Civic Intelligence

The Brain Recovery Project

EIN 45-2571898 • 501(c)3 • Los Angeles, CA

Profile

To develop and implement a comprehensive rehabilitation program for brain-injured individuals who received such injury when in utero, childhood or adolescence, whether through trauma, surgical resection, or otherwise, by supporting scientific research and providing charitable assistance and educational programs.

969 Colorado Blvd 101Los Angeles, CA 90041

www.brainrecoveryproject.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

69th percentile

0.02x

Higher debt load relative to assets than 69% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Liabilities / Revenue

69th percentile

0.01x

Higher debt load relative to revenue than 69% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Net Margin

76th percentile

22%

Higher net margin than 76% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Top Officer Pay

93rd percentile

$46,673

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 10.8% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2025

Asset Growth

84th percentile

42%

Faster asset growth than 84% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2024 to 2025

Revenue Growth

44th percentile

-7.5%

Faster revenue growth than 44% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets69th percentile

Assets

Down

$202,120

Down $18,759 (-8.5%) from 2023

Liabilities

Up

$14,883

Up $10,358 (+229%) from 2023

Net Assets

Down

$187,237

Down $29,117 (-13%) from 2023

Operations
Liabilities / Revenue69th percentileNet Margin76th percentile

Revenue

Up

$467,412

Up $166,410 (+55%) from 2023

Expenses

Up

$496,529

Up $280,099 (+129%) from 2023

Net Income

Down

-$29,117

Down $113,689 (-134%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth84th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$300K$200K$100K$0Assets 2011: $20,984Liabilities 2011: $02011Assets 2012: $96,266Net Assets 2012: $96,2662012Assets 2013: $73,109Net Assets 2013: $73,1092013Assets 2014: $65,606Net Assets 2014: $65,6062014Assets 2015: $33,333Net Assets 2015: $33,3332015Assets 2016: $10,469Liabilities 2016: $5,278Net Assets 2016: $5,1912016Assets 2017: $46,099Liabilities 2017: $8,086Net Assets 2017: $38,0132017Assets 2018: $100,751Liabilities 2018: $16,718Net Assets 2018: $84,0332018Assets 2019: $77,153Liabilities 2019: $753Net Assets 2019: $76,4002019Assets 2020: $140,445Liabilities 2020: $21,087Net Assets 2020: $119,3582020Assets 2021: $166,016Liabilities 2021: $11,390Net Assets 2021: $154,6262021Assets 2022: $138,688Liabilities 2022: $6,906Net Assets 2022: $131,7822022Assets 2023: $220,879Liabilities 2023: $4,525Net Assets 2023: $216,3542023Assets 2024: $202,120Liabilities 2024: $14,883Net Assets 2024: $187,2372024

Highlighted filing

2024

Assets$202,120
Liabilities$14,883
Net Assets$187,237
Open 2024 Filing

Operations Trend

Revenue Growth44th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2011: $21,000Expenses 2011: $16Net Income 2011: $20,9842011Revenue 2012: $110,977Expenses 2012: $35,695Net Income 2012: $75,2822012Revenue 2013: $70,404Expenses 2013: $93,561Net Income 2013: -$23,1572013Revenue 2014: $162,850Expenses 2014: $170,353Net Income 2014: -$7,5032014Revenue 2015: $143,883Expenses 2015: $176,156Net Income 2015: -$32,2732015Revenue 2016: $165,661Expenses 2016: $201,755Net Income 2016: -$36,0942016Revenue 2017: $300,047Expenses 2017: $267,225Net Income 2017: $32,8222017Revenue 2018: $245,793Expenses 2018: $199,773Net Income 2018: $46,0202018Revenue 2019: $427,663Expenses 2019: $435,296Net Income 2019: -$7,6332019Revenue 2020: $242,430Expenses 2020: $199,472Net Income 2020: $42,9582020Revenue 2021: $239,954Expenses 2021: $204,686Net Income 2021: $35,2682021Revenue 2022: $320,621Expenses 2022: $343,465Net Income 2022: -$22,8442022Revenue 2023: $301,002Expenses 2023: $216,430Net Income 2023: $84,5722023Revenue 2024: $467,412Expenses 2024: $496,529Net Income 2024: -$29,1172024

