Civic Intelligence

Glut1 Deficiency Foundation Inc.

990 • Fiscal year 2025 • EIN 45-2190535

Jan 01, 2025 to Dec 31, 2025 • Filed on Feb 06, 2026

Organization Profilewww.G1DFoundation.org
PO Box 737Owingsville, KY 40360

(859) 287-2928

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.03x

Higher debt load relative to assets than 58% of similar nonprofits.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2025

Liabilities / Revenue

53rd percentile

0.02x

Higher debt load relative to revenue than 53% of similar nonprofits.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2025

Net Margin

49th percentile

4.1%

Higher net margin than 49% of similar nonprofits.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2025

Top Officer Pay

70th percentile

$55,000

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 10.9% of source-year revenue.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2025

Asset Growth

32nd percentile

-2.1%

Faster asset growth than 32% of similar nonprofits.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2024 to 2025

Revenue Growth

34th percentile

-1.9%

Faster revenue growth than 34% of similar nonprofits.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets58th percentile

Assets

Down

$358,299

Down $107,728 (-23%) from 2023

Net Assets

Down

$347,502

Down $73,617 (-17%) from 2023

Liabilities

Down

$10,797

Down $34,111 (-76%) from 2023

Revenue And Expenses
Liabilities / Revenue53rd percentileNet Margin49th percentile

Revenue

Up

$504,749

Up $164,533 (+48%) from 2023

Expenses

Up

$484,095

Up $124,594 (+35%) from 2023

Net Income

Up

$20,654

Up $39,939 (+207%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth32nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2012: $50,845Liabilities 2012: $20,9602012Assets 2013: $50,058Liabilities 2013: $6,4852013Assets 2014: $110,943Liabilities 2014: $30,8652014Assets 2015: $119,589Liabilities 2015: $617Net Assets 2015: $118,9722015Assets 2016: $102,156Liabilities 2016: $6,979Net Assets 2016: $95,1772016Assets 2017: $73,361Liabilities 2017: $5,0642017Assets 2018: $194,209Liabilities 2018: $88Net Assets 2018: $194,1212018Assets 2019: $98,002Liabilities 2019: $703Net Assets 2019: $97,2992019Assets 2020: $489,814Liabilities 2020: $320,846Net Assets 2020: $168,9682020Assets 2021: $401,741Liabilities 2021: $126,502Net Assets 2021: $275,2392021Assets 2022: $447,949Liabilities 2022: $7,545Net Assets 2022: $440,4042022Assets 2023: $466,027Liabilities 2023: $44,908Net Assets 2023: $421,1192023Assets 2025: $358,299Liabilities 2025: $10,797Net Assets 2025: $347,5022025

Highlighted filing

2025

Assets$358,299
Liabilities$10,797
Net Assets$347,502
Open 2025 Filing

Operations Trend

Revenue Growth34th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2012: $119,356Expenses 2012: $101,724Net Income 2012: $17,6322012Revenue 2013: $150,041Expenses 2013: $136,353Net Income 2013: $13,6882013Revenue 2014: $140,600Expenses 2014: $104,095Net Income 2014: $36,5052014Revenue 2015: $200,638Expenses 2015: $161,744Net Income 2015: $38,8942015Revenue 2016: $165,015Expenses 2016: $190,323Net Income 2016: -$25,3082016Revenue 2017: $172,684Expenses 2017: $197,689Net Income 2017: -$25,0052017Revenue 2018: $226,361Expenses 2018: $102,890Net Income 2018: $123,4712018Revenue 2019: $335,465Expenses 2019: $416,254Net Income 2019: -$80,7892019Revenue 2020: $357,668Expenses 2020: $285,999Net Income 2020: $71,6692020Revenue 2021: $451,967Expenses 2021: $345,696Net Income 2021: $106,2712021Revenue 2022: $776,976Expenses 2022: $611,811Net Income 2022: $165,1652022Revenue 2023: $340,216Expenses 2023: $359,501Net Income 2023: -$19,2852023Revenue 2025: $504,749Expenses 2025: $484,095Net Income 2025: $20,6542025

