Liabilities / Assets
49th percentile
Higher debt load relative to assets than 49% of similar nonprofits.
EIN 43-1642150 • 501(c)3 • Buffalo Grove, IL
Profile
We lead and partner to improve the lives of people with charge syndrome locally, nationally, and internationally through outreach, education, and research.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
49th percentile
Higher debt load relative to assets than 49% of similar nonprofits.
Liabilities / Revenue
65th percentile
Higher debt load relative to revenue than 65% of similar nonprofits.
Net Margin
36th percentile
Higher net margin than 36% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
61st percentile
Faster asset growth than 61% of similar nonprofits.
Revenue Growth
5th percentile
Faster revenue growth than 5% of similar nonprofits.
Assets
Up$1,718,691
Up $126,668 (+8.0%) from 2023
Liabilities
Up$102,854
Up $91,974 (+845%) from 2023
Net Assets
Up$1,615,837
Up $34,694 (+2.2%) from 2023
Revenue
Down$539,340
Down $588,423 (-52%) from 2023
Expenses
Down$544,100
Down $378,560 (-41%) from 2023
Net Income
Down-$4,760
Down $209,863 (-102%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
We lead and partner to improve the lives of people with charge syndrome locally, nationally, and internationally through outreach, education, and research.
Support individuals with charge syndrome through research, outreach, education, and conferences.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | $1,028,142 | $1,069,132 | ▲ $40,990 |
| Cash and Non-Interest-Bearing Accounts | $512,021 | $571,655 | ▲ $59,634 |
| Prepaid Expenses and Deferred Charges | $51,860 | $77,904 | ▲ $26,044 |
| Total Assets | $1,592,023 | $1,718,691 | ▲ $126,668 |
| Liabilities | |||
| Deferred Revenue | $1,606 | $99,768 | ▲ $98,162 |
| Accounts Payable and Accrued Expenses | $9,274 | $3,086 | ▼ $6,188 |
| Total Liabilities | $10,880 | $102,854 | ▲ $91,974 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,270,408 | $1,351,696 | ▲ $81,288 |
| Net Assets With Donor Restrictions | $310,735 | $264,141 | ▼ $46,594 |
| Total Net Assets Fund Balance | $1,581,143 | $1,615,837 | ▲ $34,694 |
| Total Liabilities and Net Assets / Fund Balance | $1,592,023 | $1,718,691 | ▲ $126,668 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Securities | $756,764 | - | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Lisa Cunningham | Executive Director | FT | $135,196 | $135,196 |
| Name | Title |
|---|---|
| Neal Stanger | President |
| Penni Echols | Vice President |
| Ben Daigle | Director |
| Lily Slavin | Director |
| Minnie Lee Lambert | Director |
| Sara Espanet | Director |
| Joanne Lent | Secretary |
| Amrit Mehta | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $248,689 |
| Grants and Similar Amounts Paid | $181,620 |
| Other Expenses | $113,791 |
| Total Fundraising Expense | $21,122 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $114,917 | $20,279 | - | $135,196 |
| Foreign Grants | $100,000 | - | - | $100,000 |
| Other Salaries and Wages | $73,726 | $13,011 | - | $86,737 |
| Grants to Domestic Individuals | $81,620 | - | - | $81,620 |
| Fees for Services Other | $6,153 | $6,153 | $8,913 | $21,219 |
| Insurance | $12,218 | $8,145 | - | $20,363 |
| Payroll Taxes | $15,149 | $2,673 | - | $17,822 |
| Pension Plan Contributions | $7,594 | $1,340 | - | $8,934 |
| All Other Expenses | $3,096 | $4,854 | $319 | $8,269 |
| Advertising | - | - | $7,930 | $7,930 |
| Conferences and Meetings | $6,668 | - | - | $6,668 |
| Other Expenses | $3,310 | $0 | $3,960 | $3,310 |
| Fees for Service Investment Mgmnt Fees | - | $3,309 | - | $3,309 |
| Office Expenses | $1,736 | $434 | - | $2,170 |
| Total Functional Expenses | $460,754 | $62,224 | $21,122 | $544,100 |
| Line Item | Amount |
|---|---|
| Total Expenses per Form 990 | $544,100 |
| Expenses per Audited Statements | $540,791 |
| Total Expenses per Audited Statements | $540,791 |
| Expenses Not Reported on Financial Statements | $3,309 |
| Other Expense Adjustments | $3,309 |
| Expenses Not Reported on Form 990 | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $198,320 |
| Fundraising Direct Expenses | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Charge Walk | $91,799 | $91,799 | - | $91,799 |
| Cifc | $89,269 | $89,269 | - | $89,269 |
| Total Events | $198,320 | $198,320 | - | $198,320 |
“The board is provided a copy of form 990 for review before it is filed.”
