Civic Intelligence

Charge Syndrome Foundation Inc.

990 • Fiscal year 2017 • EIN 43-1642150

Jan 01, 2017 to Dec 31, 2017 • Filed on Mar 07, 2018

Organization ProfileWWW.CHARGESYNDROME.ORG
318 Half Day Road No 305Buffalo Grove, IL 60089

(516) 684-4720

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

33rd percentile

0.00x

Higher debt load relative to assets than 33% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Liabilities / Revenue

30th percentile

0.00x

Higher debt load relative to revenue than 30% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Net Margin

72nd percentile

15%

Higher net margin than 72% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Top Officer Pay

49th percentile

$0

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Asset Growth

80th percentile

24%

Faster asset growth than 80% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2016 to 2017

Revenue Growth

96th percentile

179%

Faster revenue growth than 96% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets33rd percentile

Assets

Up

$601,563

Up $117,926 (+24%) from 2016

Net Assets

Up

$599,416

Up $125,186 (+26%) from 2016

Liabilities

Down

$2,147

Down $7,260 (-77%) from 2016

Revenue And Expenses
Liabilities / Revenue30th percentileNet Margin72nd percentile

Revenue

Up

$828,487

Up $531,835 (+179%) from 2016

Expenses

Up

$703,301

Up $426,336 (+154%) from 2016

Net Income

Up

$125,186

Up $105,499 (+536%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth80th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2011: $258,134Liabilities 2011: $0Net Assets 2011: $258,1342011Assets 2012: $288,945Liabilities 2012: $0Net Assets 2012: $288,9452012Assets 2013: $329,301Liabilities 2013: $0Net Assets 2013: $329,3012013Assets 2014: $443,764Liabilities 2014: $0Net Assets 2014: $443,7642014Assets 2015: $457,524Liabilities 2015: $0Net Assets 2015: $457,5242015Assets 2016: $483,637Liabilities 2016: $9,407Net Assets 2016: $474,2302016Assets 2017: $601,563Liabilities 2017: $2,147Net Assets 2017: $599,4162017Assets 2018: $671,248Liabilities 2018: $6,881Net Assets 2018: $664,3672018Assets 2019: $828,771Liabilities 2019: $1,588Net Assets 2019: $827,1832019Assets 2020: $1,077,372Liabilities 2020: $64,115Net Assets 2020: $1,013,2572020Assets 2021: $1,240,274Liabilities 2021: $4,394Net Assets 2021: $1,235,8802021Assets 2022: $1,432,888Liabilities 2022: $87,086Net Assets 2022: $1,345,8022022Assets 2023: $1,592,023Liabilities 2023: $10,880Net Assets 2023: $1,581,1432023Assets 2024: $1,718,691Liabilities 2024: $102,854Net Assets 2024: $1,615,8372024

Highlighted filing

2017

Assets$601,563
Liabilities$2,147
Net Assets$599,416
Open 2017 Filing

Operations Trend

Revenue Growth96th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $394,346Expenses 2011: $428,955Net Income 2011: -$34,6092011Revenue 2012: $184,884Expenses 2012: $154,073Net Income 2012: $30,8112012Revenue 2013: $615,968Expenses 2013: $575,612Net Income 2013: $40,3562013Revenue 2014: $314,451Expenses 2014: $199,988Net Income 2014: $114,4632014Revenue 2015: $698,772Expenses 2015: $686,548Net Income 2015: $12,2242015Revenue 2016: $296,652Expenses 2016: $276,965Net Income 2016: $19,6872016Revenue 2017: $828,487Expenses 2017: $703,301Net Income 2017: $125,1862017Revenue 2018: $374,075Expenses 2018: $297,133Net Income 2018: $76,9422018Revenue 2019: $758,606Expenses 2019: $616,390Net Income 2019: $142,2162019Revenue 2020: $427,329Expenses 2020: $256,958Net Income 2020: $170,3712020Revenue 2021: $572,792Expenses 2021: $375,219Net Income 2021: $197,5732021Revenue 2022: $502,106Expenses 2022: $355,542Net Income 2022: $146,5642022Revenue 2023: $1,127,763Expenses 2023: $922,660Net Income 2023: $205,1032023Revenue 2024: $539,340Expenses 2024: $544,100Net Income 2024: -$4,7602024

Highlighted filing

2017

Revenue$828,487
Expenses$703,301
Net Income$125,186
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Mar 7, 2018
Return Version
2017v2.2
Gross Receipts
$839,534
Mission and Program Overview

Mission

We lead and partner to improve the lives of people with charge syndrome locally, nationally, and internationally through outreach, education, and research.