Highlighted filing

2025

Revenue$504,749
Expenses$484,095
Net Income$20,654
Open 2025 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2025 to Dec 31, 2025
Signed
Feb 6, 2026
Return Version
2025v4.0
Gross Receipts
$504,749
Mission and Program Overview

Mission

The GLUT1 Deficiency Foundation is a parent-led patient advocacy organizatino dedicated to bringing help and hope to the GLUT1 Deficiency community through increased awareness, improved education, advocacy for patients and families, and support and funding for research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$365,826$358,299▼ $7,527
Total Assets$365,826$358,299▼ $7,527
Liabilities
Deferred Revenue$31,060--
Accounts Payable and Accrued Expenses$7,918$10,797▲ $2,879
Total Liabilities$38,978$10,797▼ $28,181
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$326,848$347,502▲ $20,654
Total Net Assets Fund Balance$326,848$347,502▲ $20,654
Total Liabilities and Net Assets / Fund Balance$365,826$358,299▼ $7,527
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Glenna SteeleExecutive DirectorFT$55,000$55,000
Sandra OjedaScience DirectorFT$51,000$51,000

Board Members and Trustees

NameTitle
Rob RapaportPresident
Kelly JonesVice President
April BreenDirector
Erin MeisnerDirector
Leigh HopkinsSecretary
Debbie StoddardTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$483,828
Program Service Revenue
$13,777
Investment Income
$6,294
Other Revenue
$850
All Other Contributions
$478,828
Change in Net Assets
$20,654

Audited Revenue Reconciliation

Revenue per Audited Statements
$504,749
Total Revenue per Audited Statements
$504,749
Total Revenue per Form 990
$504,749
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$203,759
Grants and Similar Amounts Paid$149,342
Salaries, Compensation, and Employee Benefits$130,994
Total Fundraising Expense$26,519
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$140,792--$140,792
Current Officers, Directors, Trustees, and Key Employees$97,793$11,082$12,810$121,685
Conferences and Meetings$48,058--$48,058
Advertising$21,562--$21,562
Other Expenses$17,240$8,714$10,428$17,240
Fees for Services Accounting-$14,933-$14,933
Payroll Taxes$7,481$848$980$9,309
Foreign Grants$8,550--$8,550
Office Expenses-$4,744-$4,744
Insurance-$4,009-$4,009
All Other Expenses$1,791$1,285-$3,076
Information Technology-$2,476-$2,476
Total Functional Expenses$409,485$48,091$26,519$484,095

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$484,095
Total Expenses per Audited Statements$484,095
Total Expenses per Form 990$484,095
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Oregon Health & Science UniversityPortland, OR-For clinical trial support$100,000
Weill Medical College of Cornell UnNew York, NY-Research project support$58,560

International Summary

Spending
$8,550

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
East Asia and the PacificProgram servicesResearch grant--$8,550
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

“All board members are emailed a copy of the completed 990 and given the opportunity to review and ask questions before filing.”

Conflict of interest policy compliance Part VI line 12C

“The conflict of interest policy is reviewed annually, discussed at annual board meetings and board members sign a disclosure statement each year. There are ongoing discussions about potential conflicts, and board members have the opportunity to recuse themselves from any issues or decisions where a conflict may exist. Other board members may raise conflict concerns and outcomes are decided by the board.”

CEO executive director top management comp Part VI line 15A

“Compensation for Executive Director was first determined by a board committee who researched comparability data, created a job description, and instituted an annual review process, then the board voted and approved. Annual reviews take place now for the Executive Director and feedback is shared on performance, and compensation is reviewed and discussed by the board.”

Other officer or key employee compensation Part VI line 15B

“Compensation for Other Officers and Key Employees was first determined by a board committee who researched comparability data, created a job description, and instituted an annual review process, then the board voted and approved. Annual reviews take place now for Other Officers and Key Employees and feedback is shared on performance, and compensation is reviewed and discussed by the board.”