Highlighted filing

2024

Revenue$467,412
Expenses$496,529
Net Income-$29,117
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$202,120
Liabilities
$14,883
Net assets
$187,237
Revenue
$467,412
Expenses
$496,529
Net income
-$29,117
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.02$0.15$1.87$4.67$4.97$0.29
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.21$0.05$2.16$3.01$2.16$0.85
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.39$0.07$1.32$3.21$3.43$0.23
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.66$0.11$1.55$2.40$2.05$0.35
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.40$0.21$1.19$2.42$1.99$0.43
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.77$0.01$0.76$4.28$4.35$0.08
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.01$0.17$0.84$2.46$2.00$0.46
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.46$0.08$0.38$3.00$2.67$0.33
2016Detailed filing. Detailed filing data is available for this year.$0.10$0.05$0.05$1.66$2.02$0.36
2015Detailed filing. Detailed filing data is available for this year.$0.33$0.33$1.44$1.76$0.32
2014Detailed filing. Detailed filing data is available for this year.$0.66$0.66$1.63$1.70$0.08
2013Detailed filing. Detailed filing data is available for this year.$0.73$0.73$0.70$0.94$0.23
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.96$0.96$1.11$0.36$0.75
2011Summary only. Only limited summary data is available for this year.$0.21$0.00$0.21$0.00$0.21
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 8, 2025
Return Version
2024v5.0
Gross Receipts
$467,412
Mission and Program Overview

Mission

We enhance the lives of children who need neurosurgery to treat their medication-resistant seizures by empowering families with resources, financial aid, support services, and research before and after surgery.

We enhance the lives of children who need neurosurgery to treat medication-resistant epilepsy.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$190,072$194,591▲ $4,519
Prepaid Expenses and Deferred Charges$30,807$4,000▼ $26,807
Accounts Receivable-$3,529-
Total Assets$220,879$202,120▼ $18,759
Liabilities
Accounts Payable and Accrued Expenses$4,525$14,883▲ $10,358
Total Liabilities$4,525$14,883▲ $10,358
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$136,346$117,400▼ $18,946
Net Assets With Donor Restrictions$80,008$69,837▼ $10,171
Total Net Assets Fund Balance$216,354$187,237▼ $29,117
Total Liabilities and Net Assets / Fund Balance$220,879$202,120▼ $18,759
Compensation and Service Providers
Top Officer Pay93rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Monika JonesPresident and CEOFT$17,953$17,953

Board Members and Trustees

NameTitle
Matt FleshBoard Chair
Mary VernickBoard Secretary
Natalie RobinsonBoard Treasurer
Aria Fallah MdDirector
KAITLYN O'CONNORDirector
Sandi Lam MdDirector
Talor Abel MdDirector
Gary Mathern MdDirector Emeritus
Luke ShepardDirector Emeritus
Revenue and Support

Revenue Composition

Contributions and Grants
$417,287
Program Service Revenue
$50,125
Investment Income
$0
Other Revenue
$0
All Other Contributions
$417,287
Change in Net Assets
$-29,117
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$360,677
Salaries, Compensation, and Employee Benefits$107,766
Grants and Similar Amounts Paid$28,086
Total Fundraising Expense$17,492
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$97,142$2,241$103$99,486
Other Salaries and Wages$73,651$1,193$6,598$81,442
Travel$32,493-$1,144$33,637
Grants to Domestic Individuals$28,086--$28,086
Office Expenses$20,460$5,936$554$26,950
Fees for Services Accounting-$19,410-$19,410
Current Officers, Directors, Trustees, and Key Employees$16,236$263$1,454$17,953
Information Technology$6,644$1,928$5,262$13,834
Payroll Taxes$865$6,123$616$7,604
Insurance$2,427$809$809$4,045
Other Expenses$3,270$0$0$3,270
Fees for Services Legal-$2,068-$2,068
Conferences and Meetings$2,055--$2,055
Advertising$1,407-$57$1,464
Occupancy$126$812-$938
Other Employee Benefits$484$282$1$767
Total Functional Expenses$437,972$41,065$17,492$496,529
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The full board reviews and approves the form 990 prior to efiling.”

