Civic Intelligence

Charge Syndrome Foundation Inc.

990 • Fiscal year 2013 • EIN 43-1642150

Jan 01, 2013 to Dec 31, 2013 • Filed on May 14, 2014

Organization ProfileWWW.CHARGESYNDROME.ORG

View Organization Page

141 Middle Neck Road11050

(516) 684-4720

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

24th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2013

Liabilities / Revenue

25th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2013

Net Margin

59th percentile

6.6%

Higher net margin than 59% of similar nonprofits.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2013

Top Officer Pay

49th percentile

$0

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2013

Asset Growth

73rd percentile

14%

Faster asset growth than 73% of similar nonprofits.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2012 to 2013

Revenue Growth

96th percentile

233%

Faster revenue growth than 96% of similar nonprofits.

2013 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2012 to 2013

Balance Sheet
Liabilities / Assets24th percentile

Assets

Up

$329,301

Up $40,356 (+14%) from 2012

Net Assets

Up

$329,301

Up $40,356 (+14%) from 2012

Liabilities

Flat

$0

Flat from 2012

Revenue And Expenses
Liabilities / Revenue25th percentileNet Margin59th percentile

Revenue

Up

$615,968

Up $431,084 (+233%) from 2012

Expenses

Up

$575,612

Up $421,539 (+274%) from 2012

Net Income

Up

$40,356

Up $9,545 (+31%) from 2012

Historical Trend

Balance Sheet Trend

Asset Growth73rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2011: $258,134Liabilities 2011: $0Net Assets 2011: $258,1342011Assets 2012: $288,945Liabilities 2012: $0Net Assets 2012: $288,9452012Assets 2013: $329,301Liabilities 2013: $0Net Assets 2013: $329,3012013Assets 2014: $443,764Liabilities 2014: $0Net Assets 2014: $443,7642014Assets 2015: $457,524Liabilities 2015: $0Net Assets 2015: $457,5242015Assets 2016: $483,637Liabilities 2016: $9,407Net Assets 2016: $474,2302016Assets 2017: $601,563Liabilities 2017: $2,147Net Assets 2017: $599,4162017Assets 2018: $671,248Liabilities 2018: $6,881Net Assets 2018: $664,3672018Assets 2019: $828,771Liabilities 2019: $1,588Net Assets 2019: $827,1832019Assets 2020: $1,077,372Liabilities 2020: $64,115Net Assets 2020: $1,013,2572020Assets 2021: $1,240,274Liabilities 2021: $4,394Net Assets 2021: $1,235,8802021Assets 2022: $1,432,888Liabilities 2022: $87,086Net Assets 2022: $1,345,8022022Assets 2023: $1,592,023Liabilities 2023: $10,880Net Assets 2023: $1,581,1432023Assets 2024: $1,718,691Liabilities 2024: $102,854Net Assets 2024: $1,615,8372024

Highlighted filing

2013

Assets$329,301
Liabilities$0
Net Assets$329,301
Open 2013 Filing

Operations Trend

Revenue Growth96th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $394,346Expenses 2011: $428,955Net Income 2011: -$34,6092011Revenue 2012: $184,884Expenses 2012: $154,073Net Income 2012: $30,8112012Revenue 2013: $615,968Expenses 2013: $575,612Net Income 2013: $40,3562013Revenue 2014: $314,451Expenses 2014: $199,988Net Income 2014: $114,4632014Revenue 2015: $698,772Expenses 2015: $686,548Net Income 2015: $12,2242015Revenue 2016: $296,652Expenses 2016: $276,965Net Income 2016: $19,6872016Revenue 2017: $828,487Expenses 2017: $703,301Net Income 2017: $125,1862017Revenue 2018: $374,075Expenses 2018: $297,133Net Income 2018: $76,9422018Revenue 2019: $758,606Expenses 2019: $616,390Net Income 2019: $142,2162019Revenue 2020: $427,329Expenses 2020: $256,958Net Income 2020: $170,3712020Revenue 2021: $572,792Expenses 2021: $375,219Net Income 2021: $197,5732021Revenue 2022: $502,106Expenses 2022: $355,542Net Income 2022: $146,5642022Revenue 2023: $1,127,763Expenses 2023: $922,660Net Income 2023: $205,1032023Revenue 2024: $539,340Expenses 2024: $544,100Net Income 2024: -$4,7602024

Highlighted filing

2013

Revenue$615,968
Expenses$575,612
Net Income$40,356
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
May 14, 2014
Return Version
2013v3.0
Gross Receipts
$615,968
Mission and Program Overview

Mission

We lead and partner to improve the lives of people with charge syndrome locally, nationally, and internationally through outreach, education, and research.