“The organization's governing documents, policies, and financial statements are provided by written request.”
“Penni echols - 4215 sharon lan circle, las vegas, nv 89129. Neal stanger - 45 lincoln avenue, hastings on hudson, ny 10706. Joanne lent - 33 edith avenue, metuchen, nj 08840. Amrit mehta - 1475 club dr, bloomfield hills, mi 48302. Ben daigle - 3 arrowwood drive, cromwell, ct 06461. Minnie lee lambert - 1910 earle rd, andrews, sc 29510. Lisa cunningham - po box 504, girard, ks 66743. Lily slavin - 215 edmund st, aberdeen, md 21001. Sara espanet - 117 dean rd, stoughton, ma 02072.”
“Investment expenses 3,309.”
“Investment expenses 3,309.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 9274 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 3086 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | SUPPORT INDIVIDUALS WITH CHARGE SYNDROME THROUGH RESEARCH, OUTREACH, EDUCATION, AND CONFERENCES. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 7930 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 7930 |
| IRS990/AllOtherContributionsAmt | 0 | 267623 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 319 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 4854 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 3096 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 8269 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 0 |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | AMRIT MEHTA |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3134071572 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1475 CLUB DR |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BLOOMFIELD HILLS |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MI |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 48302 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 512021 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 571655 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 20279 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 114917 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 135196 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 6668 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 6668 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 289907 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 181620 |
| IRS990/CYInvestmentIncomeAmt | 0 | 48824 |
| IRS990/CYOtherExpensesAmt | 0 | 113791 |
| IRS990/CYOtherRevenueAmt | 0 | 200609 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -4760 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 248689 |
| IRS990/CYTotalExpensesAmt | 0 | 544100 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 21122 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 539340 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 1606 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 99768 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | PROVIDE INFORMATION ABOUT CHARGE SYNDROME THROUGH PUBLICATION; PROVIDE SUPPORT TO FAMILIES WITH AN INDIVIDUAL WITH CHARGE; PROVIDE BIENNIAL CONFERENCES; SUPPORT RESEARCH RELATED TO CHARGE SYNDROME. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 310735 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 264141 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 4 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 460754 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 8913 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 6153 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 6153 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 21219 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 3309 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 3309 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 100000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 100000 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 8.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | NEAL STANGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | BEN DAIGLE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MINNIE LEE LAMBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | LISA CUNNINGHAM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | LILY SLAVIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | SARA ESPANET |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | PENNI ECHOLS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | JOANNE LENT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | AMRIT MEHTA |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 135196 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | TREASURER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1993 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 0 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 198320 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 187 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GrantAmt | 0 | 181620 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 81620 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 81620 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 273480 |
| IRS990/GrossReceiptsAmt | 0 | 812633 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 8145 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 12218 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 20363 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 48637 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 48637 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 1028142 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 1069132 |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | IL |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 273293 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembershipDuesAmt | 0 | 22284 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | WE LEAD AND PARTNER TO IMPROVE THE LIVES OF PEOPLE WITH CHARGE SYNDROME LOCALLY, NATIONALLY, AND INTERNATIONALLY THROUGH OUTREACH, EDUCATION, AND RESEARCH. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 1 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1581143 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1615837 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 187 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 187 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 198320 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 198320 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 39454 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1270408 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1351696 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 434 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1736 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 2170 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | BOARD MEETING |
| IRS990/OtherExpensesGrp/Desc | 1 | OUTREACH |
| IRS990/OtherExpensesGrp/Desc | 2 | SOFTWARE |
| IRS990/OtherExpensesGrp/Desc | 3 | WEBINAR |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 3960 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2026 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 18236 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 16331 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 3310 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 20262 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 16331 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 3960 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 3310 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS INCOME |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 2289 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 2289 |