Form 990, Part VI, Section B, Line 12C

“Each director, principal officer, and member of a committee with governing board delegated powers shall annually sign a conflict of interest statement. After disclosure of a conflict of interest and all material facts, and after any discussion with the interested person, he/she shall leave the governing board or committee meeting while the determination of a conflict of interest is discussed and voted upon. The remaining board or committee members shall decide if a conflict of interest exists. After exercising due diligence, the governing board or committee shall determine whether the corporation can obtain with reasonable efforts a more advantageous transaction or arrangement from a person or entity that would not give rise to a conflict of interest. If the governing board or committee has reasonable cause to believe a member has failed to disclose actual or possible conflicts of interest, it shall inform the member of the basis for such belief and afford the member an opportunity to explain the alleged failure to disclose. If, after hearing the member's response and after making further investigation as warranted by the circumstances, the governing board or committee determines the member has failed to disclose an actual or possible conflict of interest, it shall take appropriate disciplinary and corrective action.”

Form 990, Part VI, Section B, Line 15

“The board reviews reasonable compensation for the geographical area and organization size.”

Form 990, Part VI, Section C, Line 19

“Available on website and upon request. Form 990 can be found via irs.gov and guidestar.org”

Filing and Contact Details

Filer

Filer Name
The Brain Recovery Project
EIN
45-2571898
Phone
8336753335
Address
969 COLORADO BLVD 101, LOS ANGELES, CA 90041
Doing Business As
Pediatric Epilepsy Surgery Alliance

Signing Officer

Name
Monika Jones
Title
President and CEO
Phone
6268332067
Signed
2025-05-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Monika Jones
Formed
2011
Legal Domicile
CA
Voting Board Members
9
Independent Board Members
9
Employees
4
Volunteers
50

Preparer

Firm
Easy Office Dba Jitasa
Address
1120 S RACKHAM WAY SUITE 300, MERIDIAN, ID 83642
Preparer
Jeremy Cork
Phone
2082874777
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Contractors-general, it consultant, specialists.”