Provide information about charge syndrome through publication; provide support to families with a charge member; provide biennial conferences; support research into cause of charge syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$288,945$329,301▲ $40,356
Rtn Earn Endowment Incm Other Fnds$288,945$329,301▲ $40,356
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$288,945$329,301▲ $40,356
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$288,945$329,301▲ $40,356
Total Liabilities and Net Assets / Fund Balance$288,945$329,301▲ $40,356
Compensation and Service Providers
Top Officer Pay49th percentile

Board Members and Trustees

NameTitle
David WolfePresident
Lisa WeirVice President
Amrit MehtaDirector
Eric BluestoneDirector
Joanne LentDirector
Lori SwansonDirector
Pamela RyanDirector
Neal StangerSecretary
Brownie ShottTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$371,527
Program Service Revenue
$244,327
Investment Income
$114
Other Revenue
$0
All Other Contributions
$338,862
Change in Net Assets
$40,356

Audited Revenue Reconciliation

Revenue per Audited Statements
$615,968
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$615,968
Total Revenue per Form 990
$615,968
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$455,230
Grants and Similar Amounts Paid$100,000
Salaries, Compensation, and Employee Benefits$20,382
Total Fundraising Expense$6,583
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$375,224--$375,224
Grants to Domestic Individuals$100,000--$100,000
Other Salaries and Wages$18,667--$18,667
Occupancy-$10,000-$10,000
Advertising--$6,583$6,583
All Other Expenses$5,816$667-$6,483
Office Expenses$4,768$1,589-$6,357
Other Expenses$3,345$1,434-$4,779
Insurance$2,843$150-$2,993
Fees for Services Accounting-$2,550-$2,550
Fees for Services Other$1,863--$1,863
Payroll Taxes$1,715--$1,715
Total Functional Expenses$533,341$35,688$6,583$575,612

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$575,612
Total Expenses per Audited Statements$575,612
Total Expenses per Form 990$575,612
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“The board is provided a copy of form 990 for review before it is filed.”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents, policies, and financial statements are provided by written request.”

Form 990, Part VII

“Neal stanger - 45 lincoln ave, hastings on hudson, ny 10706. Lisa weir - 57 meadowbank ave, saint john, canada, canada. David wolfe - 3021 cyprus ct, buffalo grove, il 60089. Brownie shott - 3502 windmoor dr, katy, tx 77449. Pamela ryan - 175 north beacon st, watertown, ma 02472. Lori swanson - 410 south third street, river falls, wi 54022. Amrit mehta - 1044 mcquay blvd, whitby, canada, canada. Eric bluestone - 122 vanderbilt avenue apt 4b, brooklyn, ny 11205. Joanne lent - 33 edith avenue, metuchen, nj 08840.”

Filing and Contact Details

Filer

EIN
43-1642150
Phone
5166844720

Signing Officer

Name
Brownie Shott
Title
Treasurer
Phone
5166844720
Signed
2014-05-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Brownie Shott
Formed
1993
Legal Domicile
Ny
Voting Board Members
9
Independent Board Members
9
Employees
1
Volunteers
65

