Liabilities / Assets
46th percentile
Higher debt load relative to assets than 46% of similar nonprofits.
990 • Fiscal year 2016 • EIN 45-2470997
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
46th percentile
Higher debt load relative to assets than 46% of similar nonprofits.
Liabilities / Revenue
38th percentile
Higher debt load relative to revenue than 38% of similar nonprofits.
Net Margin
47th percentile
Higher net margin than 47% of similar nonprofits.
Top Officer Pay
49th percentile
Higher top officer pay than 49% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
56th percentile
Faster asset growth than 56% of similar nonprofits.
Revenue Growth
27th percentile
Faster revenue growth than 27% of similar nonprofits.
Assets
Up$253,703
Up $9,152 (+3.7%) from 2015
Net Assets
Up$246,887
Up $10,386 (+4.4%) from 2015
Liabilities
Down$6,816
Down $1,234 (-15%) from 2015
Revenue
Down$522,485
Down $51,205 (-8.9%) from 2015
Expenses
Down$512,099
Down $193,464 (-27%) from 2015
Net Income
Up$10,386
Up $142,259 (+108%) from 2015
SEE STATEMENT ATTACHED.
To raise and disburse funds in order to provide research, care, and advocacy to benefit those with genetic intellectual disabilities in accordance with the medical and ethical standards of dr. Jerome lejeune, the father of modern genetics. This is carried out by conducting, promoting, and funding in the united states therapeutically oriented research; by assisting in the development of healthcare services for these individuals; and by serving as their advocate in a spirit of respect for the dignity of all human persons.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $226,359 | $182,945 | ▼ $43,414 |
| Accounts Receivable | $16,495 | $60,142 | ▲ $43,647 |
| Prepaid Expenses and Deferred Charges | - | $9,663 | - |
| Land, Buildings, and Equipment, Net | $1,697 | $953 | ▼ $744 |
| Total Assets | $244,551 | $253,703 | ▲ $9,152 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $8,050 | $6,816 | ▼ $1,234 |
| Total Liabilities | $8,050 | $6,816 | ▼ $1,234 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $134,226 | $188,909 | ▲ $54,683 |
| Temporarily Rstr Net Assets | $102,275 | $57,978 | ▼ $44,297 |
| Total Net Assets Fund Balance | $236,501 | $246,887 | ▲ $10,386 |
| Total Liabilities and Net Assets / Fund Balance | $244,551 | $253,703 | ▲ $9,152 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $953 | $2,767 | - |
| Name | Title |
|---|---|
| Frank Kelly | Chairman |
| Mark Bradford | President |
| DEB O'HARA-RUSCKOWSKI | Board Member |
| Jean-francois Bonnete | Director |
| Jean-hugues Monier | Director |
| John M Haas Phd | Director |
| Joseph Dutkowsky | Director |
| Marilyn Coors | Director |
| Jean-mark Guilloux | Treasurer, B |
| David Lejeune | Vice Preside |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $222,735 |
| Salaries, Compensation, and Employee Benefits | $213,116 |
| Total Fundraising Expense | $105,116 |
| Other Expenses | $76,248 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $222,735 | - | - | $222,735 |
| Other Salaries and Wages | $75,000 | $38,847 | $60,000 | $173,847 |
| Other Employee Benefits | $13,756 | $2,751 | $11,005 | $27,512 |
| Advertising | $8,362 | - | $8,363 | $16,725 |
| Travel | $8,265 | - | $8,266 | $16,531 |
| Fees for Services Accounting | - | $8,721 | $5,814 | $14,535 |
| Payroll Taxes | $5,878 | $1,176 | $4,703 | $11,757 |
| Occupancy | $2,100 | $1,200 | $2,700 | $6,000 |
| Office Expenses | - | $4,071 | - | $4,071 |
| All Other Expenses | $905 | $793 | $843 | $2,541 |
| Insurance | - | $2,376 | - | $2,376 |
| Other Expenses | $3,642 | $444 | $1,331 | $1,775 |
| Fees for Services Legal | - | $847 | $565 | $1,412 |
| Total Functional Expenses | $340,643 | $66,340 | $105,116 | $512,099 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $512,099 |
| Total Expenses per Audited Statements | $512,099 |
| Total Expenses per Form 990 | $512,099 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| The University of Arizona | Tucson, AZ | - | - | $27,078 |
| Universidad Nactional Automa De Mex | - | - | - | $25,437 |
| Trustees of Boston University | - | - | - | $20,648 |
| Drexel University | Philadelphia, PA | - | - | $19,961 |
| Regents of the University of Colora | Aurora, CO | - | - | $19,523 |
| University of Illinois | Springfield, IL | - | - | $19,105 |
| Hospital for Sick Children | Louisburg, NC | - | - | $18,988 |
| North Carolina State University | Boston, MA | - | - | $18,988 |
| The Regents of the Univ of CA | Oakland, CA | - | - | $18,988 |
| University of Oregon | - | - | - | $18,533 |
| Medical Univ of South Carolina | Charleston, SC | - | - | $15,486 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $1,855 |
| Professional Fundraising Fees | $0 |
“Form 990 reviewed by the president of the foundation prior to filing.”
