt | 0 | 245793 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -7633 |
| IRS990/RegularMonitoringEnfrcInd | 0 | false |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 320751 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 223893 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 268251 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 165661 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 143883 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1122439 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 3595 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1777 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3257 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 8629 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99240 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.99480 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1122439 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 320751 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 223893 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 268251 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 165661 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 143883 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1122439 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1131068 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 0 | 5724 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt | 0 | Scholarships |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt | 0 | 6 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 6982 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | California Institute of Tech |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 1200 E California Blvd |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Pasadena |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 91125 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 0 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 1 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Brad and Monika Jones are married. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The full Board reviews the Form 990 prior to filing. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | The Board reviews reasonable compensation for the geographical area and organization size. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Available upon request. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Line 11b: Form 990 Review Process |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990, Part VI, Line 19: Other Organization Documents Publicly Available |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | true |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | CA |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 100751 |
| IRS990/TotalAssetsEOYAmt | 0 | 77153 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 100751 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 77153 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 320751 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 8750 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 37571 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 388975 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 435296 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 16718 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 753 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 16718 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 753 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 84033 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 76400 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 388975 |
| IRS990/TotalProgramServiceRevenueAmt | 0 | 105222 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 48000 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 106912 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 427663 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 100751 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 77153 |
| IRS990/TravelGrp/FundraisingAmt | 0 | 85 |
| IRS990/TravelGrp/ManagementAndGeneralAmt | 0 | 522 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 68748 |
| IRS990/TravelGrp/TotalAmt | 0 | 69355 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 969 Colorado Boulevard 101 |
| IRS990/USAddress/CityNm | 0 | Los Angeles |
| IRS990/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/USAddress/ZIPCd | 0 | 90041 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 6 |
| IRS990/VotingMembersIndependentCnt | 0 | 4 |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.