Preparer

Preparer
Jen Bogardus CPA
Phone
4409932142
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0187226
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0220
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt0156261
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0587359
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt0114
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt0433
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt0722
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt0245
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt0323
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt01837
IRS990ScheduleA/InvestmentIncomeCYPct00.00110
IRS990ScheduleA/InvestmentIncomePYPct00.00720
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt01223
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt0228
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus4YearsAmt0665
IRS990ScheduleA/OtherIncome509Grp/TotalAmt02116
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.99770
IRS990ScheduleA/PublicSupportPY509Pct00.98930
IRS990ScheduleA/PublicSupportTotal509Amt01695440
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0615854
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0183228
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0404667
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0170769
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0320922
IRS990ScheduleA/Total509Grp/TotalAmt01695440
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0615968
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0184884
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0405617
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0171014
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0321910
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01699393
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0575612
IRS990ScheduleD/RevenueNotReportedAmt00
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0615968
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt0575612
IRS990ScheduleD/TotalRevenuePerForm990Amt0615968
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0615968
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0575612
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt0100000
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0RESEARCH GRANT
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt03
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE BOARD IS PROVIDED A COPY OF FORM 990 FOR REVIEW BEFORE IT IS FILED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS ARE PROVIDED BY WRITTEN REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2NEAL STANGER - 45 LINCOLN AVE, HASTINGS ON HUDSON, NY 10706. LISA WEIR - 57 MEADOWBANK AVE, SAINT JOHN, CANADA, CANADA. DAVID WOLFE - 3021 CYPRUS CT, BUFFALO GROVE, IL 60089. BROWNIE SHOTT - 3502 WINDMOOR DR, KATY, TX 77449. PAMELA RYAN - 175 NORTH BEACON ST, WATERTOWN, MA 02472. LORI SWANSON - 410 SOUTH THIRD STREET, RIVER FALLS, WI 54022. AMRIT MEHTA - 1044 MCQUAY BLVD, WHITBY, CANADA, CANADA. ERIC BLUESTONE - 122 VANDERBILT AVENUE APT 4B, BROOKLYN, NY 11205. JOANNE LENT - 33 EDITH AVENUE, METUCHEN, NJ 08840.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VII
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0NY
IRS990/SubjectToProxyTaxInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0288945
IRS990/TotalAssetsEOYAmt0329301
IRS990/TotalAssetsGrp/BOYAmt0288945
IRS990/TotalAssetsGrp/EOYAmt0329301
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0371527
IRS990/TotalEmployeeCnt01
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt06583
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt035688
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0533341
IRS990/TotalFunctionalExpensesGrp/TotalAmt0575612
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0288945
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0329301
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0533341
IRS990/TotalProgramServiceRevenueAmt0244327
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt0114
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt0244327
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0615968
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt065
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0288945
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0329301
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine10141 MIDDLE NECK ROAD
IRS990/USAddress/City0SANDS POINT
IRS990/USAddress/State0NY
IRS990/USAddress/ZIPCode011050
IRS990/VotingMembersGoverningBodyCnt09
IRS990/VotingMembersIndependentCnt09
IRS990/WebsiteAddressTxt0WWW.CHARGESYNDROME.ORG
IRS990/WhistleblowerPolicyInd01
ReturnHeader/BuildTS02015-11-30 17:44:51Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0BROWNIE SHOTT
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TREASURER
ReturnHeader/BusinessOfficerGrp/PhoneNum05166844720
ReturnHeader/BusinessOfficerGrp/SignatureDt02014-05-14
ReturnHeader/Filer/BusinessName/BusinessNameLine10CHARGE SYNDROME FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0CHAR
ReturnHeader/Filer/EIN0431642150
ReturnHeader/Filer/PhoneNum05166844720
ReturnHeader/Filer/USAddress/AddressLine10141 MIDDLE NECK ROAD
ReturnHeader/Filer/USAddress/City0SANDS POINT
ReturnHeader/Filer/USAddress/State0NY
ReturnHeader/Filer/USAddress/ZIPCode011050
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0463004069
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine10SNODGRASS OF NE OHIO INC

Document Assets

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Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$329,301
Liabilities
$0
Net assets
$329,301
Revenue
$615,968
Expenses
$575,612
Net income
$40,356
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.72$0.10$1.62$0.54$0.54$0.00
2023Detailed filing. Detailed filing data is available for this year.$1.59$0.01$1.58$1.13$0.92$0.21
2022Detailed filing. Detailed filing data is available for this year.$1.43$0.09$1.35$0.50$0.36$0.15
2021Detailed filing. Detailed filing data is available for this year.$1.24$0.00$1.24$0.57$0.38$0.20
2020Detailed filing. Detailed filing data is available for this year.$1.08$0.06$1.01$0.43$0.26$0.17
2019Detailed filing. Detailed filing data is available for this year.$0.83$0.00$0.83$0.76$0.62$0.14
2018Detailed filing. Detailed filing data is available for this year.$0.67$0.01$0.66$0.37$0.30$0.08
2017Detailed filing. Detailed filing data is available for this year.$0.60$0.00$0.60$0.83$0.70$0.13
2016Detailed filing. Detailed filing data is available for this year.$0.48$0.01$0.47$0.30$0.28$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.46$0.00$0.46$0.70$0.69$0.01
2014Detailed filing. Detailed filing data is available for this year.$0.44$0.00$0.44$0.31$0.20$0.11
2013Detailed filing. Detailed filing data is available for this year.$0.33$0.00$0.33$0.62$0.58$0.04
2012Summary only. Only limited summary data is available for this year.$0.29$0.00$0.29$0.18$0.15$0.03
2011Summary only. Only limited summary data is available for this year.$0.26$0.00$0.26$0.39$0.43$0.03