“Annual conflict of interest questionnaires are completed and members are required to disclose any potential conflicts to the governing board. All other board members will discuss and vote on whether a conflict of interest exists for all situation. Based on the determinations of the board, the board will make its decision on whether to enter into the transaction or arrangement.”
“A formal review of compensation will be performed by the finance committee annually to ensure fairness in compensation based on other nonprofit entities in the area.”
“A formal review of compensation will be performed by the finance committee annually to insure fairness in compensation based on other nonprofit entities in the area.”
“AVAILABLE UPON REQUEST”
“AVAILABLE UPON REQUEST”
“To raise and disburse funds in order to provide research, care, and advocacy to benefit those with genetic intellectual disabilities in accordance with the medical and ethical standards of dr. Jerome lejeune, the father of modern genetics. This is carried out by conducting, promoting, and funding in the united states therapeutically oriented research; by assisting in the development of healthcare services for these individuals; and by serving as their advocate in a spirit of respect for the dignity of all human persons.”
“ROUNDING 0”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 8050 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 6816 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 16495 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 60142 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO RAISE AND DISBURSE FUNDS IN ORDER TO PROVIDE RESEARCH, CARE, AND ADVOCACY TO BENEFIT THOSE WITH GENETIC INTELLECTUAL DISABILITIES IN ACCORDANCE WITH THE MEDICAL AND ETHICAL STANDARDS OF DR. JEROME LEJEUNE, THE FATHER OF MODERN GENETICS. THIS IS CARRIED OUT BY CONDUCTING, PROMOTING, AND FUNDING IN THE UNITED STATES THERAPEUTICALLY ORIENTED RESEARCH; BY ASSISTING IN THE DEVELOPMENT OF HEALTHCARE SERVICES FOR THESE INDIVIDUALS; AND BY SERVING AS THEIR ADVOCATE IN A SPIRIT OF RESPECT FOR THE DIGNITY OF ALL HUMAN PERSONS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 8363 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 8362 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 16725 |
| IRS990/AllOtherContributionsAmt | 0 | 520180 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 843 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 793 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 905 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 2541 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | MARK BRADFORD |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2674032910 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 6397 DREXEL RD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | PHILADELPHIA |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 19151 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 226359 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 182945 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 520180 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 222735 |
| IRS990/CYInvestmentIncomeAmt | 0 | 450 |
| IRS990/CYOtherExpensesAmt | 0 | 76248 |
| IRS990/CYOtherRevenueAmt | 0 | 1855 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 10386 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 213116 |
| IRS990/CYTotalExpensesAmt | 0 | 512099 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 105116 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 522485 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | CONDUCTING,PROMOTING, AND FUNDING THERAPEUTICALLY ORIENTED RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 340643 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 5814 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 8721 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 14535 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 565 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 847 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 1412 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JEAN-FRANCOIS BONNETE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MARILYN COORS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JOSEPH DUTKOWSKY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JEAN-MARK GUILLOUX |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | JOHN M HAAS PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | FRANK KELLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DAVID LEJEUNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | JEAN-HUGUES MONIER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MARK BRADFORD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | DEB O'HARA-RUSCKOWSKI |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER, B |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | VICE PRESIDE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2011 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/FundraisingGrossIncomeAmt | 0 | 1855 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GrantAmt | 0 | 222735 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 222735 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 222735 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 522485 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2376 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2376 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 450 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 450 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 2767 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 1697 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 953 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 3720 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO RAISE AND DISBURSE FUNDS IN ORDER TO PROVIDE RESEARCH, CARE, AND ADVOCACY TO BENEFIT THOSE WITH GENETIC INTELLECTUAL DISABILITIES IN ACCORDANCE WITH THE MEDICAL AND ETHICAL STANDARDS OF DR. JEROME LEJEUNE, THE FATHER OF MODERN GENETICS. THIS IS CARRIED OUT BY CONDUCTING, PROMOTING, AND FUNDING IN THE UNITED