Raw XML AppendixShowing 400 of 456 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt04525
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt014883
IRS990/AccountsReceivableGrp/EOYAmt03529
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0WE ENHANCE THE LIVES OF CHILDREN WHO NEED NEUROSURGERY TO TREAT MEDICATION-RESISTANT EPILEPSY.
IRS990/AdvertisingGrp/FundraisingAmt057
IRS990/AdvertisingGrp/ProgramServicesAmt01407
IRS990/AdvertisingGrp/TotalAmt01464
IRS990/AllOtherContributionsAmt0417287
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/PersonNm0MONIKA JONES
IRS990/BooksInCareOfDetail/PhoneNum08336753335
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0969 COLORADO BLVD 101
IRS990/BooksInCareOfDetail/USAddress/CityNm0LOS ANGELES
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd090041
IRS990/BusinessRlnWith35CtrlEntInd00
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IRS990/CashNonInterestBearingGrp/BOYAmt0190072
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IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt01454
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IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt016236
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt017953
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt02055
IRS990/ConferencesMeetingsGrp/TotalAmt02055
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
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IRS990/CreditCounselingInd00
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IRS990/CYContributionsGrantsAmt0417287
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IRS990/CYOtherExpensesAmt0360677
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IRS990/CYRevenuesLessExpensesAmt0-29117
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IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0467412
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc0INFORMATION AND RESOURCES: THE ALLIANCE IS A TRUSTED SOURCE OF INFORMATION FOR PARENTS AND CAREGIVERS, SCHOOL TEAMS, AND ALIGNED PROFESSIONALS THROUGH A VARIETY OF AWARENESS INITIATIVES, COLLABORATION, PARTNERSHIPS, PROGRAMS, RESOURCES, TOOLS, AND OUR BIENNIAL FAMILY CONFERENCE. IN JULY 2024, THE ALLIANCE HOSTED ITS BIENNIAL NATIONAL FAMILY AND PROFESSIONAL CONFERENCE IN BOSTON, MA, BRINGING TOGETHER FAMILIES, CLINICIANS, RESEARCHERS, AND THERAPISTS TO ADVANCE COLLABORATION AND EDUCATION AROUND PEDIATRIC EPILEPSY SURGERY. THE EVENT FEATURED OVER 30 SESSIONS ON MEDICAL, EDUCATIONAL, AND PSYCHOSOCIAL TOPICS, INCLUDING A SPEAK TRACK FOR ADULTS WHO HAD EPILEPSY SURGERY AS CHILDREN.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
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IRS990/DonatedServicesAndUseFcltsAmt00
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt080008
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IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt04
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
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IRS990/FamilyOrBusinessRlnInd00
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IRS990/FederatedCampaignsAmt00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt019410
IRS990/FeesForServicesAccountingGrp/TotalAmt019410
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt02068
IRS990/FeesForServicesLegalGrp/TotalAmt02068
IRS990/FeesForServicesOtherGrp/FundraisingAmt0103
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt02241
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt097142
IRS990/FeesForServicesOtherGrp/TotalAmt099486
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
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IRS990/Form990PartVIISectionAGrp/OfficerInd0X
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IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
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IRS990/Form990PartVIISectionAGrp/PersonNm2NATALIE ROBINSON
IRS990/Form990PartVIISectionAGrp/PersonNm3MARY VERNICK
IRS990/Form990PartVIISectionAGrp/PersonNm4SANDI LAM MD
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IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT AND CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02011
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IRS990/FSAuditedInd00
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IRS990/FundraisingAmt00
IRS990/GainOrLossGrp/OtherAmt00
IRS990/GainOrLossGrp/SecuritiesAmt00
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IRS990/GoverningBodyVotingMembersCnt09
IRS990/GovernmentGrantsAmt00
IRS990/GrantAmt00
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IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
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IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
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IRS990/InsuranceGrp/TotalAmt04045
IRS990/InvestmentExpenseAmt00
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
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IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
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IRS990/MembersOrStockholdersInd00