Provide information about charge syndrome through publication; provide support to families with a charge member; provide biennial conferences; support research into cause of charge syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$474,794$600,326▲ $125,532
Rtn Earn Endowment Incm Other Fnds$474,230$599,416▲ $125,186
Prepaid Expenses and Deferred Charges$8,843$1,237▼ $7,606
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$483,637$601,563▲ $117,926
Liabilities
Accounts Payable and Accrued Expenses$9,407$2,147▼ $7,260
Total Liabilities$9,407$2,147▼ $7,260
Net Assets / Fund Balance
Total Net Assets Fund Balance$474,230$599,416▲ $125,186
Total Liabilities and Net Assets / Fund Balance$483,637$601,563▲ $117,926
Compensation and Service Providers
Top Officer Pay49th percentile

Board Members and Trustees

NameTitle
David WolfePresident
Lisa WeirVice President
Amrit MehtaDirector
Christian LobaughDirector
Joanne LentDirector
Karin DagleyDirector
Minnie Lee LambertDirector
Pamela RyanDirector
Neal StangerSecretary
Brownie ShottTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$232,451
Program Service Revenue
$458,634
Investment Income
$606
Other Revenue
$136,796
All Other Contributions
$203,021
Change in Net Assets
$125,186

Audited Revenue Reconciliation

Revenue per Audited Statements
$828,487
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$11,047
Total Revenue per Audited Statements
$839,534
Total Revenue per Form 990
$828,487
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$494,152
Grants and Similar Amounts Paid$150,000
Salaries, Compensation, and Employee Benefits$59,149
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$85,000--$85,000
Foreign Grants$65,000--$65,000
Other Salaries and Wages$54,814--$54,814
All Other Expenses$6,557$2,445-$9,002
Fees for Services Other$6,341--$6,341
Other Expenses$5,278$586-$5,864
Office Expenses$3,468$1,156-$4,624
Payroll Taxes$4,335--$4,335
Insurance$2,977$157-$3,134
Total Functional Expenses$676,446$26,855$0$703,301

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$714,348
Total Expenses per Audited Statements$714,348
Total Expenses per Form 990$703,301
Expenses Not Reported on Form 990$0
Expenses Not Reported on Financial Statements$-11,047
Other Expense Adjustments$-11,047
International Activity

International Summary

Offices
0
Employees
0
Spending
$65,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
GermanyGrantsResearch00$35,000
ItalyGrantsResearch00$30,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$147,843
Fundraising Direct Expenses$11,047
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Thon$110,290$110,290-$110,290
Unbreakable Chargers$24,360$24,360-$24,360
Total Events$147,843$147,843$11,047$136,796
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The board is provided a copy of form 990 for review before it is filed.”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents, policies, and financial statements are provided by written request.”

Form 990, Part VII Contact Addresses for Officers, Directors, Etc

“David wolfe - 3021 cyprus ct, buffalo grove, il 60089. Lisa weir - 877 mollins drive, saint john, canada, canada. Neal stanger - 45 lincoln ave, hastings on hudson, ny 10706. Brownie shott - 3502 windmoor dr, katy, tx 77449. Pamela ryan - 175 north beacon st, watertown, ma 02472. Amrit mehta - 110 hadsell drive, bloomfield, mi 48302. Joanne lent - 33 edith avenue, metuchen, nj 08840. Karin dagley - 714 pleasant street, apt 1, weymouth, ma 02189. Minnie lee lambert - 1910 earle road, andrews, sc 29510. Christian lobaugh - 4005 east 46th st, tulsa, ok 74135.”