Governing documents etc available to public Part VI line 19

“Governing documents, conflict of interest policy, tax returns, and financial information are available to the public on our website and upon request.”

Filing and Contact Details

Filer

Filer Name
GLUT1 Deficiency Foundation Inc
EIN
45-2190535
In Care Of
% Glenna Steele
Phone
8592872928
Address
PO Box 737, Owingsville, KY 40360

Signing Officer

Name
Glenna Steele
Title
Executive Director
Phone
8592872928
Signed
2026-02-06
Discuss with paid preparer
No

Organization Details

Principal Officer
Glenna Steele
Formed
2011
Legal Domicile
Ky
Voting Board Members
6
Independent Board Members
6
Employees
4
Volunteers
15

Preparer

Firm
Acully Incorporated
Address
7466 Auburn Road, Concord, OH 44077
Preparer
John M Matras CPA
Phone
2162238623
Supplemental Narrative

Additional Explanations

Not undergone required audits or steps for audit Part XII line 3B

“Process has not changed from the prior year.”

Part IX response or note to any line in Part IX

“The amounts reported on Line 1 reflect the gross amounts paid less any refunds from prior grants not completed.”

Financial Statement Notes

Part XI, Line 4B-Other revenue not included on Sch D but on 990

“Credit card cashback revenue”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND AWARENESS: The GLUT1 Deficiency Foundation has several outreach programs to help raise awareness and improve education among stakeholders in the community. In 2025, we hosted educational exhibits at 3 professional meetings to educate healthcare professionals in a position to diagnosed patients or improve care. We helped with a global symposium for ketogenic dietary therapies and the European GLUT1 Conference as a nonprofit sponsor. We created new resources for our website and updated our brochure which is available in digitial and print form. Informational packets were created and mailed to 80 newly diagnosed families.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt085543
IRS990/ProgSrvcAccomActy3Grp/Desc0ADVOCACY AND SUPPORT: Monthly virtual meetings were held on Zoom for parents and caregivers, in both English and Spanish sessions. Monthly meetings were also held for tween and teenage patients and for adult patients. A private Facebook group is managed as a place for the community to get information and support. We had 1:1 consultation sessions available for school support, behavior support, ketogenic diet support, and peer support. The G1DF launched our Collaborative Care Network to identify centers who provide high quality, patient-centered care and work collaboratively across the network to improve outcomes. rare disease community.
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0333452
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0739064
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0442245
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IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt02441711
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0739064
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0442245
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02441711
IRS990ScheduleA/TotalSupportAmt02441711
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IRS990ScheduleD/ExpensesSubtotalAmt0484095
IRS990ScheduleD/RevenueSubtotalAmt0504749
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0Credit card cashback revenue
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part XI, Line 4b-Other revenue not included on Sch D but on 990
IRS990ScheduleD/TotalExpensesPerForm990Amt0484095
IRS990ScheduleD/TotalRevenuePerForm990Amt0504749
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0504749
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IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt08550
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0East Asia and the Pacific
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0Research grant
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0Program services
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IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt08550
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0Direct payment
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Research Grant
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0East Asia and the Pacific
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IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
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IRS990ScheduleF/TotalSpentAmt08550
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IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt058560
IRS990ScheduleI/RecipientTable/CashGrantAmt1100000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Research project support
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1For clinical trial support
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Weill Medical College of Cornell Un
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1Oregon Health & Science University
IRS990ScheduleI/RecipientTable/RecipientEIN0237083114
IRS990ScheduleI/RecipientTable/RecipientEIN1150532082
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0PO Box 22371
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt12020 SW 4th Ave 900
IRS990ScheduleI/RecipientTable/USAddress/CityNm0New York
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Portland
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1OR