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IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0WE ENHANCE THE LIVES OF CHILDREN WHO NEED NEUROSURGERY TO TREAT MEDICATION-RESISTANT EPILEPSY BY EMPOWERING THEIR FAMILIES WITH RESEARCH, SUPPORT SERVICES, AND IMPACTFUL PROGRAMS ACROSS THE LIFESPAN.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0216354
IRS990/NetAssetsOrFundBalancesEOYAmt0187237
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0136346
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0117400
IRS990/NoncashContributionsAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt0812
IRS990/OccupancyGrp/ProgramServicesAmt0126
IRS990/OccupancyGrp/TotalAmt0938
IRS990/OfficeExpensesGrp/FundraisingAmt0554
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt05936
IRS990/OfficeExpensesGrp/ProgramServicesAmt020460
IRS990/OfficeExpensesGrp/TotalAmt026950
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0282
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0484
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0767
IRS990/OtherExpensesGrp/Desc0FOOD AND REFRESHMENTS
IRS990/OtherExpensesGrp/Desc1OUTINGS AND ENTERTAINMENT
IRS990/OtherExpensesGrp/Desc2IRB FEES
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/FundraisingAmt1894
IRS990/OtherExpensesGrp/FundraisingAmt20
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt20
IRS990/OtherExpensesGrp/ProgramServicesAmt0147672
IRS990/OtherExpensesGrp/ProgramServicesAmt14954
IRS990/OtherExpensesGrp/ProgramServicesAmt23270
IRS990/OtherExpensesGrp/TotalAmt0147672
IRS990/OtherExpensesGrp/TotalAmt15848
IRS990/OtherExpensesGrp/TotalAmt23270
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt06598
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt01193
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt073651
IRS990/OtherSalariesAndWagesGrp/TotalAmt081442
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt0616
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt06123
IRS990/PayrollTaxesGrp/ProgramServicesAmt0865
IRS990/PayrollTaxesGrp/TotalAmt07604
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt030807
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt04000
IRS990/PrincipalOfficerNm0MONIKA JONES
IRS990/PriorPeriodAdjustmentsAmt00
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0PROGRAM FEES
IRS990/ProgramServiceRevenueGrp/ExclusionAmt00
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt050125
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt050125
IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH: THE ALLIANCE INITIATES AND FUNDS RESEARCH TO BETTER UNDERSTAND - AND IMPROVE - OUTCOMES AFTER SURGERY. THIS INCLUDES OUR GLOBAL PEDIATRIC EPILEPSY SURGERY REGISTRY, THE ONLY PATIENT-POWERED (BY PARENT PROXY) STUDY TO UNDERSTAND THE DEVELOPMENTAL TRAJECTORY AFTER EPILEPSY SURGERY IN CHILDHOOD. IN 2024, WE ALSO HELD TWO SCIENTIFIC MEETINGS WITH RESEARCHERS, CLINICIANS, AND KEY STAKEHOLDERS TO ALIGN ON SYMPTOM SURVEILLANCE AND SCREENING RECOMMENDATIONS AFTER HEMISPHERIC SURGERY.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt052653
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt02000
IRS990/ProgSrvcAccomActy3Grp/Desc0FINANCIAL AID :THE DREAMS FOR DANNY SURGICAL EVALUATION SCHOLARSHIP PROGRAM ALLEVIATES FINANCIAL BARRIERS FOR FAMILIES SEEKING SURGICAL EVALUATION FOR CHILDREN WITH DRUG-RESISTANT EPILEPSY. THIS SCHOLARSHIP PROVIDES UP TO $1,000 TO COVER TRAVEL AND LODGING EXPENSES FOR FAMILIES TRAVELING OVER 50 MILES TO A LEVEL 4 PEDIATRIC EPILEPSY CENTER IN THE U.S. THE PROGRAM AIMS TO ENSURE THAT FINANCIAL CONSTAINTS DO NOT HINDER ACCESS TO POTENTIALLY LIFE-CHANGING SURGICAL CONSULTATIONS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt028168
IRS990/ProgSrvcAccomActy3Grp/GrantAmt028086
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt00
IRS990/ProgSrvcAccomActyOtherGrp/Desc0ADVOCACY AND COLABORATION: WE MOVE OUR MISSION FORWARD BY COLLABORATING AND ADVOCATING WITH HIGH-IMPACT ORGANIZATIONS. WE DO THIS THROUGH OUR ACTIVE PARTICIPATION IN ALLIANCES WITH OTHER ORGANIZATION, INCLUDING: PERKINS SCHOOL FOR THE BLIND, EPILEPSY AWARENESS DAY AT DISNEYLAND, THE COUNCIL OF PARENT ATTORNEYS AND ADVOCATE, THE AMERICAN BRAIN COALITION, THE RARE EPILEPSIES NETWORK, THE INFANTILE SPASMS ACTION NETWORK, DEE-P CONNECTIONS, AND THE EPILEPSY LEADERSHIP COUNCIL OF THE AMERICAN EPILEPSY SOCIETY. IN 2024, OUR STAFF GAVE KEY PRESENTATIONS AT THE ANNUAL MEETINGS OF THE NATIONAL ASSOCIATION OF SCHOOL NURSES, THE COUNCIL OF PARENT ATTORNEYS AND ADVOCATES, THE AMERICAN EPILEPSY SOCIETY, THE CHILD NEUROLOGY SOCIETY, AND THE FLENI CONFERENCE ON HEMISPHERECTOMY, AND EPILEPSY AWARENESS DAY AT DISNEYLAND.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt020604
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt00
IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYContributionsGrantsAmt0266379
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt018174
IRS990/PYOtherExpensesAmt0132938
IRS990/PYOtherRevenueAmt034623
IRS990/PYRevenuesLessExpensesAmt084572
IRS990/PYSalariesCompEmpBnftPaidAmt065318
IRS990/PYTotalExpensesAmt0216430
IRS990/PYTotalRevenueAmt0301002
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-29117
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt00