Filing and Contact Details

Filer

Filer Name
Charge Syndrome Foundation
EIN
43-1642150
Phone
5166844720
Address
318 HALF DAY ROAD NO 305, BUFFALO GROVE, IL 60089

Signing Officer

Name
Brownie Shott
Title
Treasurer
Phone
5166844720
Signed
2018-03-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Brownie Shott
Formed
1993
Legal Domicile
Ny
Voting Board Members
10
Independent Board Members
10
Employees
0
Volunteers
0

Preparer

Firm
Snodgrass of Ne Ohio Inc
Address
4820 STATE ROAD, ASHTABULA, OH 44004
Preparer
Jen Bogardus CPA
Phone
4409932142
Supplemental Narrative

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses 11,047.”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“Fundraising expenses -11,047.”

Raw XML AppendixShowing 400 of 476 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt09407
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt02147
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0PROVIDE INFORMATION ABOUT CHARGE SYNDROME THROUGH PUBLICATION; PROVIDE SUPPORT TO FAMILIES WITH A CHARGE MEMBER; PROVIDE BIENNIAL CONFERENCES; SUPPORT RESEARCH INTO CAUSE OF CHARGE SYNDROME.
IRS990/AllOtherContributionsAmt0203021
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt02445
IRS990/AllOtherExpensesGrp/ProgramServicesAmt06557
IRS990/AllOtherExpensesGrp/TotalAmt09002
IRS990/AnnualDisclosureCoveredPrsnInd00
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0BROWNIE SHOTT
IRS990/BooksInCareOfDetail/PhoneNum07135459191
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt03502 WINDMOOR DRIVE
IRS990/BooksInCareOfDetail/USAddress/CityNm0KATY
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0TX
IRS990/BooksInCareOfDetail/USAddress/ZIPCd077449
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOfficerEntInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CapStkTrPrinCurrentFundsGrp/BOYAmt00
IRS990/CapStkTrPrinCurrentFundsGrp/EOYAmt00
IRS990/CashNonInterestBearingGrp/BOYAmt0474794
IRS990/CashNonInterestBearingGrp/EOYAmt0600326
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0232451
IRS990/CYGrantsAndSimilarPaidAmt0150000
IRS990/CYInvestmentIncomeAmt0606
IRS990/CYOtherExpensesAmt0494152
IRS990/CYOtherRevenueAmt0136796
IRS990/CYProgramServiceRevenueAmt0458634
IRS990/CYRevenuesLessExpensesAmt0125186
IRS990/CYSalariesCompEmpBnftPaidAmt059149
IRS990/CYTotalExpensesAmt0703301
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0828487
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc0PROVIDE INFORMATION ABOUT CHARGE SYNDROME THROUGH PUBLICATION; PROVIDE SUPPORT TO FAMILIES WITH A CHARGE MEMBER; PROVIDE BIENNIAL CONFERENCES; SUPPORT RESEARCH RELATED TO CHARGE SYNDROME.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0676446
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt06341
IRS990/FeesForServicesOtherGrp/TotalAmt06341
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt065000
IRS990/ForeignGrantsGrp/TotalAmt065000
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt025.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt120.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt220.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt320.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt48.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt58.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt68.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt75.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt85.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt95.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/PersonNm0DAVID WOLFE
IRS990/Form990PartVIISectionAGrp/PersonNm1LISA WEIR
IRS990/Form990PartVIISectionAGrp/PersonNm2NEAL STANGER
IRS990/Form990PartVIISectionAGrp/PersonNm3BROWNIE SHOTT
IRS990/Form990PartVIISectionAGrp/PersonNm4PAMELA RYAN
IRS990/Form990PartVIISectionAGrp/PersonNm5AMRIT MEHTA
IRS990/Form990PartVIISectionAGrp/PersonNm6JOANNE LENT
IRS990/Form990PartVIISectionAGrp/PersonNm7KARIN DAGLEY
IRS990/Form990PartVIISectionAGrp/PersonNm8MINNIE LEE LAMBERT
IRS990/Form990PartVIISectionAGrp/PersonNm9CHRISTIAN LOBAUGH
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01993
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt011047
IRS990/FundraisingGrossIncomeAmt0147843
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantAmt0150000
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt085000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt085000
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0839534
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt010
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/ManagementAndGeneralAmt0157
IRS990/InsuranceGrp/ProgramServicesAmt02977
IRS990/InsuranceGrp/TotalAmt03134
IRS990/InvestmentIncomeGrp/ExclusionAmt0606
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0606
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt029430
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0PROVIDE INFORMATION ABOUT CHARGE SYNDROME THROUGH PUBLICATION; PROVIDE SUPPORT TO FAMILIES WITH A CHARGE MEMBER; PROVIDE BIENNIAL CONFERENCES; SUPPORT RESEARCH RELATED TO CHARGE SYNDROME.
IRS990/MoreThan5000KToIndividualsInd01
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0474230
IRS990/NetAssetsOrFundBalancesEOYAmt0599416