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IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0Monitoring procedures (Part I, line 2)The GLUT1 Deficiency Foundation provides grants to institutional researchers who are conducting scientific research forbetter understanding and better treatments of GLUT11 Deficiency. Grants are awarded by the board of directors with input fromour medical and scientific advisory team. Grant reports are due through the grant period, including written reports,presentations at foundation-sponsored meetings, and virtual meetings to share updates. Final reports are due at the end ofthe grant period with the expectation to publicly share the work in a relevant scientific publication. Progress is monitoredby the board of directors, the science director, and the executive director.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Monitoring procedures (Part I, line 2)
IRS990ScheduleI/Total501c3OrgCnt00
IRS990ScheduleI/TotalOtherOrgCnt02
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0All board members are emailed a copy of the completed 990 and given the opportunity to review and ask questions before filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The conflict of interest policy is reviewed annually, discussed at annual board meetings and board members sign a disclosure statement each year. There are ongoing discussions about potential conflicts, and board members have the opportunity to recuse themselves from any issues or decisions where a conflict may exist. Other board members may raise conflict concerns and outcomes are decided by the board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Compensation for Executive Director was first determined by a board committee who researched comparability data, created a job description, and instituted an annual review process, then the board voted and approved. Annual reviews take place now for the Executive Director and feedback is shared on performance, and compensation is reviewed and discussed by the board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Compensation for Other Officers and Key Employees was first determined by a board committee who researched comparability data, created a job description, and instituted an annual review process, then the board voted and approved. Annual reviews take place now for Other Officers and Key Employees and feedback is shared on performance, and compensation is reviewed and discussed by the board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Governing documents, conflict of interest policy, tax returns, and financial information are available to the public on our website and upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Process has not changed from the prior year.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6The amounts reported on Line 1 reflect the gross amounts paid less any refunds from prior grants not completed.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2CEO executive director top management comp Part VI line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Other officer or key employee compensation Part VI line 15b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Not undergone required audits or steps for audit Part XII line 3b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Part IX response or note to any line in Part IX
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IRS990/SubjectToProxyTaxInd0false
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IRS990/TaxableDistributionsInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
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IRS990/TotalContributionsAmt0483828
IRS990/TotalEmployeeCnt04
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt026519
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt048091
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0409485
IRS990/TotalFunctionalExpensesGrp/TotalAmt0484095
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt038978
IRS990/TotalLiabilitiesEOYAmt010797
IRS990/TotalLiabilitiesGrp/BOYAmt038978
IRS990/TotalLiabilitiesGrp/EOYAmt010797
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0326848
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0347502
IRS990/TotalOtherCompensationAmt00
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IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt020921
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0504749
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt015
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0365826
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0358299
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$358,299
Liabilities
$10,797
Net assets
$347,502
Revenue
$504,749
Expenses
$484,095
Net income
$20,654
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$3.58$0.11$3.48$5.05$4.84$0.21
2023Summary only. Only limited summary data is available for this year.$4.66$0.45$4.21$3.40$3.60$0.19
2022Summary only. Only limited summary data is available for this year.$4.48$0.08$4.40$7.77$6.12$1.65
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.02$1.27$2.75$4.52$3.46$1.06
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.90$3.21$1.69$3.58$2.86$0.72
2019Summary only. Only limited summary data is available for this year.$0.98$0.01$0.97$3.35$4.16$0.81
2018Summary only. Only limited summary data is available for this year.$1.94$0.00$1.94$2.26$1.03$1.23
2017Summary only. Only limited summary data is available for this year.$0.73$0.05$1.73$1.98$0.25
2016Summary only. Only limited summary data is available for this year.$1.02$0.07$0.95$1.65$1.90$0.25
2015Summary only. Only limited summary data is available for this year.$1.20$0.01$1.19$2.01$1.62$0.39
2014Summary only. Only limited summary data is available for this year.$1.11$0.31$1.41$1.04$0.37
2013Summary only. Only limited summary data is available for this year.$0.50$0.06$1.50$1.36$0.14
2012Summary only. Only limited summary data is available for this year.$0.51$0.21$1.19$1.02$0.18
Peer Organizations

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