| IRS990/OtherRevenueTotalAmt | 0 | 2289 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 13011 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 73726 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 86737 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2673 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 15149 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 17822 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 1340 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 7594 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 8934 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 51860 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 77904 |
| IRS990/PrincipalOfficerNm | 0 | NEAL STANGER |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 415746 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 66445 |
| IRS990/PYInvestmentIncomeAmt | 0 | 37533 |
| IRS990/PYOtherExpensesAmt | 0 | 611840 |
| IRS990/PYOtherRevenueAmt | 0 | 189939 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 484545 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 205103 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 244375 |
| IRS990/PYTotalExpensesAmt | 0 | 922660 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 1127763 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -4760 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 0 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 1 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 465943 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 379326 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 235930 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 334084 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 335115 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 1750398 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 48637 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 67413 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 13057 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 4163 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 8272 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 141542 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 484545 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 19209 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 503754 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 48637 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 67413 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 13057 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 4163 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 8272 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 141542 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.05910 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.03790 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.94090 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.96210 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 2254152 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 465943 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 863871 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 235930 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 353293 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 335115 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 2254152 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 514580 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 931284 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 248987 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 357456 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 343387 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 2395694 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 3309 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 540791 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 39454 |
| IRS990ScheduleD/OtherExpensesNotIncludedAmt | 0 | 3309 |
| IRS990ScheduleD/OtherRevenuesNotIncludedAmt | 0 | 3309 |
| IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt | 0 | 312368 |
| IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt | 1 | 756764 |
| IRS990ScheduleD/OtherSecuritiesGrp/Desc | 0 | EXCHANGE TRADED FUNDS |
| IRS990ScheduleD/OtherSecuritiesGrp/Desc | 1 | FIXED INCOME SECURITIES |
| IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd | 0 | F |
| IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd | 1 | F |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 39454 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 3309 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 536031 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | INVESTMENT EXPENSES 3,309. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | INVESTMENT EXPENSES 3,309. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART XI, LINE 4B - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XII, LINE 4B - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalBookValueSecuritiesAmt | 0 | 1069132 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 544100 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 539340 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 575485 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 540791 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | 0 |
| IRS990ScheduleF/ContinuationSpentAmt | 0 | 0 |
| IRS990ScheduleF/ContinuationTotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/ContinuationTotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | 0 |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt | 0 | 50000 |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt | 1 | 50000 |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt | 0 | 1 |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt | 1 | 1 |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt | 0 | UK |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt | 1 | CANADA |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt | 0 | RESEARCH GRANT |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt | 1 | RESEARCH GRANT |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc | 0 | FMV |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc | 1 | FMV |
| IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc | 2 | FMV |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | 0 |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | 0 |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | 0 |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | 0 |
| IRS990ScheduleF/SubtotalEmployeesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalOfficesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 0 |
| IRS990ScheduleF/TotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 0 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | CIFC |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | CHARGE WALK |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 89269 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 91799 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 17252 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 198320 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 89269 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 91799 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 17252 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 198320 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 198320 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 8 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 0 | 23184 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 1 | 29443 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 2 | 28793 |
No mirrored PDF or thumbnail assets are attached yet.