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0136796
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0136796
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01156
IRS990/OfficeExpensesGrp/ProgramServicesAmt03468
IRS990/OfficeExpensesGrp/TotalAmt04624
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrgDoesNotFollowSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0CONFERENCE
IRS990/OtherExpensesGrp/Desc1BANK FEES
IRS990/OtherExpensesGrp/Desc2EWRAP
IRS990/OtherExpensesGrp/Desc3BOARD MEETING
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt022511
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1586
IRS990/OtherExpensesGrp/ProgramServicesAmt0428468
IRS990/OtherExpensesGrp/ProgramServicesAmt114208
IRS990/OtherExpensesGrp/ProgramServicesAmt25278
IRS990/OtherExpensesGrp/TotalAmt0428468
IRS990/OtherExpensesGrp/TotalAmt122511
IRS990/OtherExpensesGrp/TotalAmt214208
IRS990/OtherExpensesGrp/TotalAmt35864
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt054814
IRS990/OtherSalariesAndWagesGrp/TotalAmt054814
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/ProgramServicesAmt04335
IRS990/PayrollTaxesGrp/TotalAmt04335
IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt08843
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01237
IRS990/PrincipalOfficerNm0BROWNIE SHOTT
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE
IRS990/ProgramServiceRevenueGrp/Desc1PUBLICATIONS AND PROMO
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0455251
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt13383
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0455251
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt13383
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0168315
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0165870
IRS990/PYInvestmentIncomeAmt01630
IRS990/PYOtherExpensesAmt054410
IRS990/PYOtherRevenueAmt0123125
IRS990/PYProgramServiceRevenueAmt03582
IRS990/PYRevenuesLessExpensesAmt019687
IRS990/PYSalariesCompEmpBnftPaidAmt056685
IRS990/PYTotalExpensesAmt0276965
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0296652
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0125186
IRS990/RegularMonitoringEnfrcInd00
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0458634
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt0474230
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt0599416
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0181451
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0168315
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0339281
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0313694
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0372202
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01374943
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt0606
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt01630
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt0102
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt0115
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt0114
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt02567
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt0458634
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt0140066
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0342542
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt0243652
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt01184894
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt0606
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt01630
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt0102
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt0115
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt0114
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt02567
IRS990ScheduleA/InvestmentIncomeCYPct00.00100
IRS990ScheduleA/InvestmentIncomePYPct00.00110
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.99900
IRS990ScheduleA/PublicSupportPY509Pct00.99830
IRS990ScheduleA/PublicSupportTotal509Amt02559837
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0640085
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0308381
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0681823
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0313694
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0615854
IRS990ScheduleA/Total509Grp/TotalAmt02559837
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0640691
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0310011
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0681925
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0313809
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0615968
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt02562404
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt0-11047
IRS990ScheduleD/ExpensesSubtotalAmt0714348
IRS990ScheduleD/OtherExpensesNotIncludedAmt0-11047
IRS990ScheduleD/OtherRevenueAmt011047
IRS990ScheduleD/RevenueNotReportedAmt011047
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0828487
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0FUNDRAISING EXPENSES 11,047.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1FUNDRAISING EXPENSES -11,047.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XII, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt0703301