STATES THERAPEUTICALLY ORIENTED RESEARCH; BY ASSISTING IN THE DEVELOPMENT OF HEALTHCARE SERVICES FOR THESE INDIVIDUALS; AND BY SERVING AS THEIR ADVOCATE IN A SPIRIT OF RESPECT FOR THE DIGNITY OF ALL HUMAN PERSONS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 236501 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 246887 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 1855 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 2700 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1200 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 2100 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 6000 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 4071 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 4071 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 11005 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2751 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 13756 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 27512 |
| IRS990/OtherExpensesGrp/Desc | 0 | PRINTING & PUBLICATIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | INTERNET & TELEPHONE |
| IRS990/OtherExpensesGrp/Desc | 2 | MISCELLANEOUS |
| IRS990/OtherExpensesGrp/Desc | 3 | POSTAGE & SHIPPING |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 321 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 1205 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 1331 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 321 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 3956 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 837 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 444 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 3642 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 4284 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 3956 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 2042 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 1775 |
| IRS990/OtherInd | 0 | X |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 60000 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 38847 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 75000 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 173847 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 4703 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1176 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 5878 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 11757 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 9663 |
| IRS990/PrincipalOfficerNm | 0 | MARK BRADFORD |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 556562 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 340540 |
| IRS990/PYInvestmentIncomeAmt | 0 | 728 |
| IRS990/PYOtherExpensesAmt | 0 | 143857 |
| IRS990/PYOtherRevenueAmt | 0 | 16400 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -131873 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 221166 |
| IRS990/PYTotalExpensesAmt | 0 | 705563 |
| IRS990/PYTotalRevenueAmt | 0 | 573690 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 10386 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 520180 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 556562 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 714325 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 690775 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 151556 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2633398 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1093 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 503 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 219 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 1815 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 2305 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99930 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2633398 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 520180 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 556562 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 714325 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 690775 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 151556 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2633398 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 2635213 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 953 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 2767 |
| IRS990ScheduleD/EquipmentGrp/InvestmentCostOrOtherBasisAmt | 0 | 3720 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 512099 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 522485 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 953 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 512099 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 522485 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 522485 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 512099 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | false |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 18988 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 19105 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 27078 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 19523 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 15486 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 5 | 19961 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 6 | 18988 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 7 | 18988 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 8 | 20648 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 9 | 25437 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 10 | 18533 |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | THE REGENTS OF THE UNIV OF CA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | UNIVERSITY OF ILLINOIS |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | THE UNIVERSITY OF ARIZONA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | REGENTS OF THE UNIVERSITY OF COLORA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | MEDICAL UNIV OF SOUTH CAROLINA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 5 | DREXEL UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 