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt050125
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER RELATED REVENUE
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0Schedule A, Part II, Line 10
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0417287
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0266379
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0281182
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0239432
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0241345
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01445625
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0138199
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt015272
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0522
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt01085
IRS990ScheduleA/OtherIncome170Grp/TotalAmt016879
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.91129
IRS990ScheduleA/PublicSupportPY170Pct00.6208
IRS990ScheduleA/PublicSupportTotal170Amt01332767
IRS990ScheduleA/SubstantialContributorsTotAmt0112858
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0417287
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0266379
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0281182
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0239432
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0241345
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01445625
IRS990ScheduleA/TotalSupportAmt01462504
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt028086
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0FINANCIAL ASSISTANCE - DREAMS FOR DANNY TRAVEL SCHOLARSHIP
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt031
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION PROVIDES FUNDS WITH THE UNDERSTANDING THAT THEY WILL BE USED TO MEET THE SPECIFIC NEEDS OF THE RECIPIENTS.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Schedule I, Part I, Line 2
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE FULL BOARD REVIEWS AND APPROVES THE FORM 990 PRIOR TO EFILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1EACH DIRECTOR, PRINCIPAL OFFICER, AND MEMBER OF A COMMITTEE WITH GOVERNING BOARD DELEGATED POWERS SHALL ANNUALLY SIGN A CONFLICT OF INTEREST STATEMENT. AFTER DISCLOSURE OF A CONFLICT OF INTEREST AND ALL MATERIAL FACTS, AND AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, HE/SHE SHALL LEAVE THE GOVERNING BOARD OR COMMITTEE MEETING WHILE THE DETERMINATION OF A CONFLICT OF INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD OR COMMITTEE MEMBERS SHALL DECIDE IF A CONFLICT OF INTEREST EXISTS. AFTER EXERCISING DUE DILIGENCE, THE GOVERNING BOARD OR COMMITTEE SHALL DETERMINE WHETHER THE CORPORATION CAN OBTAIN WITH REASONABLE EFFORTS A MORE ADVANTAGEOUS TRANSACTION OR ARRANGEMENT FROM A PERSON OR ENTITY THAT WOULD NOT GIVE RISE TO A CONFLICT OF INTEREST. IF THE GOVERNING BOARD OR COMMITTEE HAS REASONABLE CAUSE TO BELIEVE A MEMBER HAS FAILED TO DISCLOSE ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, IT SHALL INFORM THE MEMBER OF THE BASIS FOR SUCH BELIEF AND AFFORD THE MEMBER AN OPPORTUNITY TO EXPLAIN THE ALLEGED FAILURE TO DISCLOSE. IF, AFTER HEARING THE MEMBER'S RESPONSE AND AFTER MAKING FURTHER INVESTIGATION AS WARRANTED BY THE CIRCUMSTANCES, THE GOVERNING BOARD OR COMMITTEE DETERMINES THE MEMBER HAS FAILED TO DISCLOSE AN ACTUAL OR POSSIBLE CONFLICT OF INTEREST, IT SHALL TAKE APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE BOARD REVIEWS REASONABLE COMPENSATION FOR THE GEOGRAPHICAL AREA AND ORGANIZATION SIZE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3AVAILABLE ON WEBSITE AND UPON REQUEST. FORM 990 CAN BE FOUND VIA IRS.GOV AND GUIDESTAR.ORG
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4CONTRACTORS-GENERAL, IT CONSULTANT, SPECIALISTS.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, Line 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part IX, Line 11g
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0CA
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0220879
IRS990/TotalAssetsEOYAmt0202120
IRS990/TotalAssetsGrp/BOYAmt0220879
IRS990/TotalAssetsGrp/EOYAmt0202120
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0417287
IRS990/TotalEmployeeCnt04
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt017492
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt041065
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0437972
IRS990/TotalFunctionalExpensesGrp/TotalAmt0496529
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt04525
IRS990/TotalLiabilitiesEOYAmt014883
IRS990/TotalLiabilitiesGrp/BOYAmt04525
IRS990/TotalLiabilitiesGrp/EOYAmt014883
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0216354
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0187237
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOtherProgSrvcExpenseAmt020604
IRS990/TotalOtherProgSrvcGrantAmt00
IRS990/TotalOtherProgSrvcRevenueAmt00
IRS990/TotalOthProgramServiceRevGrp/ExclusionAmt00
IRS990/TotalOthProgramServiceRevGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalOthProgramServiceRevGrp/TotalRevenueColumnAmt00

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