IRS990ScheduleD/TotalRevenuePerForm990Amt0828487
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0839534
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0714348
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt030000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt135000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0ITALY
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1GERMANY
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0RESEARCH
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt1RESEARCH
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANTS
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1GRANTS
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt030000
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt135000
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt01
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt11
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt0ITALY
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt1GERMANY
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt0RESEARCH GRANT
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt1RESEARACH GRANT
IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc0CASH VALUE
IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc1CASH VALUE
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt065000
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalSpentAmt065000
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt011047
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0THON
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0UNBREAKABLE CHARGERS
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0110290
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt024360
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt013193
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0147843
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt0110290
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt024360
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt013193
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0147843
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0136796
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt011047
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt011047
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt06
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt085000
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0RESEARCH GRANT
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt02
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/ValuationMethodUsedDesc0CASH VALUE
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE BOARD IS PROVIDED A COPY OF FORM 990 FOR REVIEW BEFORE IT IS FILED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS ARE PROVIDED BY WRITTEN REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2DAVID WOLFE - 3021 CYPRUS CT, BUFFALO GROVE, IL 60089. LISA WEIR - 877 MOLLINS DRIVE, SAINT JOHN, CANADA, CANADA. NEAL STANGER - 45 LINCOLN AVE, HASTINGS ON HUDSON, NY 10706. BROWNIE SHOTT - 3502 WINDMOOR DR, KATY, TX 77449. PAMELA RYAN - 175 NORTH BEACON ST, WATERTOWN, MA 02472. AMRIT MEHTA - 110 HADSELL DRIVE, BLOOMFIELD, MI 48302. JOANNE LENT - 33 EDITH AVENUE, METUCHEN, NJ 08840. KARIN DAGLEY - 714 PLEASANT STREET, APT 1, WEYMOUTH, MA 02189. MINNIE LEE LAMBERT - 1910 EARLE ROAD, ANDREWS, SC 29510. CHRISTIAN LOBAUGH - 4005 EAST 46TH ST, TULSA, OK 74135.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VII CONTACT ADDRESSES FOR OFFICERS, DIRECTORS, ETC
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0NY
IRS990/SubjectToProxyTaxInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$601,563
Liabilities
$2,147
Net assets
$599,416
Revenue
$828,487
Expenses
$703,301
Net income
$125,186
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.72$0.10$1.62$0.54$0.54$0.00
2023Detailed filing. Detailed filing data is available for this year.$1.59$0.01$1.58$1.13$0.92$0.21
2022Detailed filing. Detailed filing data is available for this year.$1.43$0.09$1.35$0.50$0.36$0.15
2021Detailed filing. Detailed filing data is available for this year.$1.24$0.00$1.24$0.57$0.38$0.20
2020Detailed filing. Detailed filing data is available for this year.$1.08$0.06$1.01$0.43$0.26$0.17
2019Detailed filing. Detailed filing data is available for this year.$0.83$0.00$0.83$0.76$0.62$0.14
2018Detailed filing. Detailed filing data is available for this year.$0.67$0.01$0.66$0.37$0.30$0.08
2017Detailed filing. Detailed filing data is available for this year.$0.60$0.00$0.60$0.83$0.70$0.13
2016Detailed filing. Detailed filing data is available for this year.$0.48$0.01$0.47$0.30$0.28$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.46$0.00$0.46$0.70$0.69$0.01
2014Detailed filing. Detailed filing data is available for this year.$0.44$0.00$0.44$0.31$0.20$0.11
2013Detailed filing. Detailed filing data is available for this year.$0.33$0.00$0.33$0.62$0.58$0.04
2012Summary only. Only limited summary data is available for this year.$0.29$0.00$0.29$0.18$0.15$0.03
2011Summary only. Only limited summary data is available for this year.$0.26$0.00$0.26$0.39$0.43$0.03