6 | HOSPITAL FOR SICK CHILDREN |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 7 | NORTH CAROLINA STATE UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 8 | TRUSTEES OF BOSTON UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 9 | UNIVERSIDAD NACTIONAL AUTOMA DE MEX |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 10 | UNIVERSITY OF OREGON |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 1111 FRANKLIN ST 12TH FLOOR |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | PO BOX 20787 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 1303 E UNIVERSITY BLVD BOX 3 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | MAIL STOP F428 ANSCHUTZ MEDICAL CAM |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | 19 HAGOOD AVE STE 608 MSC 806 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 5 | 3141 CHESTNUT ST |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 6 | 103 S BICKETT BLVD |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 7 | ONE SIBER WAY |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | OAKLAND |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | SPRINGFIELD |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | TUCSON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | AURORA |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | CHARLESTON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 5 | PHILADELPHIA |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 6 | LOUISBURG |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 7 | BOSTON |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | IL |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | AZ |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | CO |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | SC |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 5 | PA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 6 | NC |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 7 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 94607 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 62708 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 857190521 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 80045 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 4 | 29425 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 5 | 19104 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 6 | 27549 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 7 | 02215 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 16 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | TO RAISE AND DISBURSE FUNDS IN ORDER TO PROVIDE RESEARCH, CARE, AND ADVOCACY TO BENEFIT THOSE WITH GENETIC INTELLECTUAL DISABILITIES IN ACCORDANCE WITH THE MEDICAL AND ETHICAL STANDARDS OF DR. JEROME LEJEUNE, THE FATHER OF MODERN GENETICS. THIS IS CARRIED OUT BY CONDUCTING, PROMOTING, AND FUNDING IN THE UNITED STATES THERAPEUTICALLY ORIENTED RESEARCH; BY ASSISTING IN THE DEVELOPMENT OF HEALTHCARE SERVICES FOR THESE INDIVIDUALS; AND BY SERVING AS THEIR ADVOCATE IN A SPIRIT OF RESPECT FOR THE DIGNITY OF ALL HUMAN PERSONS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | FORM 990 REVIEWED BY THE PRESIDENT OF THE FOUNDATION PRIOR TO FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | ANNUAL CONFLICT OF INTEREST QUESTIONNAIRES ARE COMPLETED AND MEMBERS ARE REQUIRED TO DISCLOSE ANY POTENTIAL CONFLICTS TO THE GOVERNING BOARD. ALL OTHER BOARD MEMBERS WILL DISCUSS AND VOTE ON WHETHER A CONFLICT OF INTEREST EXISTS FOR ALL SITUATION. BASED ON THE DETERMINATIONS OF THE BOARD, THE BOARD WILL MAKE ITS DECISION ON WHETHER TO ENTER INTO THE TRANSACTION OR ARRANGEMENT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | A FORMAL REVIEW OF COMPENSATION WILL BE PERFORMED BY THE FINANCE COMMITTEE ANNUALLY TO ENSURE FAIRNESS IN COMPENSATION BASED ON OTHER NONPROFIT ENTITIES IN THE AREA. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | A FORMAL REVIEW OF COMPENSATION WILL BE PERFORMED BY THE FINANCE COMMITTEE ANNUALLY TO INSURE FAIRNESS IN COMPENSATION BASED ON OTHER NONPROFIT ENTITIES IN THE AREA. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | AVAILABLE UPON REQUEST |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | AVAILABLE UPON REQUEST |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | ROUNDING 0 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990 - ORGANIZATION'S MISSION |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 15A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 15B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PAGE 6, PART VI, LINE 18 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 7 | FORM 990, PART XI, LINE 9 |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt | 0 | 102275 |
| IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt | 0 | 57978 |
| IRS990/TempOrPermanentEndowmentsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 244551 |
| IRS990/TotalAssetsEOYAmt | 0 | 253703 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 244551 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 253703 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 520180 |
| IRS990/TotalEmployeeCnt | 0 | 2 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 105116 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 66340 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 340643 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 512099 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 8050 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 6816 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 8050 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 6816 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 236501 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 246887 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 340643 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 450 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 522485 |
| IRS990/TotalVolunteersCnt | 0 | 8 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 244551 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 253703 |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.